Evaluating the association between receipt of a winter fuel cash transfer and older people’s care needs, quality of life, and housing quality: Evidence from England

Cartagena-Farias, J., Brimblecombe, N., and Knapp, M. (2024) Evaluating the association between receipt of a winter fuel cash transfer and older people’s care needs, quality of life, and housing quality: Evidence from England. Social Science & Medicine, Volume 355.

What determines informal care need among community-dwelling older adults in China? Results from a longitudinal study

Zhang, L., Shen, S., Zhang, W. et al. (2024) What determines informal care need among community-dwelling older adults in China? Results from a longitudinal study. BMC Geriatr 24, 597. https://doi.org/10.1186/s12877-024-04843-3

Motivators for family carers of persons with dementia in Kenya

Musyimi CW, Muyela LA, Ndetei DM, Thakya D, Mutiso VN, Mutunga E, Evans-Lacko S and Farina N. Motivators for family carers of persons with dementia in Kenya. Int J Geriatr Psychiatry. 2024;e6120. https://doi.org/10.1002/gps.6120

Longitudinal associations of loneliness and social isolation with care dependence among older adults in Latin America and China: A 10/66 dementia research group population-based cohort study

Gao, Q., Chua, K. C., Mayston, R., & Prina, M. (2024). Longitudinal associations of loneliness and social isolation with care dependence among older adults in Latin America and China: A 10/66 dementia research group population-based cohort study. International journal of geriatric psychiatry, 39(7), e6115. https://doi.org/10.1002/gps.6115

Spain’s new National Strategy for a new model of care in the community: a de-institutionalization process

The Spanish congress approved a new National Strategy for a new model of care in the community 2024-2030 on the 18th June 2024. This post by Spain’s Ministry of Social Rights, Consumer Affairs and 2030 Agenda provides a brief overview of the Strategy’s objectives, the scope of the strategy, and the public participation process through which it […]

Long-term care system profile: Serbia

Todorović N. and Vračević M. (2024) Long-term care system profile: Serbia. Global Observatory of Long-Term Care, Care Policy and Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/serbia

Long-Term Care Financing lessons for Low- and Middle-Income Countries

By the World Health Organization’s Centre for Health Development Why Long-Term Care financing matters for Low- and Middle-Income Countries Long-term care (LTC) systems have received little to no attention in most low- and middle-income countries because population ageing is typically considered a challenge for high-income settings. But population ageing is also a pressing priority in Low- […]

Long-term care system profile: Ireland

Walsh B. and Connolly S. (2024) Long-term care system profile: Ireland. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/ireland

Predictors of the quality of the relationship between informal caregiver and care recipient in informal caregiving of older people: presentation and evaluation of a new item

Becker, L., Graessel, E. & Pendergrass, A. Predictors of the quality of the relationship between informal caregiver and care recipient in informal caregiving of older people: presentation and evaluation of a new item. BMC Psychol 12, 342 (2024). https://doi.org/10.1186/s40359-024-01840-4

Profil des Langzeitpflegesystems: Österreich

Famira-Mühlberger U. and Österle A. (2024) Profil des Langzeitpflegesystems: Österreich. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/osterreich/

Informal caregiving time and its monetary value in the context of older adults in Singapore

Nur Diyana Binte Azman, Abhijit Visaria, Veronica Shimin Goh, Truls Østbye, David Matchar, Rahul Malhotra (2004) Informal caregiving time and its monetary value in the context of older adults in Singapore. Aging and Health Research, 4 (2). https://doi.org/10.1016/j.ahr.2024.100193.

New agendas and old legacies? Comparing international organisations’ proposals on health and long-term care systems in Latin America

Sternkopf, M., de Carvalho, G., & Fischer, J. (2024). New agendas and old legacies? Comparing international organisations’ proposals on health and long-term care systems in Latin America. Global Social Policy, 0(0). https://doi.org/10.1177/14680181241254087

Theory of Change

Breuer, E. and Comas-Herrera, A.  (2024) Theory of Change. GOLTC Methods Guide series, 3. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/publications/theory-of-change

From Theory to Practice: Rethinking Health and Social Care Research Ethics in Action

By Chiara De Poli (Care Policy and Evaluation Centre, London School of Economics and Political Science) In this blog, Chiara De Poli, Research Officer at the Care Policy and Evaluation Centre based at the London School of Economics and Political Science (LSE), outlines key messages from a recent journal article in PLOS ONE on research […]

Supporting Meaningful Implementation and Evaluation of Strengths-Based Approaches in Adult Social Care: A Theory of Change for The Three Conversations

Madeleine Stevens, Michael Clark, Jessica Carlisle, Nicola Brimblecombe, Miranda MacGill, Supporting Meaningful Implementation and Evaluation of Strengths-Based Approaches in Adult Social Care: A Theory of Change for The Three Conversations, The British Journal of Social Work, 2024;, bcae055, https://doi.org/10.1093/bjsw/bcae055

The Worldview-Open Society, the Worldview-Controlling State and Non-Profit Welfare Actors: Norway as a Case

Haugen, Hans Morten. “The Worldview-Open Society, the Worldview-Controlling State and Non-Profit Welfare Actors: Norway as a Case” Nonprofit Policy Forum, 2024. https://doi.org/10.1515/npf-2023-0076

Long-run consequences of informal elderly care and implications of public long-term care insurance

Thorben Korfhage, Björn Fischer-Weckemann, Long-run consequences of informal elderly care and implications of public long-term care insurance, Journal of Health Economics, Volume 96, 2024, https://doi.org/10.1016/j.jhealeco.2024.102884.

Informal and formal long-term care utilization and unmet needs in Europe: examining socioeconomic disparities and the role of social policies for older adults

Szenkurök, V., Weber, D. & Bilger, M. Informal and formal long-term care utilization and unmet needs in Europe: examining socioeconomic disparities and the role of social policies for older adults. Int J Health Econ Manag. (2024). https://doi.org/10.1007/s10754-024-09378-z

Older Persons and Community Care in Namibia

Ananias, Janet; Moore, Elena (2024). Older Persons and Community Care in Namibia. University of Cape Town. Report. https://doi.org/10.25375/uct.25771332.v1

Relational solidarity and conflicting ethics in dementia care in urban India

Bianca Brijnath, Rachita Rao, Upasana Baruah, Josefine Antoniades, Santosh Loganathan, Mathew Varghese, Claudia Cooper, Mike Kent, Briony Dow, Relational solidarity and conflicting ethics in dementia care in urban India, The Journals of Gerontology: Series B, 2024;, gbae079, https://doi.org/10.1093/geronb/gbae079

“I never planned for it”—Exploration of expectations about caring for older parents

De Poli, C., Wittenberg, R., Rehill, A., Stevens, M., & Brimblecombe, N. (2024). “I never planned for it”—Exploration of expectations about caring for older parents. Social Policy & Administration, 1–20. https://doi.org/10.1111/spol.13030

Unpaid caregiving and mental health during the COVID-19 pandemic—A systematic review of the quantitative literature

Ervin J, Fleitas Alfonzo L, Taouk Y, Maheen H, King T. Unpaid caregiving and mental health during the COVID-19 pandemic-A systematic review of the quantitative literature. PLoS One. 2024 Apr 18;19(4):e0297097. doi: 10.1371/journal.pone.0297097. PMID: 38635604; PMCID: PMC11025839.

