PUBLICATIONS Dementia care and support
PUBLICATIONS | Dementia care and support
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06 May 2024
Journal article
India
English
Relational solidarity and conflicting ethics in dementia care in urban India
Bianca Brijnath, Rachita Rao, Upasana Baruah, Josefine Antoniades, Santosh Loganathan, Mathew Varghese, Claudia Cooper, Mike Kent, Briony Dow, Relational solidarity and conflicting ethics in dementia care in urban India, The Journals of Gerontology: Series B, 2024;, gbae079, https://doi.org/10.1093/geronb/gbae079
Journal article
17 Apr 2024
Journal article
Fiji
English
‘Letting it be’: a grounded theory about dementia care in Fiji
Johnston, K., Qaloewai, S., Rasavuka, T., Preston, R., Strivens, E., & Larkins, S. (2024). ‘Letting it be’: a grounded theory about dementia care in Fiji. Aging & Mental Health, 1–11. https://doi.org/10.1080/13607863.2024.2340737
Journal article
15 Apr 2024
Journal article
Netherlands
English
Costs of care trajectories of people with dementia compared with matched controls. Longitudinal analysis of linked health and administrative data
Bosmans JE, van der Heide I, van Hout HPJ, Joling KJ. Costs of care trajectories of people with dementia compared with matched controls. Longitudinal analysis of linked health and administrative data. Int J Geriatr Psychiatry. 2024 May;39(5):e6094. doi:
Journal article
27 Jan 2024
Journal article
Republic of Korea
English
The impact of the implementation of a national policy on dementia on healthcare costs in older patients with dementia in Korea: a quasi-experimental difference-in-difference study
Choi, M., Kim, W., Moon, J.Y., Shin,J. (2024) The impact of the implementation of a national policy on dementia on healthcare costs in older patients with dementia in Korea: a quasi-experimental difference-in-difference study. The Lancet Regional Health – Western Pacific, Volume 44. https://doi.org/10.1016/j.lanwpc.2024.101010.
Journal article
27 Jan 2024
Journal article
England (UK)
English
Scaling-up an evidence-based intervention for family carers of people with dementia: Current and future costs and outcomes
Knapp M, Lorenz-Dant K, Walbaum M, Comas-Herrera A, Cyhlarova E, Livingston G and Wittenberg R. Scaling-up an evidence-based intervention for family carers of people with dementia: current and future costs and outcomes. Int J Geriatr Psychiatry. 2024;e6059. https://doi.org/10.1002/gps.6059
Journal article
30 Nov 2023
Journal article
England (UK)
English
Enabling health and maintaining independence for older people at home (HomeHealth trial): a multicentre randomised controlled trial
Enabling health and maintaining independence for older people at home (HomeHealth trial). HomeHealth is a new home-based, manualised voluntary sector service supporting older people with mild frailty to maintain their independence through behaviour change. Frost, R., Avgerinou, C., Kalwarowsky, S., Mahmood, F., Goodman, C., Clegg, A., Hopkins, J., Gould, R., Gardner, B., Marston, L., […]
Journal article
02 Nov 2023
Guidance and Resources
UK
English
Research in Dementia Map (RESIDE)
Research in dementia mapping (2023) RESIDE. Available at: https://dementiamap.uk/
Guidance and Resources
27 Sep 2023
Journal article
UK
English
Perspectives on approaching pain management in patients with dementia
Attrill, L., & Schofield, P. (2024). Perspectives on approaching pain management in patients with dementia. Pain Management, 14(3), 153–161. https://doi.org/10.2217/pmt-2023-0095
Journal article
31 Aug 2023
Journal article
International
English
The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia)
Bhatt, J., Brohan, E., Blasco, D., Oliveira, D., Bakolis, I., Comas-Herrera, A., D’Amico, F., Farina N., Knapp M., Stevens M., Thornicroft G., Wilson E., Salcher-Konrad M., Yang L.H and Evans-Lacko, S. (2023). The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia). BJPsych Open, 9(5), E164. doi:10.1192/bjo.2023.551
Journal article
21 Apr 2023
Guidance and Resources
English
The DEEP-Ethics Gold Standards for Dementia Research
DEEP. (2023). The DEEP-Ethics Gold Standards for Dementia Research. DEEP v.3. https://www.dementiavoices.org.uk/wp-content/uploads/2020/07/The-DEEP-Ethics-Gold-Standards-for-Dementia-Research.pdf
Guidance and Resources
03 Apr 2023
Journal article
UK
English
Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study
Kritika Samsi, Katharine Orellana, Laura Cole & Jill Manthorpe (2023) Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study, Aging & Mental Health, 27:10, 1946-1955, DOI: 10.1080/13607863.2023.2196254
Journal article
07 Nov 2022
Guidance and Resources
Brazil
India
Indonesia
International
Jamaica
Kenya
South Africa
English
Don’t forget I’m human –reducing dementia stigma. The STRiDE Anti-Stigma Toolkit.
