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PUBLICATIONS Unpaid / informal care

PUBLICATIONS | Unpaid / informal care

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11 Jun 2024

Journal article

Germany

English

Predictors of the quality of the relationship between informal caregiver and care recipient in informal caregiving of older people: presentation and evaluation of a new item

Becker, L., Graessel, E. & Pendergrass, A. Predictors of the quality of the relationship between informal caregiver and care recipient in informal caregiving of older people: presentation and evaluation of a new item. BMC Psychol 12, 342 (2024). https://doi.org/10.1186/s40359-024-01840-4

Journal article

03 Jun 2024

Journal article

Singapore

English

Informal caregiving time and its monetary value in the context of older adults in Singapore

Nur Diyana Binte Azman, Abhijit Visaria, Veronica Shimin Goh, Truls Østbye, David Matchar, Rahul Malhotra (2004) Informal caregiving time and its monetary value in the context of older adults in Singapore. Aging and Health Research, 4 (2). https://doi.org/10.1016/j.ahr.2024.100193.

Journal article

14 May 2024

Journal article

Germany

English

Long-run consequences of informal elderly care and implications of public long-term care insurance

Thorben Korfhage, Björn Fischer-Weckemann, Long-run consequences of informal elderly care and implications of public long-term care insurance, Journal of Health Economics, Volume 96, 2024, https://doi.org/10.1016/j.jhealeco.2024.102884.

Journal article

12 May 2024

Journal article

Europe

English

Informal and formal long-term care utilization and unmet needs in Europe: examining socioeconomic disparities and the role of social policies for older adults

Szenkurök, V., Weber, D. & Bilger, M. Informal and formal long-term care utilization and unmet needs in Europe: examining socioeconomic disparities and the role of social policies for older adults. Int J Health Econ Manag. (2024). https://doi.org/10.1007/s10754-024-09378-z

Journal article

22 Apr 2024

Journal article

England (UK)
UK

English

“I never planned for it”—Exploration of expectations about caring for older parents

De Poli, C., Wittenberg, R., Rehill, A., Stevens, M., & Brimblecombe, N. (2024). “I never planned for it”—Exploration of expectations about caring for older parents. Social Policy & Administration, 1–20. https://doi.org/10.1111/spol.13030

Journal article

19 Apr 2024

Journal article

International

English

Unpaid caregiving and mental health during the COVID-19 pandemic—A systematic review of the quantitative literature

Ervin J, Fleitas Alfonzo L, Taouk Y, Maheen H, King T. Unpaid caregiving and mental health during the COVID-19 pandemic-A systematic review of the quantitative literature. PLoS One. 2024 Apr 18;19(4):e0297097. doi: 10.1371/journal.pone.0297097. PMID: 38635604; PMCID: PMC11025839.

Journal article

07 Mar 2024

Journal article

Australia

English

Informal care and financial stress: Longitudinal evidence from Australia

Koomson, I., Lenzen, S., & Afoakwah, C. (2024). Informal care and financial stress: Longitudinal evidence from Australia. Stress and health : journal of the International Society for the Investigation of Stress, e3393. Advance online publication. https://doi.org/10.1002/smi.3393

Journal article

01 Mar 2024

Journal article

England (UK)

English

Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing

Laurie E Davies, Gemma F Spiers, David R Sinclair, Andrew Kingston, Barbara Hanratty (2024) Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing, Age and Ageing, Volume 53, Issue 3, March, afae049, https://doi.org/10.1093/ageing/afae049

Journal article

28 Feb 2024

Journal article

Japan

English

The impact of reducing formal care benefits on caregivers’ well-being: evidence from Japan

Fu, R., Le, D.D. & Ibuka, Y. The impact of reducing formal care benefits on caregivers’ well-being: evidence from Japan. Rev Econ Household (2024). https://doi.org/10.1007/s11150-024-09699-5

Journal article

23 Feb 2024

Journal article

China

English

Examining the Impact of Long-Term Care Insurance on the Care Burden and Labor Market Participation of Informal Carers: A Quasi-Experimental Study in China

Xingtong Pei, Wei Yang, Mingming Xu, Examining the Impact of Long-Term Care Insurance on the Care Burden and Labor Market Participation of Informal Carers: A Quasi-Experimental Study in China, The Journals of Gerontology: Series B, Volume 79, Issue 5, May 2024, gbae023, https://doi.org/10.1093/geronb/gbae023