Long-term care system profile: Finland

Forma L. and Leinonen E. (2024) Long-term care system profile: Finland. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/finland

‘Letting it be’: a grounded theory about dementia care in Fiji

Johnston, K., Qaloewai, S., Rasavuka, T., Preston, R., Strivens, E., & Larkins, S. (2024). ‘Letting it be’: a grounded theory about dementia care in Fiji. Aging & Mental Health, 1–11. https://doi.org/10.1080/13607863.2024.2340737

Costs of care trajectories of people with dementia compared with matched controls. Longitudinal analysis of linked health and administrative data

Bosmans JE, van der Heide I, van Hout HPJ, Joling KJ. Costs of care trajectories of people with dementia compared with matched controls. Longitudinal analysis of linked health and administrative data. Int J Geriatr Psychiatry. 2024 May;39(5):e6094. doi:

Critical Discourse Analysis (CDA)

Kendrick, H. and De-Poli, C. (2024) Critical Discourse Analysis (CDA). GOLTC Methods Guide series, 2. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/publications/critical-discourse-analysis-cda/

Long-Term Care System Profile: Austria

Famira-Mühlberger U. and Österle A. (2024) Long-Term Care System Profile: Austria. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/austria

Exploring a career pathway for home support workers in Ireland: a systematic scoping review of the international evidence

Morrow E, Kelly C, Killeen C, Naessens E and Lynch M (2024) Exploring a career pathway for home support workers in Ireland: a systematic scoping review of the international evidence. Front. Health Serv.4:1360920. doi: 10.3389/frhs.2024.1360920

Long-Term Care System Profile: China (mainland)

Ping, R. and Hu, B. (2024) Long-term care system profile: mainland China. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/china-mainland/ 

Informal care and financial stress: Longitudinal evidence from Australia

Koomson, I., Lenzen, S., & Afoakwah, C. (2024). Informal care and financial stress: Longitudinal evidence from Australia. Stress and health : journal of the International Society for the Investigation of Stress, e3393. Advance online publication. https://doi.org/10.1002/smi.3393

Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing

Laurie E Davies, Gemma F Spiers, David R Sinclair, Andrew Kingston, Barbara Hanratty (2024) Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing, Age and Ageing, Volume 53, Issue 3, March, afae049, https://doi.org/10.1093/ageing/afae049

The impact of reducing formal care benefits on caregivers’ well-being: evidence from Japan

Fu, R., Le, D.D. & Ibuka, Y. The impact of reducing formal care benefits on caregivers’ well-being: evidence from Japan. Rev Econ Household (2024). https://doi.org/10.1007/s11150-024-09699-5

Long-Term Care System Profile: Brazil

Wachholz P.A., Caldeira de Melo R., Fortes Villas Boas P.J., Accioly R.C. Domingues M., Giacomin K.C. (2024) Long-Term Care System Profile: Brazil. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/brazil

Examining the Impact of Long-Term Care Insurance on the Care Burden and Labor Market Participation of Informal Carers: A Quasi-Experimental Study in China

Xingtong Pei, Wei Yang, Mingming Xu, Examining the Impact of Long-Term Care Insurance on the Care Burden and Labor Market Participation of Informal Carers: A Quasi-Experimental Study in China, The Journals of Gerontology: Series B, Volume 79, Issue 5, May 2024, gbae023, https://doi.org/10.1093/geronb/gbae023

The impact of formal care provision on informal care receipt for people over 75 in England

Citation: Saloniki E-C, Nizalova O, Malisauskaite G, Forder J (2024) The impact of formal care provision on informal care receipt for people over 75 in England. PLoS ONE 19(2): e0297157. https://doi.org/10.1371/journal.pone.0297157

From Restricted Resources to Ethical Burden—Former Home Care Workers’ Reasons for Leaving Their Jobs

Ring, M., Ristolainen, H., & Tiilikainen, E. (2024). From Restricted Resources to Ethical Burden—Former Home Care Workers’ Reasons for Leaving Their Jobs. Journal of Applied Gerontology, 0(0). https://doi.org/10.1177/07334648241231404

Older Persons, Care Needs & Social Grants in South Africa Report

Moore, Elena (2024). Older Persons, Care Needs & Social Grants in South Africa Report. University of Cape Town. Report. https://doi.org/10.25375/uct.25195727.v1

Analysis of the impact of COVID-19 on Scotland’s care-homes from March 2020 to October 2021: national linked data cohort analysis

Jennifer Kirsty Burton, Megan McMinn, James E Vaughan, Glenna Nightingale, Jacques Fleuriot, Bruce Guthrie, Analysis of the impact of COVID-19 on Scotland’s care-homes from March 2020 to October 2021: national linked data cohort analysis, Age and Ageing, Volume 53, Issue 2, February 2024, afae015, https://doi.org/10.1093/ageing/afae015 Our member Jenni Burton, with colleagues from the University of Glasgow, Advanced […]

Programa Maior Cuidado: An Integrated Community-Based Intervention on Care for Older People

Lloyd-Sherlock P, Giacomin KC, Carvalho PF and Sempe L. (2024) Programa Maior Cuidado: An Integrated Community-Based Intervention on Care for Older People. Inter-American Development Bank, Social Protection and Health Division. VI Series.

Difference-in-Differences approach

Saluja, S. and Cartagena-Farias, J. (2024) Difference-in-Differences approach. GOLTC Methods Guide series, 1. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/publications/difference-in-differences-approach

The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands

Elayan, S., Angelini, V., Buskens, E. et al. The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands. Eur J Health Econ (2024). https://doi.org/10.1007/s10198-023-01666-8

Scaling-up an evidence-based intervention for family carers of people with dementia: Current and future costs and outcomes

Knapp M, Lorenz-Dant K, Walbaum M, Comas-Herrera A, Cyhlarova E, Livingston G and Wittenberg R. Scaling-up an evidence-based intervention for family carers of people with dementia: current and future costs and outcomes. Int J Geriatr Psychiatry. 2024;e6059. https://doi.org/10.1002/gps.6059

The impact of the implementation of a national policy on dementia on healthcare costs in older patients with dementia in Korea: a quasi-experimental difference-in-difference study

Choi, M., Kim, W., Moon, J.Y., Shin,J. (2024) The impact of the implementation of a national policy on dementia on healthcare costs in older patients with dementia in Korea: a quasi-experimental difference-in-difference study. The Lancet Regional Health – Western Pacific, Volume 44. https://doi.org/10.1016/j.lanwpc.2024.101010.

The association between loneliness, social isolation, and sleep disturbances in older adults: A follow-up study from the Swedish good aging in Skåne project

Ekström H, Svensson M, Elmståhl S, Wranker LS. The association between loneliness, social isolation, and sleep disturbances in older adults: A follow-up study from the Swedish good aging in Skåne project. SAGE Open Medicine. 2024;12. doi:10.1177/20503121231222823

Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours

Elliott, J., Francetic, I., Meacock, R. et al. Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours. Appl Health Econ Health Policy (2024). https://doi.org/10.1007/s40258-023-00843-3

Environmental data monitoring and infection risks in UK care-homes in the context of COVID-19

Kishwer Abdul Khaliq, Sara Mohamad, Alexander J. Edwards, Catherine Noakes, Andrew H. Kemp, Carl Thompson, Grainne McGill, Tim Sharpe. Environmental data monitoring and infection risks in UK care-homes in the context of COVID-19, Building and Environment, 2024, 111174, ISSN 0360-1323, https://doi.org/10.1016/j.buildenv.2024.111174.