Evans-Lacko, S., Farina, N., Ferri, C., Franzon, A. C., Godoy, C., Hurzuk, S., Jacobs, R., Mata, F., Mateus, E., Musyimi, C., Oliveira, D., Ong, E., López-Ortega, M., Surawattananon, N., & Weidner, W. (2022). Don’t forget I’m human –reducing dementia stigma. The STRiDE Anti-Stigma Toolkit. London School of Economics and Political Science. https://stridedementia.turtl.co/story/anti-stigma-toolkit/page/1
Guidance and Resources
14 Aug 2022
Journal article
India
English
Understanding, experiences and attitudes of dementia in India: A qualitative study
Hurzuk, S., Farina, N., Pattabiraman, M., Ramasamy, N., Alladi, S., Rajagopalan, J., Comas-Herrera, A., Thomas, P. T., & Evans-Lacko, S. (2022). Understanding, experiences and attitudes of dementia in India: A qualitative study. Dementia, 21(7). https://doi.org/10.1177/14713012221118774
Journal article
19 Jul 2022
Journal article
Brazil
English
Reducing dementia-related stigma and discrimination among community health workers in Brazil: protocol for a randomised controlled feasibility trial
Oliveira, D., Godoy, C., Da Mata, F. A. F., Mateus, E., Franzon, A. C. A., Farina, N., Evans-Lacko, S., & Ferri, C. P. (2022). Reducing dementia-related stigma and discrimination among community health workers in Brazil: protocol for a randomised controlled feasibility trial. BMJ Open, 12(7). https://doi.org/10.1136/bmjopen-2021-060033
Journal article
09 Jun 2022
Journal article
South Africa
English
Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study
Jacobs, R., Schneider, M., Farina, N., du Toit, P., & Evans-Lacko, S. (2022). Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study. Ageing and Society. https://doi.org/10.1017/s0144686x2200040x
Journal article
31 May 2022
Journal article
England (UK)
UK
Factors associated with change over time in quality of life of people with dementia: longitudinal analyses from the MODEM cohort study
King, D., Farina, N., Burgon, C. et al. Factors associated with change over time in quality of life of people with dementia: longitudinal analyses from the MODEM cohort study. BMC Geriatr 22, 469 (2022). https://doi.org/10.1186/s12877-022-03142-z
Journal article
01 Jul 2021
Journal article
Brazil
India
Indonesia
Jamaica
Kenya
Mexico
South Africa
Building a strategic theory of change to address dementia care, treatment and support gaps
Breuer E, Comas-Herrera A, Freeman E, Albanese E, Alladi S, Amour R, Evans-Lacko S, Ferri CP, Govia I, Iveth Astudillo García C, Knapp M, Lefevre M, López-Ortega M, Lund C, Musyimi C, Ndetei D, Oliveira D, Palmer T, Pattabiraman M, Sani TP, Taylor D, Taylor E, Theresia I, Thomas PT, Turana Y, Weidner W, Schneider […]
Journal article
20 May 2021
Journal article
Brazil
English
Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study
Oliveira, D., Da Mata, F. A. F., Mateus, E., Musyimi, C. W., Farina, N., Ferri, C. P., & Evans-Lacko, S. (2021). Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study. Ageing and Society, 43(2). https://doi.org/10.1017/S0144686X21000660
Journal article
30 Mar 2021
Journal article
Kenya
English
Perceptions and experiences of dementia and its care in rural Kenya
Musyimi, C. W., Ndetei, D. M., Evans-Lacko, S., Oliveira, D., Mutunga, E., & Farina, N. (2021). Perceptions and experiences of dementia and its care in rural Kenya. Dementia, 20(8). https://doi.org/10.1177/14713012211014800
Journal article
21 Dec 2020
Journal article
German
Den Schmerz von Menschen mit Demenz erfassen
Laekeman M (2020) Den Schmerz von Menschen mit Demenz erfassen – Pain Assessment in Impaired Cognition Scale (PAIC 15). Physiopraxis, 18(06): 52-53. DOI: 10.1055/a-1191-8688 www.thieme.de/physiopraxis
Journal article
17 Dec 2020
Journal article
English
Unethical governance: capacity legislation and the exclusion of people diagnosed with dementias from research
Fletcher, J. R. (2021). Unethical governance: capacity legislation and the exclusion of people diagnosed with dementias from research. Research Ethics, 17(3), 298–308. https://doi.org/10.1177/1747016120982023
Journal article
20 Nov 2020
Journal article
Spain
English
Pain in Older Adults With Dementia: A Survey in Spain
Giménez-Llort L, Bernal ML, Docking R, Muntsant-Soria A, Torres-Lista V, Bulbena A and Schofield PA (2020). Pain in Older Adults With Dementia: A Survey in Spain. Frontiers in Neurology https://doi.org/10.3389/fneur.2020.592366
Journal article
15 Jul 2020
Journal article
UK
A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia
De Poli, C., Oyebode, J., Airoldi, M., Glover R. A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia. BMC Health Serv Res 20, 657 (2020). https://doi.org/10.1186/s12913-020-05416-x
Journal article
03 Jul 2020
Journal article
Denmark
English
Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study
Nielsen, T. R., Nielsen, D. S., & Waldemar, G. (2021). Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study. Aging & Mental Health, 25(8), 1424–1432. https://doi.org/10.1080/13607863.2020.1787336
Journal article
17 Dec 2019
Journal article
Ireland
English
Factors influencing the cost of care and admission to long-term care for people with dementia in Ireland
Walsh, S., Pertl, M., Gillespie, P., Lawlor, B., Brennan, S., & O’Shea, E. (2019). Factors influencing the cost of care and admission to long-term care for people with dementia in Ireland. Aging & Mental Health, 25(3), 512–520. https://doi.org/10.1080/13607863.2019.1699901
Journal article
20 Sep 2019
Report
International
Chinese
English
French
Spanish
World Alzheimer Report 2019: Attitudes to dementia
Alzheimer’s Disease International. 2019. World Alzheimer Report 2019: Attitudes to dementia. London: Alzheimer’s Disease International. https://www.alzint.org/resource/world-alzheimer-report-2019/
Report
13 Sep 2019
Journal article
Italy
Netherlands
Serbia
Spain
English
Observational pain assessment in older persons with dementia in four countries: Observer agreement of items and factor structure of the Pain Assessment in Impaired Cognition
de Waal MWM, van Dalen-Kok AH, de Vet HCW, et al. Observational pain assessment in older persons with dementia in four countries: Observer agreement of items and factor structure of the Pain Assessment in Impaired Cognition. Eur J Pain. 2020; 24: 279–296. https://doi.org/10.1002/ejp.1484
Journal article
05 Sep 2019
Journal article
Europe
International
English
The Pain Assessment in Impaired Cognition scale (PAIC15): A multidisciplinary and international approach to develop and test a meta-tool for pain assessment in impaired cognition, especially dementia
Kunz M, de Waal MWM, Achterberg WP, et al. The Pain Assessment in Impaired Cognition scale (PAIC15): A multidisciplinary and international approach to develop and test a meta-tool for pain assessment in impaired cognition, especially dementia. Eur J Pain. 2020; 24: 192–208. https://doi.org/10.1002/ejp.1477
Journal article
12 Aug 2019
Journal article
Netherlands
English
Pain Assessment in Impaired Cognition: Observer Agreement in a Long-Term Care Setting in Patients with Dementia
van Dalen-Kok, A. H., Achterberg, W. P., Rijkmans, W. E., de Vet, H. C., & de Waal, M. W. (2019). Pain assessment in impaired cognition: observer agreement in a long-term care setting in patients with dementia. Pain management, 9(5), 461-473. https://doi.org/10.2217/pmt-2019-0025
Journal article
22 Dec 2017
Journal article
Netherlands
English
Pain Assessment in Impaired Cognition (PAIC): content validity of the Dutch version of a new and universal tool to measure pain in dementia
van Dalen-Kok, A. H., Achterberg, W. P., Rijkmans, W. E., Tukker-van Vuuren, S. A., Delwel, S., de Vet, H. C., Lobbezoo, F., de Waal, M. W. (2018). Pain Assessment in Impaired Cognition (PAIC): content validity of the Dutch version of a new and universal tool to measure pain in dementia. Clinical Interventions in Aging, 13, […]
Journal article
10 Dec 2014
Journal article
International
English
An international road map to improve pain assessment in people with impaired cognition: the development of the Pain Assessment in Impaired Cognition (PAIC) meta-tool
Corbett, A., Achterberg, W., Husebo, B., Lobbezoo, F., de Vet, H., Kunz, M., Strand l, Constantinou M, Tudose C, Kappesser J, de Waal M & Lautenbacher S. (2014). An international road map to improve pain assessment in people with impaired cognition: the development of the Pain Assessment in Impaired Cognition (PAIC) meta-tool. BMC neurology, 14(1), […]
Journal article
No pub date set
Journal article
UK
English
What are the factors associated with people with advanced dementia refusing assistance with personal care?
Backhouse T, Killett A, Mioshi E, Khondoker M. What are the factors associated with people with advanced dementia refusing assistance with personal care? Int J Geriatr Psychiatry. 2023;e5857. https://doi.org/10.1002/gps.5857
Journal article
No pub date set
Journal article
Ireland
English
Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment
Teahan Á, Walsh S, Doherty E, O’Shea E 2021. Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment. Social Science and Medicine, DOI: 10.1016/j.socscimed.2021.114359
Journal article