PUBLICATIONS | Journal articles
LIBRARY | Journal articles
23 Nov 2024
Journal article
Macao
English
Quality of life and associated characteristics in long-term care residents with advanced dementia in Macao: a cross-sectional study
Wu, J., Tam, K.I., Wang, H. et al. Quality of life and associated characteristics in long-term care residents with advanced dementia in Macao: a cross-sectional study. BMC Geriatr 24, 969 (2024). https://doi.org/10.1186/s12877-024-05466-4
23 Nov 2024
Journal article
22 Nov 2024
Journal article
England (UK)
English
Spousal Characteristics and Unmet Care Needs: A Longitudinal National Study of Adults Aged 50 and over in England
Zhang, J., Bennett, M., Zhang, Y. (2024) Spousal Characteristics and Unmet Care Needs: A Longitudinal National Study of Adults Aged 50 and over in England, Social Science & Medicine, 117530, ISSN 0277-9536, https://doi.org/10.1016/j.socscimed.2024.117530.
22 Nov 2024
Journal article
10 Nov 2024
Journal article
English
A Qualitative Exploration of the Role of Culturally Relevant Social Prescribing in Supporting Pakistani Carers Living in the UK
McMullen, S., Poduval, S., Armstrong, M., Davies, N., Dayson, C., Kharicha, K., Nair, P., Mistry, M., Sajid, M., Walters, K. and Woodward, A. (2024), A Qualitative Exploration of the Role of Culturally Relevant Social Prescribing in Supporting Pakistani Carers Living in the UK. Health Expectations, 27: e70099. https://doi.org/10.1111/hex.70099
10 Nov 2024
Journal article
12 Oct 2024
Journal article
England (UK)
UK
Wales (UK)
English
Implementing national care guidelines in Local Authorities in England and Wales: a Theory of Change
Bauer, A., Boaz, A., Breuer, E. et al. Implementing national care guidelines in local authorities in England and Wales: a theory-of-change. BMC Health Serv Res 24, 1224 (2024). https://doi.org/10.1186/s12913-024-11707-4
12 Oct 2024
Journal article
01 Oct 2024
Journal article
Germany
English
The roles of employment status and income in the mental health of informal caregivers in Germany
Scheuermann, JS., Pendergrass, A., Diehl, K. et al. The roles of employment status and income in the mental health of informal caregivers in Germany. BMC Public Health 24, 2802 (2024). https://doi.org/10.1186/s12889-024-20252-y
01 Oct 2024
Journal article
26 Sep 2024
Journal article
England (UK)
UK
English
Understanding the unmet support needs of young and young adult carers and their families
Brimblecombe N, Stevens M, Gowen S, Skyer R, Moriarty J (2024) Understanding the unmet support needs of young and young adult carers and their families. PLoS ONE 19(9): e0310766. https://doi.org/10.1371/journal.pone.0310766
26 Sep 2024
Journal article
16 Sep 2024
Journal article
Spain
English
Watching care behind closed doors: upward and downward accountability mechanisms in nursing home services
Ixchel Pérez-Durán & Stephan Grimmelikhuijsen (16 Sep 2024): Watching care behind closed doors: upward and downward accountability mechanisms in nursing home services, Public Management Review, https://doi.org/10.1080/14719037.2024.2402351
16 Sep 2024
Journal article
05 Sep 2024
Journal article
International
English
Performance Indicators for the Assessment of Aging-In-Place Reform Policies: A Scoping Review and Evidence Map
Wammes, J. D., Vullings, I., Kringos, D. S., Wouterse, B., Daams, J. G., Langendam, M., & MacNeil Vroomen, J. L. (2024). Performance Indicators for the Assessment of Aging-In-Place Reform Policies: A Scoping Review and Evidence Map. Journal of the American Medical Directors Association, 105249. Advance online publication. https://doi.org/10.1016/j.jamda.2024.105249
05 Sep 2024
Journal article
29 Aug 2024
Journal article
China
English
Forecasting Informal care needs of the urban-rural older adults in China based on microsimulation model
Zhang, L., Shen, S., Zhang, W. et al. Forecasting Informal care needs of the urban-rural older adults in China based on microsimulation model. BMC Public Health 24, 2352 (2024). https://doi.org/10.1186/s12889-024-19747-5
29 Aug 2024
Journal article
28 Aug 2024
Journal article
Ghana
English
Geographical location as a determinant of caregiver burden: a rural-urban analysis of the informal caregiving, health, and healthcare survey in Ghana
Agyemang-Duah, W., Rosenberg, M.W. Geographical location as a determinant of caregiver burden: a rural-urban analysis of the informal caregiving, health, and healthcare survey in Ghana. BMC Prim. Care 25, 317 (2024). https://doi.org/10.1186/s12875-024-02562-7
28 Aug 2024
Journal article
09 Aug 2024
Journal article
Spain
English
Time value of informal care of people with alzheimer’s disease in Spain: a population-based analysis
Vilaplana-Prieto. C., & Oliva-Moreno, J. (2024) Time value of informal care of people with alzheimer’s disease in Spain: a population-based analysis. https://doi.org/10.1007/s10198-024-01713-y
09 Aug 2024
Journal article
06 Aug 2024
Journal article
Catalonia (Spain)
Spain
English
Unravelling hidden inequities in a universal public long-term care system
Vidiella-Martin, J., Hernández-Pizarro, H., García-Gómez, P., and López-Casasnovas, G. (2024) Unravelling hidden inequities in a universal public long-term care system, The Journal of the Economics of Ageing, Volume 29.https://doi.org/10.1016/j.jeoa.2024.100527.
06 Aug 2024
Journal article
06 Aug 2024
Journal article
United States
English
Indoor Air Quality Assessments in 10 Long-Term Care Facilities During the COVID-19 Pandemic, California, 2021–2023
Kyle Peerless, Elon Ullman, Kristin J. Cummings, Juliet Stoltey, Erin Epson, Janice J. Kim, Jane D. Siegel, Indoor Air Quality Assessments in 10 Long-Term Care Facilities During the COVID-19 Pandemic, California, 2021–2023, Journal of the American Medical Directors Association, 2024, https://doi.org/10.1016/j.jamda.2024.105195.
06 Aug 2024
Journal article
05 Aug 2024
Journal article
International
English
Assessing social connection for long-term care home residents: Systematic review using COnsensus-based Standards for the selection of health Measurement INstruments guidelines
Dewan N, Sommerlad A, Chapman H, et al. Assessing social connection for long-term care home residents: Systematic review using COnsensus-based Standards for the selection of health Measurement INstruments guidelines. Alzheimer’s Dement. 2024; 10:e12492. https://doi.org/10.1002/trc2.12492
05 Aug 2024
Journal article
05 Aug 2024
Journal article
International
English
Assessing social connection for long-term care home residents: A scoping review of measure content
Liougas MP, Sommerlad A, O’Rourke HM, Chapman H, Dewan N, McGilton KS, Bethell J. Assessing social connection for long-term care home residents: A scoping review of measure content. Alzheimers Dement (N Y). 2024 Sep 23;10(3):e12488. doi: 10.1002/trc2.12488. PMID: 39315314; PMCID: PMC11418406.
05 Aug 2024
Journal article
16 Jul 2024
Journal article
England (UK)
English
Evaluating the association between receipt of a winter fuel cash transfer and older people’s care needs, quality of life, and housing quality: Evidence from England
Cartagena-Farias, J., Brimblecombe, N., and Knapp, M. (2024) Evaluating the association between receipt of a winter fuel cash transfer and older people’s care needs, quality of life, and housing quality: Evidence from England. Social Science & Medicine, Volume 355.
16 Jul 2024
Journal article
12 Jul 2024
Journal article
China
English
What determines informal care need among community-dwelling older adults in China? Results from a longitudinal study
Zhang, L., Shen, S., Zhang, W. et al. (2024) What determines informal care need among community-dwelling older adults in China? Results from a longitudinal study. BMC Geriatr 24, 597. https://doi.org/10.1186/s12877-024-04843-3
12 Jul 2024
Journal article
07 Jul 2024
Journal article
Kenya
English
Motivators for family carers of persons with dementia in Kenya
Musyimi CW, Muyela LA, Ndetei DM, Thakya D, Mutiso VN, Mutunga E, Evans-Lacko S and Farina N. Motivators for family carers of persons with dementia in Kenya. Int J Geriatr Psychiatry. 2024;e6120. https://doi.org/10.1002/gps.6120
07 Jul 2024
Journal article
01 Jul 2024
Journal article
China
Latinamerica & Caribbean
English
Longitudinal associations of loneliness and social isolation with care dependence among older adults in Latin America and China: A 10/66 dementia research group population-based cohort study
Gao, Q., Chua, K. C., Mayston, R., & Prina, M. (2024). Longitudinal associations of loneliness and social isolation with care dependence among older adults in Latin America and China: A 10/66 dementia research group population-based cohort study. International journal of geriatric psychiatry, 39(7), e6115. https://doi.org/10.1002/gps.6115
01 Jul 2024
Journal article
11 Jun 2024
Journal article
Germany
English
Predictors of the quality of the relationship between informal caregiver and care recipient in informal caregiving of older people: presentation and evaluation of a new item
Becker, L., Graessel, E. & Pendergrass, A. Predictors of the quality of the relationship between informal caregiver and care recipient in informal caregiving of older people: presentation and evaluation of a new item. BMC Psychol 12, 342 (2024). https://doi.org/10.1186/s40359-024-01840-4
11 Jun 2024
Journal article
03 Jun 2024
Journal article
Singapore
English
Informal caregiving time and its monetary value in the context of older adults in Singapore
Nur Diyana Binte Azman, Abhijit Visaria, Veronica Shimin Goh, Truls Østbye, David Matchar, Rahul Malhotra (2004) Informal caregiving time and its monetary value in the context of older adults in Singapore. Aging and Health Research, 4 (2). https://doi.org/10.1016/j.ahr.2024.100193.
