“I never planned for it”—Exploration of expectations about caring for older parents

De Poli, C., Wittenberg, R., Rehill, A., Stevens, M., & Brimblecombe, N. (2024). “I never planned for it”—Exploration of expectations about caring for older parents. Social Policy & Administration, 1–20. https://doi.org/10.1111/spol.13030

Unpaid caregiving and mental health during the COVID-19 pandemic—A systematic review of the quantitative literature

Ervin J, Fleitas Alfonzo L, Taouk Y, Maheen H, King T. Unpaid caregiving and mental health during the COVID-19 pandemic-A systematic review of the quantitative literature. PLoS One. 2024 Apr 18;19(4):e0297097. doi: 10.1371/journal.pone.0297097. PMID: 38635604; PMCID: PMC11025839.

Long-term care system profile: Finland

Forma L. and Leinonen E. (2024) Long-term care system profile: Finland. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/finland

‘Letting it be’: a grounded theory about dementia care in Fiji

Johnston, K., Qaloewai, S., Rasavuka, T., Preston, R., Strivens, E., & Larkins, S. (2024). ‘Letting it be’: a grounded theory about dementia care in Fiji. Aging & Mental Health, 1–11. https://doi.org/10.1080/13607863.2024.2340737

Costs of care trajectories of people with dementia compared with matched controls. Longitudinal analysis of linked health and administrative data

Bosmans JE, van der Heide I, van Hout HPJ, Joling KJ. Costs of care trajectories of people with dementia compared with matched controls. Longitudinal analysis of linked health and administrative data. Int J Geriatr Psychiatry. 2024 May;39(5):e6094. doi:

Critical Discourse Analysis (CDA)

Kendrick, H. and De-Poli, C. (2024) Critical Discourse Analysis (CDA). GOLTC Methods Guide series, 2. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/publications/critical-discourse-analysis-cda/

Long-Term Care System Profile: Austria

Famira-Mühlberger U. and Österle A. (2024) Long-Term Care System Profile: Austria. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/austria

Long-Term Care System Profile: China (mainland)

Ping, R. and Hu, B. (2024) Long-term care system profile: mainland China. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/china-mainland/ 

Informal care and financial stress: Longitudinal evidence from Australia

Koomson, I., Lenzen, S., & Afoakwah, C. (2024). Informal care and financial stress: Longitudinal evidence from Australia. Stress and health : journal of the International Society for the Investigation of Stress, e3393. Advance online publication. https://doi.org/10.1002/smi.3393

Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing

Laurie E Davies, Gemma F Spiers, David R Sinclair, Andrew Kingston, Barbara Hanratty (2024) Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing, Age and Ageing, Volume 53, Issue 3, March, afae049, https://doi.org/10.1093/ageing/afae049

The impact of reducing formal care benefits on caregivers’ well-being: evidence from Japan

Fu, R., Le, D.D. & Ibuka, Y. The impact of reducing formal care benefits on caregivers’ well-being: evidence from Japan. Rev Econ Household (2024). https://doi.org/10.1007/s11150-024-09699-5

Long-Term Care System Profile: Brazil

Wachholz P.A., Caldeira de Melo R., Fortes Villas Boas P.J., Accioly R.C. Domingues M., Giacomin K.C. (2024) Long-Term Care System Profile: Brazil. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/brazil

The impact of formal care provision on informal care receipt for people over 75 in England

Citation: Saloniki E-C, Nizalova O, Malisauskaite G, Forder J (2024) The impact of formal care provision on informal care receipt for people over 75 in England. PLoS ONE 19(2): e0297157. https://doi.org/10.1371/journal.pone.0297157

From Restricted Resources to Ethical Burden—Former Home Care Workers’ Reasons for Leaving Their Jobs

Ring, M., Ristolainen, H., & Tiilikainen, E. (2024). From Restricted Resources to Ethical Burden—Former Home Care Workers’ Reasons for Leaving Their Jobs. Journal of Applied Gerontology, 0(0). https://doi.org/10.1177/07334648241231404

Older Persons, Care Needs & Social Grants in South Africa Report

Analysis of the impact of COVID-19 on Scotland’s care-homes from March 2020 to October 2021: national linked data cohort analysis

Jennifer Kirsty Burton, Megan McMinn, James E Vaughan, Glenna Nightingale, Jacques Fleuriot, Bruce Guthrie, Analysis of the impact of COVID-19 on Scotland’s care-homes from March 2020 to October 2021: national linked data cohort analysis, Age and Ageing, Volume 53, Issue 2, February 2024, afae015, https://doi.org/10.1093/ageing/afae015

Our member Jenni Burton, with colleagues from the University of Glasgow, Advanced Care Research Centre and the University of Edinburgh has published new research in Age and Ageing describing the patterns of COVID-19 outbreaks in Scotland’s care homes, beyond the first wave of infections. The paper, available open access from: https://doi.org/10.1093/ageing/afae015, includes analysis on a total of 1,313 outbreaks involving residents from March 2020 to October 2021.

The COVID-19 mortality rate per 1,000 beds fell from 45.8 in March to August 2020 (wave 1) to 29.3 in September 2020 to May 2021 (wave 2). After roll-out of vaccination, outbreaks involve a much smaller number of people and are shorter in duration, with the COVID-19 mortality rate falling to 3.5 per 1,000 beds in June to October 2021.

The analysis shows the consistently elevated risks associated with living in larger care homes, although the risk reduces as the pandemic progresses and epidemiology of the virus evolves. Similarly, the community prevalence of COVID-19 infections in the local authority area where the care home was located was associated with increased risk of outbreak.

Future pandemic planning has to take better account of the care sector and involve residents, families and carers. A critical gap remains that data about people living in care homes is limited, making them relatively invisible to policy. As well as clinical interventions like infection control, we need to better understand how building design and ventilation influences infection risk, and how to balance infection risk against creating a homely environment for residents to live in.

This research required time-consuming data management to link disparate health and social care datasets. Despite recognising the potential value of such data, the researchers point out this continues to be significantly challenging across all UK countries, and the topic of data featured heavily in the Scottish evidence sessions to the UK COVID-19 Inquiry. In particular, the data gaps around understanding the population living in care homes and the impact this had on the initial pandemic response remain of concern. There is a need for a unified approach to improving national data about people living in care homes across the UK, with benefits to be realised in the everyday organisation of health and care services to support them.

Programa Maior Cuidado: An Integrated Community-Based Intervention on Care for Older People

Lloyd-Sherlock P, Giacomin KC, Carvalho PF and Sempe L. (2024) Programa Maior Cuidado: An Integrated Community-Based Intervention on Care for Older People. Inter-American Development Bank, Social Protection and Health Division. VI Series.

Difference-in-Differences approach

Saluja, S. and Cartagena-Farias, J. (2024) Difference-in-Differences approach. GOLTC Methods Guide series, 1.Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/publications/difference-in-differences-approach

The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands

Elayan, S., Angelini, V., Buskens, E. et al. The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands. Eur J Health Econ (2024). https://doi.org/10.1007/s10198-023-01666-8

Scaling-up an evidence-based intervention for family carers of people with dementia: Current and future costs and outcomes

Knapp M, Lorenz-Dant K, Walbaum M, Comas-Herrera A, Cyhlarova E, Livingston G and Wittenberg R. Scaling-up an evidence-based intervention for family carers of people with dementia: current and future costs and outcomes. Int J Geriatr Psychiatry. 2024;e6059. https://doi.org/10.1002/gps.6059

The impact of the implementation of a national policy on dementia on healthcare costs in older patients with dementia in Korea: a quasi-experimental difference-in-difference study

Choi, M., Kim, W., Moon, J.Y., Shin,J. (2024) The impact of the implementation of a national policy on dementia on healthcare costs in older patients with dementia in Korea: a quasi-experimental difference-in-difference study. The Lancet Regional Health – Western Pacific, Volume 44. https://doi.org/10.1016/j.lanwpc.2024.101010.