COVID-19 Mortality and the Structural Characteristics of Long-Term Care Facilities: Evidence from Sweden

Broms, R., Dahlström, C., Najar, J., & Nistotskaya, M. (2024). COVID-19 Mortality and the Structural Characteristics of Long-Term Care Facilities: Evidence from Sweden. Public Performance & Management Review, 47(2), 505–533. https://doi.org/10.1080/15309576.2023.2295282

Long-Term Care in Mexico: Identifying Challenges and Future Strategies

López-Ortega, M. Long-Term Care in Mexico: Identifying Challenges and Future Strategies, Public Policy & Aging Report, 2024;, prad037, https://doi.org/10.1093/ppar/prad037

Evaluation of the Impact of the Covid-19 Pandemic on People and Organisations in Long-Term Care Facilities of Catalonia and Proposals for Improving the Care Model: The Resicovid-19 Project

Amblàs-Novellas, J., Coll-Planas, L., Jerez-Roig, J., López, D., Martori, J.C., Ramon-Aribau, A., Comas-Herrera, A., Moreno-Martin, P., Solé-Casals, M., Máiz-Mazuela, C., Masó-Aguado, M. and Gómez-Batiste, X. (2024) ‘Evaluation of the Impact of the Covid-19 Pandemic on People and Organisations in Long-Term Care Facilities of Catalonia and Proposals for Improving the Care Model: The Resicovid-19 Project’, Journal […]

Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria

Juliet Chigozie Donatus Ezulike, Shiyu Lu, Marcus Yu Lung Chiu, Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria, Innovation in Aging, Volume 8, Issue 4, 2024, igad140, https://doi.org/10.1093/geroni/igad140

Assessing the impact of caregiving for older parents on caregivers’ health: Initial health status and trajectories of physical and mental health among midlife caregivers for parents and parents-in-law in Britain

Zueras, P. & Grundy, E. (2023) Assessing the impact of caregiving for older parents on caregivers’ health: Initial health status and trajectories of physical and mental health among midlife caregivers for parents and parents-in-law in Britain, Social Science & Medicine. https://doi.org/10.1016/j.socscimed.2023.116537.

Research ethics and collaborative research in health and social care: Analysis of UK research ethics policies, scoping review of the literature, and focus group study

De Poli C, Oyebode J (2023) Research ethics and collaborative research in health and social care: Analysis of UK research ethics policies, scoping review of the literature, and focus group study. PLoS ONE 18(12): e0296223. https://doi.org/10.1371/journal.pone.0296223

The Economic Cost of Unpaid Care to the Public Finances: Inequalities in Welfare Benefits, Forgone Earnings-related Tax Revenue, and Health Service Utilisation.

Cartagena-Farias J, Brimblecombe N. The Economic Cost of Unpaid Care to the Public Finances: Inequalities in Welfare Benefits, Forgone Earnings-related Tax Revenue, and Health Service Utilisation. Social Policy and Society. 2023:1-15. doi:10.1017/S1474746423000477

Envejecimiento y bienestar: Una radiografía de las personas mayores

Oficina de Ciencia y Tecnología del Congreso de los Diputados (Oficina C). Informe C: Envejecimiento y bienestar. (2023) www.doi.org/10.57952/q3ze-2c39

Long-Term Care System Profile: Sweden

Johansson L. (2023) Long-Term Care System Profile: Sweden. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/sweden/

Projected costs of informal care for older people in England

Hu, B., Cartagena-Farias, J., Brimblecombe, N., Jadoolal S. and Wittenberg R. Projected costs of informal care for older people in England. European Journal of Health Economics (2023). https://doi.org/10.1007/s10198-023-01643-1

Effectiveness of an educational intervention to increase professional nurses’ person-centred care competence in long-term care of older people—Quasi-experimental study

Pakkonen, M., Stolt, M., Edvardsson, D., Charalambous, A., Pasanen, M., & Suhonen, R. (2023). Effectiveness of an educational intervention to increase professional nurses’ person-centred care competence in long-term care of older people-Quasi-experimental study. Scandinavian journal of caring sciences. https://doi.org/10.1111/scs.13230

Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment

Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment. This study examines the effects of subsidising home-based long-term care on recipient health and their working-age children’s labor supply. It makes use of comprehensive administrative data from Israel’s Social Security Administration, encompassing welfare benefit applications from 2010 to 2015.   Ofek-Shanny, Yuval and Strulov-Shlain, Avner and Zeltzer, […]

Enabling health and maintaining independence for older people at home (HomeHealth trial): a multicentre randomised controlled trial

Enabling health and maintaining independence for older people at home (HomeHealth trial). HomeHealth is a new home-based, manualised voluntary sector service supporting older people with mild frailty to maintain their independence through behaviour change.   Frost, R., Avgerinou, C., Kalwarowsky, S., Mahmood, F., Goodman, C., Clegg, A., Hopkins, J., Gould, R., Gardner, B., Marston, L., […]

Canada’s Care Economy: A Conceptual Framework

Wray, D., Badets, J., Keating, N. and Fast, J. (2023) Canada’s Care Economy: a Conceptual Framework. Statistics Canada. https://www150.statcan.gc.ca/n1/pub/89-652-x/89-652-x2023002-eng.htm

Housing America’s Older Adults

Housing America’s Older Adults: Increased government support in the form of additional assistance for rent, accessibility modifications, and services and supports for older households with lower incomes could help alleviate the dual burden of housing and care costs. Better coordination of health and housing programs could help increase the efficiency of both.   Housing America’s […]

Country Differences in Long-Term Care Institutions: Towards a Care Regime Typology

Using Latent Profile Analyses to identify different typologies of care regimes. van Damme, Maike & Spijker, Jeroen, 2023. “Country Differences in Long-Term Care Institutions: Towards a Care Regime Typology,” OSF Preprints xcjaq, Center for Open Science. https://doi.org/10.31219/osf.io/xcjaq

Measuring social protection for Long-Term Care

Llena-Nozal A. and Killmeier K (2023) Measuring social protection for Long-Term Care. OEDCD Policy Brief. Mutual learning workshop on adequate social protection in long-term care. https://www.oecd.org/health/Measuring-social-protection-for-long-term-care-Brief.pdf

Caring For Carers?

Caring For Carers? The Effect of Public Subsidies on the Well-Being. Evaluating a Scottish reform using a differences-in-differences (DiD) approach. Joan Costa-Font, Francesco D’Amico and Cristina Vilaplana-Prieto, 2023. “Caring For Carers?,” American Journal of Health Economics, University of Chicago Press, vol. 9(4), pages 487-522. https://www.journals.uchicago.edu/doi/abs/10.1086/723539 

Mental and physical health changes around transitions into unpaid caregiving in the UK

Mental and physical health changes around transitions into unpaid caregiving in the UK: a longitudinal, propensity score analysis. Lacey, R., Xue, B., Di Gessa, G., Lu, W., McMunn, A. (2023) Mental and physical health changes around transitions into unpaid caregiving in the UK: a longitudinal, propensity score analysis. The Lancet Public Health. November https://www.thelancet.com/journals/lanpub/article/PIIS2468-2667(23)00206-2/fulltext

Research in Dementia Map (RESIDE)

Research in dementia mapping (2023) RESIDE. Available at: https://dementiamap.uk/

The Long-Term Impacts of an Integrated Care Programme on Hospital Utilisation among Older Adults in the South of England: A Synthetic Control Study

The Long-Term Impacts of an Integrated Care Programme on Hospital Utilisation among Older Adults in the South of England: A Synthetic Control Study. Seamer, P., Lloyd, T., Conti, S., & O’Neill, S. (2023). The Long-Term Impacts of an Integrated Care Programme on Hospital Utilisation among Older Adults in the South of England: A Synthetic Control […]

Long-Term Care of older persons and persons with disabilities in the Western Balkans

This report provides a comparative overview of the condition of long-term care systems in the Western Balkans and provides insights to develop recommendations to strengthen Long-Term Care in the Western Balkans. It was developed as part of a three-year programme in the Western Balkans region entitled “Strengthening the resilience of older people and people with […]

