Spousal Characteristics and Unmet Care Needs: A Longitudinal National Study of Adults Aged 50 and over in England

Zhang, J., Bennett, M., Zhang, Y. (2024) Spousal Characteristics and Unmet Care Needs: A Longitudinal National Study of Adults Aged 50 and over in England, Social Science & Medicine, 117530, ISSN 0277-9536, https://doi.org/10.1016/j.socscimed.2024.117530.

A Qualitative Exploration of the Role of Culturally Relevant Social Prescribing in Supporting Pakistani Carers Living in the UK

McMullen, S., Poduval, S., Armstrong, M., Davies, N., Dayson, C., Kharicha, K., Nair, P., Mistry, M., Sajid, M., Walters, K. and Woodward, A. (2024), A Qualitative Exploration of the Role of Culturally Relevant Social Prescribing in Supporting Pakistani Carers Living in the UK. Health Expectations, 27: e70099. https://doi.org/10.1111/hex.70099

The roles of employment status and income in the mental health of informal caregivers in Germany

Scheuermann, JS., Pendergrass, A., Diehl, K. et al. The roles of employment status and income in the mental health of informal caregivers in Germany. BMC Public Health 24, 2802 (2024). https://doi.org/10.1186/s12889-024-20252-y

Understanding the unmet support needs of young and young adult carers and their families

Brimblecombe N, Stevens M, Gowen S, Skyer R, Moriarty J (2024) Understanding the unmet support needs of young and young adult carers and their families. PLoS ONE 19(9): e0310766. https://doi.org/10.1371/journal.pone.0310766

Forecasting Informal care needs of the urban-rural older adults in China based on microsimulation model

Zhang, L., Shen, S., Zhang, W. et al. Forecasting Informal care needs of the urban-rural older adults in China based on microsimulation model. BMC Public Health 24, 2352 (2024). https://doi.org/10.1186/s12889-024-19747-5

Geographical location as a determinant of caregiver burden: a rural-urban analysis of the informal caregiving, health, and healthcare survey in Ghana

Agyemang-Duah, W., Rosenberg, M.W. Geographical location as a determinant of caregiver burden: a rural-urban analysis of the informal caregiving, health, and healthcare survey in Ghana. BMC Prim. Care 25, 317 (2024). https://doi.org/10.1186/s12875-024-02562-7

Time value of informal care of people with alzheimer’s disease in Spain: a population-based analysis

Vilaplana-Prieto. C., & Oliva-Moreno, J. (2024) Time value of informal care of people with alzheimer’s disease in Spain: a population-based analysis. https://doi.org/10.1007/s10198-024-01713-y

Financial Health and Wellbeing of Unpaid Caregivers

Hayman, K., Kerse, N., Teh, R., Wiles, J., Hikaka, J., and Miskelly, P. (2024) Financial Health and Wellbeing of Unpaid Caregivers. Report prepared for the Ageing Well National Science Challenge. July.

What determines informal care need among community-dwelling older adults in China? Results from a longitudinal study

Zhang, L., Shen, S., Zhang, W. et al. (2024) What determines informal care need among community-dwelling older adults in China? Results from a longitudinal study. BMC Geriatr 24, 597. https://doi.org/10.1186/s12877-024-04843-3

Motivators for family carers of persons with dementia in Kenya

Musyimi CW, Muyela LA, Ndetei DM, Thakya D, Mutiso VN, Mutunga E, Evans-Lacko S and Farina N. Motivators for family carers of persons with dementia in Kenya. Int J Geriatr Psychiatry. 2024;e6120. https://doi.org/10.1002/gps.6120

Predictors of the quality of the relationship between informal caregiver and care recipient in informal caregiving of older people: presentation and evaluation of a new item

Becker, L., Graessel, E. & Pendergrass, A. Predictors of the quality of the relationship between informal caregiver and care recipient in informal caregiving of older people: presentation and evaluation of a new item. BMC Psychol 12, 342 (2024). https://doi.org/10.1186/s40359-024-01840-4

Informal caregiving time and its monetary value in the context of older adults in Singapore

Nur Diyana Binte Azman, Abhijit Visaria, Veronica Shimin Goh, Truls Østbye, David Matchar, Rahul Malhotra (2004) Informal caregiving time and its monetary value in the context of older adults in Singapore. Aging and Health Research, 4 (2). https://doi.org/10.1016/j.ahr.2024.100193.