03 Jun 2024
Journal article
28 May 2024
Journal article
Latinamerica & Caribbean
English
New agendas and old legacies? Comparing international organisations’ proposals on health and long-term care systems in Latin America
Sternkopf, M., de Carvalho, G., & Fischer, J. (2024). New agendas and old legacies? Comparing international organisations’ proposals on health and long-term care systems in Latin America. Global Social Policy, 0(0). https://doi.org/10.1177/14680181241254087
28 May 2024
Journal article
17 May 2024
Journal article
UK
English
Supporting Meaningful Implementation and Evaluation of Strengths-Based Approaches in Adult Social Care: A Theory of Change for The Three Conversations
Madeleine Stevens, Michael Clark, Jessica Carlisle, Nicola Brimblecombe, Miranda MacGill, Supporting Meaningful Implementation and Evaluation of Strengths-Based Approaches in Adult Social Care: A Theory of Change for The Three Conversations, The British Journal of Social Work, 2024;, bcae055, https://doi.org/10.1093/bjsw/bcae055
17 May 2024
Journal article
15 May 2024
Journal article
England (UK)
UK
English
Quality in care homes: How wearable devices and social network analysis might help
Thompson C, Gordon A, Khaliq K, Daffu-O’Reilly A, Willis T, et al. (2024) Quality in care homes: How wearable devices and social network analysis might help. PLOS ONE 19(5): e0302478. https://doi.org/10.1371/journal.pone.0302478
15 May 2024
Journal article
14 May 2024
Journal article
Norway
English
The Worldview-Open Society, the Worldview-Controlling State and Non-Profit Welfare Actors: Norway as a Case
Haugen, Hans Morten. “The Worldview-Open Society, the Worldview-Controlling State and Non-Profit Welfare Actors: Norway as a Case” Nonprofit Policy Forum, 2024. https://doi.org/10.1515/npf-2023-0076
14 May 2024
Journal article
14 May 2024
Journal article
Germany
English
Long-run consequences of informal elderly care and implications of public long-term care insurance
Thorben Korfhage, Björn Fischer-Weckemann, Long-run consequences of informal elderly care and implications of public long-term care insurance, Journal of Health Economics, Volume 96, 2024, https://doi.org/10.1016/j.jhealeco.2024.102884.
14 May 2024
Journal article
12 May 2024
Journal article
Europe
English
Informal and formal long-term care utilization and unmet needs in Europe: examining socioeconomic disparities and the role of social policies for older adults
Szenkurök, V., Weber, D. & Bilger, M. Informal and formal long-term care utilization and unmet needs in Europe: examining socioeconomic disparities and the role of social policies for older adults. Int J Health Econ Manag. (2024). https://doi.org/10.1007/s10754-024-09378-z
12 May 2024
Journal article
12 May 2024
Journal article
Spain
English
General and Substantive Accountability in Nursing Home Services: Assessing Messages from the Demand Side and the Supply Side
Pérez-Durán, I., & Hernández-Sánchez, A. (2024). General and Substantive Accountability in Nursing Home Services: Assessing Messages from the Demand Side and the Supply Side. Journal of Aging & Social Policy, 1–21. https://doi.org/10.1080/08959420.2024.2348964
12 May 2024
Journal article
06 May 2024
Journal article
India
English
Relational solidarity and conflicting ethics in dementia care in urban India
Bianca Brijnath, Rachita Rao, Upasana Baruah, Josefine Antoniades, Santosh Loganathan, Mathew Varghese, Claudia Cooper, Mike Kent, Briony Dow, Relational solidarity and conflicting ethics in dementia care in urban India, The Journals of Gerontology: Series B, 2024;, gbae079, https://doi.org/10.1093/geronb/gbae079
06 May 2024
Journal article
25 Apr 2024
Journal article
England (UK)
UK
English
Unpaid carers of people with dementia and information communication technology: Use, impact and ideas for the future
Damant J, Freddolino P, Dangoor M, Hu B, King D, Wittenberg R. Unpaid carers of people with dementia and information communication technology: Use, impact and ideas for the future. Dementia. 2024;23(5):779-799. doi:10.1177/14713012241249793
25 Apr 2024
Journal article
22 Apr 2024
Journal article
England (UK)
UK
English
“I never planned for it”—Exploration of expectations about caring for older parents
De Poli, C., Wittenberg, R., Rehill, A., Stevens, M., & Brimblecombe, N. (2024). “I never planned for it”—Exploration of expectations about caring for older parents. Social Policy & Administration, 1–20. https://doi.org/10.1111/spol.13030
22 Apr 2024
Journal article
19 Apr 2024
Journal article
International
English
Unpaid caregiving and mental health during the COVID-19 pandemic—A systematic review of the quantitative literature
Ervin J, Fleitas Alfonzo L, Taouk Y, Maheen H, King T. Unpaid caregiving and mental health during the COVID-19 pandemic-A systematic review of the quantitative literature. PLoS One. 2024 Apr 18;19(4):e0297097. doi: 10.1371/journal.pone.0297097. PMID: 38635604; PMCID: PMC11025839.
19 Apr 2024
Journal article
17 Apr 2024
Journal article
Fiji
English
‘Letting it be’: a grounded theory about dementia care in Fiji
Johnston, K., Qaloewai, S., Rasavuka, T., Preston, R., Strivens, E., & Larkins, S. (2024). ‘Letting it be’: a grounded theory about dementia care in Fiji. Aging & Mental Health, 1–11. https://doi.org/10.1080/13607863.2024.2340737
17 Apr 2024
Journal article
15 Apr 2024
Journal article
Netherlands
English
Costs of care trajectories of people with dementia compared with matched controls. Longitudinal analysis of linked health and administrative data
Bosmans JE, van der Heide I, van Hout HPJ, Joling KJ. Costs of care trajectories of people with dementia compared with matched controls. Longitudinal analysis of linked health and administrative data. Int J Geriatr Psychiatry. 2024 May;39(5):e6094. doi:
15 Apr 2024
Journal article
13 Mar 2024
Journal article
International
Ireland
English
Exploring a career pathway for home support workers in Ireland: a systematic scoping review of the international evidence
Morrow E, Kelly C, Killeen C, Naessens E and Lynch M (2024) Exploring a career pathway for home support workers in Ireland: a systematic scoping review of the international evidence. Front. Health Serv.4:1360920. doi: 10.3389/frhs.2024.1360920
13 Mar 2024
Journal article
07 Mar 2024
Journal article
Australia
English
Informal care and financial stress: Longitudinal evidence from Australia
Koomson, I., Lenzen, S., & Afoakwah, C. (2024). Informal care and financial stress: Longitudinal evidence from Australia. Stress and health : journal of the International Society for the Investigation of Stress, e3393. Advance online publication. https://doi.org/10.1002/smi.3393
07 Mar 2024
Journal article
01 Mar 2024
Journal article
England (UK)
English
Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing
Laurie E Davies, Gemma F Spiers, David R Sinclair, Andrew Kingston, Barbara Hanratty (2024) Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing, Age and Ageing, Volume 53, Issue 3, March, afae049, https://doi.org/10.1093/ageing/afae049
01 Mar 2024
Journal article
28 Feb 2024
Journal article
Japan
English
The impact of reducing formal care benefits on caregivers’ well-being: evidence from Japan
Fu, R., Le, D.D. & Ibuka, Y. The impact of reducing formal care benefits on caregivers’ well-being: evidence from Japan. Rev Econ Household (2024). https://doi.org/10.1007/s11150-024-09699-5
28 Feb 2024
Journal article
23 Feb 2024
Journal article
China
English
Examining the Impact of Long-Term Care Insurance on the Care Burden and Labor Market Participation of Informal Carers: A Quasi-Experimental Study in China
Xingtong Pei, Wei Yang, Mingming Xu, Examining the Impact of Long-Term Care Insurance on the Care Burden and Labor Market Participation of Informal Carers: A Quasi-Experimental Study in China, The Journals of Gerontology: Series B, Volume 79, Issue 5, May 2024, gbae023, https://doi.org/10.1093/geronb/gbae023
23 Feb 2024
Journal article
22 Feb 2024
Journal article
England (UK)
English
The impact of formal care provision on informal care receipt for people over 75 in England
Citation: Saloniki E-C, Nizalova O, Malisauskaite G, Forder J (2024) The impact of formal care provision on informal care receipt for people over 75 in England. PLoS ONE 19(2): e0297157. https://doi.org/10.1371/journal.pone.0297157
22 Feb 2024
Journal article
14 Feb 2024
Journal article
Finland
English
From Restricted Resources to Ethical Burden—Former Home Care Workers’ Reasons for Leaving Their Jobs
Ring, M., Ristolainen, H., & Tiilikainen, E. (2024). From Restricted Resources to Ethical Burden—Former Home Care Workers’ Reasons for Leaving Their Jobs. Journal of Applied Gerontology, 0(0). https://doi.org/10.1177/07334648241231404
14 Feb 2024
Journal article
10 Feb 2024
Journal article
Scotland (UK)
English
Analysis of the impact of COVID-19 on Scotland’s care-homes from March 2020 to October 2021: national linked data cohort analysis
Jennifer Kirsty Burton, Megan McMinn, James E Vaughan, Glenna Nightingale, Jacques Fleuriot, Bruce Guthrie, Analysis of the impact of COVID-19 on Scotland’s care-homes from March 2020 to October 2021: national linked data cohort analysis, Age and Ageing, Volume 53, Issue 2, February 2024, afae015, https://doi.org/10.1093/ageing/afae015 Our member Jenni Burton, with colleagues from the University of Glasgow, Advanced […]
10 Feb 2024
Journal article
31 Jan 2024
Journal article
Netherlands
English
The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands
Elayan, S., Angelini, V., Buskens, E. et al. The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands. Eur J Health Econ (2024). https://doi.org/10.1007/s10198-023-01666-8
31 Jan 2024
Journal article
27 Jan 2024
Journal article
England (UK)
English
Scaling-up an evidence-based intervention for family carers of people with dementia: Current and future costs and outcomes
Knapp M, Lorenz-Dant K, Walbaum M, Comas-Herrera A, Cyhlarova E, Livingston G and Wittenberg R. Scaling-up an evidence-based intervention for family carers of people with dementia: current and future costs and outcomes. Int J Geriatr Psychiatry. 2024;e6059. https://doi.org/10.1002/gps.6059
27 Jan 2024
Journal article
27 Jan 2024
Journal article
Republic of Korea
English
The impact of the implementation of a national policy on dementia on healthcare costs in older patients with dementia in Korea: a quasi-experimental difference-in-difference study
Choi, M., Kim, W., Moon, J.Y., Shin,J. (2024) The impact of the implementation of a national policy on dementia on healthcare costs in older patients with dementia in Korea: a quasi-experimental difference-in-difference study. The Lancet Regional Health – Western Pacific, Volume 44. https://doi.org/10.1016/j.lanwpc.2024.101010.
