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Part of the International Long-Term Care Policy Network (ILPN)

 

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STRiDE-Stigma

STRiDE-Stigma

URL: https://goltc.org/projects/goltc-1747641683

Care inequalitiesDementia care and supportEthics and careLoneliness among older peoplePerson-centered careRights and people’s voices in LTC systemsShaping LTC markets and provider behaviourSocial connectionStigma and discriminationUnmet needs United Kingdom (England) Public (including government) Focus groupsQuantitative data analysisQuestionnaireSurveysThematic analysis

Project status
Ongoing
Contact
Wendy Weidner
PI Name
Sara Evans-Lacko
Host institution
Care Policy and Evaluation Centre, London School of Economics and Political Science
Team members
University of Nottingham, King’s College London, Care Policy and Evaluation Centre, London School of Economics and Political Science, Newcastle University, University of Plymouth, Alzheimer’s Disease International (ADI), UK Alzheimer’s Society
Funded by
NIHR Three Schools: Dementia Research Programme Improving the lives of people living with dementia and carers 2021-2029

KEYWORDS / CATEGORIES

Countries
United Kingdom (England)
Topics
Care inequalities | Dementia care and support | Ethics and care | Loneliness among older people | Person-centered care | Rights and people’s voices in LTC systems | Shaping LTC markets and provider behaviour | Social connection | Stigma and discrimination | Unmet needs
Funding Type
Public (including government)
Methods
Focus groups | Quantitative data analysis | Questionnaire | Surveys | Thematic analysis
Project Summary

People with dementia face numerous challenges, yet the weight of stigma and discrimination often compounds these difficulties. Our previous research found that 85% of people with dementia in the UK reported experiencing discrimination.

Building on the findings from the 2024 World Alzheimer’s Attitudes to Dementia survey, we now have an opportunity to conduct an in-depth exploration of dementia stigma within England, with a particular focus on cultural differences. In England, where the population is ethnically diverse, it’s crucial to understand how stigma manifests across different cultural contexts and how we can reduce it.

 

Project Aims
  • Developing tools to measure stigma, beliefs, and experiences among people living with dementia, carers, healthcare practitioners, and the general public, ensuring cultural relevance across diverse groups in England.
  • Exploring how cultural beliefs about dementia influence stigma and the lived experiences of people with dementia and their carers from different ethnic backgrounds.
  • Using the findings to develop evidence-based recommendations for anti-stigma programmes that are culturally sensitive and effective in reducing dementia stigma across diverse communities in England and inform policy and practice
Outputs

Publications TBA