The association between loneliness, social isolation, and sleep disturbances in older adults: A follow-up study from the Swedish good aging in Skåne project

Ekström H, Svensson M, Elmståhl S, Wranker LS. The association between loneliness, social isolation, and sleep disturbances in older adults: A follow-up study from the Swedish good aging in Skåne project. SAGE Open Medicine. 2024;12. doi:10.1177/20503121231222823

Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours

Elliott, J., Francetic, I., Meacock, R. et al. Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours. Appl Health Econ Health Policy (2024). https://doi.org/10.1007/s40258-023-00843-3

Environmental data monitoring and infection risks in UK care-homes in the context of COVID-19

Kishwer Abdul Khaliq, Sara Mohamad, Alexander J. Edwards, Catherine Noakes, Andrew H. Kemp, Carl Thompson, Grainne McGill, Tim Sharpe. Environmental data monitoring and infection risks in UK care-homes in the context of COVID-19, Building and Environment, 2024, 111174, ISSN 0360-1323,
https://doi.org/10.1016/j.buildenv.2024.111174.

Long-Term Care in Mexico: Identifying Challenges and Future Strategies

López-Ortega, M. Long-Term Care in Mexico: Identifying Challenges and Future Strategies, Public Policy & Aging Report, 2024;, prad037, https://doi.org/10.1093/ppar/prad037

Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria

Juliet Chigozie Donatus Ezulike, Shiyu Lu, Marcus Yu Lung Chiu, Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria, Innovation in Aging, Volume 8, Issue 4, 2024, igad140, https://doi.org/10.1093/geroni/igad140

Assessing the impact of caregiving for older parents on caregivers’ health: Initial health status and trajectories of physical and mental health among midlife caregivers for parents and parents-in-law in Britain

Zueras, P. & Grundy, E. (2023) Assessing the impact of caregiving for older parents on caregivers’ health: Initial health status and trajectories of physical and mental health among midlife caregivers for parents and parents-in-law in Britain, Social Science & Medicine. https://doi.org/10.1016/j.socscimed.2023.116537.

Research ethics and collaborative research in health and social care: Analysis of UK research ethics policies, scoping review of the literature, and focus group study

De Poli C, Oyebode J (2023) Research ethics and collaborative research in health and social care: Analysis of UK research ethics policies, scoping review of the literature, and focus group study. PLoS ONE 18(12): e0296223. https://doi.org/10.1371/journal.pone.0296223

The Economic Cost of Unpaid Care to the Public Finances: Inequalities in Welfare Benefits, Forgone Earnings-related Tax Revenue, and Health Service Utilisation.

Cartagena-Farias J, Brimblecombe N. The Economic Cost of Unpaid Care to the Public Finances: Inequalities in Welfare Benefits, Forgone Earnings-related Tax Revenue, and Health Service Utilisation. Social Policy and Society. 2023:1-15. doi:10.1017/S1474746423000477

Long-Term Care System Profile: Sweden

Johansson L. (2023) Long-Term Care System Profile: Sweden. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/sweden/

Projected costs of informal care for older people in England

Hu, B., Cartagena-Farias, J., Brimblecombe, N., Jadoolal S. and Wittenberg R. Projected costs of informal care for older people in England. European Journal of Health Economics (2023). https://doi.org/10.1007/s10198-023-01643-1

Effectiveness of an educational intervention to increase professional nurses’ person-centred care competence in long-term care of older people—Quasi-experimental study

Pakkonen, M., Stolt, M., Edvardsson, D., Charalambous, A., Pasanen, M., & Suhonen, R. (2023). Effectiveness of an educational intervention to increase professional nurses’ person-centred care competence in long-term care of older people-Quasi-experimental study. Scandinavian journal of caring sciences. https://doi.org/10.1111/scs.13230

Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment

Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment. This study examines the effects of subsidising home-based long-term care on recipient health and their working-age children’s labor supply. It makes use of comprehensive administrative data from Israel’s Social Security Administration, encompassing welfare benefit applications from 2010 to 2015.

Ofek-Shanny, Yuval and Strulov-Shlain, Avner and Zeltzer, Dan, Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment (October 24, 2023). University of Chicago, Becker Friedman Institute for Economics Working Paper No. 2023-139, Available at SSRN: https://ssrn.com/abstract=4611846 or http://dx.doi.org/10.2139/ssrn.4611846

Enabling health and maintaining independence for older people at home (HomeHealth trial): a multicentre randomised controlled trial

Enabling health and maintaining independence for older people at home (HomeHealth trial). HomeHealth is a new home-based, manualised voluntary sector service supporting older people with mild frailty to maintain their independence through behaviour change.

Frost, R., Avgerinou, C., Kalwarowsky, S., Mahmood, F., Goodman, C., Clegg, A., Hopkins, J., Gould, R., Gardner, B., Marston, L., Hunter, R., Kharicha, K., Cooper, C., Skelton, D. A., Drennan, V., Logan, P., & Walters, K. (2023). Enabling health and maintaining independence for older people at home (HomeHealth trial): a multicentre randomised controlled trial. Lancet (London, England), 402 Suppl 1, S42. https://doi.org/10.1016/S0140-6736(23)02071-8

Canada’s Care Economy: A Conceptual Framework

Wray, D., Badets, J., Keating, N. and Fast, J. (2023) Canada’s Care Economy: a Conceptual Framework. Statistics Canada. https://www150.statcan.gc.ca/n1/pub/89-652-x/89-652-x2023002-eng.htm

Housing America’s Older Adults

Housing America’s Older Adults: Increased government support in the form of additional assistance for rent, accessibility modifications, and services and supports for older households with lower incomes could help alleviate the dual burden of housing and care costs. Better coordination of health and housing programs could help increase the efficiency of both.

Housing America’s Older Adults (2023) Joint Center for Housing Studies of Harvard University Harvard Graduate School of Design | Harvard Kennedy School.

Country Differences in Long-Term Care Institutions: Towards a Care Regime Typology

Using Latent Profile Analyses to identify different typologies of care regimes.

van Damme, Maike & Spijker, Jeroen, 2023. “Country Differences in Long-Term Care Institutions: Towards a Care Regime Typology,” OSF Preprints xcjaq, Center for Open Science. https://doi.org/10.31219/osf.io/xcjaq

Measuring social protection for Long-Term Care

Llena-Nozal A. and Killmeier K (2023) Measuring social protection for Long-Term Care. OEDCD Policy Brief. Mutual learning workshop on adequate social protection in long-term care.

Caring For Carers?

Caring For Carers? The Effect of Public Subsidies on the Well-Being. Evaluating a Scottish reform using a differences-in-differences (DiD) approach.

Joan Costa-Font, Francesco D’Amico and Cristina Vilaplana-Prieto, 2023. “Caring For Carers?,” American Journal of Health Economics, University of Chicago Press, vol. 9(4), pages 487-522. https://www.journals.uchicago.edu/doi/abs/10.1086/723539 

Mental and physical health changes around transitions into unpaid caregiving in the UK

Mental and physical health changes around transitions into unpaid caregiving in the UK: a longitudinal, propensity score analysis.

