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PUBLICATIONS Dementia care and support

PUBLICATIONS | Dementia care and support

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04 Apr 2026

Journal article

Canada
Canada (Quebec)

English

The effects and costs of neurocognitively impaired long-term care residents’ use of videoconferencing: Expensive or essential?

Marie-Soleil Hardy, Chaimaa Fanaki, Camille Savoie, Bile yacouba Djedou, Maude Laberge, Vincent Couture, André Côté, Clémence Dallaire, Philippe Voyer, Marie-Pierre Gagnon, The effects and costs of neurocognitively impaired long-term care residents’ use of videoconferencing: Expensive or essential?, Geriatric Nursing, Volume 70, 2026, 104037, ISSN 0197-4572, https://doi.org/10.1016/j.gerinurse.2026.104037.

Journal article

03 Apr 2026

Journal article

International

English

Bridging research, policy, and practice: Advancing evidence-informed approaches for dementia care and prevention: An expert review by the Health Policy Professional Interest Area from ISTAART

Souza-Talarico J, PinzonMM, ViswanathanJ, etal. Bridging research, policy, and practice: Advancing evidence-informed approaches for dementia care and prevention: An expert review by the Health Policy Professional Interest Area from ISTAART. Alzheimer’s Dementia https://doi.org/10.1002/bsa3.70073

Journal article

01 Apr 2026

Journal article

International
United Kingdom
United Kingdom (England)

English

Research on dementia and inequalities in care and support – a map of the terrain and discussion of key issues

Clark, M., Compton, L., Salehi, N., Knapp, M. and Comas-Herrera, A. Research on dementia and inequalities in care and support – a map of the terrain and discussion of key issues. Int J Equity Health 25, 82 (2026). https://doi.org/10.1186/s12939-025-02601-4

Journal article

13 Sep 2025

Journal article

International

English

The Effect of Community-based Group Activities on Psychological Well-Being in People Living With Dementia: A Systematic Review

The Effect of Community-based Group Activities on Psychological Well-Being in People Living With Dementia: A Systematic Review Bell, Georgia et al. Journal of the American Medical Directors Association, Volume 0, Issue 0, 105874

Journal article

08 Aug 2025

Journal article

International

English

Cost-benefit analysis of interventions for dementia: a scoping review

Tracy Comans, Tiet-Hanh Dao-Tran, Namal Balasooriya, Digby Simpson, Lee-Fay Low, Annica Barcenilla-Wong, Paola Vasquez, Junru Zhou, Kim-Huong Nguyen, Cost-benefit analysis of interventions for dementia: a scoping review, Innovation in Aging, Volume 9, Issue 8, 2025, igaf084, https://doi.org/10.1093/geroni/igaf084

Journal article

30 Jul 2025

Journal article

United Kingdom
United Kingdom (England)
United Kingdom (Wales)

English

The Importance of the Social Environment for People Living With Dementia and Their Carers: Qualitative Evidence From DETERMIND and PriDem on the Impact of COVID-19 Service Changes and Restrictions in England and Wales

Gridley, K., Poole, M., Birks, Y., Hicks, B., Dixon, J., Wheatley, A., Robinson, L., & Banerjee, S. (2025). The Importance of the Social Environment for People Living With Dementia and Their Carers: Qualitative Evidence From DETERMIND and PriDem on the Impact of COVID-19 Service Changes and Restrictions in England and Wales. Dementia (London, England), 14713012251361189. Advance […]

Journal article

24 Jul 2025

Journal article

Italy

English

Seeking long-term care in old age: overcoming the barriers within fragmented policy frameworks

Gubert E. Seeking long-term care in old age: overcoming the barriers within fragmented policy frameworks. Ageing and Society. Published online 2025:1-26. doi:10.1017/S0144686X25000169

Journal article

15 Jul 2025

Journal article

Canada
Canada (Ontario)

English

Multimodal Detection of Agitation in People With Dementia in Clinical Settings: Observational Pilot Study

Badawi, A., Elmoghazy, S., Choudhury, S., Elgazzar, S., Elgazzar, K., & Burhan, A. M. (2025). Multimodal Detection of Agitation in People With Dementia in Clinical Settings: Observational Pilot Study. JMIR aging, 8(1), e68156. https://aging.jmir.org/2025/1/e68156  

Journal article

05 Jun 2025

Journal article

France

English

Impact of regional inequalities in long-term care on health spending: evidence from dementia patients in France

Anne Penneau, Zeynep Or, Impact of regional inequalities in long-term care on health spending: evidence from dementia patients in France, Aging and Health Research, Volume 5, Issue 3, 2025, 100239, https://doi.org/10.1016/j.ahr.2025.100239.

