Will Dean
Lorenzo's House, Race Against Dementia
Will Dean
I’m Will Dean. I am an expert through experience. My mother lives with young onset Alzheimer’s disease, she was diagnosed at age 49. I was 16 and my sister was 19. My sister is her primary carer and I am care support. My background is in digital marketing and video production, Initially I did fundraisers for dementia research charities, running marathons and other endurance challenges to spark conversations about dementia.
I am a youth lead at Lorenzo’s House, a global virtual peer support group for sons and daughters of a parent living with or lived with young onset dementia. To connect, support and empower advocacy.
I have also changed careers and am currently a digital marketing manager at Race Against Dementia.
FURTHER INFORMATION
Countries | UK; |
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Topics | Access to care; Care inequalities; Care integration/ coordination; Care outcomes; Co-production in LTC; Dementia care and support; Employment education and family carers; LTC and younger people; Outcomes for unpaid/informal carers; Stigma and discrimination; Unmet needs; Unpaid / informal care; Younger carers; |
Methods | Co-production methods; Other; |
Role | Advocacy; |
Interest Groups | Community-based approaches to dementia care; Employment Education and Family carers; Strengthening Responses to Dementia; |
https://www.linkedin.com/in/fulltimedreamchaser/ | |
https://www.instagram.com/dolladean/?hl=en-gb | |
Research interests | My research interests focus on young carers and their unique needs, often overlooked and underrepresented. |
Key publications |
https://www.alzint.org/u/World-Alzheimer-Report-2023.pdf https://www.alzint.org/resource/world-alzheimer-report-2024/ |