PUBLICATIONS Qualitative studies
PUBLICATIONS | Qualitative studies
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11 Nov 2024
Video
UK
English
What support do young carers find helpful?
Video: What support do young carers find helpful? Video summary of a research article, produced by the Care Policy and Evaluation Centre, London School of Economis and Political Science, with Sheffield Young Carers
Video
10 Nov 2024
Journal article
English
A Qualitative Exploration of the Role of Culturally Relevant Social Prescribing in Supporting Pakistani Carers Living in the UK
McMullen, S., Poduval, S., Armstrong, M., Davies, N., Dayson, C., Kharicha, K., Nair, P., Mistry, M., Sajid, M., Walters, K. and Woodward, A. (2024), A Qualitative Exploration of the Role of Culturally Relevant Social Prescribing in Supporting Pakistani Carers Living in the UK. Health Expectations, 27: e70099. https://doi.org/10.1111/hex.70099
Journal article
26 Sep 2024
Journal article
England (UK)
UK
English
Understanding the unmet support needs of young and young adult carers and their families
Brimblecombe N, Stevens M, Gowen S, Skyer R, Moriarty J (2024) Understanding the unmet support needs of young and young adult carers and their families. PLoS ONE 19(9): e0310766. https://doi.org/10.1371/journal.pone.0310766
Journal article
31 Jul 2024
Report
New Zealand
English
Financial Health and Wellbeing of Unpaid Caregivers
Hayman, K., Kerse, N., Teh, R., Wiles, J., Hikaka, J., and Miskelly, P. (2024) Financial Health and Wellbeing of Unpaid Caregivers. Report prepared for the Ageing Well National Science Challenge. July.
Report
07 Jul 2024
Journal article
Kenya
English
Motivators for family carers of persons with dementia in Kenya
Musyimi CW, Muyela LA, Ndetei DM, Thakya D, Mutiso VN, Mutunga E, Evans-Lacko S and Farina N. Motivators for family carers of persons with dementia in Kenya. Int J Geriatr Psychiatry. 2024;e6120. https://doi.org/10.1002/gps.6120
Journal article
08 May 2024
Report
Namibia
English
Older Persons and Community Care in Namibia
Ananias, Janet; Moore, Elena (2024). Older Persons and Community Care in Namibia. University of Cape Town. Report. https://doi.org/10.25375/uct.25771332.v1
Report
06 May 2024
Journal article
India
English
Relational solidarity and conflicting ethics in dementia care in urban India
Bianca Brijnath, Rachita Rao, Upasana Baruah, Josefine Antoniades, Santosh Loganathan, Mathew Varghese, Claudia Cooper, Mike Kent, Briony Dow, Relational solidarity and conflicting ethics in dementia care in urban India, The Journals of Gerontology: Series B, 2024;, gbae079, https://doi.org/10.1093/geronb/gbae079
Journal article
25 Apr 2024
Journal article
England (UK)
UK
English
Unpaid carers of people with dementia and information communication technology: Use, impact and ideas for the future
Damant J, Freddolino P, Dangoor M, Hu B, King D, Wittenberg R. Unpaid carers of people with dementia and information communication technology: Use, impact and ideas for the future. Dementia. 2024;23(5):779-799. doi:10.1177/14713012241249793
Journal article
22 Apr 2024
Journal article
England (UK)
UK
English
“I never planned for it”—Exploration of expectations about caring for older parents
De Poli, C., Wittenberg, R., Rehill, A., Stevens, M., & Brimblecombe, N. (2024). “I never planned for it”—Exploration of expectations about caring for older parents. Social Policy & Administration, 1–20. https://doi.org/10.1111/spol.13030
Journal article
17 Apr 2024
Journal article
Fiji
English
‘Letting it be’: a grounded theory about dementia care in Fiji
Johnston, K., Qaloewai, S., Rasavuka, T., Preston, R., Strivens, E., & Larkins, S. (2024). ‘Letting it be’: a grounded theory about dementia care in Fiji. Aging & Mental Health, 1–11. https://doi.org/10.1080/13607863.2024.2340737
Journal article
12 Apr 2024
GOLTC Method Guide
English
Critical Discourse Analysis (CDA)
Kendrick, H. and De-Poli, C. (2024) Critical Discourse Analysis (CDA). GOLTC Methods Guide series, 2. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/publications/critical-discourse-analysis-cda/
GOLTC Method Guide
14 Feb 2024
Journal article
Finland
English
From Restricted Resources to Ethical Burden—Former Home Care Workers’ Reasons for Leaving Their Jobs
Ring, M., Ristolainen, H., & Tiilikainen, E. (2024). From Restricted Resources to Ethical Burden—Former Home Care Workers’ Reasons for Leaving Their Jobs. Journal of Applied Gerontology, 0(0). https://doi.org/10.1177/07334648241231404
Journal article
03 Jan 2024
Journal article
Catalonia (Spain)
Spain
English
