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GOLTC

GLOBAL
OBSERVATORY
OF LONG-TERM
CARE

Part of the International Long-Term Care Policy Network (ILPN)

 

javiera leniz

School of Public Health/Pontificia Universidad Católica de Chile

javiera leniz

Dr Javiera Leniz is Assistant Professor at the Public Health Department, Pontificia Universidad Católica in Chile. She completed her PhD at the Cicely Saunders Institute on the topic of use of primary and community healthcare services and transitions to hospital among people with dementia at the end of life. Her research interests include the quality of end-of-life care and the use of Big Data for palliative care research. She is working with the Ministry of Health to estimate the palliative care service demand in Chile.

 

FURTHER INFORMATION

Countries Chile;
Topics Access to care; Care inequalities; Care outcomes; Data science; Dementia care and support; End-of-life care and LTC; Epidemiology and ageing trajectories; Healthcare access in LTC; Quality of care;
Methods Analysis of administrative data; Data science and LTC research; Delphi surveys; Longitudinal data analysis; Observational studies; Quantitative data analysis;
Role Research;
Interest Groups Community-based approaches to dementia care; Quality improvement in Long-Term Care;
Websitehttps://medicina.uc.cl/persona/dra-javiera-leniz-m/
ORC.ID0000-0002-9315-4871
X (Twitter)https://x.com/jlenizmartelli
Key publications

Leniz J, Domínguez A, Bone AE, Etkind S, Perez-Cruz PE, Sleeman KE. Past trends and future projections of palliative care needs in Chile: analysis of routinely available death registry and population data. BMC Med. 2024 Sep 2;22(1):350. doi: 10.1186/s12916-024-03570-1.

Leniz J, Davies JM, Bone AE, Hocaoglu M, Verne J, Barclay S, Murtagh FEM, Fraser L, Higginson IJ, Sleeman KE. Deaths at home, area-based deprivation and the effect of the Covid-19 pandemic: an analysis of mortality data across four nations. Palliat Med. 2023 Apr 23:2692163231167212. doi: 10.1177/02692163231167212.

Williamson LE, Leniz J, Chukwusa E, Evans C, Sleeman KE. A population-based retrospective cohort study of end-of-life emergency department visits by people with dementia: Multilevel modelling of individual- and service-level factors using linked data. Age Ageing. 2023 Mar 1;52(3):afac332. doi: 10.1093/ageing/afac332.

Leniz J, Henson LA, Potter J, et al. Association of primary and community care services with emergency visits and hospital admissions at the end of life in people with cancer: a retrospective cohort study. BMJ Open 2022; 12: e054281. 2022/02/25. DOI: 10.1136/bmjopen-2021-054281.

Leniz J, Gullifiord M, Higginson I, et al. Association between primary care contacts, continuity of care and identification of palliative care needs with hospital utilization among people dying with dementia: a population-based cohort study. British Journal of General Practice 2022: BJGP.2021.0715. DOI: 10.3399/BJGP.2021.0715.

Leniz J, Evans CJ, Yi D, et al. Formal and Informal Costs of Care for People With Dementia Who Experience a Transition to Hospital at the End of Life: A Secondary Data Analysis. J Am Med Dir Assoc 2022 2022/07/13. DOI: 10.1016/j.jamda.2022.06.007.

Leniz J, Yi D, Yorganci E, Williamson LE, Suji T, Cripps R, Higginson IJ, Sleeman KE. Exploring costs, cost components and associated factors among people with dementia approaching the end of life: a systematic review. Alzheimer’s Dement. 2021; 7:e12198.

Yorganci E, Sampson EL, Gillam J, Aworinde J, Leniz J, Williamson LE, Cripps RL, Stewart R, Sleeman KE. Quality indicators for dementia and older people nearing the end of life: A systematic review. J Am Geriatr Soc. 2021.

Thoms L, Evans CJ, Cripps RL, Leniz J, Yorganci E, Sleeman KE. Factors Associated With Emergency Department Visits by People With Dementia Near the End of Life: A Systematic Review. J Am Med Dir Assoc. 2021.

Leniz J, Higginson IJ, Yi D, Ul-Haq Z, Lucas A, Sleeman KE. Identification of palliative care needs among people with dementia and its association with acute hospital care and community service use at the end-of-life: A retrospective cohort study using linked primary, community and secondary care data. Palliat Med. 2021:2692163211019897.

Johnson H, Davies JM, Leniz J, Chukwusa E, Markham S, Sleeman KE. Opportunities for public involvement in big data research in palliative and end-of-life care. Palliat Med. 2021:2692163211002101.

Dittborn M, Turrillas P, Maddocks M, Leniz J. Attitudes and preferences towards palliative and end of life care in patients with advanced illness and their family caregivers in Latin America: A mixed studies systematic review. Palliative Medicine. 2021:02692163211029514.

Leniz J, Weil A, Higginson IJ, Sleeman KE. Electronic palliative care coordination systems (EPaCCS): a systematic review. BMJ Support Palliat Care. 2020;10(1):68-78.

Bone AE, Finucane AM, Leniz J, Higginson IJ, Sleeman KE. Changing patterns of mortality during the COVID-19 pandemic: Population-based modelling to understand palliative care implications. Palliat Med. 2020;34(9):1193-1201.

Pantoja T, Grimshaw JM, Colomer N, Castañon C, Leniz Martelli J. Manually-generated reminders delivered on paper: effects on professional practice and patient outcomes. Cochrane Database Syst Rev. 2019;12(12):Cd001174.

Leniz J, Higginson IJ, Stewart R, Sleeman KE. Understanding which people with dementia are at risk of inappropriate care and avoidable transitions to hospital near the end-of-life: a retrospective cohort study. Age Ageing. 2019;48(5):672-679.

Leniz J, Gulliford MC. Continuity of care and delivery of diabetes and hypertensive care among regular users of primary care services in Chile: a cross-sectional study. BMJ Open. 2019;9(10):e027830.

Davies JM, Sleeman KE, Leniz J, et al. Socioeconomic position and use of healthcare in the last year of life: A systematic review and meta-analysis. PLoS Med. 2019;16(4):e1002782.

Sleeman KE, Leniz J, Higginson IJ, Bristowe K. Is end-of-life care a priority for policymakers? Qualitative documentary analysis of health care strategies. Palliat Med. 2018;32(9):1474-1486.

Leniz J, Van De Wyngard V, Lagos M, Barriga MI, Pushel K, Ferreccio C. Early detection of cervical cancer in Chile: time for change. Rev Med Chil. 2014;142(8):1047-55.

Léniz J, Barriga MI, Lagos M, Ibáñez C, Puschel K, Ferreccio C. HPV vaginal self-sampling among women non-adherent to Papanicolaou screening in Chile. Salud Publica Mex. 2013;55(2):162-169.