Lacey, R., Xue, B., Di Gessa, G., Lu, W., McMunn, A. (2023) Mental and physical health changes around transitions into
unpaid caregiving in the UK: a longitudinal, propensity score analysis. The Lancet Public Health. November https://www.thelancet.com/journals/lanpub/article/PIIS2468-2667(23)00206-2/fulltext

Research in Dementia Map (RESIDE)

Research in dementia mapping (2023) RESIDE. Available at: https://dementiamap.uk/

The Long-Term Impacts of an Integrated Care Programme on Hospital Utilisation among Older Adults in the South of England: A Synthetic Control Study

The Long-Term Impacts of an Integrated Care Programme on Hospital Utilisation among Older Adults in the South of England: A Synthetic Control Study.

Seamer, P., Lloyd, T., Conti, S., & O’Neill, S. (2023). The Long-Term Impacts of an Integrated Care Programme on Hospital Utilisation among Older Adults in the South of England: A Synthetic Control Study. International journal of integrated care, 23(3), 10. https://doi.org/10.5334/ijic.6475

Long-Term Care of older persons and persons with disabilities in the Western Balkans

This report provides a comparative overview of the condition of long-term care systems in the Western Balkans and provides insights to develop recommendations to strengthen Long-Term Care in the Western Balkans. It was developed as part of a three-year programme in the Western Balkans region entitled “Strengthening the resilience of older people and people with disabilities during COVID-19 and future disasters” coordinated by the Serbian Red Cross and covering Serbia, Albania, Bosnia and Herzegovina, Montenegro, Northern Macedonia and Kosovo and was funded by the European Union, the Austrian Development Agency and the Austrian Red Cross.

A summary of this report is also available here and as a video: Pristup uslugama dugotrajne nege u Srbiji – YouTube

Božidar Dakić, Tijana Veljković, Olivera Vuković, Nataša Todorović and Milutin Vračević (2023) Long-Term Care of older persons and persons with disabilities in the Western Balkans. Red Cross of Serbia. long-term-care-of-older-persons-and-persons-with-disabilities-in-the-western-balkans.pdf (redcross.org.rs)

Investigating community-based care service factors delaying residential care home admission of community dwelling older adults and cost consequence

The role of primary health care in long-term care facilities during the COVID-19 pandemic in 30 European countries: a retrospective descriptive study (Eurodata study)

Guisado-Clavero, M., Ares-Blanco, S., Serafini, A., Del Rio, L., Larrondo, I., Fitzgerald, L., . . . Gómez Bravo, R. (2023). The role of primary health care in long-term care facilities during the COVID-19 pandemic in 30 European countries: A retrospective descriptive study (Eurodata study). Primary Health Care Research & Development, 24, E60. doi:10.1017/S1463423623000312

Does informal care delay nursing home entry? Evidence from Dutch linked survey and administrative data

Does informal care delay nursing home entry? Evidence from the Netherlands using Propensity Score Matching.

Bergeot, J. & Tenand, M. (2023) Does informal care delay nursing home entry? Evidence from Dutch linked survey and administrative data, Journal of Health Economics, Volume 92, https://doi.org/10.1016/j.jhealeco.2023.102831.

Communicating the findings of long-term care research using interactive maps

Interactive maps can be a compelling and intuitive way to display geographic variation in your data. But presenting data visually means making choices.

In long-term care, spending or demographic information is often reported at the administrative level. In this blog post Sam Rickman (Care Policy and Evaluation Centre, LSE) sets out practical ways to make maps and cartograms using R and JavaScript, highlighting benefits and drawbacks of competing approaches.

Interactive maps and cartograms with R and Javascript, by Sam Rickman

Older Persons and Community Care in South Africa Report

This report provides evidence on how families interact with services, policies, and infrastructures of care at the community level. It presents four key areas of discussion which focussed on 1) experiences of family care, 2) challenges of family care, 3) support services available and 4)support services needed. The authors provide recommendations regarding adjustments to policies and services that can better support family caregiving.

Moore, Elena; Kelly, Gabrielle (2023). Older Persons and Community Care in South Africa Report. University of Cape Town. Report. https://doi.org/10.25375/uct.24146409.v4

Funding Elder Care in South Africa Report

Report examining funding for care for older people in South Africa

Moore, Elena; Kelly, Gabrielle (2023). Funding Elder Care in South Africa Report. University of Cape Town. Report. https://doi.org/10.25375/uct.24146772.v3

Priorities for day centre support and research, and the importance of centralised supportive information for day centres and their stakeholders

Orellana, K., Samsi, K., Manthorpe, J., & Emmer De Albuquerque Green, C. (2023). Priorities for day centre support and research, and the importance of centralised supportive information for day centres and their stakeholders. International Journal of Care and Caring. https://doi.org/https://bristoluniversitypressdigital.com/view/journals/ijcc/aop/article-10.1332-239788221X16917415568825/article-10.1332-239788221X16917415568825.xml

Listening and learning: a qualitative study of Scottish care home staff experiences of managing COVID-19 between March 2020-August 2022

Burton, J.K., Drummond, M., Gallacher, K.I. et al. Listening and learning: a qualitative study of Scottish care home staff experiences of managing COVID-19 between March 2020-August 2022. BMC Geriatr 23, 544 (2023). https://doi.org/10.1186/s12877-023-04251-z 

Older People’s Health and Long-Term Care During COVID-19: Impacts and Policy Responses

Kim, H. (2023) Older People’s Health and Long-Term Care During COVID-19: Impacts and Policy Responses. Republic of Korea – World Bank Group Partnership On COVID-19 Preparedness and Response. https://openknowledge.worldbank.org/server/api/core/bitstreams/8e335a4e-df73-4f18-ae44-bbfef9e48a12/content 

The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia)

Bhatt, J., Brohan, E., Blasco, D., Oliveira, D., Bakolis, I., Comas-Herrera, A., D’Amico, F., Farina N., Knapp M., Stevens M., Thornicroft G., Wilson E., Salcher-Konrad M., Yang L.H and Evans-Lacko, S. (2023). The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia). BJPsych Open, 9(5), E164. doi:10.1192/bjo.2023.551

The Economics of Long-Term Care

Bell D.N.F. and Lemmon E. (2023) The Economics of Long-Term Care. Chapter in: Bloom, D.E., Sousa-Poza, A., & Sunde, U. (Eds.). (2023). The Routledge Handbook of the Economics of Ageing (1st ed.). Routledge. https://doi.org/10.4324/9781003150398

Long-Term Care System Profile: Japan

Ping, R. and Oshio T. (2023) Long-Term Care System Profile: Japan. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/japan/

Unpaid Work In Nursing Homes: Flexible Boundaries (open access book)

Armstrong, P. (editor) (2023) Unpaid work in nursing homes: Flexible boundaries. S.l.: POLICY PRESS. https://policy.bristoluniversitypress.co.uk/unpaid-work-in-nursing-homes

Family spillovers and long-term care insurance

N.B. Coe, G. Goda, C.H. Van Houtven, Family spillovers and long-term care insurance, Journal of Health Economics, Volume 90, 2023, 102781, https://doi.org/10.1016/j.jhealeco.2023.102781.

How Stories Can Contribute Toward Quality Improvement in Long-Term Care

Katya Y J Sion, Marjolijn Heerings, Marije Blok, Aukelien Scheffelaar, Johanna M Huijg, Gerben Westerhof, Anne Margriet Pot, Katrien Luijkx, Jan P H Hamers, How Stories Can Contribute Toward Quality Improvement in Long-Term Care, The Gerontologist, Volume 64, Issue 4, April 2024, gnad084, https://doi.org/10.1093/geront/gnad084

“This Government is Failing Me Too” South Africa Compounds Legacy of Apartheid for Older People

Sleap, B. (2023, August 7). “This government is failing me too.” Human Rights Watch. https://www.hrw.org/report/2023/06/27/government-failing-me-too/south-africa-compounds-legacy-apartheid-older-people

Long-Term Care System Profile: Greece

Karagiannidou, M. (2023) Long-Term Care System Profile: Greece. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/greece/

Acute hospital use in older adults following the 2015 Dutch reform of long-term care: an interrupted time series analysis

Wammes, J., Bakx, P., Wouterse, B., Buurman, B., Murphy, T, & MacNeil Vroomen, J. (2023). Acute hospital use in older adults following the 2015 Dutch reform of long-term care: an interrupted time series analysis. The Lancet Health Longevity, 4(6), e257-e264.  