Evaluation of the Impact of the Covid-19 Pandemic on People and Organisations in Long-Term Care Facilities of Catalonia and Proposals for Improving the Care Model: The Resicovid-19 Project
Amblàs-Novellas, J., Coll-Planas, L., Jerez-Roig, J., López, D., Martori, J.C., Ramon-Aribau, A., Comas-Herrera, A., Moreno-Martin, P., Solé-Casals, M., Máiz-Mazuela, C., Masó-Aguado, M. and Gómez-Batiste, X. (2024) ‘Evaluation of the Impact of the Covid-19 Pandemic on People and Organisations in Long-Term Care Facilities of Catalonia and Proposals for Improving the Care Model: The Resicovid-19 Project’, Journal […]
Journal article
02 Jan 2024
Journal article
Nigeria
English
Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria
Juliet Chigozie Donatus Ezulike, Shiyu Lu, Marcus Yu Lung Chiu, Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria, Innovation in Aging, Volume 8, Issue 4, 2024, igad140, https://doi.org/10.1093/geroni/igad140
Journal article
22 Dec 2023
Journal article
UK
English
Research ethics and collaborative research in health and social care: Analysis of UK research ethics policies, scoping review of the literature, and focus group study
De Poli C, Oyebode J (2023) Research ethics and collaborative research in health and social care: Analysis of UK research ethics policies, scoping review of the literature, and focus group study. PLoS ONE 18(12): e0296223. https://doi.org/10.1371/journal.pone.0296223
Journal article
13 Nov 2023
Journal article
UK
English
How can care home activities facilitate social connection in residents? A qualitative study
Misiak, M. M., Bethell, J., Chapman, H., & Sommerlad, A. (2024). How can care home activities facilitate social connection in residents? A qualitative study. Aging & Mental Health, 1–10. https://doi.org/10.1080/13607863.2024.2345130
Journal article
26 Sep 2023
Report
South Africa
English
Older Persons and Community Care in South Africa Report
This report provides evidence on how families interact with services, policies, and infrastructures of care at the community level. It presents four key areas of discussion which focussed on 1) experiences of family care, 2) challenges of family care, 3) support services available and 4)support services needed. The authors provide recommendations regarding adjustments to policies […]
Report
08 Sep 2023
Journal article
England (UK)
UK
English
Priorities for day centre support and research, and the importance of centralised supportive information for day centres and their stakeholders
Orellana, K., Samsi, K., Manthorpe, J., & Emmer De Albuquerque Green, C. (2023). Priorities for day centre support and research, and the importance of centralised supportive information for day centres and their stakeholders. International Journal of Care and Caring. https://doi.org/https://bristoluniversitypressdigital.com/view/journals/ijcc/aop/article-10.1332-239788221X16917415568825/article-10.1332-239788221X16917415568825.xml
Journal article
03 Aug 2023
Journal article
International
English
Emerging Health Technologies in Long-Term Care and Suppliers’ Views on Their Potential to Assist and Support the Workforce
Chapman SA, Miller JR, Spetz J. Emerging Health Technologies in Long-Term Care and Suppliers’ Views on Their Potential to Assist and Support the Workforce. Medical Care Research and Review. 2023;80(6):619-630. doi:10.1177/10775587231190127
Journal article
27 Apr 2023
Journal article
Netherlands
English
Regional network-building for complexity: A region-oriented policy response to increasing and varied demands for older person care in the Netherlands
van der Woerd, O., Wallenburg, I., van der Scheer, W., & Bal, R. (2023). Regional network-building for complexity: A region-oriented policy response to increasing and varied demands for older person care in the Netherlands. Public Administration, 1–18. https://doi.org/10.1111/padm.12931
Journal article
26 Apr 2023
Guidance and Resources
English
Practical thematic analysis: a guide for multidisciplinary health services research teams engaging in qualitative analysis
Saunders C H, Sierpe A, von Plessen C, Kennedy A M, Leviton L C, Bernstein S L et al. Practical thematic analysis: a guide for multidisciplinary health services research teams engaging in qualitative analysis BMJ 2023; 381 :e074256 doi:10.1136/bmj-2022-074256
Guidance and Resources
19 Apr 2023
Journal article
England (UK)
UK
English
Registered care home managers’ experiences of responding to the national care home visiting guidance in England during the Covid-19 pandemic; a multi-method qualitative study