Long-run consequences of informal elderly care and implications of public long-term care insurance

Thorben Korfhage, Björn Fischer-Weckemann, Long-run consequences of informal elderly care and implications of public long-term care insurance, Journal of Health Economics, Volume 96, 2024, https://doi.org/10.1016/j.jhealeco.2024.102884.

Informal and formal long-term care utilization and unmet needs in Europe: examining socioeconomic disparities and the role of social policies for older adults

Szenkurök, V., Weber, D. & Bilger, M. Informal and formal long-term care utilization and unmet needs in Europe: examining socioeconomic disparities and the role of social policies for older adults. Int J Health Econ Manag. (2024). https://doi.org/10.1007/s10754-024-09378-z

Unpaid carers of people with dementia and information communication technology: Use, impact and ideas for the future

Damant J, Freddolino P, Dangoor M, Hu B, King D, Wittenberg R. Unpaid carers of people with dementia and information communication technology: Use, impact and ideas for the future. Dementia. 2024;23(5):779-799. doi:10.1177/14713012241249793

“I never planned for it”—Exploration of expectations about caring for older parents

De Poli, C., Wittenberg, R., Rehill, A., Stevens, M., & Brimblecombe, N. (2024). “I never planned for it”—Exploration of expectations about caring for older parents. Social Policy & Administration, 1–20. https://doi.org/10.1111/spol.13030

Unpaid caregiving and mental health during the COVID-19 pandemic—A systematic review of the quantitative literature

Ervin J, Fleitas Alfonzo L, Taouk Y, Maheen H, King T. Unpaid caregiving and mental health during the COVID-19 pandemic-A systematic review of the quantitative literature. PLoS One. 2024 Apr 18;19(4):e0297097. doi: 10.1371/journal.pone.0297097. PMID: 38635604; PMCID: PMC11025839.

Informal care and financial stress: Longitudinal evidence from Australia

Koomson, I., Lenzen, S., & Afoakwah, C. (2024). Informal care and financial stress: Longitudinal evidence from Australia. Stress and health : journal of the International Society for the Investigation of Stress, e3393. Advance online publication. https://doi.org/10.1002/smi.3393

Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing

Laurie E Davies, Gemma F Spiers, David R Sinclair, Andrew Kingston, Barbara Hanratty (2024) Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing, Age and Ageing, Volume 53, Issue 3, March, afae049, https://doi.org/10.1093/ageing/afae049

The impact of reducing formal care benefits on caregivers’ well-being: evidence from Japan

Fu, R., Le, D.D. & Ibuka, Y. The impact of reducing formal care benefits on caregivers’ well-being: evidence from Japan. Rev Econ Household (2024). https://doi.org/10.1007/s11150-024-09699-5

Examining the Impact of Long-Term Care Insurance on the Care Burden and Labor Market Participation of Informal Carers: A Quasi-Experimental Study in China

Xingtong Pei, Wei Yang, Mingming Xu, Examining the Impact of Long-Term Care Insurance on the Care Burden and Labor Market Participation of Informal Carers: A Quasi-Experimental Study in China, The Journals of Gerontology: Series B, Volume 79, Issue 5, May 2024, gbae023, https://doi.org/10.1093/geronb/gbae023

The impact of formal care provision on informal care receipt for people over 75 in England

Citation: Saloniki E-C, Nizalova O, Malisauskaite G, Forder J (2024) The impact of formal care provision on informal care receipt for people over 75 in England. PLoS ONE 19(2): e0297157. https://doi.org/10.1371/journal.pone.0297157

The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands

Elayan, S., Angelini, V., Buskens, E. et al. The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands. Eur J Health Econ (2024). https://doi.org/10.1007/s10198-023-01666-8

Scaling-up an evidence-based intervention for family carers of people with dementia: Current and future costs and outcomes

Knapp M, Lorenz-Dant K, Walbaum M, Comas-Herrera A, Cyhlarova E, Livingston G and Wittenberg R. Scaling-up an evidence-based intervention for family carers of people with dementia: current and future costs and outcomes. Int J Geriatr Psychiatry. 2024;e6059. https://doi.org/10.1002/gps.6059

Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours

Elliott, J., Francetic, I., Meacock, R. et al. Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours. Appl Health Econ Health Policy (2024). https://doi.org/10.1007/s40258-023-00843-3

Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria

Juliet Chigozie Donatus Ezulike, Shiyu Lu, Marcus Yu Lung Chiu, Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria, Innovation in Aging, Volume 8, Issue 4, 2024, igad140, https://doi.org/10.1093/geroni/igad140

Assessing the impact of caregiving for older parents on caregivers’ health: Initial health status and trajectories of physical and mental health among midlife caregivers for parents and parents-in-law in Britain

Zueras, P. & Grundy, E. (2023) Assessing the impact of caregiving for older parents on caregivers’ health: Initial health status and trajectories of physical and mental health among midlife caregivers for parents and parents-in-law in Britain, Social Science & Medicine. https://doi.org/10.1016/j.socscimed.2023.116537.

