PUBLICATIONS Unpaid / informal care
PUBLICATIONS | Unpaid / informal care
We are gradually building a searchable list of publications based on GOLTC member suggestions.
29 Aug 2024
Journal article
China
English
Forecasting Informal care needs of the urban-rural older adults in China based on microsimulation model
Zhang, L., Shen, S., Zhang, W. et al. Forecasting Informal care needs of the urban-rural older adults in China based on microsimulation model. BMC Public Health 24, 2352 (2024). https://doi.org/10.1186/s12889-024-19747-5
Journal article
28 Aug 2024
Journal article
Ghana
English
Geographical location as a determinant of caregiver burden: a rural-urban analysis of the informal caregiving, health, and healthcare survey in Ghana
Agyemang-Duah, W., Rosenberg, M.W. Geographical location as a determinant of caregiver burden: a rural-urban analysis of the informal caregiving, health, and healthcare survey in Ghana. BMC Prim. Care 25, 317 (2024). https://doi.org/10.1186/s12875-024-02562-7
Journal article
09 Aug 2024
Journal article
Spain
English
Time value of informal care of people with alzheimer’s disease in Spain: a population-based analysis
Vilaplana-Prieto. C., & Oliva-Moreo, J. (2024) Time value of informal care of people with alzheimer’s disease in Spain: a population-based analysis. https://doi.org/10.1007/s10198-024-01713-y
Journal article
31 Jul 2024
Report
New Zealand
English
Financial Health and Wellbeing of Unpaid Caregivers
Hayman, K., Kerse, N., Teh, R., Wiles, J., Hikaka, J., and Miskelly, P. (2024) Financial Health and Wellbeing of Unpaid Caregivers. Report prepared for the Ageinf Well National Science Challenge. July.
Report
12 Jul 2024
Journal article
China
English
What determines informal care need among community-dwelling older adults in China? Results from a longitudinal study
Zhang, L., Shen, S., Zhang, W. et al. (2024) What determines informal care need among community-dwelling older adults in China? Results from a longitudinal study. BMC Geriatr 24, 597. https://doi.org/10.1186/s12877-024-04843-3
Journal article
07 Jul 2024
Journal article
Kenya
English
Motivators for family carers of persons with dementia in Kenya
Musyimi CW, Muyela LA, Ndetei DM, Thakya D, Mutiso VN, Mutunga E, Evans-Lacko S and Farina N. Motivators for family carers of persons with dementia in Kenya. Int J Geriatr Psychiatry. 2024;e6120. https://doi.org/10.1002/gps.6120
Journal article
11 Jun 2024
Journal article
Germany
English
Predictors of the quality of the relationship between informal caregiver and care recipient in informal caregiving of older people: presentation and evaluation of a new item
Becker, L., Graessel, E. & Pendergrass, A. Predictors of the quality of the relationship between informal caregiver and care recipient in informal caregiving of older people: presentation and evaluation of a new item. BMC Psychol 12, 342 (2024). https://doi.org/10.1186/s40359-024-01840-4
Journal article
03 Jun 2024
Journal article
Singapore
English
Informal caregiving time and its monetary value in the context of older adults in Singapore
Nur Diyana Binte Azman, Abhijit Visaria, Veronica Shimin Goh, Truls Østbye, David Matchar, Rahul Malhotra (2004) Informal caregiving time and its monetary value in the context of older adults in Singapore. Aging and Health Research, 4 (2). https://doi.org/10.1016/j.ahr.2024.100193.
Journal article
14 May 2024
Journal article
Germany
English
Long-run consequences of informal elderly care and implications of public long-term care insurance
Thorben Korfhage, Björn Fischer-Weckemann, Long-run consequences of informal elderly care and implications of public long-term care insurance, Journal of Health Economics, Volume 96, 2024, https://doi.org/10.1016/j.jhealeco.2024.102884.