Hacia la personalización de los cuidados y los apoyos en el marco del sistema de atención a la dependencia

Comas, D, Sancho,M et al ( 2023). Hacia la personalización de los cuidados y los apoyos en el marco del sistema de atención a la dependencia. Zerbitzuan. nº 79.  https://www.zerbitzuan.net/documentos/zerbitzuan/Hacia_la_personalizacion_de_los_cuidados_apoyos_dependencia.pdf

Outcome measures from international older adult care home intervention research: a scoping review

Sarah Kelly, Andy Cowan, Gizdem Akdur, Lisa Irvine, Guy Peryer, Silje Welsh, Stacey Rand, Iain A Lang, Ann-Marie Towers, Karen Spilsbury, Anne Killett, Adam Lee Gordon, Barbara Hanratty, Liz Jones, Julienne Meyer, Claire Goodman, Jennifer Kirsty Burton, Outcome measures from international older adult care home intervention research: a scoping review, Age and Ageing, Volume 52, Issue 5, May 2023, afad069, https://doi.org/10.1093/ageing/afad069

Long-Run Consequences of Informal Elderly Care and Implications of Public Long-Term Care Insurance

Korfhage, Thorben and Fischer, Bjoern, Long-Run Consequences of Informal Elderly Care and Implications of Public Long-Term Care Insurance. IZA Discussion Paper No. 16124, Available at SSRN: https://ssrn.com/abstract=4447085 or http://dx.doi.org/10.2139/ssrn.4447085

Early onset of care needs in the older population: The protective role of housing conditions

Cartagena-Farias J., Brimblecombe N., Hu B. (2023) Early onset of care needs in the older population: the protective role of housing conditions. Health & Place. Vol 81, May 2023, 103007. https://doi.org/10.1016/j.healthplace.2023.103007

Family Caregivers in Israel: Analysis, Characterization, and Impact on the Labor Market

Arazi, R.,  Bental, B., and  Davidovitch, N. (2023) Family Caregivers in Israel: Analysis, Characterization, and Impact on the Labor Market. Taub Center for Social Policy Studies in Israel.

Also available in Hebrew.

Regional network-building for complexity: A region-oriented policy response to increasing and varied demands for older person care in the Netherlands

van der Woerd, O., Wallenburg, I., van der Scheer, W., & Bal, R. (2023). Regional network-building for complexity: A region-oriented policy response to increasing and varied demands for older person care in the Netherlands. Public Administration, 1–18. https://doi.org/10.1111/padm.12931

Practical thematic analysis: a guide for multidisciplinary health services research teams engaging in qualitative analysis

Saunders C H, Sierpe A, von Plessen C, Kennedy A M, Leviton L C, Bernstein S L et al. Practical thematic analysis: a guide for multidisciplinary health services research teams engaging in qualitative analysis BMJ 2023; 381 :e074256 doi:10.1136/bmj-2022-074256

Registered care home managers’ experiences of responding to the national care home visiting guidance in England during the Covid-19 pandemic; a multi-method qualitative study

Dixon, J., Lorenz-Dant, K., Stubbs, E. et al. Registered care home managers’ experiences of responding to the national care home visiting guidance in England during the Covid-19 pandemic; a multi-method qualitative study. BMC Geriatr 23, 236 (2023). https://doi.org/10.1186/s12877-023-03935-w

Technology and homecare in the UK: Policy, storylines and practice

Hamblin, K., Burns, D., & Goodlad, C. (2023). Technology and homecare in the UK: Policy, storylines and practice. Journal of Social Policy, 1-17. doi:10.1017/S0047279423000156

Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study

Kritika Samsi, Katharine Orellana, Laura Cole & Jill Manthorpe (2023) Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study, Aging & Mental Health, 27:10, 1946-1955, DOI: 10.1080/13607863.2023.2196254

The Impact of Wages on Care Home Quality in England

Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia

Kabelenga, I. (2023). Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia. International Journal of Care and Caring, 7(2), 326-342. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16770625208518

Family care of older people in Southern Africa. Special issue editorial

Moore, E., & Price, D. (2023). Family care of older people in Southern Africa. Special issue editorial. International Journal of Care and Caring, 7(2), 201-211. Retrieved Apr 5, 2024, from https://doi.org/10.1332/239788221X16770613505728

Effects of a financial incentive scheme for dementia care on medical and long-term care expenditures: A propensity score–matched analysis using LIFE study data

Kawabata J, Fukuda H (2023) Effects of a financial incentive scheme for dementia care on medical and long-term care expenditures: A propensity score–matched analysis using LIFE study data. PLoS ONE 18(3): e0282965. https://doi.org/10.1371/journal.pone.0282965

Situating masculinity, labour migration and care over the life course in Lesotho: foregrounding survivor bias in researching care

Vera-Sanso, P., & Hlabana, T. (2023). Situating masculinity, labour migration and care over the life course in Lesotho: foregrounding survivor bias in researching care. International Journal of Care and Caring, 7(2), 248-264. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16758785615441

Development of a long-term care economy in Gauteng, South Africa: towards decent work

Gie, L., & Hoffman, J. (2023). Development of a long-term care economy in Gauteng, South Africa: towards decent work. International Journal of Care and Caring, 7(2), 373-378. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16752685979364

Equitable, sustainable and acceptable long-term care in Malawi? Unpacking the implied universalism of key terms in international ageing policy discourse

Freeman, E. (2023). Equitable, sustainable and acceptable long-term care in Malawi? Unpacking the implied universalism of key terms in international ageing policy discourse. International Journal of Care and Caring, 7(2), 287-306. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788223X16742266590738

Production of research in Southern Africa from a political ethics of care perspective: a scoping review and reflection

Kelly, G., & Sebego, M. (2023). Production of research in Southern Africa from a political ethics of care perspective: a scoping review and reflection. International Journal of Care and Caring, 7(2), 212-230. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16740581601153

The problems with systematic review: a living systematic review

Uttley L., Quintana D.S., Montgomery P., et al. The problem with systematic reviews: a living systematic review. Journal of Clinical Epidemiology, Volume 156, 30 – 41. https://doi.org/10.1016/j.jclinepi.2023.01.011

Family care for older persons in South Africa: heterogeneity of the carer’s experience

Moore, E. (2023). Family care for older persons in South Africa: heterogeneity of the carer’s experience. International Journal of Care and Caring, 7(2), 265-286. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16740630896657

Evidence summary: Human factors associated with technology use in Aged Care

ARIIA Knowledge & Implementation Hub. A review summary: Human Factors: Technology in Aged Care. Adelaide, SA: ARIIA; 2023.