27 Jan 2024
Journal article
18 Jan 2024
Journal article
Sweden
English
The association between loneliness, social isolation, and sleep disturbances in older adults: A follow-up study from the Swedish good aging in Skåne project
Ekström H, Svensson M, Elmståhl S, Wranker LS. The association between loneliness, social isolation, and sleep disturbances in older adults: A follow-up study from the Swedish good aging in Skåne project. SAGE Open Medicine. 2024;12. doi:10.1177/20503121231222823
18 Jan 2024
Journal article
11 Jan 2024
Journal article
International
English
Who cares about the carers? A call to action on behalf of mothers of disabled children
Pearson A (2024) Who cares about the carers? A call to action on behalf of mothers of disabled children. Front. Sociol. 8:1304676. doi: 10.3389/fsoc.2023.1304676
11 Jan 2024
Journal article
10 Jan 2024
Journal article
UK
English
Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours
Elliott, J., Francetic, I., Meacock, R. et al. Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours. Appl Health Econ Health Policy (2024). https://doi.org/10.1007/s40258-023-00843-3
10 Jan 2024
Journal article
09 Jan 2024
Journal article
UK
English
Environmental data monitoring and infection risks in UK care-homes in the context of COVID-19
Kishwer Abdul Khaliq, Sara Mohamad, Alexander J. Edwards, Catherine Noakes, Andrew H. Kemp, Carl Thompson, Grainne McGill, Tim Sharpe. Environmental data monitoring and infection risks in UK care-homes in the context of COVID-19, Building and Environment, 2024, 111174, ISSN 0360-1323, https://doi.org/10.1016/j.buildenv.2024.111174.
09 Jan 2024
Journal article
08 Jan 2024
Journal article
Sweden
English
COVID-19 Mortality and the Structural Characteristics of Long-Term Care Facilities: Evidence from Sweden
Broms, R., Dahlström, C., Najar, J., & Nistotskaya, M. (2024). COVID-19 Mortality and the Structural Characteristics of Long-Term Care Facilities: Evidence from Sweden. Public Performance & Management Review, 47(2), 505–533. https://doi.org/10.1080/15309576.2023.2295282
08 Jan 2024
Journal article
04 Jan 2024
Journal article
Mexico
English
Long-Term Care in Mexico: Identifying Challenges and Future Strategies
López-Ortega, M. Long-Term Care in Mexico: Identifying Challenges and Future Strategies, Public Policy & Aging Report, 2024;, prad037, https://doi.org/10.1093/ppar/prad037
04 Jan 2024
Journal article
03 Jan 2024
Journal article
Catalonia (Spain)
Spain
English
Evaluation of the Impact of the Covid-19 Pandemic on People and Organisations in Long-Term Care Facilities of Catalonia and Proposals for Improving the Care Model: The Resicovid-19 Project
Amblàs-Novellas, J., Coll-Planas, L., Jerez-Roig, J., López, D., Martori, J.C., Ramon-Aribau, A., Comas-Herrera, A., Moreno-Martin, P., Solé-Casals, M., Máiz-Mazuela, C., Masó-Aguado, M. and Gómez-Batiste, X. (2024) ‘Evaluation of the Impact of the Covid-19 Pandemic on People and Organisations in Long-Term Care Facilities of Catalonia and Proposals for Improving the Care Model: The Resicovid-19 Project’, Journal […]
03 Jan 2024
Journal article
02 Jan 2024
Journal article
Nigeria
English
Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria
Juliet Chigozie Donatus Ezulike, Shiyu Lu, Marcus Yu Lung Chiu, Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria, Innovation in Aging, Volume 8, Issue 4, 2024, igad140, https://doi.org/10.1093/geroni/igad140
02 Jan 2024
Journal article
26 Dec 2023
Journal article
UK
English
Assessing the impact of caregiving for older parents on caregivers’ health: Initial health status and trajectories of physical and mental health among midlife caregivers for parents and parents-in-law in Britain
Zueras, P. & Grundy, E. (2023) Assessing the impact of caregiving for older parents on caregivers’ health: Initial health status and trajectories of physical and mental health among midlife caregivers for parents and parents-in-law in Britain, Social Science & Medicine. https://doi.org/10.1016/j.socscimed.2023.116537.
26 Dec 2023
Journal article
22 Dec 2023
Journal article
UK
English
Research ethics and collaborative research in health and social care: Analysis of UK research ethics policies, scoping review of the literature, and focus group study
De Poli C, Oyebode J (2023) Research ethics and collaborative research in health and social care: Analysis of UK research ethics policies, scoping review of the literature, and focus group study. PLoS ONE 18(12): e0296223. https://doi.org/10.1371/journal.pone.0296223
22 Dec 2023
Journal article
20 Dec 2023
Journal article
England (UK)
UK
English
The Economic Cost of Unpaid Care to the Public Finances: Inequalities in Welfare Benefits, Forgone Earnings-related Tax Revenue, and Health Service Utilisation.
Cartagena-Farias J, Brimblecombe N. The Economic Cost of Unpaid Care to the Public Finances: Inequalities in Welfare Benefits, Forgone Earnings-related Tax Revenue, and Health Service Utilisation. Social Policy and Society. 2023:1-15. doi:10.1017/S1474746423000477
20 Dec 2023
Journal article
12 Dec 2023
Journal article
England (UK)
UK
English
Projected costs of informal care for older people in England
Hu, B., Cartagena-Farias, J., Brimblecombe, N., Jadoolal S. and Wittenberg R. Projected costs of informal care for older people in England. European Journal of Health Economics (2023). https://doi.org/10.1007/s10198-023-01643-1
12 Dec 2023
Journal article
08 Dec 2023
Journal article
Finland
English
Effectiveness of an educational intervention to increase professional nurses’ person-centred care competence in long-term care of older people—Quasi-experimental study
Pakkonen, M., Stolt, M., Edvardsson, D., Charalambous, A., Pasanen, M., & Suhonen, R. (2023). Effectiveness of an educational intervention to increase professional nurses’ person-centred care competence in long-term care of older people-Quasi-experimental study. Scandinavian journal of caring sciences. https://doi.org/10.1111/scs.13230
08 Dec 2023
Journal article
01 Dec 2023
Journal article
Israel
English
Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment
Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment. This study examines the effects of subsidising home-based long-term care on recipient health and their working-age children’s labor supply. It makes use of comprehensive administrative data from Israel’s Social Security Administration, encompassing welfare benefit applications from 2010 to 2015. Ofek-Shanny, Yuval and Strulov-Shlain, Avner and Zeltzer, […]
01 Dec 2023
Journal article
30 Nov 2023
Journal article
England (UK)
English
Enabling health and maintaining independence for older people at home (HomeHealth trial): a multicentre randomised controlled trial
Enabling health and maintaining independence for older people at home (HomeHealth trial). HomeHealth is a new home-based, manualised voluntary sector service supporting older people with mild frailty to maintain their independence through behaviour change. Frost, R., Avgerinou, C., Kalwarowsky, S., Mahmood, F., Goodman, C., Clegg, A., Hopkins, J., Gould, R., Gardner, B., Marston, L., […]
30 Nov 2023
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27 Nov 2023
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Europe
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Country Differences in Long-Term Care Institutions: Towards a Care Regime Typology
Using Latent Profile Analyses to identify different typologies of care regimes. van Damme, Maike & Spijker, Jeroen, 2023. “Country Differences in Long-Term Care Institutions: Towards a Care Regime Typology,” OSF Preprints xcjaq, Center for Open Science. https://doi.org/10.31219/osf.io/xcjaq
27 Nov 2023
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17 Nov 2023
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Scotland (UK)
English
Caring For Carers?
Caring For Carers? The Effect of Public Subsidies on the Well-Being. Evaluating a Scottish reform using a differences-in-differences (DiD) approach. Joan Costa-Font, Francesco D’Amico and Cristina Vilaplana-Prieto, 2023. “Caring For Carers?,” American Journal of Health Economics, University of Chicago Press, vol. 9(4), pages 487-522. https://www.journals.uchicago.edu/doi/abs/10.1086/723539
17 Nov 2023
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14 Nov 2023
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UK
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Mental and physical health changes around transitions into unpaid caregiving in the UK
Mental and physical health changes around transitions into unpaid caregiving in the UK: a longitudinal, propensity score analysis. Lacey, R., Xue, B., Di Gessa, G., Lu, W., McMunn, A. (2023) Mental and physical health changes around transitions into unpaid caregiving in the UK: a longitudinal, propensity score analysis. The Lancet Public Health. November https://www.thelancet.com/journals/lanpub/article/PIIS2468-2667(23)00206-2/fulltext
14 Nov 2023
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13 Nov 2023
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UK
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How can care home activities facilitate social connection in residents? A qualitative study
Misiak, M. M., Bethell, J., Chapman, H., & Sommerlad, A. (2024). How can care home activities facilitate social connection in residents? A qualitative study. Aging & Mental Health, 1–10. https://doi.org/10.1080/13607863.2024.2345130
13 Nov 2023
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31 Oct 2023
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England (UK)
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The Long-Term Impacts of an Integrated Care Programme on Hospital Utilisation among Older Adults in the South of England: A Synthetic Control Study
The Long-Term Impacts of an Integrated Care Programme on Hospital Utilisation among Older Adults in the South of England: A Synthetic Control Study. Seamer, P., Lloyd, T., Conti, S., & O’Neill, S. (2023). The Long-Term Impacts of an Integrated Care Programme on Hospital Utilisation among Older Adults in the South of England: A Synthetic Control […]
31 Oct 2023
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26 Oct 2023
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Australia
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Investigating community-based care service factors delaying residential care home admission of community dwelling older adults and cost consequence
Jeon, Y. H., Simpson, J. M., Comans, T., Shin, M., Fethney, J., McKenzie, H., Crawford, T., Lang, C., & Inacio, M. (2023). Investigating community-based care service factors delaying residential care home admission of community dwelling older adults and cost consequence. Age and ageing, 52(10), afad195. https://doi.org/10.1093/ageing/afad195
26 Oct 2023
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24 Oct 2023
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Europe
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The role of primary health care in long-term care facilities during the COVID-19 pandemic in 30 European countries: a retrospective descriptive study (Eurodata study)
Guisado-Clavero, M., Ares-Blanco, S., Serafini, A., Del Rio, L., Larrondo, I., Fitzgerald, L., . . . Gómez Bravo, R. (2023). The role of primary health care in long-term care facilities during the COVID-19 pandemic in 30 European countries: A retrospective descriptive study (Eurodata study). Primary Health Care Research & Development, 24, E60. doi:10.1017/S1463423623000312
24 Oct 2023
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20 Oct 2023
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Netherlands
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Does informal care delay nursing home entry? Evidence from Dutch linked survey and administrative data
Does informal care delay nursing home entry? Evidence from the Netherlands using Propensity Score Matching. Bergeot, J. & Tenand, M. (2023) Does informal care delay nursing home entry? Evidence from Dutch linked survey and administrative data, Journal of Health Economics, Volume 92, https://doi.org/10.1016/j.jhealeco.2023.102831.