Journal article

22 Feb 2024

Journal article

England (UK)

English

The impact of formal care provision on informal care receipt for people over 75 in England

Citation: Saloniki E-C, Nizalova O, Malisauskaite G, Forder J (2024) The impact of formal care provision on informal care receipt for people over 75 in England. PLoS ONE 19(2): e0297157. https://doi.org/10.1371/journal.pone.0297157

Journal article

31 Jan 2024

Journal article

Netherlands

English

The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands

Elayan, S., Angelini, V., Buskens, E. et al. The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands. Eur J Health Econ (2024). https://doi.org/10.1007/s10198-023-01666-8

Journal article

27 Jan 2024

Journal article

England (UK)

English

Scaling-up an evidence-based intervention for family carers of people with dementia: Current and future costs and outcomes

Knapp M, Lorenz-Dant K, Walbaum M, Comas-Herrera A, Cyhlarova E, Livingston G and Wittenberg R. Scaling-up an evidence-based intervention for family carers of people with dementia: current and future costs and outcomes. Int J Geriatr Psychiatry. 2024;e6059. https://doi.org/10.1002/gps.6059

Journal article

10 Jan 2024

Journal article

UK

English

Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours

Elliott, J., Francetic, I., Meacock, R. et al. Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours. Appl Health Econ Health Policy (2024). https://doi.org/10.1007/s40258-023-00843-3

Journal article

02 Jan 2024

Journal article

Nigeria

English

Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria

Juliet Chigozie Donatus Ezulike, Shiyu Lu, Marcus Yu Lung Chiu, Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria, Innovation in Aging, Volume 8, Issue 4, 2024, igad140, https://doi.org/10.1093/geroni/igad140

Journal article

26 Dec 2023

Journal article

UK

English

Assessing the impact of caregiving for older parents on caregivers’ health: Initial health status and trajectories of physical and mental health among midlife caregivers for parents and parents-in-law in Britain

Zueras, P. & Grundy, E. (2023) Assessing the impact of caregiving for older parents on caregivers’ health: Initial health status and trajectories of physical and mental health among midlife caregivers for parents and parents-in-law in Britain, Social Science & Medicine. https://doi.org/10.1016/j.socscimed.2023.116537.

Journal article

20 Dec 2023

Journal article

England (UK)
UK

English

The Economic Cost of Unpaid Care to the Public Finances: Inequalities in Welfare Benefits, Forgone Earnings-related Tax Revenue, and Health Service Utilisation.

Cartagena-Farias J, Brimblecombe N. The Economic Cost of Unpaid Care to the Public Finances: Inequalities in Welfare Benefits, Forgone Earnings-related Tax Revenue, and Health Service Utilisation. Social Policy and Society. 2023:1-15. doi:10.1017/S1474746423000477

Journal article

12 Dec 2023

Journal article

England (UK)
UK

English

Projected costs of informal care for older people in England

Hu, B., Cartagena-Farias, J., Brimblecombe, N., Jadoolal S. and Wittenberg R. Projected costs of informal care for older people in England. European Journal of Health Economics (2023). https://doi.org/10.1007/s10198-023-01643-1

Journal article

01 Dec 2023

Journal article

Israel

English

Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment

Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment. This study examines the effects of subsidising home-based long-term care on recipient health and their working-age children’s labor supply. It makes use of comprehensive administrative data from Israel’s Social Security Administration, encompassing welfare benefit applications from 2010 to 2015.   Ofek-Shanny, Yuval and Strulov-Shlain, Avner and Zeltzer, […]

Journal article

17 Nov 2023

Journal article

Scotland (UK)

English

Caring For Carers?

Caring For Carers? The Effect of Public Subsidies on the Well-Being. Evaluating a Scottish reform using a differences-in-differences (DiD) approach. Joan Costa-Font, Francesco D’Amico and Cristina Vilaplana-Prieto, 2023. “Caring For Carers?,” American Journal of Health Economics, University of Chicago Press, vol. 9(4), pages 487-522. https://www.journals.uchicago.edu/doi/abs/10.1086/723539 

Journal article

14 Nov 2023

Journal article

UK

English

Mental and physical health changes around transitions into unpaid caregiving in the UK

Mental and physical health changes around transitions into unpaid caregiving in the UK: a longitudinal, propensity score analysis. Lacey, R., Xue, B., Di Gessa, G., Lu, W., McMunn, A. (2023) Mental and physical health changes around transitions into unpaid caregiving in the UK: a longitudinal, propensity score analysis. The Lancet Public Health. November https://www.thelancet.com/journals/lanpub/article/PIIS2468-2667(23)00206-2/fulltext