Journal article
12 May 2024
Journal article
Europe
English
Informal and formal long-term care utilization and unmet needs in Europe: examining socioeconomic disparities and the role of social policies for older adults
Szenkurök, V., Weber, D. & Bilger, M. Informal and formal long-term care utilization and unmet needs in Europe: examining socioeconomic disparities and the role of social policies for older adults. Int J Health Econ Manag. (2024). https://doi.org/10.1007/s10754-024-09378-z
Journal article
22 Apr 2024
Journal article
England (UK)
UK
English
“I never planned for it”—Exploration of expectations about caring for older parents
De Poli, C., Wittenberg, R., Rehill, A., Stevens, M., & Brimblecombe, N. (2024). “I never planned for it”—Exploration of expectations about caring for older parents. Social Policy & Administration, 1–20. https://doi.org/10.1111/spol.13030
Journal article
19 Apr 2024
Journal article
International
English
Unpaid caregiving and mental health during the COVID-19 pandemic—A systematic review of the quantitative literature
Ervin J, Fleitas Alfonzo L, Taouk Y, Maheen H, King T. Unpaid caregiving and mental health during the COVID-19 pandemic-A systematic review of the quantitative literature. PLoS One. 2024 Apr 18;19(4):e0297097. doi: 10.1371/journal.pone.0297097. PMID: 38635604; PMCID: PMC11025839.
Journal article
07 Mar 2024
Journal article
Australia
English
Informal care and financial stress: Longitudinal evidence from Australia
Koomson, I., Lenzen, S., & Afoakwah, C. (2024). Informal care and financial stress: Longitudinal evidence from Australia. Stress and health : journal of the International Society for the Investigation of Stress, e3393. Advance online publication. https://doi.org/10.1002/smi.3393
Journal article
01 Mar 2024
Journal article
England (UK)
English
Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing
Laurie E Davies, Gemma F Spiers, David R Sinclair, Andrew Kingston, Barbara Hanratty (2024) Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing, Age and Ageing, Volume 53, Issue 3, March, afae049, https://doi.org/10.1093/ageing/afae049
Journal article
28 Feb 2024
Journal article
Japan
English
The impact of reducing formal care benefits on caregivers’ well-being: evidence from Japan
Fu, R., Le, D.D. & Ibuka, Y. The impact of reducing formal care benefits on caregivers’ well-being: evidence from Japan. Rev Econ Household (2024). https://doi.org/10.1007/s11150-024-09699-5
Journal article
23 Feb 2024
Journal article
China
English
Examining the Impact of Long-Term Care Insurance on the Care Burden and Labor Market Participation of Informal Carers: A Quasi-Experimental Study in China
Xingtong Pei, Wei Yang, Mingming Xu, Examining the Impact of Long-Term Care Insurance on the Care Burden and Labor Market Participation of Informal Carers: A Quasi-Experimental Study in China, The Journals of Gerontology: Series B, Volume 79, Issue 5, May 2024, gbae023, https://doi.org/10.1093/geronb/gbae023
Journal article
22 Feb 2024
Journal article
England (UK)
English
The impact of formal care provision on informal care receipt for people over 75 in England
Citation: Saloniki E-C, Nizalova O, Malisauskaite G, Forder J (2024) The impact of formal care provision on informal care receipt for people over 75 in England. PLoS ONE 19(2): e0297157. https://doi.org/10.1371/journal.pone.0297157
Journal article
31 Jan 2024
Journal article
Netherlands
English
The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands
Elayan, S., Angelini, V., Buskens, E. et al. The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands. Eur J Health Econ (2024). https://doi.org/10.1007/s10198-023-01666-8
Journal article
27 Jan 2024
Journal article
England (UK)
English
Scaling-up an evidence-based intervention for family carers of people with dementia: Current and future costs and outcomes
Knapp M, Lorenz-Dant K, Walbaum M, Comas-Herrera A, Cyhlarova E, Livingston G and Wittenberg R. Scaling-up an evidence-based intervention for family carers of people with dementia: current and future costs and outcomes. Int J Geriatr Psychiatry. 2024;e6059. https://doi.org/10.1002/gps.6059
Journal article
10 Jan 2024
Journal article
UK
English
Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours
Elliott, J., Francetic, I., Meacock, R. et al. Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours. Appl Health Econ Health Policy (2024). https://doi.org/10.1007/s40258-023-00843-3
Journal article
02 Jan 2024
Journal article
Nigeria
English
Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria
Juliet Chigozie Donatus Ezulike, Shiyu Lu, Marcus Yu Lung Chiu, Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria, Innovation in Aging, Volume 8, Issue 4, 2024, igad140, https://doi.org/10.1093/geroni/igad140
Journal article
26 Dec 2023
Journal article
UK
English
Assessing the impact of caregiving for older parents on caregivers’ health: Initial health status and trajectories of physical and mental health among midlife caregivers for parents and parents-in-law in Britain
Zueras, P. & Grundy, E. (2023) Assessing the impact of caregiving for older parents on caregivers’ health: Initial health status and trajectories of physical and mental health among midlife caregivers for parents and parents-in-law in Britain, Social Science & Medicine. https://doi.org/10.1016/j.socscimed.2023.116537.