Cohort Trajectories by Age and Gender for Informal Caregiving in Europe Adjusted for Sociodemographic Changes, 2004 and 2015

Ricardo Rodrigues, Johan Rehnberg, Cassandra Simmons, Stefania Ilinca, Eszter Zólyomi, Afshin Vafaei, Selma Kadi, Janet Jull, Susan P Phillips, Stefan Fors, Cohort Trajectories by Age and Gender for Informal Caregiving in Europe Adjusted for Sociodemographic Changes, 2004 and 2015, The Journals of Gerontology: Series B, Volume 78, Issue 8, August 2023, Pages 1412–1422, https://doi.org/10.1093/geronb/gbad011

The path to healthy ageing in China: a Peking University–Lancet Commission

Chen X, Giles J, Yao Y, Yip W, Meng Q, Berkman L, Chen H, Chen X, Feng J, Feng Z, Glinskaya E. The path to healthy ageing in China: a Peking University–Lancet Commission. The Lancet. 2022 Dec 3;400(10367):1967-2006. https://doi.org/10.1016/S0140-6736(22)01546-X

Inequalities in unpaid carer’s health, employment status and social isolation

Brimblecombe, N., & Cartagena Farias, J. (2022). Inequalities in unpaid carer’s health, employment status and social isolation. Health & Social Care in the Community, 30, e6564–e6576. https://doi.org/10.1111/hsc.14104

The potential value of a geographic information system for public service planning for older people in the African region

Kelly, G., & Black, R. (2023). The potential value of a geographic information system for public service planning for older people in the African region. International Journal of Care and Caring, 7(2), 364-372. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16655372907511

Don’t forget I’m human –reducing dementia stigma. The STRiDE Anti-Stigma Toolkit.

Evans-Lacko, S., Farina, N., Ferri, C., Franzon, A. C., Godoy, C., Hurzuk, S., Jacobs, R., Mata, F., Mateus, E., Musyimi, C., Oliveira, D., Ong, E., López-Ortega, M., Surawattananon, N., & Weidner, W. (2022). Don’t forget I’m human –reducing dementia stigma. The STRiDE Anti-Stigma Toolkit. London School of Economics and Political Science. https://stridedementia.turtl.co/story/anti-stigma-toolkit/page/1

COVID-19 and the Long-Term Care system in Japan

Estevez-Abe M., Ide H., Curry N., Hemmings N. and Comas-Herrera A. (2021). COVID-19 and the Long-Term Care system in Japan. In: Comas-Herrera A., Marczak J., Byrd W., Lorenz-Dant K., Pharoah D. (editors) LTCcovid International Living report on COVID-19 and Long-Term Care. LTCcovid, Care Policy and Evaluation Centre, London School of Economics and Political Science. https://ltccovid.org/covid-19-and-the-long-term-care-system-in-japan/

Factors associated with unmet need for support to maintain independence in later life: a systematic review of quantitative and qualitative evidence

Gemma Frances Spiers, Tafadzwa Patience Kunonga, Daniel Stow, Alex Hall, Andrew Kingston, Oleta Williams, Fiona Beyer, Peter Bower, Dawn Craig, Chris Todd, Barbara Hanratty, Factors associated with unmet need for support to maintain independence in later life: a systematic review of quantitative and qualitative evidence, Age and Ageing, Volume 51, Issue 10, October 2022, afac228, https://doi.org/10.1093/ageing/afac228

Effects of cost sharing on long-term care service utilization among home-dwelling older adults in Japan

Sano K, Miyawaki A, Abe K, Jin X, Watanabe T, Tamiya N, Kobayashi Y, Effects of cost sharing on long-term care service utilization among home-dwelling older adults in Japan, Health Policy, Volume 126, Issue 12, 2022, Pages 1310-1316, https://doi.org/10.1016/j.healthpol.2022.10.002

Global Report on Long-Term Care Financing

Providing long-term care: Options for a better workforce

Llena-Nozal, A., Rocard, E., and Sillitti, P. (2022) Providing long-term care: Options for a better workforce. International Social Security Review, 75: 121–144. https://doi.org/10.1111/issr.12310.

Do mobile hospital teams in residential aged care facilities increase health care efficiency: an evaluation of French residential care policy

Penneau, A. Do mobile hospital teams in residential aged care facilities increase health care efficiency: an evaluation of French residential care policy. Eur J Health Econ 24, 923–937 (2023). https://doi.org/10.1007/s10198-022-01522-1

The Global Demand for Migrant Care Workers: Drivers and Implications on Migrants’ Wellbeing

Hussein S. The Global Demand for Migrant Care Workers: Drivers and Implications on Migrants’ Wellbeing. Sustainability. 2022; 14(17):10612. https://doi.org/10.3390/su141710612

Understanding, experiences and attitudes of dementia in India: A qualitative study

Hurzuk, S., Farina, N., Pattabiraman, M., Ramasamy, N., Alladi, S., Rajagopalan, J., Comas-Herrera, A., Thomas, P. T., & Evans-Lacko, S. (2022). Understanding, experiences and attitudes of dementia in India: A qualitative study. Dementia, 21(7). https://doi.org/10.1177/14713012221118774

The Economic Impact of Long-term Care Services

Streicher, G., Famira-Mühlberger, U., Firgo, M. (2022) The Economic Impact of Long-term Care Services, Zeitschrift für Sozialreform (Journal of Social Policy Research), 68, (2), S.211-235.https://doi.org/10.1515/zsr-2022-0009

Using Difference in Differences to evaluate vertical health and social care integration in Scotland

Alonso, J.M. and Andrews R. (2022) Does vertical integration of health and social care organizations work? Evidence from Scotland. Social Science & Medicine, 307 https://doi.org/10.1016/j.socscimed.2022.115188

Gender differences in access to community-based care: a longitudinal analysis of widowhood and living arrangements

Ilinca, S., Rodrigues, R., Fors, S. et al. Gender differences in access to community-based care: a longitudinal analysis of widowhood and living arrangements. Eur J Ageing 19, 1339–1350 (2022). https://doi.org/10.1007/s10433-022-00717-y

Making the Invisible Visible: The Pandemic and Migrant Care Work in Long-Term Care

Leichsenring, K.; Kadi, S.; Simmons, C. Making the Invisible Visible: The Pandemic and Migrant Care Work in Long-Term Care. Soc. Sci. 2022, 11, 326. https://doi.org/10.3390/socsci11080326

Reducing dementia-related stigma and discrimination among community health workers in Brazil: protocol for a randomised controlled feasibility trial

Oliveira, D., Godoy, C., Da Mata, F. A. F., Mateus, E., Franzon, A. C. A., Farina, N., Evans-Lacko, S., & Ferri, C. P. (2022). Reducing dementia-related stigma and discrimination among community health workers in Brazil: protocol for a randomised controlled feasibility trial. BMJ Open, 12(7). https://doi.org/10.1136/bmjopen-2021-060033

Co-developing and contextualising long-term care innovations in Europe using Theory of Change: lessons from InCARE

Breuer, E., S. Kadi, C. Champeix, A. Garcia, T. Grbevska, A. Comas-Herrera, R. Kahlert, S. Oliva, K. Ondas, A. Slavkoska, L. Stouthard and S. Ilinca (2022). Co-developing and contextualising long-term care innovations in Europe using Theory of Change: lessons from InCARE. InCARE Policy Brief No.3. https://incare.euro.centre.org/wp-content/uploads/2023/10/InCARE-Policy-Brief_3_TOC_final_261023-WP1.pdf

Caregiving impacts on unpaid informal carers’ health and well-being – a gender perspective: factsheet by WHO Europe

caregiving-impacts-on-unpaid-informal-carers--health-and-well-being---a-gender-perspective

Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study

Jacobs, R., Schneider, M., Farina, N., du Toit, P., & Evans-Lacko, S. (2022). Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study. Ageing and Society. https://doi.org/10.1017/s0144686x2200040x

Factors associated with change over time in quality of life of people with dementia: longitudinal analyses from the MODEM cohort study

King, D., Farina, N., Burgon, C. et al. Factors associated with change over time in quality of life of people with dementia: longitudinal analyses from the MODEM cohort study. BMC Geriatr 22, 469 (2022). https://doi.org/10.1186/s12877-022-03142-z

Understanding health trajectories among unpaid carers in the United Kingdom

Understanding health trajectories among unpaid carers in the United Kingdom: Propensity Score Matching to compare health outcomes of carers against non-carers and Latent Class Analysis to identify different typologies of unpaid carers.