20 Oct 2023
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27 Sep 2023
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UK
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Perspectives on approaching pain management in patients with dementia
Attrill, L., & Schofield, P. (2024). Perspectives on approaching pain management in patients with dementia. Pain Management, 14(3), 153–161. https://doi.org/10.2217/pmt-2023-0095
27 Sep 2023
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08 Sep 2023
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England (UK)
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Priorities for day centre support and research, and the importance of centralised supportive information for day centres and their stakeholders
Orellana, K., Samsi, K., Manthorpe, J., & Emmer De Albuquerque Green, C. (2023). Priorities for day centre support and research, and the importance of centralised supportive information for day centres and their stakeholders. International Journal of Care and Caring. https://doi.org/https://bristoluniversitypressdigital.com/view/journals/ijcc/aop/article-10.1332-239788221X16917415568825/article-10.1332-239788221X16917415568825.xml
08 Sep 2023
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07 Sep 2023
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Scotland (UK)
Listening and learning: a qualitative study of Scottish care home staff experiences of managing COVID-19 between March 2020-August 2022
Burton, J.K., Drummond, M., Gallacher, K.I. et al. Listening and learning: a qualitative study of Scottish care home staff experiences of managing COVID-19 between March 2020-August 2022. BMC Geriatr 23, 544 (2023). https://doi.org/10.1186/s12877-023-04251-z
07 Sep 2023
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31 Aug 2023
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International
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The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia)
Bhatt, J., Brohan, E., Blasco, D., Oliveira, D., Bakolis, I., Comas-Herrera, A., D’Amico, F., Farina N., Knapp M., Stevens M., Thornicroft G., Wilson E., Salcher-Konrad M., Yang L.H and Evans-Lacko, S. (2023). The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia). BJPsych Open, 9(5), E164. doi:10.1192/bjo.2023.551
31 Aug 2023
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11 Aug 2023
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United States
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Medicaid Expansion and the Mental Health of Spousal Caregivers
Costa-Font, J., Raut, N. & Van Houtven, C.H. Medicaid Expansion and the Mental Health of Spousal Caregivers. Rev Econ Household (2023). https://doi.org/10.1007/s11150-023-09673-7
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Emerging Health Technologies in Long-Term Care and Suppliers’ Views on Their Potential to Assist and Support the Workforce
Chapman SA, Miller JR, Spetz J. Emerging Health Technologies in Long-Term Care and Suppliers’ Views on Their Potential to Assist and Support the Workforce. Medical Care Research and Review. 2023;80(6):619-630. doi:10.1177/10775587231190127
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06 Jul 2023
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Family spillovers and long-term care insurance
N.B. Coe, G. Goda, C.H. Van Houtven, Family spillovers and long-term care insurance, Journal of Health Economics, Volume 90, 2023, 102781, https://doi.org/10.1016/j.jhealeco.2023.102781.
06 Jul 2023
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01 Jul 2023
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Netherlands
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How Stories Can Contribute Toward Quality Improvement in Long-Term Care
Katya Y J Sion, Marjolijn Heerings, Marije Blok, Aukelien Scheffelaar, Johanna M Huijg, Gerben Westerhof, Anne Margriet Pot, Katrien Luijkx, Jan P H Hamers, How Stories Can Contribute Toward Quality Improvement in Long-Term Care, The Gerontologist, Volume 64, Issue 4, April 2024, gnad084, https://doi.org/10.1093/geront/gnad084
01 Jul 2023
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Spain
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Restrictions on Hospital Referrals from Long-Term Care Homes in Madrid and COVID-19 Mortality from March to June 2020: A Systematic Review of Studies Conducted in Spain
Zunzunegui MV, Béland F, García López FJ. Restrictions on Hospital Referrals from Long-Term Care Homes in Madrid and COVID-19 Mortality from March to June 2020: A Systematic Review of Studies Conducted in Spain. Epidemiologia. 2023; 4(2):176-187. https://doi.org/10.3390/epidemiologia4020019
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Acute hospital use in older adults following the 2015 Dutch reform of long-term care: an interrupted time series analysis
Wammes, J., Bakx, P., Wouterse, B., Buurman, B., Murphy, T, & MacNeil Vroomen, J. (2023). Acute hospital use in older adults following the 2015 Dutch reform of long-term care: an interrupted time series analysis. The Lancet Health Longevity, 4(6), e257-e264.
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Hacia la personalización de los cuidados y los apoyos en el marco del sistema de atención a la dependencia
Comas, D, Sancho,M et al ( 2023). Hacia la personalización de los cuidados y los apoyos en el marco del sistema de atención a la dependencia. Zerbitzuan. nº 79. https://www.zerbitzuan.net/documentos/zerbitzuan/Hacia_la_personalizacion_de_los_cuidados_apoyos_dependencia.pdf
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16 May 2023
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International
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Outcome measures from international older adult care home intervention research: a scoping review
Sarah Kelly, Andy Cowan, Gizdem Akdur, Lisa Irvine, Guy Peryer, Silje Welsh, Stacey Rand, Iain A Lang, Ann-Marie Towers, Karen Spilsbury, Anne Killett, Adam Lee Gordon, Barbara Hanratty, Liz Jones, Julienne Meyer, Claire Goodman, Jennifer Kirsty Burton, Outcome measures from international older adult care home intervention research: a scoping review, Age and Ageing, Volume 52, Issue […]
16 May 2023
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Early onset of care needs in the older population: The protective role of housing conditions
Cartagena-Farias J., Brimblecombe N., Hu B. (2023) Early onset of care needs in the older population: the protective role of housing conditions. Health & Place. Vol 81, May 2023, 103007. https://doi.org/10.1016/j.healthplace.2023.103007
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27 Apr 2023
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Regional network-building for complexity: A region-oriented policy response to increasing and varied demands for older person care in the Netherlands
van der Woerd, O., Wallenburg, I., van der Scheer, W., & Bal, R. (2023). Regional network-building for complexity: A region-oriented policy response to increasing and varied demands for older person care in the Netherlands. Public Administration, 1–18. https://doi.org/10.1111/padm.12931
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Registered care home managers’ experiences of responding to the national care home visiting guidance in England during the Covid-19 pandemic; a multi-method qualitative study
Dixon, J., Lorenz-Dant, K., Stubbs, E. et al. Registered care home managers’ experiences of responding to the national care home visiting guidance in England during the Covid-19 pandemic; a multi-method qualitative study. BMC Geriatr 23, 236 (2023). https://doi.org/10.1186/s12877-023-03935-w
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Technology and homecare in the UK: Policy, storylines and practice
Hamblin, K., Burns, D., & Goodlad, C. (2023). Technology and homecare in the UK: Policy, storylines and practice. Journal of Social Policy, 1-17. doi:10.1017/S0047279423000156
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Covid-19 in the Community and Outbreaks in Long-Term Residential Care in Ireland
Walsh B, Connolly S, Wren M-A. 2023. “Covid-19 in the Community and Outbreaks in Long-Term Residential Care in Ireland”. Journal of Long-Term Care 2023, 23–32 doi: 10.31389/jltc.191
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Australia
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Australian retirement village residents: wellbeing profiles and factors associated with low wellbeing
Joe A, Dickins M, Cyarto EV, Lowthian JA. Australian retirement village residents: wellbeing profiles and factors associated with low wellbeing. Ageing and Society. Published online 2023:1-18. doi:10.1017/S0144686X23000144
12 Apr 2023
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Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study
Kritika Samsi, Katharine Orellana, Laura Cole & Jill Manthorpe (2023) Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study, Aging & Mental Health, 27:10, 1946-1955, DOI: 10.1080/13607863.2023.2196254
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25 Mar 2023
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The Impact of Wages on Care Home Quality in England
Allan, S., & Vadean, F. (2023). The Impact of Wages on Care Home Quality in England. The Gerontologist, 63(9), 1428–1436. https://doi.org/10.1093/geront/gnad032
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Zambia
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Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia
Kabelenga, I. (2023). Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia. International Journal of Care and Caring, 7(2), 326-342. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16770625208518
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Family care of older people in Southern Africa. Special issue editorial
Moore, E., & Price, D. (2023). Family care of older people in Southern Africa. Special issue editorial. International Journal of Care and Caring, 7(2), 201-211. Retrieved Apr 5, 2024, from https://doi.org/10.1332/239788221X16770613505728
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Effects of a financial incentive scheme for dementia care on medical and long-term care expenditures: A propensity score–matched analysis using LIFE study data
Kawabata J, Fukuda H (2023) Effects of a financial incentive scheme for dementia care on medical and long-term care expenditures: A propensity score–matched analysis using LIFE study data. PLoS ONE 18(3): e0282965. https://doi.org/10.1371/journal.pone.0282965
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Situating masculinity, labour migration and care over the life course in Lesotho: foregrounding survivor bias in researching care
Vera-Sanso, P., & Hlabana, T. (2023). Situating masculinity, labour migration and care over the life course in Lesotho: foregrounding survivor bias in researching care. International Journal of Care and Caring, 7(2), 248-264. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16758785615441
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Development of a long-term care economy in Gauteng, South Africa: towards decent work
Gie, L., & Hoffman, J. (2023). Development of a long-term care economy in Gauteng, South Africa: towards decent work. International Journal of Care and Caring, 7(2), 373-378. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16752685979364
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Equitable, sustainable and acceptable long-term care in Malawi? Unpacking the implied universalism of key terms in international ageing policy discourse
Freeman, E. (2023). Equitable, sustainable and acceptable long-term care in Malawi? Unpacking the implied universalism of key terms in international ageing policy discourse. International Journal of Care and Caring, 7(2), 287-306. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788223X16742266590738
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Production of research in Southern Africa from a political ethics of care perspective: a scoping review and reflection
Kelly, G., & Sebego, M. (2023). Production of research in Southern Africa from a political ethics of care perspective: a scoping review and reflection. International Journal of Care and Caring, 7(2), 212-230. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16740581601153
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Provider Ownership and Indicators of Service Quality: Evidence from Swedish Residential Care Homes
Broms R., Dahlström C., Nistotskaya, M. (2024) Provider Ownership and Indicators of Service Quality: Evidence from Swedish Residential Care Homes, Journal of Public Administration Research and Theory, Volume 34, Issue 1, January 2024, Pages 150–163, https://doi.org/10.1093/jopart/muad002
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Impacto económico de una implantación plena del Plan de Choque en Dependencia 2021-2023 en España
Cruz Ramírez-Pérez, Angeles Cámara, (2023) Impacto económico de una implantación plena del Plan de Choque en Dependencia 2021-2023 en España, Gaceta Sanitaria, Volume 37, 2023, 102289, ISSN 0213-9111, https://doi.org/10.1016/j.gaceta.2023.102289.