Journal article

06 May 2025

Journal article

Germany

English

A complex intervention to reduce hospital admissions for people living with dementia in shared-housing arrangements in Germany: results of the multicenter, cluster-randomized controlled DemWG-study

Misonow, J., Wolf-Ostermann, K., Altona, J. et al. A complex intervention to reduce hospital admissions for people living with dementia in shared-housing arrangements in Germany: results of the multicenter, cluster-randomized controlled DemWG-study. BMC Med 23, 262 (2025). https://doi.org/10.1186/s12916-025-04090-2

Journal article

03 Apr 2025

Journal article

United Kingdom
United Kingdom (England)

English

Explaining the unmet information needs of family carers of people with dementia: a theoretical model of information behaviour

De Poli, C. (2025). Explaining the unmet information needs of family carers of people with dementia: a theoretical model of information behaviour. BMC Geriatrics 2025 25:1, 25(1), 1–16. https://doi.org/10.1186/S12877-024-05626-6

Journal article

31 Mar 2025

Report

United Kingdom
United Kingdom (England)

English

Impact of neurodegenerative conditions on social care: a rapid review

Walbaum, M., Byrd, W., Salehi, N., Bross, J., Comas Herrera, A., Knapp, M, (2025). Impact of neurodegenerative conditions on social care: a rapid review. NIHR Policy Research Unit in Dementia and Neurodegeneration, University of Exeter

Report

25 Mar 2025

Journal article

International

English

Factors Influencing the Implementation of Non-Pharmacological Interventions for Behavioural and Psychological Symptoms of Dementia in Residential Aged-Care Homes: A Systematic Review and Qualitative Evidence Synthesis: A systematic review

Ayeno, H.D., Kassie, G.M., Atee, M. and Nguyen, T. (2025), Factors Influencing the Implementation of Non-Pharmacological Interventions for Behavioural and Psychological Symptoms of Dementia in Residential Aged-Care Homes: A Systematic Review and Qualitative Evidence Synthesis: A systematic review. Campbell Systematic Reviews, 21: e70029. https://doi.org/10.1002/cl2.70029

Journal article

05 Mar 2025

Journal article

United Kingdom
United Kingdom (England)

English

Involving a Stakeholder Group of Paid and Unpaid Caregivers 2 in the Co-development of an Intervention for Assessing Risk of 3 Dental Pain in Individuals Living with Dementia

Stewart, C., Thomas, N., Witton, R., McColl, E., & Schofield, P. (2025). Involving Family Caregivers in Developing an Intervention for Assessing Risk of Dental Pain in Individuals Living with Dementia. Geriatrics, 10(2), 35. https://doi.org/10.3390/geriatrics10020035

Journal article

27 Feb 2025

Journal article

Low- and Middle-Income countries

English

Effectiveness of Interventions to Support Carers of People With Dementia in Low- and Middle-Income Countries: A Systematic Review and Meta-Analysis

Chen, F., Hu, Z., Li, Q., Zheng, X., Li, M., Salcher-Konrad, M., Comas-Herrera, A., Knapp, M., Shi, C. and (2025), Effectiveness of Interventions to Support Carers of People With Dementia in Low- and Middle-Income Countries: A Systematic Review and Meta-Analysis. Int J Geriatr Psychiatry, 40: e70054. https://doi.org/10.1002/gps.70054

Journal article

24 Feb 2025

Journal article

International

English

Structural stigma: a fundamental cause of inequalities among carers of people with dementia

