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PUBLICATIONS Qualitative studies

PUBLICATIONS | Qualitative studies

We are gradually building a searchable list of publications based on GOLTC member suggestions.

06 May 2024

Journal article

India

English

Relational solidarity and conflicting ethics in dementia care in urban India

Bianca Brijnath, Rachita Rao, Upasana Baruah, Josefine Antoniades, Santosh Loganathan, Mathew Varghese, Claudia Cooper, Mike Kent, Briony Dow, Relational solidarity and conflicting ethics in dementia care in urban India, The Journals of Gerontology: Series B, 2024;, gbae079, https://doi.org/10.1093/geronb/gbae079

Journal article

22 Apr 2024

Journal article

England (UK)
UK

English

“I never planned for it”—Exploration of expectations about caring for older parents

De Poli, C., Wittenberg, R., Rehill, A., Stevens, M., & Brimblecombe, N. (2024). “I never planned for it”—Exploration of expectations about caring for older parents. Social Policy & Administration, 120. https://doi.org/10.1111/spol.13030

Journal article

17 Apr 2024

Journal article

Fiji

English

‘Letting it be’: a grounded theory about dementia care in Fiji

Johnston, K., Qaloewai, S., Rasavuka, T., Preston, R., Strivens, E., & Larkins, S. (2024). ‘Letting it be’: a grounded theory about dementia care in Fiji. Aging & Mental Health, 1–11. https://doi.org/10.1080/13607863.2024.2340737

Journal article

12 Apr 2024

GOLTC Method Guide

English

Critical Discourse Analysis (CDA)

Kendrick, H. and De-Poli, C. (2024) Critical Discourse Analysis (CDA). GOLTC Methods Guide series, 2. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/publications/critical-discourse-analysis-cda/

GOLTC Method Guide

14 Feb 2024

Journal article

Finland

English

From Restricted Resources to Ethical Burden—Former Home Care Workers’ Reasons for Leaving Their Jobs

Ring, M., Ristolainen, H., & Tiilikainen, E. (2024). From Restricted Resources to Ethical Burden—Former Home Care Workers’ Reasons for Leaving Their Jobs. Journal of Applied Gerontology, 0(0). https://doi.org/10.1177/07334648241231404

Journal article

02 Jan 2024

Journal article

Nigeria

English

Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria

Juliet Chigozie Donatus Ezulike, Shiyu Lu, Marcus Yu Lung Chiu, Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria, Innovation in Aging, Volume 8, Issue 4, 2024, igad140, https://doi.org/10.1093/geroni/igad140

Journal article

22 Dec 2023

Journal article

UK

English

Research ethics and collaborative research in health and social care: Analysis of UK research ethics policies, scoping review of the literature, and focus group study

De Poli C, Oyebode J (2023) Research ethics and collaborative research in health and social care: Analysis of UK research ethics policies, scoping review of the literature, and focus group study. PLoS ONE 18(12): e0296223. https://doi.org/10.1371/journal.pone.0296223

Journal article

26 Sep 2023

Report

South Africa

English

Older Persons and Community Care in South Africa Report

This report provides evidence on how families interact with services, policies, and infrastructures of care at the community level. It presents four key areas of discussion which focussed on 1) experiences of family care, 2) challenges of family care, 3) support services available and 4)support services needed. The authors provide recommendations regarding adjustments to policies and services that can better support family caregiving.

Moore, Elena; Kelly, Gabrielle (2023). Older Persons and Community Care in South Africa Report. University of Cape Town. Report. https://doi.org/10.25375/uct.24146409.v4

Report

08 Sep 2023

Journal article

England (UK)
UK

English

Priorities for day centre support and research, and the importance of centralised supportive information for day centres and their stakeholders

Orellana, K., Samsi, K., Manthorpe, J., & Emmer De Albuquerque Green, C. (2023). Priorities for day centre support and research, and the importance of centralised supportive information for day centres and their stakeholders. International Journal of Care and Caringhttps://doi.org/https://bristoluniversitypressdigital.com/view/journals/ijcc/aop/article-10.1332-239788221X16917415568825/article-10.1332-239788221X16917415568825.xml