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The problems with systematic review: a living systematic review
Uttley L., Quintana D.S., Montgomery P., et al. The problem with systematic reviews: a living systematic review. Journal of Clinical Epidemiology, Volume 156, 30 – 41. https://doi.org/10.1016/j.jclinepi.2023.01.011
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Family care for older persons in South Africa: heterogeneity of the carer’s experience
Moore, E. (2023). Family care for older persons in South Africa: heterogeneity of the carer’s experience. International Journal of Care and Caring, 7(2), 265-286. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16740630896657
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Europe
Cohort Trajectories by Age and Gender for Informal Caregiving in Europe Adjusted for Sociodemographic Changes, 2004 and 2015
Ricardo Rodrigues, Johan Rehnberg, Cassandra Simmons, Stefania Ilinca, Eszter Zólyomi, Afshin Vafaei, Selma Kadi, Janet Jull, Susan P Phillips, Stefan Fors, Cohort Trajectories by Age and Gender for Informal Caregiving in Europe Adjusted for Sociodemographic Changes, 2004 and 2015, The Journals of Gerontology: Series B, Volume 78, Issue 8, August 2023, Pages 1412–1422, https://doi.org/10.1093/geronb/gbad011
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The path to healthy ageing in China: a Peking University–Lancet Commission
Chen X, Giles J, Yao Y, Yip W, Meng Q, Berkman L, Chen H, Chen X, Feng J, Feng Z, Glinskaya E. The path to healthy ageing in China: a Peking University–Lancet Commission. The Lancet. 2022 Dec 3;400(10367):1967-2006. https://doi.org/10.1016/S0140-6736(22)01546-X
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Inequalities in unpaid carer’s health, employment status and social isolation
Brimblecombe, N., & Cartagena Farias, J. (2022). Inequalities in unpaid carer’s health, employment status and social isolation. Health & Social Care in the Community, 30, e6564–e6576. https://doi.org/10.1111/hsc.14104
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The potential value of a geographic information system for public service planning for older people in the African region
Kelly, G., & Black, R. (2023). The potential value of a geographic information system for public service planning for older people in the African region. International Journal of Care and Caring, 7(2), 364-372. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16655372907511
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Factors Affecting Long-Term Care Preferences in Turkey
Guduk, O., & Ankara, H. G. (2022). Factors Affecting Long-Term Care Preferences in Turkey. Annals of geriatric medicine and research, 26(4), 330–339. https://doi.org/10.4235/agmr.22.0088
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Factors associated with unmet need for support to maintain independence in later life: a systematic review of quantitative and qualitative evidence
Gemma Frances Spiers, Tafadzwa Patience Kunonga, Daniel Stow, Alex Hall, Andrew Kingston, Oleta Williams, Fiona Beyer, Peter Bower, Dawn Craig, Chris Todd, Barbara Hanratty, Factors associated with unmet need for support to maintain independence in later life: a systematic review of quantitative and qualitative evidence, Age and Ageing, Volume 51, Issue 10, October 2022, afac228, […]
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Effects of cost sharing on long-term care service utilization among home-dwelling older adults in Japan
Sano K, Miyawaki A, Abe K, Jin X, Watanabe T, Tamiya N, Kobayashi Y, Effects of cost sharing on long-term care service utilization among home-dwelling older adults in Japan, Health Policy, Volume 126, Issue 12, 2022, Pages 1310-1316, https://doi.org/10.1016/j.healthpol.2022.10.002
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The Course of Broken Dreams: The Expectations and Realities of the Life of Indonesian Nurses as Care Workers in Japan
Ferry Efendi, Ching Min Chen, Anna Kurniati, Yuni Sufyanti Arief, Reiko Ogawa, 2022, The Course of Broken Dreams: The Expectations and Realities of the Life of Indonesian Nurses as Care Workers in Japan, Collegian, 29(5):680-687. https://doi.org/10.1016/j.colegn.2022.04.002
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Providing long-term care: Options for a better workforce
Llena-Nozal, A., Rocard, E., and Sillitti, P. (2022) Providing long-term care: Options for a better workforce. International Social Security Review, 75: 121–144. https://doi.org/10.1111/issr.12310.
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Do mobile hospital teams in residential aged care facilities increase health care efficiency: an evaluation of French residential care policy
Penneau, A. Do mobile hospital teams in residential aged care facilities increase health care efficiency: an evaluation of French residential care policy. Eur J Health Econ 24, 923–937 (2023). https://doi.org/10.1007/s10198-022-01522-1
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The Global Demand for Migrant Care Workers: Drivers and Implications on Migrants’ Wellbeing
Hussein S. The Global Demand for Migrant Care Workers: Drivers and Implications on Migrants’ Wellbeing. Sustainability. 2022; 14(17):10612. https://doi.org/10.3390/su141710612
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Understanding, experiences and attitudes of dementia in India: A qualitative study
Hurzuk, S., Farina, N., Pattabiraman, M., Ramasamy, N., Alladi, S., Rajagopalan, J., Comas-Herrera, A., Thomas, P. T., & Evans-Lacko, S. (2022). Understanding, experiences and attitudes of dementia in India: A qualitative study. Dementia, 21(7). https://doi.org/10.1177/14713012221118774
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The Economic Impact of Long-term Care Services
Streicher, G., Famira-Mühlberger, U., Firgo, M. (2022) The Economic Impact of Long-term Care Services, Zeitschrift für Sozialreform (Journal of Social Policy Research), 68, (2), S.211-235.https://doi.org/10.1515/zsr-2022-0009
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Using Difference in Differences to evaluate vertical health and social care integration in Scotland
Alonso, J.M. and Andrews R. (2022) Does vertical integration of health and social care organizations work? Evidence from Scotland. Social Science & Medicine, 307 https://doi.org/10.1016/j.socscimed.2022.115188
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Gender differences in access to community-based care: a longitudinal analysis of widowhood and living arrangements
Ilinca, S., Rodrigues, R., Fors, S. et al. Gender differences in access to community-based care: a longitudinal analysis of widowhood and living arrangements. Eur J Ageing 19, 1339–1350 (2022). https://doi.org/10.1007/s10433-022-00717-y
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Making the Invisible Visible: The Pandemic and Migrant Care Work in Long-Term Care
Leichsenring, K.; Kadi, S.; Simmons, C. Making the Invisible Visible: The Pandemic and Migrant Care Work in Long-Term Care. Soc. Sci. 2022, 11, 326. https://doi.org/10.3390/socsci11080326
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Reducing dementia-related stigma and discrimination among community health workers in Brazil: protocol for a randomised controlled feasibility trial
Oliveira, D., Godoy, C., Da Mata, F. A. F., Mateus, E., Franzon, A. C. A., Farina, N., Evans-Lacko, S., & Ferri, C. P. (2022). Reducing dementia-related stigma and discrimination among community health workers in Brazil: protocol for a randomised controlled feasibility trial. BMJ Open, 12(7). https://doi.org/10.1136/bmjopen-2021-060033
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Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study
Jacobs, R., Schneider, M., Farina, N., du Toit, P., & Evans-Lacko, S. (2022). Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study. Ageing and Society. https://doi.org/10.1017/s0144686x2200040x
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Factors associated with change over time in quality of life of people with dementia: longitudinal analyses from the MODEM cohort study
King, D., Farina, N., Burgon, C. et al. Factors associated with change over time in quality of life of people with dementia: longitudinal analyses from the MODEM cohort study. BMC Geriatr 22, 469 (2022). https://doi.org/10.1186/s12877-022-03142-z
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Understanding health trajectories among unpaid carers in the United Kingdom
Understanding health trajectories among unpaid carers in the United Kingdom: Propensity Score Matching to compare health outcomes of carers against non-carers and Latent Class Analysis to identify different typologies of unpaid carers. Cartagena Farias, Javiera and Brimblecombe, Nicola (2022) Understanding health trajectories among unpaid carers in the United Kingdom. Journal of Long-Term Care, 2022. 102 – 113. ISSN 2516-9122. […]
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Finland
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Not Free at All: Home Care User Fees in a Nordic Care System
Ilmarinen K, Van Aerschot L, Kröger T. Not Free at All: Home Care User Fees in a Nordic Care System. Social Policy and Society. Published online 2022:1-16. doi:10.1017/S1474746422000240
20 May 2022
Journal article
05 Apr 2022
Journal article
Italy
Netherlands
Slovenia
Sweden
Switzerland
UK
English
The first cross-national study of adolescent young carers aged 15–17 in six European countries
Lewis, F. M., Becker, S., Parkhouse, T., Joseph, S., Hlebec, V., Mrzel, M., Brolin, R., Casu, G., Boccaletti, L., Santini, S., D’Amen, B., Socci, M., Hoefman, R., de Jong, N., Leu, A., Phelps, D., Guggiari, E., Magnusson, L., & Hanson, E. (2023). The first cross-national study of adolescent young carers aged 15–17 in six European […]
05 Apr 2022
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03 Apr 2022
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Türkiye
English
Long-Term Care in Turkey: Towards a Growing Crisis of Aged Care
Değirmenci, S. (2022). Long-Term Care in Turkey: Towards a Growing Crisis of Aged Care. Journal of Population & Social Studies, 30, pp. 542-561.