Oliveira, D., & Musyimi, C. (2025). Structural stigma: a fundamental cause of inequalities among carers of people with dementia. International Journal of Care and Caring (published online ahead of print 2025). Retrieved Feb 27, 2025, from https://doi.org/10.1332/23978821Y2025D000000105

Journal article

13 Feb 2025

Journal article

Australia

English

Caring for People With Dementia: Mapping the Experience and Journey From Diagnosis

Ruth Brookman, Ruby Lipson-Smith, Olivia Maurice, Nina Mcllwain, Lukas Hofstaetter, Michelle DiGiacomo, Danielle Ní Chróinín, Madeleine J Cannings, Celia B Harris, Caring for People With Dementia: Mapping the Experience and Journey From Diagnosis, The Gerontologist, Volume 65, Issue 5, May 2025, gnaf053, https://doi.org/10.1093/geront/gnaf053

Journal article

31 Jan 2025

Guidance and Resources

International
United Kingdom
United Kingdom (England)

English

Dementia and continence advice for family and friends

Dementia and continence advice for family and friends, developed by the DENCON project.

Guidance and Resources

31 Jan 2025

Report

United Kingdom
United Kingdom (England)

English

Living alone with a progressive neurological condition: a neglected inequality

Clare, L., Martyr, A., Gamble, L., Caulfield, M., Charlwood, C., Hulme C., Prina M., Oyebode, J. (2025). Living alone with a progressive neurological condition: a neglected inequality. NIHR Dementia and Neurodegeneration Policy Research Unit, University of Exeter. http://hdl.handle.net/10871/140651.

Report

04 Jan 2025

Journal article

Australia

English

Understanding how users of home-based aged care services with cognitive impairment rate their social care related quality of life

Phillipson, L., Caiels, J., Smith, L. et al. Understanding how users of home-based aged care services with cognitive impairment rate their social care related quality of life. BMC Geriatr 25, 12 (2025). https://doi.org/10.1186/s12877-024-05613-x

Journal article

27 Dec 2024

Journal article

Malaysia

English

Caring for people living with dementia and their informal caregivers: Current perspectives in Malaysia

Loh KJ, Ng ALO, Chia YC, Lee WL, Mohan D, Renganathan E. Caring for people living with dementia and their informal caregivers: Current perspectives in Malaysia. Malays Fam Physician. 2024 Dec 27;19:69. doi: 10.51866/cm.674. PMID: 39780913; PMCID: PMC11708825.

Journal article

18 Dec 2024

Journal article

International

English

People With Dementia Disclosing Their Diagnosis to Social Networks: A Systematic Review and Meta-Synthesis

Gianna Kohl, Mauricio Molinari Ulate, Jem Bhatt, Jennifer Lynch, Katrina Scior, Georgina Charlesworth, People With Dementia Disclosing Their Diagnosis to Social Networks: A Systematic Review and Meta-Synthesis, The Gerontologist, Volume 65, Issue 3, March 2025, gnae186, https://doi.org/10.1093/geront/gnae186

Journal article

14 Dec 2024

Journal article

Germany

English

Comparing Different Implementation Strategies for Collaborative Dementia Care Management in Terms of Patients’ Characteristics, Unmet Needs, and the Impact on Quality of Life and Costs in Germany

Platen, M., Hoffmann, W. & Michalowsky, B. Comparing Different Implementation Strategies for Collaborative Dementia Care Management in Terms of Patients’ Characteristics, Unmet Needs, and the Impact on Quality of Life and Costs in Germany. PharmacoEconomics Open (2024). https://doi.org/10.1007/s41669-024-00548-w

Journal article

23 Nov 2024

Journal article

Macao

English

Quality of life and associated characteristics in long-term care residents with advanced dementia in Macao: a cross-sectional study

Wu, J., Tam, K.I., Wang, H. et al. Quality of life and associated characteristics in long-term care residents with advanced dementia in Macao: a cross-sectional study. BMC Geriatr 24, 969 (2024). https://doi.org/10.1186/s12877-024-05466-4

Journal article

09 Aug 2024

Journal article

Spain

English

Time value of informal care of people with alzheimer’s disease in Spain: a population-based analysis