Dixon, J., Lorenz-Dant, K., Stubbs, E. et al. Registered care home managers’ experiences of responding to the national care home visiting guidance in England during the Covid-19 pandemic; a multi-method qualitative study. BMC Geriatr 23, 236 (2023). https://doi.org/10.1186/s12877-023-03935-w
Journal article
03 Apr 2023
Journal article
UK
English
Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study
Kritika Samsi, Katharine Orellana, Laura Cole & Jill Manthorpe (2023) Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study, Aging & Mental Health, 27:10, 1946-1955, DOI: 10.1080/13607863.2023.2196254
Journal article
23 Mar 2023
Journal article
Zambia
English
Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia
Kabelenga, I. (2023). Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia. International Journal of Care and Caring, 7(2), 326-342. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16770625208518
Journal article
08 Mar 2023
Journal article
South Africa
English
Situating masculinity, labour migration and care over the life course in Lesotho: foregrounding survivor bias in researching care
Vera-Sanso, P., & Hlabana, T. (2023). Situating masculinity, labour migration and care over the life course in Lesotho: foregrounding survivor bias in researching care. International Journal of Care and Caring, 7(2), 248-264. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16758785615441
Journal article
02 Mar 2023
Journal article
Malawi
English
Equitable, sustainable and acceptable long-term care in Malawi? Unpacking the implied universalism of key terms in international ageing policy discourse
Freeman, E. (2023). Equitable, sustainable and acceptable long-term care in Malawi? Unpacking the implied universalism of key terms in international ageing policy discourse. International Journal of Care and Caring, 7(2), 287-306. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788223X16742266590738
Journal article
13 Feb 2023
Journal article
South Africa
English
Family care for older persons in South Africa: heterogeneity of the carer’s experience
Moore, E. (2023). Family care for older persons in South Africa: heterogeneity of the carer’s experience. International Journal of Care and Caring, 7(2), 265-286. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16740630896657
Journal article
07 Nov 2022
Guidance and Resources
Brazil
India
Indonesia
International
Jamaica
Kenya
South Africa
English
Don’t forget I’m human –reducing dementia stigma. The STRiDE Anti-Stigma Toolkit.
Evans-Lacko, S., Farina, N., Ferri, C., Franzon, A. C., Godoy, C., Hurzuk, S., Jacobs, R., Mata, F., Mateus, E., Musyimi, C., Oliveira, D., Ong, E., López-Ortega, M., Surawattananon, N., & Weidner, W. (2022). Don’t forget I’m human –reducing dementia stigma. The STRiDE Anti-Stigma Toolkit. London School of Economics and Political Science. https://stridedementia.turtl.co/story/anti-stigma-toolkit/page/1
Guidance and Resources
14 Aug 2022
Journal article
India
English
Understanding, experiences and attitudes of dementia in India: A qualitative study
Hurzuk, S., Farina, N., Pattabiraman, M., Ramasamy, N., Alladi, S., Rajagopalan, J., Comas-Herrera, A., Thomas, P. T., & Evans-Lacko, S. (2022). Understanding, experiences and attitudes of dementia in India: A qualitative study. Dementia, 21(7). https://doi.org/10.1177/14713012221118774
Journal article
09 Jun 2022
Journal article
South Africa
English
Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study
Jacobs, R., Schneider, M., Farina, N., du Toit, P., & Evans-Lacko, S. (2022). Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study. Ageing and Society. https://doi.org/10.1017/s0144686x2200040x
Journal article
25 Mar 2022
Journal article
Ireland
English
Institutional Business Power: The Case of Ireland’s Private Home Care Providers
Mercille J, O’Neill N. Institutional Business Power: The Case of Ireland’s Private Home Care Providers. Journal of Social Policy. 2024;53(2):348-365. doi:10.1017/S0047279422000277
Journal article
26 Jan 2022
Journal article
England (UK)
English
The interface between primary care and care homes: General Practitioner experiences of working in care homes for older people
White, C., & Alton, E. (2022). The interface between primary care and care homes: General Practitioner experiences of working in care homes for older people. Health & Social Care in the Community, 30, e2896–e2904. https://doi.org/10.1111/hsc.13734
Journal article
01 Oct 2021
Report
UK
English
Caring from a distance: What can we learn from carers’ experiences of using new and familiar ways to stay in touch with family and friends in care homes during Covid-19?