Investigating community-based care service factors delaying residential care home admission of community dwelling older adults and cost consequence

Jeon, Y. H., Simpson, J. M., Comans, T., Shin, M., Fethney, J., McKenzie, H., Crawford, T., Lang, C., & Inacio, M. (2023). Investigating community-based care service factors delaying residential care home admission of community dwelling older adults and cost consequence. Age and ageing, 52(10), afad195. https://doi.org/10.1093/ageing/afad195

The role of primary health care in long-term care facilities during the COVID-19 pandemic in 30 European countries: a retrospective descriptive study (Eurodata study)

Guisado-Clavero, M., Ares-Blanco, S., Serafini, A., Del Rio, L., Larrondo, I., Fitzgerald, L., . . . Gómez Bravo, R. (2023). The role of primary health care in long-term care facilities during the COVID-19 pandemic in 30 European countries: A retrospective descriptive study (Eurodata study). Primary Health Care Research & Development, 24, E60. doi:10.1017/S1463423623000312

Does informal care delay nursing home entry? Evidence from Dutch linked survey and administrative data

Does informal care delay nursing home entry? Evidence from the Netherlands using Propensity Score Matching.   Bergeot, J. & Tenand, M. (2023) Does informal care delay nursing home entry? Evidence from Dutch linked survey and administrative data, Journal of Health Economics, Volume 92, https://doi.org/10.1016/j.jhealeco.2023.102831.

Communicating the findings of long-term care research using interactive maps

Interactive maps can be a compelling and intuitive way to display geographic variation in your data. But presenting data visually means making choices. In long-term care, spending or demographic information is often reported at the administrative level. In this blog post Sam Rickman (Care Policy and Evaluation Centre, LSE) sets out practical ways to make […]

Perspectives on approaching pain management in patients with dementia

Attrill, L., & Schofield, P. (2024). Perspectives on approaching pain management in patients with dementia. Pain Management, 14(3), 153–161. https://doi.org/10.2217/pmt-2023-0095

Older Persons and Community Care in South Africa Report

This report provides evidence on how families interact with services, policies, and infrastructures of care at the community level. It presents four key areas of discussion which focussed on 1) experiences of family care, 2) challenges of family care, 3) support services available and 4)support services needed. The authors provide recommendations regarding adjustments to policies […]

Funding Elder Care in South Africa Report

Report examining funding for care for older people in South Africa Moore, Elena; Kelly, Gabrielle (2023). Funding Elder Care in South Africa Report. University of Cape Town. Report. https://doi.org/10.25375/uct.24146772.v3  

Priorities for day centre support and research, and the importance of centralised supportive information for day centres and their stakeholders

Orellana, K., Samsi, K., Manthorpe, J., & Emmer De Albuquerque Green, C. (2023). Priorities for day centre support and research, and the importance of centralised supportive information for day centres and their stakeholders. International Journal of Care and Caring. https://doi.org/https://bristoluniversitypressdigital.com/view/journals/ijcc/aop/article-10.1332-239788221X16917415568825/article-10.1332-239788221X16917415568825.xml

Listening and learning: a qualitative study of Scottish care home staff experiences of managing COVID-19 between March 2020-August 2022

Burton, J.K., Drummond, M., Gallacher, K.I. et al. Listening and learning: a qualitative study of Scottish care home staff experiences of managing COVID-19 between March 2020-August 2022. BMC Geriatr 23, 544 (2023). https://doi.org/10.1186/s12877-023-04251-z 

Older People’s Health and Long-Term Care During COVID-19: Impacts and Policy Responses

Kim, H. (2023) Older People’s Health and Long-Term Care During COVID-19: Impacts and Policy Responses. Republic of Korea – World Bank Group Partnership On COVID-19 Preparedness and Response. https://openknowledge.worldbank.org/server/api/core/bitstreams/8e335a4e-df73-4f18-ae44-bbfef9e48a12/content 

The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia)

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The Economics of Long-Term Care

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Medicaid Expansion and the Mental Health of Spousal Caregivers

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Emerging Health Technologies in Long-Term Care and Suppliers’ Views on Their Potential to Assist and Support the Workforce

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Long-Term Care System Profile: Japan

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Unpaid Work In Nursing Homes: Flexible Boundaries (open access book)

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Family spillovers and long-term care insurance

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How Stories Can Contribute Toward Quality Improvement in Long-Term Care

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“This Government is Failing Me Too” South Africa Compounds Legacy of Apartheid for Older People

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Long-Term Care System Profile: Greece

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Restrictions on Hospital Referrals from Long-Term Care Homes in Madrid and COVID-19 Mortality from March to June 2020: A Systematic Review of Studies Conducted in Spain

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Acute hospital use in older adults following the 2015 Dutch reform of long-term care: an interrupted time series analysis

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Hacia la personalización de los cuidados y los apoyos en el marco del sistema de atención a la dependencia

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Outcome measures from international older adult care home intervention research: a scoping review

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Long-Run Consequences of Informal Elderly Care and Implications of Public Long-Term Care Insurance

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Early onset of care needs in the older population: The protective role of housing conditions

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Family Caregivers in Israel: Analysis, Characterization, and Impact on the Labor Market

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Regional network-building for complexity: A region-oriented policy response to increasing and varied demands for older person care in the Netherlands

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Practical thematic analysis: a guide for multidisciplinary health services research teams engaging in qualitative analysis

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The DEEP-Ethics Gold Standards for Dementia Research

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Registered care home managers’ experiences of responding to the national care home visiting guidance in England during the Covid-19 pandemic; a multi-method qualitative study

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Technology and homecare in the UK: Policy, storylines and practice

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Covid-19 in the Community and Outbreaks in Long-Term Residential Care in Ireland

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Australian retirement village residents: wellbeing profiles and factors associated with low wellbeing

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Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study

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The Impact of Wages on Care Home Quality in England

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Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia

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Family care of older people in Southern Africa. Special issue editorial

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Effects of a financial incentive scheme for dementia care on medical and long-term care expenditures: A propensity score–matched analysis using LIFE study data

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Situating masculinity, labour migration and care over the life course in Lesotho: foregrounding survivor bias in researching care

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Development of a long-term care economy in Gauteng, South Africa: towards decent work

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Equitable, sustainable and acceptable long-term care in Malawi? Unpacking the implied universalism of key terms in international ageing policy discourse

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Production of research in Southern Africa from a political ethics of care perspective: a scoping review and reflection

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Provider Ownership and Indicators of Service Quality: Evidence from Swedish Residential Care Homes

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The problems with systematic review: a living systematic review

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Family care for older persons in South Africa: heterogeneity of the carer’s experience

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Evidence summary: Human factors associated with technology use in Aged Care

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Cohort Trajectories by Age and Gender for Informal Caregiving in Europe Adjusted for Sociodemographic Changes, 2004 and 2015

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The path to healthy ageing in China: a Peking University–Lancet Commission

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Inequalities in unpaid carer’s health, employment status and social isolation

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The potential value of a geographic information system for public service planning for older people in the African region

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Don’t forget I’m human –reducing dementia stigma. The STRiDE Anti-Stigma Toolkit.