The Economic Cost of Unpaid Care to the Public Finances: Inequalities in Welfare Benefits, Forgone Earnings-related Tax Revenue, and Health Service Utilisation.

Cartagena-Farias J, Brimblecombe N. The Economic Cost of Unpaid Care to the Public Finances: Inequalities in Welfare Benefits, Forgone Earnings-related Tax Revenue, and Health Service Utilisation. Social Policy and Society. 2023:1-15. doi:10.1017/S1474746423000477

Projected costs of informal care for older people in England

Hu, B., Cartagena-Farias, J., Brimblecombe, N., Jadoolal S. and Wittenberg R. Projected costs of informal care for older people in England. European Journal of Health Economics (2023). https://doi.org/10.1007/s10198-023-01643-1

Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment

Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment. This study examines the effects of subsidising home-based long-term care on recipient health and their working-age children’s labor supply. It makes use of comprehensive administrative data from Israel’s Social Security Administration, encompassing welfare benefit applications from 2010 to 2015.   Ofek-Shanny, Yuval and Strulov-Shlain, Avner and Zeltzer, […]

Caring For Carers?

Caring For Carers? The Effect of Public Subsidies on the Well-Being. Evaluating a Scottish reform using a differences-in-differences (DiD) approach. Joan Costa-Font, Francesco D’Amico and Cristina Vilaplana-Prieto, 2023. “Caring For Carers?,” American Journal of Health Economics, University of Chicago Press, vol. 9(4), pages 487-522. https://www.journals.uchicago.edu/doi/abs/10.1086/723539 

Mental and physical health changes around transitions into unpaid caregiving in the UK

Mental and physical health changes around transitions into unpaid caregiving in the UK: a longitudinal, propensity score analysis. Lacey, R., Xue, B., Di Gessa, G., Lu, W., McMunn, A. (2023) Mental and physical health changes around transitions into unpaid caregiving in the UK: a longitudinal, propensity score analysis. The Lancet Public Health. November https://www.thelancet.com/journals/lanpub/article/PIIS2468-2667(23)00206-2/fulltext

Does informal care delay nursing home entry? Evidence from Dutch linked survey and administrative data

Does informal care delay nursing home entry? Evidence from the Netherlands using Propensity Score Matching.   Bergeot, J. & Tenand, M. (2023) Does informal care delay nursing home entry? Evidence from Dutch linked survey and administrative data, Journal of Health Economics, Volume 92, https://doi.org/10.1016/j.jhealeco.2023.102831.

Medicaid Expansion and the Mental Health of Spousal Caregivers

Costa-Font, J., Raut, N. & Van Houtven, C.H. Medicaid Expansion and the Mental Health of Spousal Caregivers. Rev Econ Household (2023). https://doi.org/10.1007/s11150-023-09673-7

Unpaid Work In Nursing Homes: Flexible Boundaries (open access book)

Armstrong, P. (editor) (2023) Unpaid work in nursing homes: Flexible boundaries. S.l.: POLICY PRESS. https://policy.bristoluniversitypress.co.uk/unpaid-work-in-nursing-homes

Family spillovers and long-term care insurance

N.B. Coe, G. Goda, C.H. Van Houtven, Family spillovers and long-term care insurance, Journal of Health Economics, Volume 90, 2023, 102781, https://doi.org/10.1016/j.jhealeco.2023.102781.

Long-Run Consequences of Informal Elderly Care and Implications of Public Long-Term Care Insurance

Korfhage, Thorben and Fischer, Bjoern, Long-Run Consequences of Informal Elderly Care and Implications of Public Long-Term Care Insurance. IZA Discussion Paper No. 16124, Available at SSRN: https://ssrn.com/abstract=4447085 or http://dx.doi.org/10.2139/ssrn.4447085

Family Caregivers in Israel: Analysis, Characterization, and Impact on the Labor Market

Arazi, R.,  Bental, B., and  Davidovitch, N. (2023) Family Caregivers in Israel: Analysis, Characterization, and Impact on the Labor Market. Taub Center for Social Policy Studies in Israel. Also available in Hebrew.

Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study

Kritika Samsi, Katharine Orellana, Laura Cole & Jill Manthorpe (2023) Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study, Aging & Mental Health, 27:10, 1946-1955, DOI: 10.1080/13607863.2023.2196254

Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia

Kabelenga, I. (2023). Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia. International Journal of Care and Caring, 7(2), 326-342. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16770625208518

Family care for older persons in South Africa: heterogeneity of the carer’s experience

Moore, E. (2023). Family care for older persons in South Africa: heterogeneity of the carer’s experience. International Journal of Care and Caring, 7(2), 265-286. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16740630896657

Cohort Trajectories by Age and Gender for Informal Caregiving in Europe Adjusted for Sociodemographic Changes, 2004 and 2015

Ricardo Rodrigues, Johan Rehnberg, Cassandra Simmons, Stefania Ilinca, Eszter Zólyomi, Afshin Vafaei, Selma Kadi, Janet Jull, Susan P Phillips, Stefan Fors, Cohort Trajectories by Age and Gender for Informal Caregiving in Europe Adjusted for Sociodemographic Changes, 2004 and 2015, The Journals of Gerontology: Series B, Volume 78, Issue 8, August 2023, Pages 1412–1422, https://doi.org/10.1093/geronb/gbad011

Inequalities in unpaid carer’s health, employment status and social isolation

Brimblecombe, N., & Cartagena Farias, J. (2022). Inequalities in unpaid carer’s health, employment status and social isolation. Health & Social Care in the Community, 30, e6564–e6576. https://doi.org/10.1111/hsc.14104

Caregiving impacts on unpaid informal carers’ health and well-being – a gender perspective: factsheet by WHO Europe

Understanding health trajectories among unpaid carers in the United Kingdom

Understanding health trajectories among unpaid carers in the United Kingdom: Propensity Score Matching to compare health outcomes of carers against non-carers and Latent Class Analysis to identify different typologies of unpaid carers. Cartagena Farias, Javiera and Brimblecombe, Nicola (2022) Understanding health trajectories among unpaid carers in the United Kingdom. Journal of Long-Term Care, 2022. 102 – 113. ISSN 2516-9122. […]

Who Works Less when a Parent Needs Long-Term Care? Gender Disparities in Labor Market Effects in Mexico

Stampini, M., Oliveri, M.L., Ibarraran, P. and Flores, C. (2022) ‘Who Works Less when a Parent Needs Long-Term Care? Gender Disparities in Labor Market Effects in Mexico’, Journal of Long Term Care, p. 130–141. Available at: https://doi.org/10.31389/jltc.116.

The first cross-national study of adolescent young carers aged 15–17 in six European countries

Lewis, F. M., Becker, S., Parkhouse, T., Joseph, S., Hlebec, V., Mrzel, M., Brolin, R., Casu, G., Boccaletti, L., Santini, S., D’Amen, B., Socci, M., Hoefman, R., de Jong, N., Leu, A., Phelps, D., Guggiari, E., Magnusson, L., & Hanson, E. (2023). The first cross-national study of adolescent young carers aged 15–17 in six European […]

Long-Term Care in Turkey: Towards a Growing Crisis of Aged Care

Değirmenci, S. (2022). Long-Term Care in Turkey: Towards a Growing Crisis of Aged Care. Journal of Population & Social Studies, 30, pp. 542-561.

Community-dwelling older adults and their informal carers call for more attention to psychosocial needs – Interview study on unmet care needs in three European countries

Lina Van Aerschot, Selma Kadi, Ricardo Rodrigues, Maša Filipovič Hrast, Valentina Hlebec, Mari Aaltonen (2022) Community-dwelling older adults and their informal carers call for more attention to psychosocial needs – Interview study on unmet care needs in three European countries, Archives of Gerontology and Geriatrics, Volume 101, 104672, ISSN 0167-4943, https://doi.org/10.1016/j.archger.2022.104672.

Life Course Pathways Into Intergenerational Caregiving

Ricardo Rodrigues, Maša Filipovič Hrast, Selma Kadi, Miriam Hurtado Monarres, Valentina Hlebec, Life Course Pathways Into Intergenerational Caregiving, The Journals of Gerontology: Series B, Volume 77, Issue 7, July 2022, Pages 1305–1314, https://doi.org/10.1093/geronb/gbac024

Caring from a distance: What can we learn from carers’ experiences of using new and familiar ways to stay in touch with family and friends in care homes during Covid-19?