White C., Wray J., Whitfield C., Wolverson E. (2021) Caring from a distance: What can we learn from carers’ experiences of using new and familiar ways to stay in touch with family and friends in care homes during Covid-19? University of Hull https://www.hull.ac.uk/work-with-us/research/groups/docs/caring-from-a-distance-report.pdf
Report
17 Aug 2021
Journal article
UK
English
Unequal Conditions of Care and the Implications for Social Policies on Young Carers
Alexander, C. Unequal Conditions of Care and the Implications for Social Policies on Young Carers. Child Adolesc Soc Work J 38, 505–518 (2021). https://doi.org/10.1007/s10560-021-00781-w
Journal article
20 May 2021
Journal article
Brazil
English
Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study
Oliveira, D., Da Mata, F. A. F., Mateus, E., Musyimi, C. W., Farina, N., Ferri, C. P., & Evans-Lacko, S. (2021). Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study. Ageing and Society, 43(2). https://doi.org/10.1017/S0144686X21000660
Journal article
30 Mar 2021
Journal article
Kenya
English
Perceptions and experiences of dementia and its care in rural Kenya
Musyimi, C. W., Ndetei, D. M., Evans-Lacko, S., Oliveira, D., Mutunga, E., & Farina, N. (2021). Perceptions and experiences of dementia and its care in rural Kenya. Dementia, 20(8). https://doi.org/10.1177/14713012211014800
Journal article
23 Sep 2020
Journal article
England (UK)
UK
English
The role of formal care services in supporting young people who provide unpaid care in England
Nicola Brimblecombe, Madeleine Stevens, Derek King & Martin Knapp (2022) The role of formal care services in supporting young people who provide unpaid care in England, Journal of Youth Studies, 25:1, 1-16, DOI: 10.1080/13676261.2020.1828848
Journal article
15 Jul 2020
Journal article
UK
A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia
De Poli, C., Oyebode, J., Airoldi, M., Glover R. A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia. BMC Health Serv Res 20, 657 (2020). https://doi.org/10.1186/s12913-020-05416-x
Journal article
03 Jul 2020
Journal article
Denmark
English
Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study
Nielsen, T. R., Nielsen, D. S., & Waldemar, G. (2021). Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study. Aging & Mental Health, 25(8), 1424–1432. https://doi.org/10.1080/13607863.2020.1787336
Journal article
25 Feb 2020
Journal article
China
English
An Initial Analysis of the Effects of a Long-Term Care Insurance on Equity and Efficiency: A Case Study of Qingdao City in China
Yang, W., Chang, S., Zhang, W., Wang, R., Mossialos, E., Wu, X., Cui, D., Li, H., & Mi, H. (2021). An Initial Analysis of the Effects of a Long-Term Care Insurance on Equity and Efficiency: A Case Study of Qingdao City in China. Research on Aging, 43(3-4), 156-165. https://doi.org/10.1177/0164027520907346
Journal article
07 Jan 2020
Journal article
Finland
English
Caring in space: the boundaries between public and private spaces in Finnish adult foster care homes
Leinonen E. Caring in space: the boundaries between public and private spaces in Finnish adult foster care homes. Ageing and Society. 2021;41(5):1184-1201. doi:10.1017/S0144686X19001831
Journal article
21 Jul 2019
Journal article
Ireland
English
“The Poor Carer”: Ambivalent Social Construction of the Home Care Worker in Elder Care Services
Timonen, V., & Lolich, L. (2019). “The Poor Carer”: Ambivalent Social Construction of the Home Care Worker in Elder Care Services. Journal of Gerontological Social Work, 62(7), 728–748. https://doi.org/10.1080/01634372.2019.1640334
Journal article
16 Jul 2019
Journal article
Switzerland
English
Who to Talk to About my pain? A brief qualitative study on perception of pain and its management in swiss nursing home residents
Brunkert T., Simon M., Haslbeck J., Zuñiga F. (2019) Who to Talk to About my Pain? A Brief Qualitative Study on Perception of Pain and its Management in Swiss Nursing Home Residents. Pain Management Nursing, Volume 21, Issue 2, 151 – 156. https://doi.org/10.1016/j.pmn.2019.06.003
Journal article
01 Mar 2018
Journal article
South Africa
English
Pensions and low sodium salt: a qualitative evaluation of a new strategy for managing hypertension in rural South Africa
Lloyd-Sherlock P, Gomez-Olive F, Ngobeni S, Wagner R, Tollman S. (2018) Pensions and low sodium salt: a qualitative evaluation of a new strategy for managing hypertension in rural South Africa. Current Aging Science 11(2):140-146.doi: 10.2174/1874609811666180718114250
Journal article