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COVID-19 and the Long-Term Care system in Japan

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Factors associated with unmet need for support to maintain independence in later life: a systematic review of quantitative and qualitative evidence

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Effects of cost sharing on long-term care service utilization among home-dwelling older adults in Japan

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Global Report on Long-Term Care Financing

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Providing long-term care: Options for a better workforce

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Do mobile hospital teams in residential aged care facilities increase health care efficiency: an evaluation of French residential care policy

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The Global Demand for Migrant Care Workers: Drivers and Implications on Migrants’ Wellbeing

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Understanding, experiences and attitudes of dementia in India: A qualitative study

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The Economic Impact of Long-term Care Services

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Using Difference in Differences to evaluate vertical health and social care integration in Scotland

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Gender differences in access to community-based care: a longitudinal analysis of widowhood and living arrangements

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Making the Invisible Visible: The Pandemic and Migrant Care Work in Long-Term Care

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Reducing dementia-related stigma and discrimination among community health workers in Brazil: protocol for a randomised controlled feasibility trial

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Co-developing and contextualising long-term care innovations in Europe using Theory of Change: lessons from InCARE

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Caregiving impacts on unpaid informal carers’ health and well-being – a gender perspective: factsheet by WHO Europe

Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study

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Factors associated with change over time in quality of life of people with dementia: longitudinal analyses from the MODEM cohort study

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Understanding health trajectories among unpaid carers in the United Kingdom

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Not Free at All: Home Care User Fees in a Nordic Care System

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Rebuilding for sustainability and resilience: strengthening the integrated delivery of long-term care in the European Region

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The first cross-national study of adolescent young carers aged 15–17 in six European countries

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Institutional Business Power: The Case of Ireland’s Private Home Care Providers

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Austria’s Long-Term Care System: Challenges and Policy Responses

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Erfahrungen, Einstellungen und Erwartungen zur Langzeitpflege in Österreich

Social Long-Term Care Insurance: An Idea Travelling Between Countries?

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A codesigned fit-for-purpose implementation framework for aged care

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Risk Recognition Policies for the Long-Term Care Workforce during the First Year of the COVID-19 Pandemic: A Multi-Country Study

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The interface between primary care and care homes: General Practitioner experiences of working in care homes for older people

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Framework for countries to achieve an integrated continuum of long-term care

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Cuidados de larga duración en Costa Rica: enseñanzas para América Latina desde la evidencia internacional

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Extra Care Housing: The Current State of Research and Prospects for the Future

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What Long-Term Care Interventions and Policy Measures Have Been Studied During the Covid-19 Pandemic? Findings from a Rapid Mapping Review of the Scientific Evidence Published During 2020

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Caring from a distance: What can we learn from carers’ experiences of using new and familiar ways to stay in touch with family and friends in care homes during Covid-19?

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From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis

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Same same but different? Comparing institutional performance in the long-term care systems of Japan and South Korea

Kim, H., Jeon, B., Frisina Doetter, L., Tamiya, N., & Hashimoto, H. (2022). Same same but different? Comparing institutional performance in the long-term care systems of Japan and South Korea. Social Policy & Administration, 56(1), 148–162. https://doi.org/10.1111/spol.12761

Unequal Conditions of Care and the Implications for Social Policies on Young Carers

Alexander, C. Unequal Conditions of Care and the Implications for Social Policies on Young Carers. Child Adolesc Soc Work J 38, 505–518 (2021). https://doi.org/10.1007/s10560-021-00781-w

Nurses’ autonomy and perceived barriers to pain management in nursing home residents

Rababa M, Ellis JL. Nurses’ Autonomy and Perceived Barriers to Pain Management in Nursing Home Residents. J Gerontol Nurs. 2021 Aug;47(8):45-52.https://doi.org/10.3928/00989134-20210624-03

Projections of expenditure for primary, community and long-term care in Ireland, 2019-2035, based on the Hippocrates model

Walsh B, Keegan C, Brick A, Connolly S, Bergin A Wren M-A, Lyons S, Hill L, Smith S. 2021. Projections of expenditure for primary, community and long-term care in Ireland, 2019-2035, based on the Hippocrates model. ESRI Research Series Report 126 doi: https://doi.org/10.26504/rs126

Progress Toward Long-Term Care Protection in Latin America: A National Long-Term Care System in Costa Rica

Matus-López M, Chaverri-Carvajal A. Progress Toward Long-Term Care Protection in Latin America: A National Long-Term Care System in Costa Rica. Journal of the American Medical Directors Association. 2022; 23(2):266-271. https://doi.org/10.1016/j.jamda.2021.06.021

Building a strategic theory of change to address dementia care, treatment and support gaps

Breuer E, Comas-Herrera A, Freeman E, Albanese E, Alladi S, Amour R, Evans-Lacko S, Ferri CP, Govia I, Iveth Astudillo García C, Knapp M, Lefevre M, López-Ortega M, Lund C, Musyimi C, Ndetei D, Oliveira D, Palmer T, Pattabiraman M, Sani TP, Taylor D, Taylor E, Theresia I, Thomas PT, Turana Y, Weidner W, Schneider […]

Comparing long-term care systems: A multi-dimensional, actor-centred typology

Fischer, Johanna, Lorraine Frisina Doetter, and Heinz Rothgang. 2022. “Comparing Long‐term Care Systems: A Multi‐dimensional, Actor‐centred Typology.” Social Policy & Administration 56 (1): 33–47. https://doi.org/10.1111/spol.12742

Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study

Oliveira, D., Da Mata, F. A. F., Mateus, E., Musyimi, C. W., Farina, N., Ferri, C. P., & Evans-Lacko, S. (2021). Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study. Ageing and Society, 43(2). https://doi.org/10.1017/S0144686X21000660

Promoting Social Innovation in long-term care: A common narrative for change across Europe. InCARE Policy Brief no. 1

Ilinca S., Simmons C., Zonneveld N., Benning K., Comas-Herrera A., Champeix C., Nies H., Leichsenring K. (2021) Promoting Social Innovation in long-term care: A common narrative for change across Europe. INCARE Policy Brief No.1.

Social Innovation in LTC in Europe: Towards a common narrative for change. InCARE Short Report No.1

Ilinca S., Simmons C., Zonneveld N., Benning K., Comas-Herrera A., Champeix C., Nies H. and Leichsenring K. (2021) Social Innovation in LTC in Europe: Towards a common narrative for change. InCARE Short Report No.1

Perceptions and experiences of dementia and its care in rural Kenya

Musyimi, C. W., Ndetei, D. M., Evans-Lacko, S., Oliveira, D., Mutunga, E., & Farina, N. (2021). Perceptions and experiences of dementia and its care in rural Kenya. Dementia, 20(8). https://doi.org/10.1177/14713012211014800

Income-Related Inequalities in Informal Care: Evidence From the Longitudinal Healthy Longevity Survey in China

Yixiao Wang, Wei Yang, Mauricio Avendano, Income-Related Inequalities in Informal Care: Evidence From the Longitudinal Healthy Longevity Survey in China, The Journals of Gerontology: Series B, Volume 76, Issue 8, October 2021, Pages 1691–1696, https://doi.org/10.1093/geronb/gbab043

Affects of policy design: The case of young carers in the Care Act 2014 and the Children and Families Act 2014

Alexander C. Affects of policy design: The case of young carers in the Care Act 2014 and the Children and Families Act 2014. Soc Policy Adm. 2021; 55: 968–980. https://doi.org/10.1111/spol.12692

The risk protection and redistribution effects of long-term care co-payments

Wouterse B , Hussem A , Wong A . (2022). The risk protection and redistribution effects of long-term care co-payments. Journal of Risk and Insurance, 89, 161–186. https://doi.org/10.1111/jori.12337

Fractures in the Austrian Model of Long-Term Care: What are the Lessons from the First Wave of the COVID-19 Pandemic?

