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PUBLICATIONS Dementia care and support

PUBLICATIONS | Dementia care and support

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06 May 2024

Journal article

India

English

Relational solidarity and conflicting ethics in dementia care in urban India

Bianca Brijnath, Rachita Rao, Upasana Baruah, Josefine Antoniades, Santosh Loganathan, Mathew Varghese, Claudia Cooper, Mike Kent, Briony Dow, Relational solidarity and conflicting ethics in dementia care in urban India, The Journals of Gerontology: Series B, 2024;, gbae079, https://doi.org/10.1093/geronb/gbae079

Journal article

17 Apr 2024

Journal article

Fiji

English

‘Letting it be’: a grounded theory about dementia care in Fiji

Johnston, K., Qaloewai, S., Rasavuka, T., Preston, R., Strivens, E., & Larkins, S. (2024). ‘Letting it be’: a grounded theory about dementia care in Fiji. Aging & Mental Health, 1–11. https://doi.org/10.1080/13607863.2024.2340737

Journal article

15 Apr 2024

Journal article

Netherlands

English

Costs of care trajectories of people with dementia compared with matched controls. Longitudinal analysis of linked health and administrative data

Bosmans JE, van der Heide I, van Hout HPJ, Joling KJ. Costs of care trajectories of people with dementia compared with matched controls. Longitudinal analysis of linked health and administrative data. Int J Geriatr Psychiatry. 2024 May;39(5):e6094. doi:

Journal article

27 Jan 2024

Journal article

England (UK)

English

Scaling-up an evidence-based intervention for family carers of people with dementia: Current and future costs and outcomes

Knapp M, Lorenz-Dant K, Walbaum M, Comas-Herrera A, Cyhlarova E, Livingston G and Wittenberg R. Scaling-up an evidence-based intervention for family carers of people with dementia: current and future costs and outcomes. Int J Geriatr Psychiatry. 2024;e6059. https://doi.org/10.1002/gps.6059

Journal article

27 Jan 2024

Journal article

Republic of Korea

English

The impact of the implementation of a national policy on dementia on healthcare costs in older patients with dementia in Korea: a quasi-experimental difference-in-difference study

Choi, M., Kim, W., Moon, J.Y., Shin,J. (2024) The impact of the implementation of a national policy on dementia on healthcare costs in older patients with dementia in Korea: a quasi-experimental difference-in-difference study. The Lancet Regional Health – Western Pacific, Volume 44. https://doi.org/10.1016/j.lanwpc.2024.101010.

Journal article

30 Nov 2023

Journal article

England (UK)

English

Enabling health and maintaining independence for older people at home (HomeHealth trial): a multicentre randomised controlled trial

Enabling health and maintaining independence for older people at home (HomeHealth trial). HomeHealth is a new home-based, manualised voluntary sector service supporting older people with mild frailty to maintain their independence through behaviour change.

 

Frost, R., Avgerinou, C., Kalwarowsky, S., Mahmood, F., Goodman, C., Clegg, A., Hopkins, J., Gould, R., Gardner, B., Marston, L., Hunter, R., Kharicha, K., Cooper, C., Skelton, D. A., Drennan, V., Logan, P., & Walters, K. (2023). Enabling health and maintaining independence for older people at home (HomeHealth trial): a multicentre randomised controlled trial. Lancet (London, England)402 Suppl 1, S42. https://doi.org/10.1016/S0140-6736(23)02071-8

 

Journal article

02 Nov 2023

Guidance and Resources

UK

English

Research in Dementia Map (RESIDE)

Research in dementia mapping (2023) RESIDE. Available at: https://dementiamap.uk/

Guidance and Resources

31 Aug 2023

Journal article

International

English

The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia)

Bhatt, J., Brohan, E., Blasco, D., Oliveira, D., Bakolis, I., Comas-Herrera, A., D’Amico, F., Farina N., Knapp M., Stevens M., Thornicroft G., Wilson E., Salcher-Konrad M., Yang L.H and Evans-Lacko, S. (2023). The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia). BJPsych Open, 9(5), E164. doi:10.1192/bjo.2023.551

Journal article

21 Apr 2023

Guidance and Resources

English

The DEEP-Ethics Gold Standards for Dementia Research

DEEP. (2023). The DEEP-Ethics Gold Standards for Dementia Research. DEEP v.3. https://www.dementiavoices.org.uk/wp-content/uploads/2020/07/The-DEEP-Ethics-Gold-Standards-for-Dementia-Research.pdf

 

Guidance and Resources

03 Apr 2023

Journal article

UK

English

Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study

Kritika SamsiKatharine OrellanaLaura Cole & Jill Manthorpe (2023) Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study, Aging & Mental Health, 27:10, 1946-1955, DOI: 10.1080/13607863.2023.2196254

Journal article

07 Nov 2022

Guidance and Resources

Brazil
India
Indonesia
International
Jamaica
Kenya
South Africa

English

Don’t forget I’m human –reducing dementia stigma. The STRiDE Anti-Stigma Toolkit.