C. Vilaplana-Prieto, and Oliva-Moreno J. “Time value of informal care of people with alzheimer’s disease in Spain: a population-based analysis.” The European journal of health economics : HEPAC : health economics in prevention and care, 10.1007/s10198-024-01713-y. 9 Aug. 2024,  DOI: 10.1007/s10198-024-01713-y

Journal article

14 May 2024

Journal article

Brazil
Chile
India
International
United Kingdom

English

Rehabilitation Services for Young-Onset Dementia: Examples from High- and Low–Middle-Income Countries

Suárez-González A, Savage SA, Alladi S, Amaral-Carvalho V, Arshad F, Camino J, Caramelli P, Comas-Herrera A, Cook J, Cooper C, et al. Rehabilitation Services for Young-Onset Dementia: Examples from High- and Low–Middle-Income Countries. International Journal of Environmental Research and Public Health. 2024; 21(6):790. https://doi.org/10.3390/ijerph21060790

Journal article

06 May 2024

Journal article

India

English

Relational solidarity and conflicting ethics in dementia care in urban India

Bianca Brijnath, Rachita Rao, Upasana Baruah, Josefine Antoniades, Santosh Loganathan, Mathew Varghese, Claudia Cooper, Mike Kent, Briony Dow, Relational solidarity and conflicting ethics in dementia care in urban India, The Journals of Gerontology: Series B, 2024;, gbae079, https://doi.org/10.1093/geronb/gbae079

Journal article

25 Apr 2024

Journal article

United Kingdom
United Kingdom (England)

English

Unpaid carers of people with dementia and information communication technology: Use, impact and ideas for the future

Damant J, Freddolino P, Dangoor M, Hu B, King D, Wittenberg R. Unpaid carers of people with dementia and information communication technology: Use, impact and ideas for the future. Dementia. 2024;23(5):779-799. doi:10.1177/14713012241249793

Journal article

17 Apr 2024

Journal article

Fiji

English

‘Letting it be’: a grounded theory about dementia care in Fiji

Johnston, K., Qaloewai, S., Rasavuka, T., Preston, R., Strivens, E., & Larkins, S. (2024). ‘Letting it be’: a grounded theory about dementia care in Fiji. Aging & Mental Health, 1–11. https://doi.org/10.1080/13607863.2024.2340737

Journal article

15 Apr 2024

Journal article

Netherlands

English

Costs of care trajectories of people with dementia compared with matched controls. Longitudinal analysis of linked health and administrative data

Bosmans JE, van der Heide I, van Hout HPJ, Joling KJ. Costs of care trajectories of people with dementia compared with matched controls. Longitudinal analysis of linked health and administrative data. Int J Geriatr Psychiatry. 2024 May;39(5):e6094. doi:

Journal article

29 Feb 2024

Journal article

United Kingdom
United Kingdom (England)

English

Healthcare professionals’ experiences and views of providing continence support and advice to people living at home with dementia: “That’s a carer’s job”

Bradbury, B., Chester, H., Santer, M. et al. Healthcare professionals’ experiences and views of providing continence support and advice to people living at home with dementia: “That’s a carer’s job”. BMC Geriatr 24, 213 (2024). https://doi.org/10.1186/s12877-024-04830-8

Journal article

27 Jan 2024

Journal article

Republic of Korea

English

The impact of the implementation of a national policy on dementia on healthcare costs in older patients with dementia in Korea: a quasi-experimental difference-in-difference study

Choi, M., Kim, W., Moon, J.Y., Shin,J. (2024) The impact of the implementation of a national policy on dementia on healthcare costs in older patients with dementia in Korea: a quasi-experimental difference-in-difference study. The Lancet Regional Health – Western Pacific, Volume 44. https://doi.org/10.1016/j.lanwpc.2024.101010.