03 Apr 2022
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25 Mar 2022
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Ireland
English
Institutional Business Power: The Case of Ireland’s Private Home Care Providers
Mercille J, O’Neill N. Institutional Business Power: The Case of Ireland’s Private Home Care Providers. Journal of Social Policy. 2024;53(2):348-365. doi:10.1017/S0047279422000277
25 Mar 2022
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24 Mar 2022
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Austria
English
Austria’s Long-Term Care System: Challenges and Policy Responses
Trukeschitz, Birgit, Österle, August, Schneider, Ulrike (2022): Austria’s Long-Term Care System: Challenges and Policy Responses. Journal of Long-Term Care, 88-101. https://doi.org/10.31389/jltc.112
24 Mar 2022
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11 Feb 2022
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Brazil
English
The effects of an innovative integrated care intervention in Brazil on local health service use by dependent older people
Lloyd-Sherlock, P., Giacomin, K.C. & Sempe, L. The effects of an innovative integrated care intervention in Brazil on local health service use by dependent older people. BMC Health Serv Res 22, 176 (2022). https://doi.org/10.1186/s12913-022-07552-y
11 Feb 2022
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06 Feb 2022
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Australia
English
A codesigned fit-for-purpose implementation framework for aged care
Meyer C, Ogrin R, Golenko X, et al. A codesigned fit-for-purpose implementation framework for aged care. J Eval Clin Pract. 2022; 28: 421–435. doi:10.1111/jep.13660
06 Feb 2022
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02 Feb 2022
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Australia
Scotland (UK)
United States
Wales (UK)
English
Risk Recognition Policies for the Long-Term Care Workforce during the First Year of the COVID-19 Pandemic: A Multi-Country Study
Reed, A.C., Murmann, M., Hsu, A., Turnpenny, A., Van Houtven, C., Laberge, M., Low, L.-F., Hussein, S. and Allin, S., 2022. Risk Recognition Policies for the Long-Term Care Workforce during the First Year of the COVID-19 Pandemic: A Multi-Country Study. Journal of Long Term Care, 0(2022), p.22–39.DOI: https://doi.org/10.31389/jltc.110
02 Feb 2022
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26 Jan 2022
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England (UK)
English
The interface between primary care and care homes: General Practitioner experiences of working in care homes for older people
White, C., & Alton, E. (2022). The interface between primary care and care homes: General Practitioner experiences of working in care homes for older people. Health & Social Care in the Community, 30, e2896–e2904. https://doi.org/10.1111/hsc.13734
26 Jan 2022
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12 Nov 2021
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Costa Rica
Latinamerica & Caribbean
Spanish
Cuidados de larga duración en Costa Rica: enseñanzas para América Latina desde la evidencia internacional
Chaverri-Carvajal A, Matus-López M. Cuidados de larga duración en Costa Rica: enseñanzas para América Latina desde la evidencia internacional. Revista Panamericana de Salud Pública. 2021; 45: e146. https://doi.org/10.26633/RPSP.2021.146
12 Nov 2021
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11 Nov 2021
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UK
English
Extra Care Housing: The Current State of Research and Prospects for the Future
Darton, R. A. (2022). Extra Care Housing: The Current State of Research and Prospects for the Future. Social Policy and Society, 21(2), 292–303. doi:10.1017/S1474746421000683
11 Nov 2021
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28 Oct 2021
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International
English
What Long-Term Care Interventions and Policy Measures Have Been Studied During the Covid-19 Pandemic? Findings from a Rapid Mapping Review of the Scientific Evidence Published During 2020
Byrd, W., Salcher-Konrad, M., Smith, S. and Comas-Herrera, A., 2021. What Long-Term Care Interventions and Policy Measures Have Been Studied During the Covid-19 Pandemic? Findings from a Rapid Mapping Review of the Scientific Evidence Published During 2020. Journal of Long Term Care, 0(2021), p.423–437.DOI: https://doi.org/10.31389/jltc.97
28 Oct 2021
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17 Oct 2021
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Brazil
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Methodological description of the mapping of Brazilian long-term care facilities for older adults
Domingues MARC, Wachholz PA, Silva CB, Peres LCS, Chacon PF, Bezerra PCL, et al. Methodological description of the mapping of Brazilian long-term care facilities for older adults. Geriatr Gerontol Aging. 2021;15:e0210049. https://doi.org/10.53886/gga.e0210049
17 Oct 2021
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11 Sep 2021
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Serbia
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From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis
Rajovic T, Todorovic N, Vracevic M, Rajovic N, Pavlovic A, Pavlovic V, Grbic I, Sapic R, Krsmanovic S, Vukmirovic M, et al. From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis. International Journal of Environmental Research and Public Health. 2021; 18(18):9577. https://doi.org/10.3390/ijerph18189577
11 Sep 2021
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19 Aug 2021
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Japan
Republic of Korea
English
Same same but different? Comparing institutional performance in the long-term care systems of Japan and South Korea
Kim, H., Jeon, B., Frisina Doetter, L., Tamiya, N., & Hashimoto, H. (2022). Same same but different? Comparing institutional performance in the long-term care systems of Japan and South Korea. Social Policy & Administration, 56(1), 148–162. https://doi.org/10.1111/spol.12761
19 Aug 2021
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17 Aug 2021
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UK
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Unequal Conditions of Care and the Implications for Social Policies on Young Carers
Alexander, C. Unequal Conditions of Care and the Implications for Social Policies on Young Carers. Child Adolesc Soc Work J 38, 505–518 (2021). https://doi.org/10.1007/s10560-021-00781-w
17 Aug 2021
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01 Aug 2021
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Jordan
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Nurses’ autonomy and perceived barriers to pain management in nursing home residents
Rababa M, Ellis JL. Nurses’ Autonomy and Perceived Barriers to Pain Management in Nursing Home Residents. J Gerontol Nurs. 2021 Aug;47(8):45-52.https://doi.org/10.3928/00989134-20210624-03
01 Aug 2021
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21 Jul 2021
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Costa Rica
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Progress Toward Long-Term Care Protection in Latin America: A National Long-Term Care System in Costa Rica
Matus-López M, Chaverri-Carvajal A. Progress Toward Long-Term Care Protection in Latin America: A National Long-Term Care System in Costa Rica. Journal of the American Medical Directors Association. 2022; 23(2):266-271. https://doi.org/10.1016/j.jamda.2021.06.021
21 Jul 2021
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01 Jul 2021
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Brazil
India
Indonesia
Jamaica
Kenya
Mexico
South Africa
Building a strategic theory of change to address dementia care, treatment and support gaps
Breuer E, Comas-Herrera A, Freeman E, Albanese E, Alladi S, Amour R, Evans-Lacko S, Ferri CP, Govia I, Iveth Astudillo García C, Knapp M, Lefevre M, López-Ortega M, Lund C, Musyimi C, Ndetei D, Oliveira D, Palmer T, Pattabiraman M, Sani TP, Taylor D, Taylor E, Theresia I, Thomas PT, Turana Y, Weidner W, Schneider […]
01 Jul 2021
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21 Jun 2021
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Brazil
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Integrated Care in the Community: The Case of the Programa Maior Cuidado (Older Adult Care Programme) in Belo Horizonte-Minas Gerais, BRA
Aredes, J. de S., Billings, J., Giacomin, K.C., Lloyd-Sherlock, P. and Firmo, J.O.A. (2021) ‘Integrated Care in the Community: The Case of the Programa Maior Cuidado (Older Adult Care Programme) in Belo Horizonte-Minas Gerais, BRA’, International Journal of Integrated Care, 21(2), p. 28. Available at: https://doi.org/10.5334/ijic.5619.
21 Jun 2021
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14 Jun 2021
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International
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Comparing long-term care systems: A multi-dimensional, actor-centred typology
Fischer, Johanna, Lorraine Frisina Doetter, and Heinz Rothgang. 2022. “Comparing Long‐term Care Systems: A Multi‐dimensional, Actor‐centred Typology.” Social Policy & Administration 56 (1): 33–47. https://doi.org/10.1111/spol.12742
14 Jun 2021
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02 Jun 2021
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Türkiye
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An Evidence Review of Ageing, Long-Term Care Provision and Funding Mechanisms in Turkey: Using Existing Evidence to Estimate Long-Term Care Cost
Ismail, M. and Hussein, S. (2021). An Evidence Review of Ageing, Long-Term Care Provision and Funding Mechanisms in Turkey: Using Existing Evidence to Estimate Long-Term Care Cost. Sustainability, 13, 6306.
02 Jun 2021
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20 May 2021
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Brazil
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Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study
Oliveira, D., Da Mata, F. A. F., Mateus, E., Musyimi, C. W., Farina, N., Ferri, C. P., & Evans-Lacko, S. (2021). Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study. Ageing and Society, 43(2). https://doi.org/10.1017/S0144686X21000660
20 May 2021
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30 Mar 2021
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Kenya
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Perceptions and experiences of dementia and its care in rural Kenya
Musyimi, C. W., Ndetei, D. M., Evans-Lacko, S., Oliveira, D., Mutunga, E., & Farina, N. (2021). Perceptions and experiences of dementia and its care in rural Kenya. Dementia, 20(8). https://doi.org/10.1177/14713012211014800
30 Mar 2021
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11 Mar 2021
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China
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Income-Related Inequalities in Informal Care: Evidence From the Longitudinal Healthy Longevity Survey in China
Yixiao Wang, Wei Yang, Mauricio Avendano, Income-Related Inequalities in Informal Care: Evidence From the Longitudinal Healthy Longevity Survey in China, The Journals of Gerontology: Series B, Volume 76, Issue 8, October 2021, Pages 1691–1696, https://doi.org/10.1093/geronb/gbab043
11 Mar 2021
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22 Feb 2021
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UK
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Affects of policy design: The case of young carers in the Care Act 2014 and the Children and Families Act 2014
Alexander C. Affects of policy design: The case of young carers in the Care Act 2014 and the Children and Families Act 2014. Soc Policy Adm. 2021; 55: 968–980. https://doi.org/10.1111/spol.12692
22 Feb 2021
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17 Feb 2021
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Netherlands
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The risk protection and redistribution effects of long-term care co-payments
Wouterse B , Hussem A , Wong A . (2022). The risk protection and redistribution effects of long-term care co-payments. Journal of Risk and Insurance, 89, 161–186. https://doi.org/10.1111/jori.12337
17 Feb 2021
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17 Feb 2021
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Netherlands
English
The risk protection and redistribution effects of long-term care co-payments
Wouterse, B., Hussem, A., & Wong, A. (2022). The risk protection and redistribution effects of long‐term care co‐payments. Journal of Risk and Insurance, 89(1), 161-186.
17 Feb 2021
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Austria
English
Fractures in the Austrian Model of Long-Term Care: What are the Lessons from the First Wave of the COVID-19 Pandemic?
Leichsenring, K., Schmidt, A.E. and Staflinger, H., 2021. Fractures in the Austrian Model of Long-Term Care: What are the Lessons from the First Wave of the COVID-19 Pandemic?. Journal of Long Term Care, 0(2021), p.33–42.DOI: https://doi.org/10.31389/jltc.54
02 Feb 2021
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01 Feb 2021
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Germany
German
Dem Schmerz auf der Spur
Langner B (2021). Dem Schmerz auf der Spur. Schmerzassessment bei Demenz mit PAIC15. Pflegezeitschrift 74, no. 1, 54-55
01 Feb 2021
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21 Dec 2020
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German
Den Schmerz von Menschen mit Demenz erfassen
Laekeman M (2020) Den Schmerz von Menschen mit Demenz erfassen – Pain Assessment in Impaired Cognition Scale (PAIC 15). Physiopraxis, 18(06): 52-53. DOI: 10.1055/a-1191-8688 www.thieme.de/physiopraxis
21 Dec 2020
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Unethical governance: capacity legislation and the exclusion of people diagnosed with dementias from research
Fletcher, J. R. (2021). Unethical governance: capacity legislation and the exclusion of people diagnosed with dementias from research. Research Ethics, 17(3), 298–308. https://doi.org/10.1177/1747016120982023
17 Dec 2020
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Evidence-based clinical practice guidelines on the management of pain in older people–a summary report
Schofield P, Dunham M, Martin D, et al. Evidence-based clinical practice guidelines on the management of pain in older people – a summary report. British Journal of Pain. 2022;16(1):6-13. doi:10.1177/2049463720976155 (open access)
07 Dec 2020
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26 Nov 2020
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Serbia
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Quality of Life of Informal Caregivers behind the Scene of the COVID-19 Epidemic in Serbia
Todorovic N, Vracevic M, Rajovic N, Pavlovic V, Madzarevic P, Cumic J, Mostic T, Milic N, Rajovic T, Sapic R, et al. Quality of Life of Informal Caregivers behind the Scene of the COVID-19 Epidemic in Serbia. Medicina. 2020; 56(12):647. https://doi.org/10.3390/medicina56120647
26 Nov 2020
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20 Nov 2020
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Spain
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Pain in Older Adults With Dementia: A Survey in Spain
Giménez-Llort L, Bernal ML, Docking R, Muntsant-Soria A, Torres-Lista V, Bulbena A and Schofield PA (2020). Pain in Older Adults With Dementia: A Survey in Spain. Frontiers in Neurology https://doi.org/10.3389/fneur.2020.592366
20 Nov 2020
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24 Oct 2020
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China
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Long-term care system for older adults in China: policy landscape, challenges, and future prospects
Feng, Z., Glinskaya, E., Chen, H., Gong, S., Qiu, Y., Xu, J., & Yip, W. (2020). Long-term care system for older adults in China: policy landscape, challenges, and future prospects. The Lancet, 396(10259), 1362-1372. https://doi.org/10.1016/S0140-6736(20)32136-X
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20 Oct 2020
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South Africa
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Pensions, consumption and health: evidence from rural South Africa
Peter Lloyd-Sherlock; Sutapa Agrawal; Francesc Gómez-Olivé (2020) Pensions, consumption and health: evidence from rural South Africa. BMC Public Health 20, 1577.