Journal article
20 Dec 2023
Journal article
England (UK)
UK
English
The Economic Cost of Unpaid Care to the Public Finances: Inequalities in Welfare Benefits, Forgone Earnings-related Tax Revenue, and Health Service Utilisation.
Cartagena-Farias J, Brimblecombe N. The Economic Cost of Unpaid Care to the Public Finances: Inequalities in Welfare Benefits, Forgone Earnings-related Tax Revenue, and Health Service Utilisation. Social Policy and Society. 2023:1-15. doi:10.1017/S1474746423000477
Journal article
12 Dec 2023
Journal article
England (UK)
UK
English
Projected costs of informal care for older people in England
Hu, B., Cartagena-Farias, J., Brimblecombe, N., Jadoolal S. and Wittenberg R. Projected costs of informal care for older people in England. European Journal of Health Economics (2023). https://doi.org/10.1007/s10198-023-01643-1
Journal article
01 Dec 2023
Journal article
Israel
English
Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment
Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment. This study examines the effects of subsidising home-based long-term care on recipient health and their working-age children’s labor supply. It makes use of comprehensive administrative data from Israel’s Social Security Administration, encompassing welfare benefit applications from 2010 to 2015. Ofek-Shanny, Yuval and Strulov-Shlain, Avner and Zeltzer, […]
Journal article
17 Nov 2023
Journal article
Scotland (UK)
English
Caring For Carers?
Caring For Carers? The Effect of Public Subsidies on the Well-Being. Evaluating a Scottish reform using a differences-in-differences (DiD) approach. Joan Costa-Font, Francesco D’Amico and Cristina Vilaplana-Prieto, 2023. “Caring For Carers?,” American Journal of Health Economics, University of Chicago Press, vol. 9(4), pages 487-522. https://www.journals.uchicago.edu/doi/abs/10.1086/723539
Journal article
14 Nov 2023
Journal article
UK
English
Mental and physical health changes around transitions into unpaid caregiving in the UK
Mental and physical health changes around transitions into unpaid caregiving in the UK: a longitudinal, propensity score analysis. Lacey, R., Xue, B., Di Gessa, G., Lu, W., McMunn, A. (2023) Mental and physical health changes around transitions into unpaid caregiving in the UK: a longitudinal, propensity score analysis. The Lancet Public Health. November https://www.thelancet.com/journals/lanpub/article/PIIS2468-2667(23)00206-2/fulltext
Journal article
20 Oct 2023
Journal article
Netherlands
English
Does informal care delay nursing home entry? Evidence from Dutch linked survey and administrative data
Does informal care delay nursing home entry? Evidence from the Netherlands using Propensity Score Matching. Bergeot, J. & Tenand, M. (2023) Does informal care delay nursing home entry? Evidence from Dutch linked survey and administrative data, Journal of Health Economics, Volume 92, https://doi.org/10.1016/j.jhealeco.2023.102831.
Journal article
11 Aug 2023
Journal article
United States
English
Medicaid Expansion and the Mental Health of Spousal Caregivers
Costa-Font, J., Raut, N. & Van Houtven, C.H. Medicaid Expansion and the Mental Health of Spousal Caregivers. Rev Econ Household (2023). https://doi.org/10.1007/s11150-023-09673-7
Journal article
18 Jul 2023
Book
Canada
Germany
Norway
Sweden
UK
United States
English
Unpaid Work In Nursing Homes: Flexible Boundaries (open access book)
Armstrong, P. (editor) (2023) Unpaid work in nursing homes: Flexible boundaries. S.l.: POLICY PRESS. https://policy.bristoluniversitypress.co.uk/unpaid-work-in-nursing-homes
Book
06 Jul 2023
Journal article
United States
English
Family spillovers and long-term care insurance
N.B. Coe, G. Goda, C.H. Van Houtven, Family spillovers and long-term care insurance, Journal of Health Economics, Volume 90, 2023, 102781, https://doi.org/10.1016/j.jhealeco.2023.102781.
Journal article
03 May 2023
Report
Germany
English
Long-Run Consequences of Informal Elderly Care and Implications of Public Long-Term Care Insurance
Korfhage, Thorben and Fischer, Bjoern, Long-Run Consequences of Informal Elderly Care and Implications of Public Long-Term Care Insurance. IZA Discussion Paper No. 16124, Available at SSRN: https://ssrn.com/abstract=4447085 or http://dx.doi.org/10.2139/ssrn.4447085
Report
01 May 2023
Policy Brief
Israel
English
Hebrew
Family Caregivers in Israel: Analysis, Characterization, and Impact on the Labor Market
Arazi, R., Bental, B., and Davidovitch, N. (2023) Family Caregivers in Israel: Analysis, Characterization, and Impact on the Labor Market. Taub Center for Social Policy Studies in Israel. Also available in Hebrew.