White C., Wray J., Whitfield C., Wolverson E. (2021)   Caring from a distance: What can we learn from carers’ experiences of using new and familiar ways to stay in touch with family and friends in care homes during Covid-19? University of Hull https://www.hull.ac.uk/work-with-us/research/groups/docs/caring-from-a-distance-report.pdf 

From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis

Rajovic T, Todorovic N, Vracevic M, Rajovic N, Pavlovic A, Pavlovic V, Grbic I, Sapic R, Krsmanovic S, Vukmirovic M, et al. From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis. International Journal of Environmental Research and Public Health. 2021; 18(18):9577. https://doi.org/10.3390/ijerph18189577

Income-Related Inequalities in Informal Care: Evidence From the Longitudinal Healthy Longevity Survey in China

Yixiao Wang, Wei Yang, Mauricio Avendano, Income-Related Inequalities in Informal Care: Evidence From the Longitudinal Healthy Longevity Survey in China, The Journals of Gerontology: Series B, Volume 76, Issue 8, October 2021, Pages 1691–1696, https://doi.org/10.1093/geronb/gbab043

Affects of policy design: The case of young carers in the Care Act 2014 and the Children and Families Act 2014

Alexander C. Affects of policy design: The case of young carers in the Care Act 2014 and the Children and Families Act 2014. Soc Policy Adm. 2021; 55: 968–980. https://doi.org/10.1111/spol.12692

Quality of Life of Informal Caregivers behind the Scene of the COVID-19 Epidemic in Serbia

Todorovic N, Vracevic M, Rajovic N, Pavlovic V, Madzarevic P, Cumic J, Mostic T, Milic N, Rajovic T, Sapic R, et al. Quality of Life of Informal Caregivers behind the Scene of the COVID-19 Epidemic in Serbia. Medicina. 2020; 56(12):647. https://doi.org/10.3390/medicina56120647

The role of formal care services in supporting young people who provide unpaid care in England

Nicola Brimblecombe, Madeleine Stevens, Derek King & Martin Knapp (2022) The role of formal care services in supporting young people who provide unpaid care in England, Journal of Youth Studies, 25:1, 1-16, DOI: 10.1080/13676261.2020.1828848

Short- and Medium-Term Effects of Informal Eldercare on Labor Market Outcomes

Heger, D., & Korfhage, T. (2020). Short- and Medium-Term Effects of Informal Eldercare on Labor Market Outcomes. Feminist Economics, 26(4), 205–227. https://doi.org/10.1080/13545701.2020.1786594

The high cost of unpaid care by young people: health and economic impacts of providing unpaid care

Brimblecombe, N., Knapp, M., King, D., Stevens M. and Cartagena-Farias J.. The high cost of unpaid care by young people:health and economic impacts of providing unpaid care. BMC Public Health 20, 1115 (2020). https://doi.org/10.1186/s12889-020-09166-7

Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions

Joseph, S., Sempik, J., Leu, A. et al. Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions. Adolescent Res Rev 5, 77–89 (2020). https://doi.org/10.1007/s40894-019-00119-9

Endogenous Living Arrangements and Health of Older Adults: Evidence from Instrumental Variable Estimation

This study aims to address the endogenous relationship between independent living arrangements (ILAs)  and health of older adults using an instrumental variable (IV) approach. Data were obtained from a cross-sectional survey of older adults in Xiamen, China. Weng, Chenziheng and Han, Yaofeng and Fang, Ya, Endogenous Living Arrangements and Health of Older Adults: Evidence from […]

Review of the international evidence on support for unpaid carers

Brimblecombe, N., Fernandez, J.-L., Knapp, M., Rehill, A. and Wittenberg, R., 2018. Review of the international evidence on support for unpaid carers. Journal of Long Term Care, 0(0), p.25-40.DOI: https://doi.org/10.31389/jltc.3

A cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’

Agnes Leu & Saul Becker (2017) A cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’, Journal of Youth Studies, 20:6, 750-762, DOI: 10.1080/13676261.2016.1260698

From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications

Purcal, C., Hamilton, M., Thomson, C. and Cass, B. (2012), From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications. Social Policy & Administration, 46: 788-806. https://doi.org/10.1111/j.1467-9515.2011.00816.x

Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment

Teahan Á, Walsh S, Doherty E, O’Shea E 2021. Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment. Social Science and Medicine, DOI: 10.1016/j.socscimed.2021.114359