20 Oct 2020
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23 Sep 2020
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England (UK)
UK
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The role of formal care services in supporting young people who provide unpaid care in England
Nicola Brimblecombe, Madeleine Stevens, Derek King & Martin Knapp (2022) The role of formal care services in supporting young people who provide unpaid care in England, Journal of Youth Studies, 25:1, 1-16, DOI: 10.1080/13676261.2020.1828848
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Japan
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Long-Term Care System in Japan
Yamada, M., & Arai, H. (2020). Long-Term Care System in Japan. Annals of Geriatric Medicine and Research, 24(3), 174–180. https://doi.org/10.4235/agmr.20.0037
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Short- and Medium-Term Effects of Informal Eldercare on Labor Market Outcomes
Heger, D., & Korfhage, T. (2020). Short- and Medium-Term Effects of Informal Eldercare on Labor Market Outcomes. Feminist Economics, 26(4), 205–227. https://doi.org/10.1080/13545701.2020.1786594
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The high cost of unpaid care by young people: health and economic impacts of providing unpaid care
Brimblecombe, N., Knapp, M., King, D., Stevens M. and Cartagena-Farias J.. The high cost of unpaid care by young people:health and economic impacts of providing unpaid care. BMC Public Health 20, 1115 (2020). https://doi.org/10.1186/s12889-020-09166-7
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A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia
De Poli, C., Oyebode, J., Airoldi, M., Glover R. A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia. BMC Health Serv Res 20, 657 (2020). https://doi.org/10.1186/s12913-020-05416-x
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13 Jul 2020
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France
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Pain management in nursing home residents: results from the INCUR study
V. Nunziata, Marco Proietti, E. Saporiti, L. Calcaterra, Y. Rolland, B. Vellas, M. Cesari, Pain Management in Nursing Home Residents: Results from the Incur Study, The Journal of nutrition, health and aging, Volume 24, Issue 9, 2020, Pages 1019-1022, ISSN 1279-7707, https://doi.org/10.1007/s12603-020-1513-2.
13 Jul 2020
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06 Jul 2020
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Netherlands
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Better off at home? Effects of nursing home eligibility on costs, hospitalizations and survival
Bakx, P., Wouterse, B., van Doorslaer, E., & Wong, A. (2020). Better off at home? Effects of nursing home eligibility on costs, hospitalizations and survival. Journal of health economics, 73, 102354. https://doi.org/10.1016/j.jhealeco.2020.102354
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Denmark
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Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study
Nielsen, T. R., Nielsen, D. S., & Waldemar, G. (2021). Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study. Aging & Mental Health, 25(8), 1424–1432. https://doi.org/10.1080/13607863.2020.1787336
03 Jul 2020
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25 Feb 2020
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China
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An Initial Analysis of the Effects of a Long-Term Care Insurance on Equity and Efficiency: A Case Study of Qingdao City in China
Yang, W., Chang, S., Zhang, W., Wang, R., Mossialos, E., Wu, X., Cui, D., Li, H., & Mi, H. (2021). An Initial Analysis of the Effects of a Long-Term Care Insurance on Equity and Efficiency: A Case Study of Qingdao City in China. Research on Aging, 43(3-4), 156-165. https://doi.org/10.1177/0164027520907346
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Republic of Korea
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Developing a framework for performance assessment of the public long-term care system in Korea: methodological and policy lessons
Kim, H., Jeon, B. Developing a framework for performance assessment of the public long-term care system in Korea: methodological and policy lessons. Health Res Policy Sys 18, 27 (2020). https://doi.org/10.1186/s12961-020-0529-8
22 Feb 2020
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25 Jan 2020
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Pain assessment for cognitively impaired older adults: Do items of available observer tools reflect pain-specific responses?
Kappesser J, Voit S, Lautenbacher S, Hermann C. Pain assessment for cognitively impaired older adults: Do items of available observer tools reflect pain-specific responses? Eur J Pain. 2020; 24: 851–862. https://doi.org/10.1002/ejp.1536
25 Jan 2020
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Finland
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Caring in space: the boundaries between public and private spaces in Finnish adult foster care homes
Leinonen E. Caring in space: the boundaries between public and private spaces in Finnish adult foster care homes. Ageing and Society. 2021;41(5):1184-1201. doi:10.1017/S0144686X19001831
07 Jan 2020
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17 Dec 2019
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Ireland
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Factors influencing the cost of care and admission to long-term care for people with dementia in Ireland
Walsh, S., Pertl, M., Gillespie, P., Lawlor, B., Brennan, S., & O’Shea, E. (2019). Factors influencing the cost of care and admission to long-term care for people with dementia in Ireland. Aging & Mental Health, 25(3), 512–520. https://doi.org/10.1080/13607863.2019.1699901
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Care providers, access to care, and the Long-term Care Nursing Insurance in China: An agent-based simulation
Shuang Chang, Wei Yang, Hiroshi Deguchi. Care providers, access to care, and the Long-term Care Nursing Insurance in China: An agent-based simulation, Social Science & Medicine, Volume 244, 2020, 112667, https://doi.org/10.1016/j.socscimed.2019.112667
14 Nov 2019
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05 Nov 2019
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Italy
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Meeting centres support programme highly appreciated by people with dementia and carers: a European cross-country evaluation
Szcześniak, D., Rymaszewska, J., Saibene, F. L., Lion, K. M., D’arma, A., Brooker, D., … Farina, E. (2019). Meeting centres support programme highly appreciated by people with dementia and carers: a European cross-country evaluation. Aging & Mental Health, 25(1), 149–159. https://doi.org/10.1080/13607863.2019.1683814
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The Living Lab In Ageing and Long-Term Care: A Sustainable Model for Translational Research Improving Quality of Life, Quality of Care and Quality of Work
Hilde Verbeek, S.M.G. Zwakhalen, J.M.G.A. Schols, G.I.J.M. Kempen, J.P.H. Hamers, The Living Lab in Ageing and Long-Term Care: A Sustainable Model for Translational Research Improving Quality of Life, Quality of Care and Quality of Work, The Journal of nutrition, health and aging, Volume 24, Issue 1, 2020, Pages 43-47, ISSN 1279-7707, https://doi.org/10.1007/s12603-019-1288-5
25 Oct 2019
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Care poverty: unmet care needs in a Nordic welfare state
Kröger, T., Puthenparambil, J. M., & Van Aerschot, L. (2019). Care poverty: unmet care needs in a Nordic welfare state. International Journal of Care and Caring, 3(4), 485-500. Retrieved Apr 18, 2024, from https://doi.org/10.1332/239788219X15641291564296
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Italy
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Spain
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Observational pain assessment in older persons with dementia in four countries: Observer agreement of items and factor structure of the Pain Assessment in Impaired Cognition
de Waal MWM, van Dalen-Kok AH, de Vet HCW, et al. Observational pain assessment in older persons with dementia in four countries: Observer agreement of items and factor structure of the Pain Assessment in Impaired Cognition. Eur J Pain. 2020; 24: 279–296. https://doi.org/10.1002/ejp.1484
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International
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The Pain Assessment in Impaired Cognition scale (PAIC15): A multidisciplinary and international approach to develop and test a meta-tool for pain assessment in impaired cognition, especially dementia
Kunz M, de Waal MWM, Achterberg WP, et al. The Pain Assessment in Impaired Cognition scale (PAIC15): A multidisciplinary and international approach to develop and test a meta-tool for pain assessment in impaired cognition, especially dementia. Eur J Pain. 2020; 24: 192–208. https://doi.org/10.1002/ejp.1477
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Pain Assessment in Impaired Cognition: Observer Agreement in a Long-Term Care Setting in Patients with Dementia
van Dalen-Kok, A. H., Achterberg, W. P., Rijkmans, W. E., de Vet, H. C., & de Waal, M. W. (2019). Pain assessment in impaired cognition: observer agreement in a long-term care setting in patients with dementia. Pain management, 9(5), 461-473. https://doi.org/10.2217/pmt-2019-0025
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Ireland
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“The Poor Carer”: Ambivalent Social Construction of the Home Care Worker in Elder Care Services
Timonen, V., & Lolich, L. (2019). “The Poor Carer”: Ambivalent Social Construction of the Home Care Worker in Elder Care Services. Journal of Gerontological Social Work, 62(7), 728–748. https://doi.org/10.1080/01634372.2019.1640334
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Switzerland
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Who to Talk to About my pain? A brief qualitative study on perception of pain and its management in swiss nursing home residents
Brunkert T., Simon M., Haslbeck J., Zuñiga F. (2019) Who to Talk to About my Pain? A Brief Qualitative Study on Perception of Pain and its Management in Swiss Nursing Home Residents. Pain Management Nursing, Volume 21, Issue 2, 151 – 156. https://doi.org/10.1016/j.pmn.2019.06.003
16 Jul 2019
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20 May 2019
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UK
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Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions
Joseph, S., Sempik, J., Leu, A. et al. Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions. Adolescent Res Rev 5, 77–89 (2020). https://doi.org/10.1007/s40894-019-00119-9
20 May 2019
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Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life
Edvardsson D, Baxter R, Corneliusson L, et al. Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life. Gerontology and Geriatric Medicine. 2019;5. doi:10.1177/2333721419842672
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Coverage Versus Generosity: Comparing Eligibility and Need Assessment in Six Cash‐for‐care Programmes
Ranci, Costanzo, August Österle, Marco Arlotti, and Andrea Parma. 2019. “Coverage Versus Generosity: Comparing Eligibility and Need Assessment in Six Cash‐for‐care Programmes.” Social Policy & Administration 53 (4): 551–66. https://doi.org/10.1111/spol.12502.