Leichsenring, K., Schmidt, A.E. and Staflinger, H., 2021. Fractures in the Austrian Model of Long-Term Care: What are the Lessons from the First Wave of the COVID-19 Pandemic?. Journal of Long Term Care, 0(2021), p.33–42.DOI: https://doi.org/10.31389/jltc.54

Dem Schmerz auf der Spur

Langner B (2021). Dem Schmerz auf der Spur. Schmerzassessment bei Demenz mit PAIC15. Pflegezeitschrift 74, no. 1, 54-55

Pricing long-term care for older persons

Report describing experiences of high-income countries in financing long-term care, focusing on price setting and sharing experiences of how pricing is used to contribute to broader LTC policy objectives. Includes case studies on Australia, France, Germany, Japan, Republic of Korea, The Netherlands, Spain, Sweden and the United States of America. Barber SL, van Gool K, […]

The Long-Term Care System in Austria

Österle, August (2021): The Long-Term Care System in Austria. CRC 1342 Social Policy Country Briefs, 12. https://doi.org/10.26092/elib/833

Den Schmerz von Menschen mit Demenz erfassen

Laekeman M (2020) Den Schmerz von Menschen mit Demenz erfassen – Pain Assessment in Impaired Cognition Scale (PAIC 15). Physiopraxis, 18(06): 52-53. DOI: 10.1055/a-1191-8688  www.thieme.de/physiopraxis

Unethical governance: capacity legislation and the exclusion of people diagnosed with dementias from research

Fletcher, J. R. (2021). Unethical governance: capacity legislation and the exclusion of people diagnosed with dementias from research. Research Ethics, 17(3), 298–308. https://doi.org/10.1177/1747016120982023

Evidence-based clinical practice guidelines on the management of pain in older people–a summary report

Schofield P, Dunham M, Martin D, et al. Evidence-based clinical practice guidelines on the management of pain in older people – a summary report. British Journal of Pain. 2022;16(1):6-13. doi:10.1177/2049463720976155 (open access)

Quality of Life of Informal Caregivers behind the Scene of the COVID-19 Epidemic in Serbia

Todorovic N, Vracevic M, Rajovic N, Pavlovic V, Madzarevic P, Cumic J, Mostic T, Milic N, Rajovic T, Sapic R, et al. Quality of Life of Informal Caregivers behind the Scene of the COVID-19 Epidemic in Serbia. Medicina. 2020; 56(12):647. https://doi.org/10.3390/medicina56120647

Pain in Older Adults With Dementia: A Survey in Spain

Giménez-Llort L, Bernal ML, Docking R, Muntsant-Soria A, Torres-Lista V, Bulbena A and Schofield PA (2020). Pain in Older Adults With Dementia: A Survey in Spain. Frontiers in Neurology https://doi.org/10.3389/fneur.2020.592366

Long-term care system for older adults in China: policy landscape, challenges, and future prospects

Feng, Z., Glinskaya, E., Chen, H., Gong, S., Qiu, Y., Xu, J., & Yip, W. (2020). Long-term care system for older adults in China: policy landscape, challenges, and future prospects. The Lancet, 396(10259), 1362-1372. https://doi.org/10.1016/S0140-6736(20)32136-X

Pensions, consumption and health: evidence from rural South Africa

Peter Lloyd-Sherlock; Sutapa Agrawal; Francesc Gómez-Olivé (2020) Pensions, consumption and health: evidence from rural South Africa. BMC Public Health 20, 1577. 

The role of formal care services in supporting young people who provide unpaid care in England

Nicola Brimblecombe, Madeleine Stevens, Derek King & Martin Knapp (2022) The role of formal care services in supporting young people who provide unpaid care in England, Journal of Youth Studies, 25:1, 1-16, DOI: 10.1080/13676261.2020.1828848

Long-Term Care System in Japan

Yamada, M., & Arai, H. (2020). Long-Term Care System in Japan. Annals of Geriatric Medicine and Research, 24(3), 174–180. https://doi.org/10.4235/agmr.20.0037

Short- and Medium-Term Effects of Informal Eldercare on Labor Market Outcomes

Heger, D., & Korfhage, T. (2020). Short- and Medium-Term Effects of Informal Eldercare on Labor Market Outcomes. Feminist Economics, 26(4), 205–227. https://doi.org/10.1080/13545701.2020.1786594

The high cost of unpaid care by young people: health and economic impacts of providing unpaid care

Brimblecombe, N., Knapp, M., King, D., Stevens M. and Cartagena-Farias J.. The high cost of unpaid care by young people:health and economic impacts of providing unpaid care. BMC Public Health 20, 1115 (2020). https://doi.org/10.1186/s12889-020-09166-7

A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia

De Poli, C., Oyebode, J., Airoldi, M., Glover R. A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia. BMC Health Serv Res 20, 657 (2020). https://doi.org/10.1186/s12913-020-05416-x

Pain management in nursing home residents: results from the INCUR study

V. Nunziata, Marco Proietti, E. Saporiti, L. Calcaterra, Y. Rolland, B. Vellas, M. Cesari, Pain Management in Nursing Home Residents: Results from the Incur Study, The Journal of nutrition, health and aging, Volume 24, Issue 9, 2020, Pages 1019-1022, ISSN 1279-7707, https://doi.org/10.1007/s12603-020-1513-2.

Better off at home? Effects of nursing home eligibility on costs, hospitalizations and survival

Bakx, P., Wouterse, B., van Doorslaer, E., & Wong, A. (2020). Better off at home? Effects of nursing home eligibility on costs, hospitalizations and survival. Journal of health economics, 73, 102354. https://doi.org/10.1016/j.jhealeco.2020.102354

Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study

Nielsen, T. R., Nielsen, D. S., & Waldemar, G. (2021). Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study. Aging & Mental Health, 25(8), 1424–1432. https://doi.org/10.1080/13607863.2020.1787336

COVID-19 and clients of long-term care in Finland – impact and measures to control the virus

Forma L, Aaltonen M, Pulkki J (2020) COVID-19 and clients of long-term care in Finland – impact and measures to control the virus. LTCcovid, International Long-Term Care Policy Network, CPEC-LSE, 12 June 2020. 

An Initial Analysis of the Effects of a Long-Term Care Insurance on Equity and Efficiency: A Case Study of Qingdao City in China

Yang, W., Chang, S., Zhang, W., Wang, R., Mossialos, E., Wu, X., Cui, D., Li, H., & Mi, H. (2021). An Initial Analysis of the Effects of a Long-Term Care Insurance on Equity and Efficiency: A Case Study of Qingdao City in China. Research on Aging, 43(3-4), 156-165. https://doi.org/10.1177/0164027520907346

Developing a framework for performance assessment of the public long-term care system in Korea: methodological and policy lessons

Kim, H., Jeon, B. Developing a framework for performance assessment of the public long-term care system in Korea: methodological and policy lessons. Health Res Policy Sys 18, 27 (2020). https://doi.org/10.1186/s12961-020-0529-8

Pain assessment for cognitively impaired older adults: Do items of available observer tools reflect pain-specific responses?

Kappesser J, Voit S, Lautenbacher S, Hermann C. Pain assessment for cognitively impaired older adults: Do items of available observer tools reflect pain-specific responses? Eur J Pain. 2020; 24: 851–862. https://doi.org/10.1002/ejp.1536

Caring in space: the boundaries between public and private spaces in Finnish adult foster care homes

Leinonen E. Caring in space: the boundaries between public and private spaces in Finnish adult foster care homes. Ageing and Society. 2021;41(5):1184-1201. doi:10.1017/S0144686X19001831

Factors influencing the cost of care and admission to long-term care for people with dementia in Ireland

Walsh, S., Pertl, M., Gillespie, P., Lawlor, B., Brennan, S., & O’Shea, E. (2019). Factors influencing the cost of care and admission to long-term care for people with dementia in Ireland. Aging & Mental Health, 25(3), 512–520. https://doi.org/10.1080/13607863.2019.1699901

Care providers, access to care, and the Long-term Care Nursing Insurance in China: An agent-based simulation

Shuang Chang, Wei Yang, Hiroshi Deguchi. Care providers, access to care, and the Long-term Care Nursing Insurance in China: An agent-based simulation, Social Science & Medicine, Volume 244, 2020, 112667, https://doi.org/10.1016/j.socscimed.2019.112667

STRiDE Theory of Change Workshops: Guidance and Resources

Breuer E, Comas-Herrera A, Docrat S, Freeman E, Schneider M and the STRiDE team (2019) STRiDE Theory of Change Workshops: Guidance and Resources. STRiDE Research Tool No.1 (version 2), Care Policy and Evaluation Centre at LSE, London.