Journal article

27 Jan 2024

Journal article

United Kingdom (England)

English

Scaling-up an evidence-based intervention for family carers of people with dementia: Current and future costs and outcomes

Knapp M, Lorenz-Dant K, Walbaum M, Comas-Herrera A, Cyhlarova E, Livingston G and Wittenberg R. Scaling-up an evidence-based intervention for family carers of people with dementia: current and future costs and outcomes. Int J Geriatr Psychiatry. 2024;e6059. https://doi.org/10.1002/gps.6059

Journal article

21 Dec 2023

Journal article

United States

English

Identifying new ADRD diagnoses in home health care patients using natural language processing of nurses’notes

Barrón, Yolanda, Miriam Ryvicker, Jiyoun Song, Maryam Zolnoori, and Maxim Topaz. “Identifying new ADRD diagnoses in home health care patients using natural language processing of nurses’notes.” Innovation in Aging 7, no. Suppl 1 (2023): 1060. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10738424/

Journal article

30 Nov 2023

Journal article

United Kingdom (England)

English

Enabling health and maintaining independence for older people at home (HomeHealth trial): a multicentre randomised controlled trial

Enabling health and maintaining independence for older people at home (HomeHealth trial). HomeHealth is a new home-based, manualised voluntary sector service supporting older people with mild frailty to maintain their independence through behaviour change.   Frost, R., Avgerinou, C., Kalwarowsky, S., Mahmood, F., Goodman, C., Clegg, A., Hopkins, J., Gould, R., Gardner, B., Marston, L., […]

Journal article

02 Nov 2023

Guidance and Resources

United Kingdom

English

Research in Dementia Map (RESIDE)

Research in dementia mapping (2023) RESIDE. Available at: https://dementiamap.uk/

Guidance and Resources

27 Sep 2023

Journal article

United Kingdom

English

Perspectives on approaching pain management in patients with dementia

Attrill, L., & Schofield, P. (2024). Perspectives on approaching pain management in patients with dementia. Pain Management, 14(3), 153–161. https://doi.org/10.2217/pmt-2023-0095

Journal article

31 Aug 2023

Journal article

International

English

The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia)

Bhatt, J., Brohan, E., Blasco, D., Oliveira, D., Bakolis, I., Comas-Herrera, A., D’Amico, F., Farina N., Knapp M., Stevens M., Thornicroft G., Wilson E., Salcher-Konrad M., Yang L.H and Evans-Lacko, S. (2023). The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia). BJPsych Open, 9(5), E164. doi:10.1192/bjo.2023.551

Journal article

07 Aug 2023

Journal article

India

English

Pathways to care for people with dementia in India: An exploratory study using case vignettes

Thomas, P. T., Rajagopalan, J., Hurzuk, S., Ramasamy, N., Pattabiraman, M., De Poli, C., … & Alladi, S. (2024). Pathways to care for people with dementia in India: An exploratory study using case vignettes. Dementia, 23(3), 493-511.

Journal article

21 Apr 2023

Guidance and Resources

English

The DEEP-Ethics Gold Standards for Dementia Research

DEEP. (2023). The DEEP-Ethics Gold Standards for Dementia Research. DEEP v.3. https://www.dementiavoices.org.uk/wp-content/uploads/2020/07/The-DEEP-Ethics-Gold-Standards-for-Dementia-Research.pdf  

Guidance and Resources

03 Apr 2023

Journal article

United Kingdom

English

Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study

Kritika Samsi, Katharine Orellana, Laura Cole & Jill Manthorpe (2023) Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study, Aging & Mental Health, 27:10, 1946-1955, DOI: 10.1080/13607863.2023.2196254

Journal article

18 Jan 2023

Journal article

United States

English

Care Ecosystem Collaborative Model and Health Care Costs in Medicare Beneficiaries With Dementia: A Secondary Analysis of a Randomized Clinical Trial

Guterman EL, Kiekhofer RE, Wood AJ, Allen IE, Kahn JG, Dulaney S, Merrilees JJ, Lee K, Chiong W, Bonasera SJ, Braley TL, Hunt LJ, Harrison KL, Miller BL, Possin KL. Care Ecosystem Collaborative Model and Health Care Costs in Medicare Beneficiaries With Dementia: A Secondary Analysis of a Randomized Clinical Trial. JAMA Intern Med. 2023:e234764. doi: 10.1001/jamainternmed.2023.4764.

Journal article

07 Nov 2022

Guidance and Resources

Brazil
India
Indonesia
International
Jamaica
Kenya
South Africa

English

Don’t forget I’m human –reducing dementia stigma. The STRiDE Anti-Stigma Toolkit.