02 Apr 2019
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29 Jan 2019
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Japan
English
Current issues in long-term care policy and research: Toward the promotion of evidence-based policy (Japan)
Masui, H., Otaga, M., Moriyama, Y., & Matsushige, T. (2019). Current issues in long-term care policy and research: Toward the promotion of evidence-based policy. 保健医療科学,1: 34-44. https://www.niph.go.jp/journal/data/68-1/201968010006.pdf
29 Jan 2019
Journal article
29 Dec 2018
Journal article
China
English
Endogenous Living Arrangements and Health of Older Adults: Evidence from Instrumental Variable Estimation
This study aims to address the endogenous relationship between independent living arrangements (ILAs) and health of older adults using an instrumental variable (IV) approach. Data were obtained from a cross-sectional survey of older adults in Xiamen, China. Weng, Chenziheng and Han, Yaofeng and Fang, Ya, Endogenous Living Arrangements and Health of Older Adults: Evidence from […]
29 Dec 2018
Journal article
14 Dec 2018
Journal article
Europe
International
English
Economic evaluations in community aged care: a systematic review
Bulamu, N. B., Kaambwa, B., & Ratcliffe, J. (2018). Economic evaluations in community aged care: a systematic review. BMC health services research, 18(1), 967. https://doi.org/10.1186/s12913-018-3785-3
14 Dec 2018
Journal article
01 Sep 2018
Journal article
UK
English
Review of the international evidence on support for unpaid carers
Brimblecombe, N., Fernandez, J.-L., Knapp, M., Rehill, A. and Wittenberg, R., 2018. Review of the international evidence on support for unpaid carers. Journal of Long Term Care, 0(0), p.25-40.DOI: https://doi.org/10.31389/jltc.3
01 Sep 2018
Journal article
28 May 2018
Journal article
South Africa
English
Long-term care for older people in South Africa: the enduring legacies of apartheid and HIV/AIDS
P.Lloyd-Sherlock (2018) Long-term care for older people in South Africa: the enduring legacies of apartheid and HIV/AIDS. Journal of Social Policy 48, 1, 147–167 doi:10.1017/S0047279418000326
28 May 2018
Journal article
01 Mar 2018
Journal article
South Africa
English
Pensions and low sodium salt: a qualitative evaluation of a new strategy for managing hypertension in rural South Africa
Lloyd-Sherlock P, Gomez-Olive F, Ngobeni S, Wagner R, Tollman S. (2018) Pensions and low sodium salt: a qualitative evaluation of a new strategy for managing hypertension in rural South Africa. Current Aging Science 11(2):140-146.doi: 10.2174/1874609811666180718114250
01 Mar 2018
Journal article
22 Dec 2017
Journal article
Netherlands
English
Pain Assessment in Impaired Cognition (PAIC): content validity of the Dutch version of a new and universal tool to measure pain in dementia
van Dalen-Kok, A. H., Achterberg, W. P., Rijkmans, W. E., Tukker-van Vuuren, S. A., Delwel, S., de Vet, H. C., Lobbezoo, F., de Waal, M. W. (2018). Pain Assessment in Impaired Cognition (PAIC): content validity of the Dutch version of a new and universal tool to measure pain in dementia. Clinical Interventions in Aging, 13, […]
22 Dec 2017
Journal article
10 Dec 2017
Journal article
Denmark
Finland
Norway
Sweden
English
Nordic eldercare – Weak universalism becoming weaker?
Szebehely, M., & Meagher, G. (2018). Nordic eldercare – Weak universalism becoming weaker? Journal of European Social Policy, 28(3), 294-308. https://doi.org/10.1177/0958928717735062
10 Dec 2017
Journal article
13 Nov 2017
Journal article
Türkiye
English
The politics of care in Turkey: Sacred familialism in a changing political context
Akkan, B. (2018). The politics of care in Turkey: Sacred familialism in a changing political context. Social Politics: International Studies in Gender, State & Society, 25(1), pp.72-91.
13 Nov 2017
Journal article
26 May 2016
Journal article
International
UK
English
A cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’
Agnes Leu & Saul Becker (2017) A cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’, Journal of Youth Studies, 20:6, 750-762, DOI: 10.1080/13676261.2016.1260698
26 May 2016
Journal article
16 Nov 2015
Journal article
English
Co-design and implementation research: challenges and solutions for ethics committees
Goodyear-Smith, F., Jackson, C., & Greenhalgh, T. (2015). Co-design and implementation research: challenges and solutions for ethics committees. In BMC Medical Ethics (Vol. 16, Issue 1, p. 78). BioMed Central. https://doi.org/10.1186/s12910-015-0072-2
16 Nov 2015
Journal article
04 May 2015
Journal article
Finland
French
Users of home-care services in a Nordic welfare state under marketisation: the rich, the poor and the sick
Mathew Puthenparambil, J., Kröger, T. and Van Aerschot, L. (2017), Users of home-care services in a Nordic welfare state under marketisation: the rich, the poor and the sick. Health Soc Care Community, 25: 54-64. https://doi.org/10.1111/hsc.12245
04 May 2015
Journal article
09 Apr 2015
Journal article
English
“There are no known benefits.”: Considering the risk/benefit ratio of qualitative research
Opsal, T., Wolgemuth, J., Cross, J., Kaanta, T., Dickmann, E., Colomer, S., & Erdil-Moody, Z. (2016). “There are no known benefits.”: Considering the risk/benefit ratio of qualitative research. Qualitative Health Research, 26(8), 1137–1150. https://doi.org/10.1177/1049732315580109
09 Apr 2015
Journal article
10 Dec 2014
Journal article
International
English
An international road map to improve pain assessment in people with impaired cognition: the development of the Pain Assessment in Impaired Cognition (PAIC) meta-tool
Corbett, A., Achterberg, W., Husebo, B., Lobbezoo, F., de Vet, H., Kunz, M., Strand l, Constantinou M, Tudose C, Kappesser J, de Waal M & Lautenbacher S. (2014). An international road map to improve pain assessment in people with impaired cognition: the development of the Pain Assessment in Impaired Cognition (PAIC) meta-tool. BMC neurology, 14(1), […]
10 Dec 2014
Journal article
29 Jan 2013
Journal article
International
UK
English
When is a carer’s employment at risk? Longitudinal analysis of unpaid care and employment in midlife in England
King, D. and Pickard, L. (2013), When is a carer’s employment at risk? Longitudinal analysis of unpaid care and employment in midlife in England. Health & Social Care in the Community, 21: 303-314. https://doi.org/10.1111/hsc.12018
29 Jan 2013
Journal article
20 Oct 2011
Journal article
Australia
English
From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications
Purcal, C., Hamilton, M., Thomson, C. and Cass, B. (2012), From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications. Social Policy & Administration, 46: 788-806. https://doi.org/10.1111/j.1467-9515.2011.00816.x
20 Oct 2011
Journal article
03 Apr 2007
Journal article
Australia
sub-Saharan Africa
UK
United States
English
Global perspectives on children’s unpaid caregiving in the family: Research and policy on ‘young carers’ in the UK, Australia, the USA and Sub-Saharan Africa
Becker, S. (2007). Global perspectives on children’s unpaid caregiving in the family: Research and policy on ‘young carers’ in the UK, Australia, the USA and Sub-Saharan Africa. Global social policy, 7(1), 23-50. https://journals.sagepub.com/doi/abs/10.1177/1468018107073892
03 Apr 2007
Journal article
18 Jan 2007
Journal article
Netherlands
English
Effect of the Meeting Centres Support Program on informal carers of people with dementia: Results from a multi-centre study
Dröes, R. M., Meiland, F. J. M., Schmitz, M. J., & van Tilburg, W. (2006). Effect of the Meeting Centres Support Program on informal carers of people with dementia: Results from a multi-centre study. Aging & Mental Health, 10(2), 112–124. https://doi.org/10.1080/13607860500310682
18 Jan 2007
Journal article
No pub date set
Journal article
England (UK)
English
Shaping care home COVID-19 testing policy: a protocol for a pragmatic cluster randomised controlled trial of asymptomatic testing compared with standard care in care home staff (VIVALDI-CT)
Adams N, Stirrup O, Blackstone J, et al. Shaping care home COVID-19 testing policy: a protocol for a pragmatic cluster randomised controlled trial of asymptomatic testing compared with standard care in care home staff (VIVALDI-CT) BMJ Open 2023;13:e076210. doi: 10.1136/bmjopen-2023-076210
01 Jan 1970
Journal article
No pub date set
Journal article
UK
English
What are the factors associated with people with advanced dementia refusing assistance with personal care?
Backhouse T, Killett A, Mioshi E, Khondoker M. What are the factors associated with people with advanced dementia refusing assistance with personal care? Int J Geriatr Psychiatry. 2023;e5857. https://doi.org/10.1002/gps.5857
01 Jan 1970
Journal article
No pub date set
Journal article
Latinamerica & Caribbean
English
Inequalities in income security in later age in Latin America
Barrientos, A. (2021). Inequalities in income security in later age in Latin America. Pan American Journal of Public Health, 45. https://doi.org/10.26633/RPSP.2021.85
01 Jan 1970
Journal article
No pub date set
Journal article
Brazil
South Africa
English
Poverty Transitions among Older Households in Brazil and South Africa
Barrientos, A., Mase, J. Poverty Transitions among Older Households in Brazil and South Africa. Eur J Dev Res 24, 570–588 (2012). https://doi.org/10.1057/ejdr.2012.13
01 Jan 1970
Journal article
No pub date set
Journal article
Ireland
English
Does formal home care reduce inpatient length of stay?
Walsh, B., Lyons, S., Smith, S., Wren, M.-A., Eighan, J. and Morgenroth, E. (2020), Does formal home care reduce inpatient length of stay?. Health Economics, 29: 1620-1636. https://doi.org/10.1002/hec.4158
01 Jan 1970
Journal article
No pub date set
Journal article
Ireland
English
Home care workers’ views of employment conditions: private for-profit vs public and non-profit providers in Ireland
O’Neill, N., Mercille, J. and Edwards, J. (2023), “Home care workers’ views of employment conditions: private for-profit vs public and non-profit providers in Ireland”, International Journal of Sociology and Social Policy, Vol. 43 No. 13/14, pp. 19-35. https://doi.org/10.1108/IJSSP-10-2022-0276
01 Jan 1970
Journal article
No pub date set
Journal article
Ireland
English
Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment
Teahan Á, Walsh S, Doherty E, O’Shea E 2021. Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment. Social Science and Medicine, DOI: 10.1016/j.socscimed.2021.114359
01 Jan 1970
Journal article
No pub date set
Journal article
Brazil
English
Brazilian National Front for Strengthening Long-Term Care Facilities for Older People: history and activities
Horta NC, Boas PV, Carvalho AFS, Torres SVS, Campos GC, Angioletti AC, et al. Brazilian National Front for Strengthening Long-Term Care Facilities for Older People: history and activities. Geriatr Gerontol Aging. 2021;15:e0210064
01 Jan 1970
Journal article