The Living Lab In Ageing and Long-Term Care: A Sustainable Model for Translational Research Improving Quality of Life, Quality of Care and Quality of Work

Hilde Verbeek, S.M.G. Zwakhalen, J.M.G.A. Schols, G.I.J.M. Kempen, J.P.H. Hamers, The Living Lab in Ageing and Long-Term Care: A Sustainable Model for Translational Research Improving Quality of Life, Quality of Care and Quality of Work, The Journal of nutrition, health and aging, Volume 24, Issue 1, 2020, Pages 43-47, ISSN 1279-7707, https://doi.org/10.1007/s12603-019-1288-5

Care poverty: unmet care needs in a Nordic welfare state

Kröger, T., Puthenparambil, J. M., & Van Aerschot, L. (2019). Care poverty: unmet care needs in a Nordic welfare state. International Journal of Care and Caring, 3(4), 485-500. Retrieved Apr 18, 2024, from https://doi.org/10.1332/239788219X15641291564296

World Alzheimer Report 2019: Attitudes to dementia

Alzheimer’s Disease International. 2019. World Alzheimer Report 2019: Attitudes to dementia. London: Alzheimer’s Disease International. https://www.alzint.org/resource/world-alzheimer-report-2019/

Observational pain assessment in older persons with dementia in four countries: Observer agreement of items and factor structure of the Pain Assessment in Impaired Cognition

de Waal MWM, van Dalen-Kok AH, de Vet HCW, et al. Observational pain assessment in older persons with dementia in four countries: Observer agreement of items and factor structure of the Pain Assessment in Impaired Cognition. Eur J Pain. 2020; 24: 279–296. https://doi.org/10.1002/ejp.1484

The Pain Assessment in Impaired Cognition scale (PAIC15): A multidisciplinary and international approach to develop and test a meta-tool for pain assessment in impaired cognition, especially dementia

Kunz M, de Waal MWM, Achterberg WP, et al. The Pain Assessment in Impaired Cognition scale (PAIC15): A multidisciplinary and international approach to develop and test a meta-tool for pain assessment in impaired cognition, especially dementia. Eur J Pain. 2020; 24: 192–208. https://doi.org/10.1002/ejp.1477

Pain Assessment in Impaired Cognition: Observer Agreement in a Long-Term Care Setting in Patients with Dementia

van Dalen-Kok, A. H., Achterberg, W. P., Rijkmans, W. E., de Vet, H. C., & de Waal, M. W. (2019). Pain assessment in impaired cognition: observer agreement in a long-term care setting in patients with dementia. Pain management, 9(5), 461-473. https://doi.org/10.2217/pmt-2019-0025

“The Poor Carer”: Ambivalent Social Construction of the Home Care Worker in Elder Care Services

Timonen, V., & Lolich, L. (2019). “The Poor Carer”: Ambivalent Social Construction of the Home Care Worker in Elder Care Services. Journal of Gerontological Social Work, 62(7), 728–748. https://doi.org/10.1080/01634372.2019.1640334

Who to Talk to About my pain? A brief qualitative study on perception of pain and its management in swiss nursing home residents

Brunkert T., Simon M., Haslbeck J., Zuñiga F. (2019) Who to Talk to About my Pain? A Brief Qualitative Study on Perception of Pain and its Management in Swiss Nursing Home Residents. Pain Management Nursing, Volume 21, Issue 2, 151 – 156. https://doi.org/10.1016/j.pmn.2019.06.003

Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions

Joseph, S., Sempik, J., Leu, A. et al. Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions. Adolescent Res Rev 5, 77–89 (2020). https://doi.org/10.1007/s40894-019-00119-9

Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life

Edvardsson D, Baxter R, Corneliusson L, et al. Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life. Gerontology and Geriatric Medicine. 2019;5. doi:10.1177/2333721419842672

Coverage Versus Generosity: Comparing Eligibility and Need Assessment in Six Cash‐for‐care Programmes

Ranci, Costanzo, August Österle, Marco Arlotti, and Andrea Parma. 2019. “Coverage Versus Generosity: Comparing Eligibility and Need Assessment in Six Cash‐for‐care Programmes.” Social Policy & Administration 53 (4): 551–66. https://doi.org/10.1111/spol.12502.

Current issues in long-term care policy and research: Toward the promotion of evidence-based policy (Japan)

Masui, H., Otaga, M., Moriyama, Y., & Matsushige, T. (2019). Current issues in long-term care policy and research: Toward the promotion of evidence-based policy. 保健医療科学,1: 34-44. https://www.niph.go.jp/journal/data/68-1/201968010006.pdf

Endogenous Living Arrangements and Health of Older Adults: Evidence from Instrumental Variable Estimation

This study aims to address the endogenous relationship between independent living arrangements (ILAs)  and health of older adults using an instrumental variable (IV) approach. Data were obtained from a cross-sectional survey of older adults in Xiamen, China. Weng, Chenziheng and Han, Yaofeng and Fang, Ya, Endogenous Living Arrangements and Health of Older Adults: Evidence from […]

Economic evaluations in community aged care: a systematic review

Bulamu, N. B., Kaambwa, B., & Ratcliffe, J. (2018). Economic evaluations in community aged care: a systematic review. BMC health services research, 18(1), 967. https://doi.org/10.1186/s12913-018-3785-3

Options for aged care in China: Building an efficient and sustainable aged care system

Glinskaya E. Feng Z. Options for aged care in China: Building an efficient and sustainable aged care system. World Bank; 2018 . Available from: https://doi.org/10.1596/978-1-4648-1075-6

Review of the international evidence on support for unpaid carers

Brimblecombe, N., Fernandez, J.-L., Knapp, M., Rehill, A. and Wittenberg, R., 2018. Review of the international evidence on support for unpaid carers. Journal of Long Term Care, 0(0), p.25-40.DOI: https://doi.org/10.31389/jltc.3

Long-term care for older people in South Africa: the enduring legacies of apartheid and HIV/AIDS

P.Lloyd-Sherlock (2018) Long-term care for older people in South Africa: the enduring legacies of apartheid and HIV/AIDS. Journal of Social Policy 48, 1, 147–167 doi:10.1017/S0047279418000326

Pensions and low sodium salt: a qualitative evaluation of a new strategy for managing hypertension in rural South Africa

Lloyd-Sherlock P, Gomez-Olive F, Ngobeni S, Wagner R, Tollman S. (2018) Pensions and low sodium salt: a qualitative evaluation of a new strategy for managing hypertension in rural South Africa. Current Aging Science 11(2):140-146.doi: 10.2174/1874609811666180718114250

Pain Assessment in Impaired Cognition (PAIC): content validity of the Dutch version of a new and universal tool to measure pain in dementia

van Dalen-Kok, A. H., Achterberg, W. P., Rijkmans, W. E., Tukker-van Vuuren, S. A., Delwel, S., de Vet, H. C., Lobbezoo, F., de Waal, M. W. (2018). Pain Assessment in Impaired Cognition (PAIC): content validity of the Dutch version of a new and universal tool to measure pain in dementia. Clinical Interventions in Aging, 13, […]

Nordic eldercare – Weak universalism becoming weaker?