Evans-Lacko, S., Farina, N., Ferri, C., Franzon, A. C., Godoy, C., Hurzuk, S., Jacobs, R., Mata, F., Mateus, E., Musyimi, C., Oliveira, D., Ong, E., López-Ortega, M., Surawattananon, N., & Weidner, W. (2022). Don’t forget I’m human –reducing dementia stigma. The STRiDE Anti-Stigma Toolkit. London School of Economics and Political Science. https://stridedementia.turtl.co/story/anti-stigma-toolkit/page/1

Guidance and Resources

04 Nov 2022

Journal article

United States

English

Effect of collaborative dementia care on potentially inappropriate medication use: Outcomes from the Care Ecosystem randomized clinical trial

Liu AK, Possin KL, Cook KM, et al. Effect of collaborative dementia care on potentially inappropriate medication use: Outcomes from the Care Ecosystem randomized clinical trial. Alzheimer’s Dement. 2023; 19: 1865–1875. https://doi.org/10.1002/alz.12808

Journal article

14 Sep 2022

Journal article

New Zealand

English

Do Māori and Pacific Peoples Living with Dementia in New Zealand Receive Equitable Long-Term Care Compared with New Zealand Europeans?

Ma’u, E., Saeed, F., Yates, S., Oulaghan, B., Whittington, R., Coomarasamy, C., Cheung, G. and Cullum, S. (2022) ‘Do Māori and Pacific Peoples Living with Dementia in New Zealand Receive Equitable Long-Term Care Compared with New Zealand Europeans?’, Journal of Long Term Care, (2022), p. 222–233. Available at: https://doi.org/10.31389/jltc.148.

Journal article

30 Aug 2022

Journal article

Belgium

English

Overcoming COVID-19 constraints on person centered dementia care: A narrative inquiry of lived experiences of residential care staff in Belgium

Martin, A. 2022. Overcoming COVID-19 constraints on person centered dementia care: A narrative inquiry of lived experiences of residential care staff in Belgium. Journal of Long-Term Care. pp. 183-192. https://doi.org/10.31389/jltc.129

Journal article

14 Aug 2022

Journal article

India

English

Understanding, experiences and attitudes of dementia in India: A qualitative study

Hurzuk, S., Farina, N., Pattabiraman, M., Ramasamy, N., Alladi, S., Rajagopalan, J., Comas-Herrera, A., Thomas, P. T., & Evans-Lacko, S. (2022). Understanding, experiences and attitudes of dementia in India: A qualitative study. Dementia, 21(7). https://doi.org/10.1177/14713012221118774

Journal article

19 Jul 2022

Journal article

Brazil

English

Reducing dementia-related stigma and discrimination among community health workers in Brazil: protocol for a randomised controlled feasibility trial

Oliveira, D., Godoy, C., Da Mata, F. A. F., Mateus, E., Franzon, A. C. A., Farina, N., Evans-Lacko, S., & Ferri, C. P. (2022). Reducing dementia-related stigma and discrimination among community health workers in Brazil: protocol for a randomised controlled feasibility trial. BMJ Open, 12(7). https://doi.org/10.1136/bmjopen-2021-060033

Journal article

30 Jun 2022

Report

India

English

The dementia care landscape in India: context, systems, policies and services. STRiDE Desk Review

Alladi S., Rajagopalan J., Hurzuk S., Pattabiraman M., Narendhar R., Thomas P.T., Gurjal V.R., Ballal D., Gupta I., Mohapatra A., Kalkonde Y., Rao G.N., Lorenz-Dant K., Comas-Herrera A., Weidner W., Knapp M. (2022)  The dementia care landscape in India: context, systems, policies and services. STRiDE Desk Review. CPEC, London School of Economics and Political Science, […]

Report

09 Jun 2022

Journal article

South Africa

English

Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study

Jacobs, R., Schneider, M., Farina, N., du Toit, P., & Evans-Lacko, S. (2022). Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study. Ageing and Society. https://doi.org/10.1017/s0144686x2200040x

Journal article

31 May 2022

Journal article

United Kingdom
United Kingdom (England)