Cartagena Farias, Javiera and Brimblecombe, Nicola (2022) Understanding health trajectories among unpaid carers in the United Kingdom. Journal of Long-Term Care, 2022. 102 – 113. ISSN 2516-9122. https://journal.ilpnetwork.org/articles/10.31389/jltc.124

Not Free at All: Home Care User Fees in a Nordic Care System

Ilmarinen K, Van Aerschot L, Kröger T. Not Free at All: Home Care User Fees in a Nordic Care System. Social Policy and Society. Published online 2022:1-16. doi:10.1017/S1474746422000240

Rebuilding for sustainability and resilience: strengthening the integrated delivery of long-term care in the European Region

World Health Organization (2022) Rebuilding for sustainability and resilience: strengthening the integrated delivery of long-term care in the European Region. Copenhagen: WHO Regional Office for Europe; 2022. Licence: CC BY-NC-SA 3.0 IGO. https://iris.who.int/bitstream/handle/10665/353912/WHO-EURO-2022-5330-45095-64318-eng.pdf?sequence=1 

The first cross-national study of adolescent young carers aged 15–17 in six European countries

Lewis, F. M., Becker, S., Parkhouse, T., Joseph, S., Hlebec, V., Mrzel, M., Brolin, R., Casu, G., Boccaletti, L., Santini, S., D’Amen, B., Socci, M., Hoefman, R., de Jong, N., Leu, A., Phelps, D., Guggiari, E., Magnusson, L., & Hanson, E. (2023). The first cross-national study of adolescent young carers aged 15–17 in six European countries. International Journal of Care and Caring, 7(1), 6-32. Retrieved Feb 5, 2024, from https://doi.org/10.1332/239788222X16455943560342

Austria’s Long-Term Care System: Challenges and Policy Responses

Trukeschitz, Birgit, Österle, August, Schneider, Ulrike (2022): Austria’s Long-Term Care System: Challenges and Policy Responses. Journal of Long-Term Care, 88-101. https://doi.org/10.31389/jltc.112

Erfahrungen, Einstellungen und Erwartungen zur Langzeitpflege in Österreich

Social Long-Term Care Insurance: An Idea Travelling Between Countries?

Fischer, J., Kim, H., Frisina Doetter, L., Rothgang, H. (2022). Social Long-Term Care Insurance: An Idea Travelling Between Countries?. In: Nullmeier, F., González de Reufels, D., Obinger, H. (eds) International Impacts on Social Policy. Global Dynamics of Social Policy. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-030-86645-7_34

Risk Recognition Policies for the Long-Term Care Workforce during the First Year of the COVID-19 Pandemic: A Multi-Country Study

Reed, A.C., Murmann, M., Hsu, A., Turnpenny, A., Van Houtven, C., Laberge, M., Low, L.-F., Hussein, S. and Allin, S., 2022. Risk Recognition Policies for the Long-Term Care Workforce during the First Year of the COVID-19 Pandemic: A Multi-Country Study. Journal of Long Term Care, 0(2022), p.22–39.DOI: https://doi.org/10.31389/jltc.110

The interface between primary care and care homes: General Practitioner experiences of working in care homes for older people

White, C., & Alton, E. (2022). The interface between primary care and care homes: General Practitioner experiences of working in care homes for older people. Health & Social Care in the Community, 30, e2896–e2904. https://doi.org/10.1111/hsc.13734

Framework for countries to achieve an integrated continuum of long-term care

World Health Organization (2021) Framework for countries to achieve an integrated continuum of long-term care. Geneva: World Health Organization; 2021. Licence: CC BY-NC-SA 3.0 IGO. https://www.who.int/publications/i/item/9789240038844

Cuidados de larga duración en Costa Rica: enseñanzas para América Latina desde la evidencia internacional

Chaverri-Carvajal A, Matus-López M. Cuidados de larga duración en Costa Rica: enseñanzas para América Latina desde la evidencia internacional. Revista Panamericana de Salud Pública. 2021; 45: e146. https://doi.org/10.26633/RPSP.2021.146

Extra Care Housing: The Current State of Research and Prospects for the Future

Darton, R. A. (2022). Extra Care Housing: The Current State of Research and Prospects for the Future. Social Policy and Society, 21(2), 292–303. doi:10.1017/S1474746421000683

What Long-Term Care Interventions and Policy Measures Have Been Studied During the Covid-19 Pandemic? Findings from a Rapid Mapping Review of the Scientific Evidence Published During 2020

Byrd, W., Salcher-Konrad, M., Smith, S. and Comas-Herrera, A., 2021. What Long-Term Care Interventions and Policy Measures Have Been Studied During the Covid-19 Pandemic? Findings from a Rapid Mapping Review of the Scientific Evidence Published During 2020. Journal of Long Term Care, 0(2021), p.423–437.DOI: https://doi.org/10.31389/jltc.97

Caring from a distance: What can we learn from carers’ experiences of using new and familiar ways to stay in touch with family and friends in care homes during Covid-19?

White C., Wray J., Whitfield C., Wolverson E. (2021)   Caring from a distance: What can we learn from carers’ experiences of using new and familiar ways to stay in touch with family and friends in care homes during Covid-19? University of Hull https://www.hull.ac.uk/work-with-us/research/groups/docs/caring-from-a-distance-report.pdf 

Same same but different? Comparing institutional performance in the long-term care systems of Japan and South Korea

Kim, H., Jeon, B., Frisina Doetter, L., Tamiya, N., & Hashimoto, H. (2022). Same same but different? Comparing institutional performance in the long-term care systems of Japan and South Korea. Social Policy & Administration, 56(1), 148–162. https://doi.org/10.1111/spol.12761

Progress Toward Long-Term Care Protection in Latin America: A National Long-Term Care System in Costa Rica

Matus-López M, Chaverri-Carvajal A. Progress Toward Long-Term Care Protection in Latin America: A National Long-Term Care System in Costa Rica. Journal of the American Medical Directors Association. 2022; 23(2):266-271. https://doi.org/10.1016/j.jamda.2021.06.021

Building a strategic theory of change to address dementia care, treatment and support gaps

Breuer E, Comas-Herrera A, Freeman E, Albanese E, Alladi S, Amour R, Evans-Lacko S, Ferri CP, Govia I, Iveth Astudillo García C, Knapp M, Lefevre M, López-Ortega M, Lund C, Musyimi C, Ndetei D, Oliveira D, Palmer T, Pattabiraman M, Sani TP, Taylor D, Taylor E, Theresia I, Thomas PT, Turana Y, Weidner W, Schneider M (2021) Beyond the project: Building a strategic theory of change to address dementia care, treatment and support gaps across seven middle-income countries, Dementia, https://doi.org/10.1177/14713012211029105

Comparing long-term care systems: A multi-dimensional, actor-centred typology

Fischer, Johanna, Lorraine Frisina Doetter, and Heinz Rothgang. 2022. “Comparing Long‐term Care Systems: A Multi‐dimensional, Actor‐centred Typology.” Social Policy & Administration 56 (1): 33–47. https://doi.org/10.1111/spol.12742

Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study

Oliveira, D., Da Mata, F. A. F., Mateus, E., Musyimi, C. W., Farina, N., Ferri, C. P., & Evans-Lacko, S. (2021). Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study. Ageing and Society, 43(2). https://doi.org/10.1017/S0144686X21000660

Promoting Social Innovation in long-term care: A common narrative for change across Europe. InCARE Policy Brief no. 1

Ilinca S., Simmons C., Zonneveld N., Benning K., Comas-Herrera A., Champeix C., Nies H., Leichsenring K. (2021) Promoting Social Innovation in long-term care: A common narrative for change across Europe. INCARE Policy Brief No.1.