Szebehely, M., & Meagher, G. (2018). Nordic eldercare – Weak universalism becoming weaker? Journal of European Social Policy, 28(3), 294-308. https://doi.org/10.1177/0958928717735062

Long-Term Care Organization and Financing

Freeman, Emily, Martin Knapp, and Ami Somani. 2017. “Long-Term Care Organization and Financing.” In International Encyclopedia of Public Health, edited by Stella R. Quah and William C. Cockerham. 2nd edition, 469–76. London: Academic Press

Long-Term Care Insurance System of Japan

Ministry of Health, Labour and Welfare, Japan. (2016). Long-term care insurance system of Japan. Available at: https://www.mhlw.go.jp/english/policy/care-welfare/care-welfare-elderly/dl/ltcisj_e.pdf (accessed 14 July 2023).

A cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’

Agnes Leu & Saul Becker (2017) A cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’, Journal of Youth Studies, 20:6, 750-762, DOI: 10.1080/13676261.2016.1260698

Long-Term Care Reforms in OECD Countries: Successes and Failure

Gori, Cristiano, José-Luis Fernández, and Raphael Wittenberg, eds. 2016. Long-Term Care Reforms in OECD Countries: Successes and Failures. Bristol: Policy Press.

Co-design and implementation research: challenges and solutions for ethics committees

Goodyear-Smith, F., Jackson, C., & Greenhalgh, T. (2015). Co-design and implementation research: challenges and solutions for ethics committees. In BMC Medical Ethics (Vol. 16, Issue 1, p. 78). BioMed Central. https://doi.org/10.1186/s12910-015-0072-2

Users of home-care services in a Nordic welfare state under marketisation: the rich, the poor and the sick

Mathew Puthenparambil, J., Kröger, T. and Van Aerschot, L. (2017), Users of home-care services in a Nordic welfare state under marketisation: the rich, the poor and the sick. Health Soc Care Community, 25: 54-64. https://doi.org/10.1111/hsc.12245

“There are no known benefits.”: Considering the risk/benefit ratio of qualitative research

Opsal, T., Wolgemuth, J., Cross, J., Kaanta, T., Dickmann, E., Colomer, S., & Erdil-Moody, Z. (2016). “There are no known benefits.”: Considering the risk/benefit ratio of qualitative research. Qualitative Health Research, 26(8), 1137–1150. https://doi.org/10.1177/1049732315580109

Long-Term Care Policies

Pavolini, Emmanuele, and Hildegard Theobald. 2015. “Long-Term Care Policies.” In The Palgrave International Handbook of Healthcare Policy and Governance, edited by Ellen Kuhlmann, Robert H. Blank, Ivy L. Bourgeault, and Claus Wendt, 462–78. London: Palgrave Macmillan.

An international road map to improve pain assessment in people with impaired cognition: the development of the Pain Assessment in Impaired Cognition (PAIC) meta-tool

Corbett, A., Achterberg, W., Husebo, B., Lobbezoo, F., de Vet, H., Kunz, M., Strand l, Constantinou M, Tudose C, Kappesser J, de Waal M & Lautenbacher S. (2014). An international road map to improve pain assessment in people with impaired cognition: the development of the Pain Assessment in Impaired Cognition (PAIC) meta-tool. BMC neurology, 14(1), […]

When is a carer’s employment at risk? Longitudinal analysis of unpaid care and employment in midlife in England

King, D. and Pickard, L. (2013), When is a carer’s employment at risk? Longitudinal analysis of unpaid care and employment in midlife in England. Health & Social Care in the Community, 21: 303-314. https://doi.org/10.1111/hsc.12018

Making Sence of Differences – the Mixed Economy of Funding and Delivering Long-Term Care

Rodrigues, Ricardo, and Henk Nies. 2013. “Making Sence of Differences – the Mixed Economy of Funding and Delivering Long-Term Care.” In Long-Term Care in Europe: Improving Policy and Practice, edited by Kai Leichsenring, Jenny Billings, and Henk Nies, 191–212. Basingstoke: Palgrave Macmillan.

Outcomes of social care for adults: developing a preference weighted measure

Netten A, Burge P, Malley J, Potoglou D, Towers A. Outcomes of social care for adults: developing a preference weighted measure. Health Technol Assess 2012;16(16) https://doi.org/10.3310/hta16160

From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications

Purcal, C., Hamilton, M., Thomson, C. and Cass, B. (2012), From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications. Social Policy & Administration, 46: 788-806. https://doi.org/10.1111/j.1467-9515.2011.00816.x

Global perspectives on children’s unpaid caregiving in the family: Research and policy on ‘young carers’ in the UK, Australia, the USA and Sub-Saharan Africa

Becker, S. (2007). Global perspectives on children’s unpaid caregiving in the family: Research and policy on ‘young carers’ in the UK, Australia, the USA and Sub-Saharan Africa. Global social policy, 7(1), 23-50. https://journals.sagepub.com/doi/abs/10.1177/1468018107073892

Technology in Aged Care resources

Resources on Technology in Aged care collated by the Aged Care Research & Industry Innovation Australia (ARIIA)’s Knowledge and Implementation Hub.

Shaping care home COVID-19 testing policy: a protocol for a pragmatic cluster randomised controlled trial of asymptomatic testing compared with standard care in care home staff (VIVALDI-CT)

Adams N, Stirrup O, Blackstone J, et al. Shaping care home COVID-19 testing policy: a protocol for a pragmatic cluster randomised controlled trial of asymptomatic testing compared with standard care in care home staff (VIVALDI-CT) BMJ Open 2023;13:e076210. doi: 10.1136/bmjopen-2023-076210

Long-Term Care System Profile: Costa Rica

Chaverri-Carvajal, A. and Obando Viquez, L. (2023) Long-Term Care System Profile: Costa Rica. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science.https://goltc.org/system-profile/long-term-care-system-profile-costa-rica/ 

What are the factors associated with people with advanced dementia refusing assistance with personal care?

Backhouse T, Killett A, Mioshi E, Khondoker M. What are the factors associated with people with advanced dementia refusing assistance with personal care? Int J Geriatr Psychiatry. 2023;e5857. https://doi.org/10.1002/gps.5857

Inequalities in income security in later age in Latin America

Barrientos, A. (2021). Inequalities in income security in later age in Latin America. Pan American Journal of Public Health, 45. https://doi.org/10.26633/RPSP.2021.85

Poverty Transitions among Older Households in Brazil and South Africa

Barrientos, A., Mase, J. Poverty Transitions among Older Households in Brazil and South Africa. Eur J Dev Res 24, 570–588 (2012). https://doi.org/10.1057/ejdr.2012.13

Does formal home care reduce inpatient length of stay?

Walsh, B., Lyons, S., Smith, S., Wren, M.-A., Eighan, J. and Morgenroth, E. (2020), Does formal home care reduce inpatient length of stay?. Health Economics, 29: 1620-1636. https://doi.org/10.1002/hec.4158

Home care workers’ views of employment conditions: private for-profit vs public and non-profit providers in Ireland

O’Neill, N., Mercille, J. and Edwards, J. (2023), “Home care workers’ views of employment conditions: private for-profit vs public and non-profit providers in Ireland”, International Journal of Sociology and Social Policy, Vol. 43 No. 13/14, pp. 19-35. https://doi.org/10.1108/IJSSP-10-2022-0276

Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment

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Demand for the statutory home support scheme

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