Factors associated with change over time in quality of life of people with dementia: longitudinal analyses from the MODEM cohort study

King, D., Farina, N., Burgon, C. et al. Factors associated with change over time in quality of life of people with dementia: longitudinal analyses from the MODEM cohort study. BMC Geriatr 22, 469 (2022). https://doi.org/10.1186/s12877-022-03142-z

Journal article

23 Feb 2022

Journal article

Malta

English

Nurses’ Experiences of Caring for Long-Term Care Residents With Dementia During the COVID-19 Pandemic

Scerri A, Borg Xuereb C, Scerri C. Nurses’ Experiences of Caring for Long-Term Care Residents With Dementia During the COVID-19 Pandemic. Gerontology and Geriatric Medicine. 2022;8. doi:10.1177/23337214221077793

Journal article

20 Jul 2021

Journal article

Netherlands

English

It takes three to tango: An ethnography of triadic involvement of residents, families and nurses in long-term dementia care

Koster, L., Nies, H. (2021). It takes three to tango: An ethnography of triadic involvement of residents, families and nurses in long-term dementia care. Health Expectations, 2021; 00:1-11. http://doi.org/10.1111/hex.13224

Journal article

01 Jul 2021

Journal article

Brazil
India
Indonesia
Jamaica
Kenya
Mexico
South Africa

Building a strategic theory of change to address dementia care, treatment and support gaps

Breuer E, Comas-Herrera A, Freeman E, Albanese E, Alladi S, Amour R, Evans-Lacko S, Ferri CP, Govia I, Iveth Astudillo García C, Knapp M, Lefevre M, López-Ortega M, Lund C, Musyimi C, Ndetei D, Oliveira D, Palmer T, Pattabiraman M, Sani TP, Taylor D, Taylor E, Theresia I, Thomas PT, Turana Y, Weidner W, Schneider […]

Journal article

20 May 2021

Journal article

Brazil

English

Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study

Oliveira, D., Da Mata, F. A. F., Mateus, E., Musyimi, C. W., Farina, N., Ferri, C. P., & Evans-Lacko, S. (2021). Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study. Ageing and Society, 43(2). https://doi.org/10.1017/S0144686X21000660

Journal article

30 Mar 2021

Journal article

Kenya

English

Perceptions and experiences of dementia and its care in rural Kenya

Musyimi, C. W., Ndetei, D. M., Evans-Lacko, S., Oliveira, D., Mutunga, E., & Farina, N. (2021). Perceptions and experiences of dementia and its care in rural Kenya. Dementia, 20(8). https://doi.org/10.1177/14713012211014800

Journal article

20 Jan 2021

Journal article

New Zealand

English

Predictors of Aged Residential Care Placement in Patients Newly Diagnosed with Dementia at a New Zealand Memory Service

Cullum, S., Varghese, C., Yates, S., Kalauta, L., Appleton, J., Knell, R., Prigent, C., Christie, M., Appleton, K., Hadfield, L., Liu, B., Rajay, A., Yeom, B., Oulaghan, B., Whittington, R. and Cheung, G. (2021) ‘Predictors of Aged Residential Care Placement in Patients Newly Diagnosed with Dementia at a New Zealand Memory Service’, Journal of Long Term […]

Journal article

21 Dec 2020

Journal article

German

Den Schmerz von Menschen mit Demenz erfassen

Laekeman M (2020) Den Schmerz von Menschen mit Demenz erfassen – Pain Assessment in Impaired Cognition Scale (PAIC 15). Physiopraxis, 18(06): 52-53. DOI: 10.1055/a-1191-8688  www.thieme.de/physiopraxis

Journal article

17 Dec 2020

Journal article

English

Unethical governance: capacity legislation and the exclusion of people diagnosed with dementias from research

Fletcher, J. R. (2021). Unethical governance: capacity legislation and the exclusion of people diagnosed with dementias from research. Research Ethics, 17(3), 298–308. https://doi.org/10.1177/1747016120982023

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20 Nov 2020

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Pain in Older Adults With Dementia: A Survey in Spain