Policy Brief
03 Apr 2023
Journal article
UK
English
Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study
Kritika Samsi, Katharine Orellana, Laura Cole & Jill Manthorpe (2023) Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study, Aging & Mental Health, 27:10, 1946-1955, DOI: 10.1080/13607863.2023.2196254
Journal article
23 Mar 2023
Journal article
Zambia
English
Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia
Kabelenga, I. (2023). Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia. International Journal of Care and Caring, 7(2), 326-342. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16770625208518
Journal article
13 Feb 2023
Journal article
South Africa
English
Family care for older persons in South Africa: heterogeneity of the carer’s experience
Moore, E. (2023). Family care for older persons in South Africa: heterogeneity of the carer’s experience. International Journal of Care and Caring, 7(2), 265-286. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16740630896657
Journal article
23 Jan 2023
Journal article
Europe
Cohort Trajectories by Age and Gender for Informal Caregiving in Europe Adjusted for Sociodemographic Changes, 2004 and 2015
Ricardo Rodrigues, Johan Rehnberg, Cassandra Simmons, Stefania Ilinca, Eszter Zólyomi, Afshin Vafaei, Selma Kadi, Janet Jull, Susan P Phillips, Stefan Fors, Cohort Trajectories by Age and Gender for Informal Caregiving in Europe Adjusted for Sociodemographic Changes, 2004 and 2015, The Journals of Gerontology: Series B, Volume 78, Issue 8, August 2023, Pages 1412–1422, https://doi.org/10.1093/geronb/gbad011
Journal article
12 Nov 2022
Journal article
UK
English
Inequalities in unpaid carer’s health, employment status and social isolation
Brimblecombe, N., & Cartagena Farias, J. (2022). Inequalities in unpaid carer’s health, employment status and social isolation. Health & Social Care in the Community, 30, e6564–e6576. https://doi.org/10.1111/hsc.14104
Journal article
28 Jun 2022
Policy Brief
Europe
English
Caregiving impacts on unpaid informal carers’ health and well-being – a gender perspective: factsheet by WHO Europe
Policy Brief
23 May 2022
Journal article
UK
English
Understanding health trajectories among unpaid carers in the United Kingdom
Understanding health trajectories among unpaid carers in the United Kingdom: Propensity Score Matching to compare health outcomes of carers against non-carers and Latent Class Analysis to identify different typologies of unpaid carers. Cartagena Farias, Javiera and Brimblecombe, Nicola (2022) Understanding health trajectories among unpaid carers in the United Kingdom. Journal of Long-Term Care, 2022. 102 – 113. ISSN 2516-9122. […]
Journal article
05 Apr 2022
Journal article
Italy
Netherlands
Slovenia
Sweden
Switzerland
UK
English
The first cross-national study of adolescent young carers aged 15–17 in six European countries
Lewis, F. M., Becker, S., Parkhouse, T., Joseph, S., Hlebec, V., Mrzel, M., Brolin, R., Casu, G., Boccaletti, L., Santini, S., D’Amen, B., Socci, M., Hoefman, R., de Jong, N., Leu, A., Phelps, D., Guggiari, E., Magnusson, L., & Hanson, E. (2023). The first cross-national study of adolescent young carers aged 15–17 in six European […]
Journal article
01 Oct 2021
Report
UK
English
Caring from a distance: What can we learn from carers’ experiences of using new and familiar ways to stay in touch with family and friends in care homes during Covid-19?