Journal article

20 Oct 2023

Journal article

Netherlands

English

Does informal care delay nursing home entry? Evidence from Dutch linked survey and administrative data

Does informal care delay nursing home entry? Evidence from the Netherlands using Propensity Score Matching.   Bergeot, J. & Tenand, M. (2023) Does informal care delay nursing home entry? Evidence from Dutch linked survey and administrative data, Journal of Health Economics, Volume 92, https://doi.org/10.1016/j.jhealeco.2023.102831.

Journal article

11 Aug 2023

Journal article

United States

English

Medicaid Expansion and the Mental Health of Spousal Caregivers

Costa-Font, J., Raut, N. & Van Houtven, C.H. Medicaid Expansion and the Mental Health of Spousal Caregivers. Rev Econ Household (2023). https://doi.org/10.1007/s11150-023-09673-7

Journal article

18 Jul 2023

Book

Canada
Germany
Norway
Sweden
UK
United States

English

Unpaid Work In Nursing Homes: Flexible Boundaries (open access book)

Armstrong, P. (editor) (2023) Unpaid work in nursing homes: Flexible boundaries. S.l.: POLICY PRESS. https://policy.bristoluniversitypress.co.uk/unpaid-work-in-nursing-homes

Book

06 Jul 2023

Journal article

United States

English

Family spillovers and long-term care insurance

N.B. Coe, G. Goda, C.H. Van Houtven, Family spillovers and long-term care insurance, Journal of Health Economics, Volume 90, 2023, 102781, https://doi.org/10.1016/j.jhealeco.2023.102781.

Journal article

03 May 2023

Report

Germany

English

Long-Run Consequences of Informal Elderly Care and Implications of Public Long-Term Care Insurance

Korfhage, Thorben and Fischer, Bjoern, Long-Run Consequences of Informal Elderly Care and Implications of Public Long-Term Care Insurance. IZA Discussion Paper No. 16124, Available at SSRN: https://ssrn.com/abstract=4447085 or http://dx.doi.org/10.2139/ssrn.4447085

Report

01 May 2023

Policy Brief

Israel

English
Hebrew

Family Caregivers in Israel: Analysis, Characterization, and Impact on the Labor Market

Arazi, R.,  Bental, B., and  Davidovitch, N. (2023) Family Caregivers in Israel: Analysis, Characterization, and Impact on the Labor Market. Taub Center for Social Policy Studies in Israel. Also available in Hebrew.

Policy Brief

03 Apr 2023

Journal article

UK

English

Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study

Kritika Samsi, Katharine Orellana, Laura Cole & Jill Manthorpe (2023) Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study, Aging & Mental Health, 27:10, 1946-1955, DOI: 10.1080/13607863.2023.2196254

Journal article

23 Mar 2023

Journal article

Zambia

English

Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia

Kabelenga, I. (2023). Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia. International Journal of Care and Caring, 7(2), 326-342. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16770625208518

Journal article

13 Feb 2023

Journal article

South Africa

English

Family care for older persons in South Africa: heterogeneity of the carer’s experience

Moore, E. (2023). Family care for older persons in South Africa: heterogeneity of the carer’s experience. International Journal of Care and Caring, 7(2), 265-286. Retrieved Nov 15, 2023, from https://doi.org/10.1332/239788221X16740630896657

Journal article

23 Jan 2023

Journal article

Europe

Cohort Trajectories by Age and Gender for Informal Caregiving in Europe Adjusted for Sociodemographic Changes, 2004 and 2015

Ricardo Rodrigues, Johan Rehnberg, Cassandra Simmons, Stefania Ilinca, Eszter Zólyomi, Afshin Vafaei, Selma Kadi, Janet Jull, Susan P Phillips, Stefan Fors, Cohort Trajectories by Age and Gender for Informal Caregiving in Europe Adjusted for Sociodemographic Changes, 2004 and 2015, The Journals of Gerontology: Series B, Volume 78, Issue 8, August 2023, Pages 1412–1422, https://doi.org/10.1093/geronb/gbad011

Journal article

12 Nov 2022

Journal article

UK

English

Inequalities in unpaid carer’s health, employment status and social isolation

Brimblecombe, N., & Cartagena Farias, J. (2022). Inequalities in unpaid carer’s health, employment status and social isolation. Health & Social Care in the Community, 30, e6564–e6576. https://doi.org/10.1111/hsc.14104