Giménez-Llort L, Bernal ML, Docking R, Muntsant-Soria A, Torres-Lista V, Bulbena A and Schofield PA (2020). Pain in Older Adults With Dementia: A Survey in Spain. Frontiers in Neurology https://doi.org/10.3389/fneur.2020.592366

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A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia

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Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study

Nielsen, T. R., Nielsen, D. S., & Waldemar, G. (2021). Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study. Aging & Mental Health, 25(8), 1424–1432. https://doi.org/10.1080/13607863.2020.1787336

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17 Dec 2019

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Ireland

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Factors influencing the cost of care and admission to long-term care for people with dementia in Ireland

Walsh, S., Pertl, M., Gillespie, P., Lawlor, B., Brennan, S., & O’Shea, E. (2019). Factors influencing the cost of care and admission to long-term care for people with dementia in Ireland. Aging & Mental Health, 25(3), 512–520. https://doi.org/10.1080/13607863.2019.1699901

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Meeting centres support programme highly appreciated by people with dementia and carers: a European cross-country evaluation

Szcześniak, D., Rymaszewska, J., Saibene, F. L., Lion, K. M., D’arma, A., Brooker, D., … Farina, E. (2019). Meeting centres support programme highly appreciated by people with dementia and carers: a European cross-country evaluation. Aging & Mental Health, 25(1), 149–159. https://doi.org/10.1080/13607863.2019.1683814

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Effect of Collaborative Dementia Care via Telephone and Internet on Quality of Life, Caregiver Well-being, and Health Care Use The Care Ecosystem Randomized Clinical Trial

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World Alzheimer Report 2019: Attitudes to dementia

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Italy
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Observational pain assessment in older persons with dementia in four countries: Observer agreement of items and factor structure of the Pain Assessment in Impaired Cognition

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The Pain Assessment in Impaired Cognition scale (PAIC15): A multidisciplinary and international approach to develop and test a meta-tool for pain assessment in impaired cognition, especially dementia

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Pain Assessment in Impaired Cognition: Observer Agreement in a Long-Term Care Setting in Patients with Dementia

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Active Involvement of People with Dementia: A Systematic Review of Studies Developing Supportive Technologies

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Development and Usability of ADappt: Web-Based Tool to Support Clinicians, Patients, and Caregivers in the Diagnosis of Mild Cognitive Impairment and Alzheimer Disease

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Guidance and Resources

United States

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Pain Assessment in Impaired Cognition (PAIC): content validity of the Dutch version of a new and universal tool to measure pain in dementia

van Dalen-Kok, A. H., Achterberg, W. P., Rijkmans, W. E., Tukker-van Vuuren, S. A., Delwel, S., de Vet, H. C., Lobbezoo, F., de Waal, M. W. (2018). Pain Assessment in Impaired Cognition (PAIC): content validity of the Dutch version of a new and universal tool to measure pain in dementia. Clinical Interventions in Aging, 13, […]

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An international road map to improve pain assessment in people with impaired cognition: the development of the Pain Assessment in Impaired Cognition (PAIC) meta-tool

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Effect of the Meeting Centres Support Program on informal carers of people with dementia: Results from a multi-centre study

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No pub date set

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A Qualitative Study on Formal and Informal Carers’ Perceptions of Dementia Care Provision and Management in Malaysia

Goodson M, McLellan E, Rosli R, Tan MP, Kamaruzzaman S, Robinson L and Moloney S (2021) A Qualitative Study on Formal and Informal Carers’ Perceptions of Dementia Care Provision and Management in Malaysia. Front. Public Health 9:637484. doi: 10.3389/fpubh.2021.637484

Journal article

No pub date set

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United Kingdom

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What are the factors associated with people with advanced dementia refusing assistance with personal care?

Backhouse T, Killett A, Mioshi E, Khondoker M. What are the factors associated with people with advanced dementia refusing assistance with personal care? Int J Geriatr Psychiatry. 2023;e5857. https://doi.org/10.1002/gps.5857

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No pub date set

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Ireland

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Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment

Teahan Á, Walsh S, Doherty E, O’Shea E 2021. Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment. Social Science and Medicine, DOI: 10.1016/j.socscimed.2021.114359 

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