Dolores María Peñalver García
Universidad de Murcia
Dolores María Peñalver García
Soy profesora asistente e investigadora en la Universidad de Murcia y en la UNIR (España), doctora en Educación y licenciada en Logopedia, Neuropsicología y Psicopedagogía . Mi investigación y práctica clínica se centran en la atención a largo plazo (ALP), la inclusión social y las intervenciones comunicativas para personas con enfermedades raras, trastornos del neurodesarrollo y síndromes genéticos de baja prevalencia . Participo activamente en importantes iniciativas nacionales de investigación, como el proyecto de medicina de precisión IMPACT-Genómica2 (CIBER/ISCIII), y he publicado más de 17 artículos revisados por pares en revistas de alto impacto . Mi compromiso con la aplicación de la investigación en políticas y prácticas de atención a largo plazo se refleja en mi liderazgo ejecutivo en AELFA-IF y en mi consultoría técnica para organizaciones clave de defensa de los derechos de los pacientes, como la Federación Española de Enfermedades Raras (FEDER) y d’Genes .
FURTHER INFORMATION
| Countries | Spain; Spain (Murcia); |
|---|---|
| Topics | Access to care; Accountability; Assistive Technologies; Autonomy; Care economy; Care in rural and other non-urban settings; Care inequalities; Care innovations; Care integration/ coordination; Care justice; Care needs poverty and deprivation; Care trajectories; Cohousing; Community-based LTC; Day Care; Living alone; LTC and people with learning disabilities; Neurodegenerative conditions; New models of care; Outcome measurement in LTC; Parent carers; Perinatal mental health; Person-centered care; Relationship between LTC use and hospital use; Research gaps and priorities in LTC; Risk in Long-Term Care; Sustainability; |
| Methods | Assessment tool development; Case studies; Comparative policy analysis; Creative research methods; Delphi surveys; Document analysis; Event study; Implementation science; Intervention development; Knowledge-exchange; Literature reviews and synthesis; Longitudinal qualitative studies; Mixed methods; Observational studies; Participatory research methods; Pilot study; Practice-based approaches; Prevalence study; Process tracing; Psychometric testing; Qualitative studies; Quantitative data analysis; Quasi-experimental methods; Questionnaire; Science communication; Social Return on Investment; Surveys; Systematic Review; |
| Role | Research; |
| Interest Groups | Employment Education and Family carers; Innovation in Long-Term Care; Long-Term Care in Spain; Qualitative Research; Quality improvement in Long-Term Care; Quasi-experimental methods; |
| ORC.ID | https://orcid.org/0000-0002-9872-1484 |
| GOOGLE SCHOLAR | https://scholar.google.com/citations?user=zJpeJw4AAAAJ&hl=es&oi=ao |
| Research interests | My research interests focus on long-term care (LTC) models, complex care needs, and continuous support strategies across the lifespan for individuals affected by rare diseases, low-prevalence genetic syndromes, and neurodevelopmental conditions. I explore the phenotypic characterization of language and communication impairments to design evidence-based interventions that address both clinical needs and socio-educational inclusion. I am particularly interested in integrated care models, early intervention frameworks, and patient-centered long-term support systems that enhance functional autonomy and quality of life for individuals and their family caregivers. Additionally, my work bridging clinical genomics with educational and speech-therapy practice aims to inform health and social care policies, ensuring sustainable and equitable long-term care provision. |
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