Journal article

27 Apr 2023

Journal article

Netherlands

English

Regional network-building for complexity: A region-oriented policy response to increasing and varied demands for older person care in the Netherlands

van der Woerd, O.Wallenburg, I.van der Scheer, W., & Bal, R. (2023). Regional network-building for complexity: A region-oriented policy response to increasing and varied demands for older person care in the NetherlandsPublic Administration118https://doi.org/10.1111/padm.12931

Journal article

26 Apr 2023

Guidance and Resources

English

Practical thematic analysis: a guide for multidisciplinary health services research teams engaging in qualitative analysis

Saunders C H, Sierpe A, von Plessen C, Kennedy A M, Leviton L C, Bernstein S L et al. Practical thematic analysis: a guide for multidisciplinary health services research teams engaging in qualitative analysis doi:10.1136/bmj-2022-074256

Guidance and Resources

19 Apr 2023

Journal article

England (UK)
UK

English

Registered care home managers’ experiences of responding to the national care home visiting guidance in England during the Covid-19 pandemic; a multi-method qualitative study

Dixon, J., Lorenz-Dant, K., Stubbs, E. et al. Registered care home managers’ experiences of responding to the national care home visiting guidance in England during the Covid-19 pandemic; a multi-method qualitative study. BMC Geriatr 23, 236 (2023). https://doi.org/10.1186/s12877-023-03935-w

Journal article

03 Apr 2023

Journal article

UK

English

Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study

Kritika SamsiKatharine OrellanaLaura Cole & Jill Manthorpe (2023) Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study, Aging & Mental Health, 27:10, 1946-1955, DOI: 10.1080/13607863.2023.2196254

Journal article

23 Mar 2023

Journal article

Zambia

English

Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia

Kabelenga, I. (2023). Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia. International Journal of Care and Caring7(2), 326-342. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16770625208518

Journal article

08 Mar 2023

Journal article

South Africa

English

Situating masculinity, labour migration and care over the life course in Lesotho: foregrounding survivor bias in researching care

Vera-Sanso, P., & Hlabana, T. (2023). Situating masculinity, labour migration and care over the life course in Lesotho: foregrounding survivor bias in researching care. International Journal of Care and Caring7(2), 248-264. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16758785615441

Journal article

02 Mar 2023

Journal article

Malawi

English

Equitable, sustainable and acceptable long-term care in Malawi? Unpacking the implied universalism of key terms in international ageing policy discourse

Freeman, E. (2023). Equitable, sustainable and acceptable long-term care in Malawi? Unpacking the implied universalism of key terms in international ageing policy discourse. International Journal of Care and Caring7(2), 287-306. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788223X16742266590738

Journal article

13 Feb 2023

Journal article

South Africa

English

Family care for older persons in South Africa: heterogeneity of the carer’s experience

Moore, E. (2023). Family care for older persons in South Africa: heterogeneity of the carer’s experience. International Journal of Care and Caring7(2), 265-286. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16740630896657

Journal article

07 Nov 2022

Guidance and Resources

Brazil
India
Indonesia
International
Jamaica
Kenya
South Africa

English

Don’t forget I’m human –reducing dementia stigma. The STRiDE Anti-Stigma Toolkit.

Evans-Lacko, S., Farina, N., Ferri, C., Franzon, A. C., Godoy, C., Hurzuk, S., Jacobs, R., Mata, F., Mateus, E., Musyimi, C., Oliveira, D., Ong, E., López-Ortega, M., Surawattananon, N., & Weidner, W. (2022). Don’t forget I’m human –reducing dementia stigma. The STRiDE Anti-Stigma Toolkit. London School of Economics and Political Science. https://stridedementia.turtl.co/story/anti-stigma-toolkit/page/1

Guidance and Resources

14 Aug 2022

Journal article

India

English

Understanding, experiences and attitudes of dementia in India: A qualitative study

Hurzuk, S., Farina, N., Pattabiraman, M., Ramasamy, N., Alladi, S., Rajagopalan, J., Comas-Herrera, A., Thomas, P. T., & Evans-Lacko, S. (2022). Understanding, experiences and attitudes of dementia in India: A qualitative study. Dementia, 21(7). https://doi.org/10.1177/14713012221118774