Evans-Lacko, S., Farina, N., Ferri, C., Franzon, A. C., Godoy, C., Hurzuk, S., Jacobs, R., Mata, F., Mateus, E., Musyimi, C., Oliveira, D., Ong, E., López-Ortega, M., Surawattananon, N., & Weidner, W. (2022). Don’t forget I’m human –reducing dementia stigma. The STRiDE Anti-Stigma Toolkit. London School of Economics and Political Science. https://stridedementia.turtl.co/story/anti-stigma-toolkit/page/1

Guidance and Resources

14 Aug 2022

Journal article

India

English

Understanding, experiences and attitudes of dementia in India: A qualitative study

Hurzuk, S., Farina, N., Pattabiraman, M., Ramasamy, N., Alladi, S., Rajagopalan, J., Comas-Herrera, A., Thomas, P. T., & Evans-Lacko, S. (2022). Understanding, experiences and attitudes of dementia in India: A qualitative study. Dementia, 21(7). https://doi.org/10.1177/14713012221118774

Journal article

19 Jul 2022

Journal article

Brazil

English

Reducing dementia-related stigma and discrimination among community health workers in Brazil: protocol for a randomised controlled feasibility trial

Oliveira, D., Godoy, C., Da Mata, F. A. F., Mateus, E., Franzon, A. C. A., Farina, N., Evans-Lacko, S., & Ferri, C. P. (2022). Reducing dementia-related stigma and discrimination among community health workers in Brazil: protocol for a randomised controlled feasibility trial. BMJ Open, 12(7). https://doi.org/10.1136/bmjopen-2021-060033

Journal article

09 Jun 2022

Journal article

South Africa

English

Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study

Jacobs, R., Schneider, M., Farina, N., du Toit, P., & Evans-Lacko, S. (2022). Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study. Ageing and Society. https://doi.org/10.1017/s0144686x2200040x

Journal article

31 May 2022

Journal article

England (UK)
UK

Factors associated with change over time in quality of life of people with dementia: longitudinal analyses from the MODEM cohort study

King, D., Farina, N., Burgon, C. et al. Factors associated with change over time in quality of life of people with dementia: longitudinal analyses from the MODEM cohort study. BMC Geriatr 22, 469 (2022). https://doi.org/10.1186/s12877-022-03142-z

Journal article

01 Jul 2021

Journal article

Brazil
India
Indonesia
Jamaica
Kenya
Mexico
South Africa

Building a strategic theory of change to address dementia care, treatment and support gaps

Breuer E, Comas-Herrera A, Freeman E, Albanese E, Alladi S, Amour R, Evans-Lacko S, Ferri CP, Govia I, Iveth Astudillo García C, Knapp M, Lefevre M, López-Ortega M, Lund C, Musyimi C, Ndetei D, Oliveira D, Palmer T, Pattabiraman M, Sani TP, Taylor D, Taylor E, Theresia I, Thomas PT, Turana Y, Weidner W, Schneider M (2021) Beyond the project: Building a strategic theory of change to address dementia care, treatment and support gaps across seven middle-income countries, Dementia, https://doi.org/10.1177/14713012211029105

Journal article

20 May 2021

Journal article

Brazil

English

Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study

Oliveira, D., Da Mata, F. A. F., Mateus, E., Musyimi, C. W., Farina, N., Ferri, C. P., & Evans-Lacko, S. (2021). Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study. Ageing and Society, 43(2). https://doi.org/10.1017/S0144686X21000660

Journal article

30 Mar 2021

Journal article

Kenya

English

Perceptions and experiences of dementia and its care in rural Kenya

Musyimi, C. W., Ndetei, D. M., Evans-Lacko, S., Oliveira, D., Mutunga, E., & Farina, N. (2021). Perceptions and experiences of dementia and its care in rural Kenya. Dementia, 20(8). https://doi.org/10.1177/14713012211014800

Journal article

17 Dec 2020

Journal article

English

Unethical governance: capacity legislation and the exclusion of people diagnosed with dementias from research

Fletcher, J. R. (2021). Unethical governance: capacity legislation and the exclusion of people diagnosed with dementias from research. Research Ethics, 17(3), 298–308. https://doi.org/10.1177/1747016120982023

Journal article

15 Jul 2020

Journal article

UK

A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia

De Poli, C., Oyebode, J., Airoldi, M., Glover R. A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia. BMC Health Serv Res 20, 657 (2020). https://doi.org/10.1186/s12913-020-05416-x

Journal article

03 Jul 2020

Journal article

Denmark

English

Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study

Nielsen, T. R., Nielsen, D. S., & Waldemar, G. (2021). Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study. Aging & Mental Health, 25(8), 1424–1432. https://doi.org/10.1080/13607863.2020.1787336

Journal article

20 Sep 2019

Report

International

Chinese
English
French
Spanish

World Alzheimer Report 2019: Attitudes to dementia

Alzheimer’s Disease International. 2019. World Alzheimer Report 2019: Attitudes to dementia. London: Alzheimer’s Disease International. https://www.alzint.org/resource/world-alzheimer-report-2019/

Report

No pub date set

Journal article

UK

English

What are the factors associated with people with advanced dementia refusing assistance with personal care?

Backhouse T, Killett A, Mioshi E, Khondoker M. What are the factors associated with people with advanced dementia refusing assistance with personal care? Int J Geriatr Psychiatry. 2023;e5857. https://doi.org/10.1002/gps.5857

Journal article