Social Innovation in LTC in Europe: Towards a common narrative for change. InCARE Short Report No.1

Ilinca S., Simmons C., Zonneveld N., Benning K., Comas-Herrera A., Champeix C., Nies H. and Leichsenring K. (2021) Social Innovation in LTC in Europe: Towards a common narrative for change. InCARE Short Report No.1

Perceptions and experiences of dementia and its care in rural Kenya

Musyimi, C. W., Ndetei, D. M., Evans-Lacko, S., Oliveira, D., Mutunga, E., & Farina, N. (2021). Perceptions and experiences of dementia and its care in rural Kenya. Dementia, 20(8). https://doi.org/10.1177/14713012211014800

Income-Related Inequalities in Informal Care: Evidence From the Longitudinal Healthy Longevity Survey in China

Yixiao Wang, Wei Yang, Mauricio Avendano, Income-Related Inequalities in Informal Care: Evidence From the Longitudinal Healthy Longevity Survey in China, The Journals of Gerontology: Series B, Volume 76, Issue 8, October 2021, Pages 1691–1696, https://doi.org/10.1093/geronb/gbab043

The risk protection and redistribution effects of long-term care co-payments

Wouterse B , Hussem A , Wong A . (2022). The risk protection and redistribution effects of long-term care co-payments. Journal of Risk and Insurance, 89, 161–186. https://doi.org/10.1111/jori.12337

Fractures in the Austrian Model of Long-Term Care: What are the Lessons from the First Wave of the COVID-19 Pandemic?

Leichsenring, K., Schmidt, A.E. and Staflinger, H., 2021. Fractures in the Austrian Model of Long-Term Care: What are the Lessons from the First Wave of the COVID-19 Pandemic?. Journal of Long Term Care, 0(2021), p.33–42.DOI: https://doi.org/10.31389/jltc.54

Pricing long-term care for older persons

Report describing experiences of high-income countries in financing long-term care, focusing on price setting and sharing experiences of how pricing is used to contribute to broader LTC policy objectives. Includes case studies on Australia, France, Germany, Japan, Republic of Korea, The Netherlands, Spain, Sweden and the United States of America.

Barber SL, van Gool K, Wise S, Woods M, Or Z, Penneau A, Milstein R, Ikegami N, Kwon S, Bakx P, Schut E, Wouterse B, Flores M and Lorenzoni L. Pricing long-term care for older persons. Geneva: World Health Organization, Organisation for Economic Co-operation and Development; 2021. Licence: CC BY-NC-SA 3.0 IGO. https://iris.who.int/bitstream/handle/10665/344505/9789240033771-eng.pdf

The Long-Term Care System in Austria

Österle, August (2021): The Long-Term Care System in Austria. CRC 1342 Social Policy Country Briefs, 12. https://doi.org/10.26092/elib/833

Long-term care system for older adults in China: policy landscape, challenges, and future prospects

Feng, Z., Glinskaya, E., Chen, H., Gong, S., Qiu, Y., Xu, J., & Yip, W. (2020). Long-term care system for older adults in China: policy landscape, challenges, and future prospects. The Lancet, 396(10259), 1362-1372. https://doi.org/10.1016/S0140-6736(20)32136-X

Pensions, consumption and health: evidence from rural South Africa

Peter Lloyd-Sherlock; Sutapa Agrawal; Francesc Gómez-Olivé (2020) Pensions, consumption and health: evidence from rural South Africa. BMC Public Health 20, 1577. 

The role of formal care services in supporting young people who provide unpaid care in England

Nicola Brimblecombe, Madeleine Stevens, Derek King & Martin Knapp (2022) The role of formal care services in supporting young people who provide unpaid care in England, Journal of Youth Studies, 25:1, 1-16, DOI: 10.1080/13676261.2020.1828848

Long-Term Care System in Japan

Yamada, M., & Arai, H. (2020). Long-Term Care System in Japan. Annals of Geriatric Medicine and Research, 24(3), 174–180. https://doi.org/10.4235/agmr.20.0037

The high cost of unpaid care by young people: health and economic impacts of providing unpaid care

Brimblecombe, N., Knapp, M., King, D., Stevens M. and Cartagena-Farias J.. The high cost of unpaid care by young people:health and economic impacts of providing unpaid care. BMC Public Health 20, 1115 (2020). https://doi.org/10.1186/s12889-020-09166-7

A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia

De Poli, C., Oyebode, J., Airoldi, M., Glover R. A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia. BMC Health Serv Res 20, 657 (2020). https://doi.org/10.1186/s12913-020-05416-x

Better off at home? Effects of nursing home eligibility on costs, hospitalizations and survival

Bakx, P., Wouterse, B., van Doorslaer, E., & Wong, A. (2020). Better off at home? Effects of nursing home eligibility on costs, hospitalizations and survival. Journal of health economics, 73, 102354. https://doi.org/10.1016/j.jhealeco.2020.102354

Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study

Nielsen, T. R., Nielsen, D. S., & Waldemar, G. (2021). Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study. Aging & Mental Health, 25(8), 1424–1432. https://doi.org/10.1080/13607863.2020.1787336

COVID-19 and clients of long-term care in Finland – impact and measures to control the virus

An Initial Analysis of the Effects of a Long-Term Care Insurance on Equity and Efficiency: A Case Study of Qingdao City in China

Yang, W., Chang, S., Zhang, W., Wang, R., Mossialos, E., Wu, X., Cui, D., Li, H., & Mi, H. (2021). An Initial Analysis of the Effects of a Long-Term Care Insurance on Equity and Efficiency: A Case Study of Qingdao City in China. Research on Aging, 43(3-4), 156-165. https://doi.org/10.1177/0164027520907346

Developing a framework for performance assessment of the public long-term care system in Korea: methodological and policy lessons

Kim, H., Jeon, B. Developing a framework for performance assessment of the public long-term care system in Korea: methodological and policy lessons. Health Res Policy Sys 18, 27 (2020). https://doi.org/10.1186/s12961-020-0529-8

Caring in space: the boundaries between public and private spaces in Finnish adult foster care homes

Leinonen E. Caring in space: the boundaries between public and private spaces in Finnish adult foster care homes. Ageing and Society. 2021;41(5):1184-1201. doi:10.1017/S0144686X19001831

Care providers, access to care, and the Long-term Care Nursing Insurance in China: An agent-based simulation

Shuang Chang, Wei Yang, Hiroshi Deguchi. Care providers, access to care, and the Long-term Care Nursing Insurance in China: An agent-based simulation,
Social Science & Medicine, Volume 244, 2020, 112667, https://doi.org/10.1016/j.socscimed.2019.112667

STRiDE Theory of Change Workshops: Guidance and Resources

Breuer E, Comas-Herrera A, Docrat S, Freeman E, Schneider M and the STRiDE team (2019) STRiDE Theory of Change Workshops: Guidance and Resources. STRiDE Research Tool No.1 (version 2), Care Policy and Evaluation Centre at LSE, London.