White C., Wray J., Whitfield C., Wolverson E. (2021) Caring from a distance: What can we learn from carers’ experiences of using new and familiar ways to stay in touch with family and friends in care homes during Covid-19? University of Hull https://www.hull.ac.uk/work-with-us/research/groups/docs/caring-from-a-distance-report.pdf
Report
11 Sep 2021
Journal article
Serbia
English
From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis
Rajovic T, Todorovic N, Vracevic M, Rajovic N, Pavlovic A, Pavlovic V, Grbic I, Sapic R, Krsmanovic S, Vukmirovic M, et al. From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis. International Journal of Environmental Research and Public Health. 2021; 18(18):9577. https://doi.org/10.3390/ijerph18189577
Journal article
11 Mar 2021
Journal article
China
English
Income-Related Inequalities in Informal Care: Evidence From the Longitudinal Healthy Longevity Survey in China
Yixiao Wang, Wei Yang, Mauricio Avendano, Income-Related Inequalities in Informal Care: Evidence From the Longitudinal Healthy Longevity Survey in China, The Journals of Gerontology: Series B, Volume 76, Issue 8, October 2021, Pages 1691–1696, https://doi.org/10.1093/geronb/gbab043
Journal article
22 Feb 2021
Journal article
UK
English
Affects of policy design: The case of young carers in the Care Act 2014 and the Children and Families Act 2014
Alexander C. Affects of policy design: The case of young carers in the Care Act 2014 and the Children and Families Act 2014. Soc Policy Adm. 2021; 55: 968–980. https://doi.org/10.1111/spol.12692
Journal article
26 Nov 2020
Journal article
Serbia
English
Quality of Life of Informal Caregivers behind the Scene of the COVID-19 Epidemic in Serbia
Todorovic N, Vracevic M, Rajovic N, Pavlovic V, Madzarevic P, Cumic J, Mostic T, Milic N, Rajovic T, Sapic R, et al. Quality of Life of Informal Caregivers behind the Scene of the COVID-19 Epidemic in Serbia. Medicina. 2020; 56(12):647. https://doi.org/10.3390/medicina56120647
Journal article
23 Sep 2020
Journal article
England (UK)
UK
English
The role of formal care services in supporting young people who provide unpaid care in England
Nicola Brimblecombe, Madeleine Stevens, Derek King & Martin Knapp (2022) The role of formal care services in supporting young people who provide unpaid care in England, Journal of Youth Studies, 25:1, 1-16, DOI: 10.1080/13676261.2020.1828848
Journal article
24 Aug 2020
Journal article
Europe
English
Short- and Medium-Term Effects of Informal Eldercare on Labor Market Outcomes
Heger, D., & Korfhage, T. (2020). Short- and Medium-Term Effects of Informal Eldercare on Labor Market Outcomes. Feminist Economics, 26(4), 205–227. https://doi.org/10.1080/13545701.2020.1786594
Journal article
05 Aug 2020
Journal article
England (UK)
English
The high cost of unpaid care by young people: health and economic impacts of providing unpaid care
Brimblecombe, N., Knapp, M., King, D., Stevens M. and Cartagena-Farias J.. The high cost of unpaid care by young people:health and economic impacts of providing unpaid care. BMC Public Health 20, 1115 (2020). https://doi.org/10.1186/s12889-020-09166-7
Journal article
20 May 2019
Journal article
International
UK
English
Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions
Joseph, S., Sempik, J., Leu, A. et al. Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions. Adolescent Res Rev 5, 77–89 (2020). https://doi.org/10.1007/s40894-019-00119-9
Journal article
29 Dec 2018
Journal article
China
English
Endogenous Living Arrangements and Health of Older Adults: Evidence from Instrumental Variable Estimation
This study aims to address the endogenous relationship between independent living arrangements (ILAs) and health of older adults using an instrumental variable (IV) approach. Data were obtained from a cross-sectional survey of older adults in Xiamen, China. Weng, Chenziheng and Han, Yaofeng and Fang, Ya, Endogenous Living Arrangements and Health of Older Adults: Evidence from […]
Journal article
01 Sep 2018
Journal article
UK
English
Review of the international evidence on support for unpaid carers
Brimblecombe, N., Fernandez, J.-L., Knapp, M., Rehill, A. and Wittenberg, R., 2018. Review of the international evidence on support for unpaid carers. Journal of Long Term Care, 0(0), p.25-40.DOI: https://doi.org/10.31389/jltc.3
Journal article
26 May 2016
Journal article
International
UK
English
A cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’
Agnes Leu & Saul Becker (2017) A cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’, Journal of Youth Studies, 20:6, 750-762, DOI: 10.1080/13676261.2016.1260698
Journal article
20 Oct 2011
Journal article
Australia
English
From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications
Purcal, C., Hamilton, M., Thomson, C. and Cass, B. (2012), From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications. Social Policy & Administration, 46: 788-806. https://doi.org/10.1111/j.1467-9515.2011.00816.x
Journal article
No pub date set
Journal article
Ireland
English
Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment
Teahan Á, Walsh S, Doherty E, O’Shea E 2021. Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment. Social Science and Medicine, DOI: 10.1016/j.socscimed.2021.114359
Journal article