Journal article

09 Jun 2022

Journal article

South Africa

English

Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study

Jacobs, R., Schneider, M., Farina, N., du Toit, P., & Evans-Lacko, S. (2022). Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study. Ageing and Society. https://doi.org/10.1017/s0144686x2200040x

Journal article

26 Jan 2022

Journal article

England (UK)

English

The interface between primary care and care homes: General Practitioner experiences of working in care homes for older people

White, C., & Alton, E. (2022). The interface between primary care and care homes: General Practitioner experiences of working in care homes for older peopleHealth & Social Care in the Community30e2896e2904https://doi.org/10.1111/hsc.13734

Journal article

01 Oct 2021

Report

UK

English

Caring from a distance: What can we learn from carers’ experiences of using new and familiar ways to stay in touch with family and friends in care homes during Covid-19?

White C., Wray J., Whitfield C., Wolverson E. (2021)   Caring from a distance: What can we learn from carers’ experiences of using new and familiar ways to stay in touch with family and friends in care homes during Covid-19? University of Hull https://www.hull.ac.uk/work-with-us/research/groups/docs/caring-from-a-distance-report.pdf 

Report

20 May 2021

Journal article

Brazil

English

Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study

Oliveira, D., Da Mata, F. A. F., Mateus, E., Musyimi, C. W., Farina, N., Ferri, C. P., & Evans-Lacko, S. (2021). Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study. Ageing and Society, 43(2). https://doi.org/10.1017/S0144686X21000660

Journal article

30 Mar 2021

Journal article

Kenya

English

Perceptions and experiences of dementia and its care in rural Kenya

Musyimi, C. W., Ndetei, D. M., Evans-Lacko, S., Oliveira, D., Mutunga, E., & Farina, N. (2021). Perceptions and experiences of dementia and its care in rural Kenya. Dementia, 20(8). https://doi.org/10.1177/14713012211014800

Journal article

23 Sep 2020

Journal article

England (UK)
UK

English

The role of formal care services in supporting young people who provide unpaid care in England

Nicola BrimblecombeMadeleine StevensDerek King & Martin Knapp (2022) The role of formal care services in supporting young people who provide unpaid care in England, Journal of Youth Studies, 25:1, 1-16, DOI: 10.1080/13676261.2020.1828848

Journal article

15 Jul 2020

Journal article

UK

A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia

De Poli, C., Oyebode, J., Airoldi, M., Glover R. A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia. BMC Health Serv Res 20, 657 (2020). https://doi.org/10.1186/s12913-020-05416-x

Journal article

03 Jul 2020

Journal article

Denmark

English

Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study

Nielsen, T. R., Nielsen, D. S., & Waldemar, G. (2021). Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study. Aging & Mental Health, 25(8), 1424–1432. https://doi.org/10.1080/13607863.2020.1787336

Journal article

25 Feb 2020

Journal article

China

English

An Initial Analysis of the Effects of a Long-Term Care Insurance on Equity and Efficiency: A Case Study of Qingdao City in China

Yang, W., Chang, S., Zhang, W., Wang, R., Mossialos, E., Wu, X., Cui, D., Li, H., & Mi, H. (2021). An Initial Analysis of the Effects of a Long-Term Care Insurance on Equity and Efficiency: A Case Study of Qingdao City in China. Research on Aging43(3-4), 156-165. https://doi.org/10.1177/0164027520907346

Journal article

07 Jan 2020

Journal article

Finland

English

Caring in space: the boundaries between public and private spaces in Finnish adult foster care homes

Leinonen E. Caring in space: the boundaries between public and private spaces in Finnish adult foster care homes. Ageing and Society. 2021;41(5):1184-1201. doi:10.1017/S0144686X19001831

Journal article

01 Mar 2018

Journal article

South Africa

English

Pensions and low sodium salt: a qualitative evaluation of a new strategy for managing hypertension in rural South Africa

Lloyd-Sherlock P, Gomez-Olive F, Ngobeni S, Wagner R, Tollman S. (2018) Pensions and low sodium salt: a qualitative evaluation of a new strategy for managing hypertension in rural South Africa. Current Aging Science 11(2):140-146.doi: 10.2174/1874609811666180718114250

Journal article