Care poverty: unmet care needs in a Nordic welfare state

Kröger, T., Puthenparambil, J. M., & Van Aerschot, L. (2019). Care poverty: unmet care needs in a Nordic welfare state. International Journal of Care and Caring, 3(4), 485-500. Retrieved Apr 18, 2024, from https://doi.org/10.1332/239788219X15641291564296

World Alzheimer Report 2019: Attitudes to dementia

Alzheimer’s Disease International. 2019. World Alzheimer Report 2019: Attitudes to dementia. London: Alzheimer’s Disease International. https://www.alzint.org/resource/world-alzheimer-report-2019/

Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions

Joseph, S., Sempik, J., Leu, A. et al. Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions. Adolescent Res Rev 5, 77–89 (2020). https://doi.org/10.1007/s40894-019-00119-9

Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life

Edvardsson D, Baxter R, Corneliusson L, et al. Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life. Gerontology and Geriatric Medicine. 2019;5. doi:10.1177/2333721419842672

Coverage Versus Generosity: Comparing Eligibility and Need Assessment in Six Cash‐for‐care Programmes

Ranci, Costanzo, August Österle, Marco Arlotti, and Andrea Parma. 2019. “Coverage Versus Generosity: Comparing Eligibility and Need Assessment in Six Cash‐for‐care Programmes.” Social Policy & Administration 53 (4): 551–66. https://doi.org/10.1111/spol.12502.

Current issues in long-term care policy and research: Toward the promotion of evidence-based policy (Japan)

Masui, H., Otaga, M., Moriyama, Y., & Matsushige, T. (2019). Current issues in long-term care policy and research: Toward the promotion of evidence-based policy. 保健医療科学,1: 34-44. https://www.niph.go.jp/journal/data/68-1/201968010006.pdf

Endogenous Living Arrangements and Health of Older Adults: Evidence from Instrumental Variable Estimation

This study aims to address the endogenous relationship between independent living arrangements (ILAs)  and health of older adults using an instrumental variable (IV) approach. Data were obtained from a cross-sectional survey of older adults in Xiamen, China.

Weng, Chenziheng and Han, Yaofeng and Fang, Ya, Endogenous Living Arrangements and Health of Older Adults: Evidence from Instrumental Variable Estimation (December 29, 2018). Available at SSRN: https://ssrn.com/abstract=3303239 or http://dx.doi.org/10.2139/ssrn.3303239

Economic evaluations in community aged care: a systematic review

Bulamu, N. B., Kaambwa, B., & Ratcliffe, J. (2018). Economic evaluations in community aged care: a systematic review. BMC health services research, 18(1), 967. https://doi.org/10.1186/s12913-018-3785-3

Options for aged care in China: Building an efficient and sustainable aged care system

Glinskaya E. Feng Z. Options for aged care in China: Building an efficient and sustainable aged care system. World Bank; 2018 . Available from: https://doi.org/10.1596/978-1-4648-1075-6

Review of the international evidence on support for unpaid carers

Long-term care for older people in South Africa: the enduring legacies of apartheid and HIV/AIDS

Pensions and low sodium salt: a qualitative evaluation of a new strategy for managing hypertension in rural South Africa

Nordic eldercare – Weak universalism becoming weaker?

Szebehely, M., & Meagher, G. (2018). Nordic eldercare – Weak universalism becoming weaker? Journal of European Social Policy, 28(3), 294-308. https://doi.org/10.1177/0958928717735062

Long-Term Care Organization and Financing

Freeman, Emily, Martin Knapp, and Ami Somani. 2017. “Long-Term Care Organization and Financing.” In International Encyclopedia of Public Health, edited by Stella R. Quah and William C. Cockerham. 2nd edition, 469–76. London: Academic Press

Long-Term Care Insurance System of Japan

Ministry of Health, Labour and Welfare, Japan. (2016). Long-term care insurance system of Japan. Available at: https://www.mhlw.go.jp/english/policy/care-welfare/care-welfare-elderly/dl/ltcisj_e.pdf (accessed 14 July 2023).

A cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’

Long-Term Care Reforms in OECD Countries: Successes and Failure

Gori, Cristiano, José-Luis Fernández, and Raphael Wittenberg, eds. 2016. Long-Term Care Reforms in OECD Countries: Successes and Failures. Bristol: Policy Press.

Users of home-care services in a Nordic welfare state under marketisation: the rich, the poor and the sick

Mathew Puthenparambil, J., Kröger, T. and Van Aerschot, L. (2017), Users of home-care services in a Nordic welfare state under marketisation: the rich, the poor and the sick. Health Soc Care Community, 25: 54-64. https://doi.org/10.1111/hsc.12245

Long-Term Care Policies

Pavolini, Emmanuele, and Hildegard Theobald. 2015. “Long-Term Care Policies.” In The Palgrave International Handbook of Healthcare Policy and Governance, edited by Ellen Kuhlmann, Robert H. Blank, Ivy L. Bourgeault, and Claus Wendt, 462–78. London: Palgrave Macmillan.

When is a carer’s employment at risk? Longitudinal analysis of unpaid care and employment in midlife in England

King, D. and Pickard, L. (2013), When is a carer’s employment at risk? Longitudinal analysis of unpaid care and employment in midlife in England. Health & Social Care in the Community, 21: 303-314. https://doi.org/10.1111/hsc.12018

Making Sence of Differences – the Mixed Economy of Funding and Delivering Long-Term Care

Rodrigues, Ricardo, and Henk Nies. 2013. “Making Sence of Differences – the Mixed Economy of Funding and Delivering Long-Term Care.” In Long-Term Care in Europe: Improving Policy and Practice, edited by Kai Leichsenring, Jenny Billings, and Henk Nies, 191–212. Basingstoke: Palgrave Macmillan.

Outcomes of social care for adults: developing a preference weighted measure

Netten A, Burge P, Malley J, Potoglou D, Towers A. Outcomes of social care for adults: developing a preference weighted measure. Health Technol Assess 2012;16(16) https://doi.org/10.3310/hta16160

From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications

Purcal, C., Hamilton, M., Thomson, C. and Cass, B. (2012), From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications. Social Policy & Administration, 46: 788-806. https://doi.org/10.1111/j.1467-9515.2011.00816.x

Global perspectives on children’s unpaid caregiving in the family: Research and policy on ‘young carers’ in the UK, Australia, the USA and Sub-Saharan Africa

Becker, S. (2007). Global perspectives on children’s unpaid caregiving in the family: Research and policy on ‘young carers’ in the UK, Australia, the USA and Sub-Saharan Africa. Global social policy, 7(1), 23-50. https://journals.sagepub.com/doi/abs/10.1177/1468018107073892

Technology in Aged Care resources

Resources on Technology in Aged care collated by the Aged Care Research & Industry Innovation Australia (ARIIA)’s Knowledge and Implementation Hub.

Shaping care home COVID-19 testing policy: a protocol for a pragmatic cluster randomised controlled trial of asymptomatic testing compared with standard care in care home staff (VIVALDI-CT)

Long-Term Care System Profile: Costa Rica

Chaverri-Carvajal, A. and Obando Viquez, L. (2023) Long-Term Care System Profile: Costa Rica. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science.https://goltc.org/system-profile/long-term-care-system-profile-costa-rica/ 

What are the factors associated with people with advanced dementia refusing assistance with personal care?

Backhouse T, Killett A, Mioshi E, Khondoker M. What are the factors associated with people with advanced dementia refusing assistance with personal care? Int J Geriatr Psychiatry. 2023;e5857. https://doi.org/10.1002/gps.5857

Inequalities in income security in later age in Latin America

Barrientos, A. (2021). Inequalities in income security in later age in Latin America. Pan American Journal of Public Health, 45. https://doi.org/10.26633/RPSP.2021.85

Poverty Transitions among Older Households in Brazil and South Africa

Barrientos, A., Mase, J. Poverty Transitions among Older Households in Brazil and South Africa. Eur J Dev Res 24, 570–588 (2012). https://doi.org/10.1057/ejdr.2012.13