Journal article

28 Jun 2022

Policy Brief

Europe

English

Caregiving impacts on unpaid informal carers’ health and well-being – a gender perspective: factsheet by WHO Europe

Policy Brief

23 May 2022

Journal article

UK

English

Understanding health trajectories among unpaid carers in the United Kingdom

Understanding health trajectories among unpaid carers in the United Kingdom: Propensity Score Matching to compare health outcomes of carers against non-carers and Latent Class Analysis to identify different typologies of unpaid carers. Cartagena Farias, Javiera and Brimblecombe, Nicola (2022) Understanding health trajectories among unpaid carers in the United Kingdom. Journal of Long-Term Care, 2022. 102 – 113. ISSN 2516-9122. […]

Journal article

05 Apr 2022

Journal article

Italy
Netherlands
Slovenia
Sweden
Switzerland
UK

English

The first cross-national study of adolescent young carers aged 15–17 in six European countries

Lewis, F. M., Becker, S., Parkhouse, T., Joseph, S., Hlebec, V., Mrzel, M., Brolin, R., Casu, G., Boccaletti, L., Santini, S., D’Amen, B., Socci, M., Hoefman, R., de Jong, N., Leu, A., Phelps, D., Guggiari, E., Magnusson, L., & Hanson, E. (2023). The first cross-national study of adolescent young carers aged 15–17 in six European […]

Journal article

01 Oct 2021

Report

UK

English

Caring from a distance: What can we learn from carers’ experiences of using new and familiar ways to stay in touch with family and friends in care homes during Covid-19?

White C., Wray J., Whitfield C., Wolverson E. (2021)   Caring from a distance: What can we learn from carers’ experiences of using new and familiar ways to stay in touch with family and friends in care homes during Covid-19? University of Hull https://www.hull.ac.uk/work-with-us/research/groups/docs/caring-from-a-distance-report.pdf 

Report

11 Mar 2021

Journal article

China

English

Income-Related Inequalities in Informal Care: Evidence From the Longitudinal Healthy Longevity Survey in China

Yixiao Wang, Wei Yang, Mauricio Avendano, Income-Related Inequalities in Informal Care: Evidence From the Longitudinal Healthy Longevity Survey in China, The Journals of Gerontology: Series B, Volume 76, Issue 8, October 2021, Pages 1691–1696, https://doi.org/10.1093/geronb/gbab043

Journal article

22 Feb 2021

Journal article

UK

English

Affects of policy design: The case of young carers in the Care Act 2014 and the Children and Families Act 2014

Alexander C. Affects of policy design: The case of young carers in the Care Act 2014 and the Children and Families Act 2014. Soc Policy Adm. 2021; 55: 968–980. https://doi.org/10.1111/spol.12692

Journal article

23 Sep 2020

Journal article

England (UK)
UK

English

The role of formal care services in supporting young people who provide unpaid care in England

Nicola Brimblecombe, Madeleine Stevens, Derek King & Martin Knapp (2022) The role of formal care services in supporting young people who provide unpaid care in England, Journal of Youth Studies, 25:1, 1-16, DOI: 10.1080/13676261.2020.1828848

Journal article

24 Aug 2020

Journal article

Europe

English

Short- and Medium-Term Effects of Informal Eldercare on Labor Market Outcomes

Heger, D., & Korfhage, T. (2020). Short- and Medium-Term Effects of Informal Eldercare on Labor Market Outcomes. Feminist Economics, 26(4), 205–227. https://doi.org/10.1080/13545701.2020.1786594

Journal article

05 Aug 2020

Journal article

England (UK)

English

The high cost of unpaid care by young people: health and economic impacts of providing unpaid care

Brimblecombe, N., Knapp, M., King, D., Stevens M. and Cartagena-Farias J.. The high cost of unpaid care by young people:health and economic impacts of providing unpaid care. BMC Public Health 20, 1115 (2020). https://doi.org/10.1186/s12889-020-09166-7

Journal article

20 May 2019

Journal article

International
UK

English

Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions

Joseph, S., Sempik, J., Leu, A. et al. Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions. Adolescent Res Rev 5, 77–89 (2020). https://doi.org/10.1007/s40894-019-00119-9

Journal article

29 Dec 2018

Journal article

China

English

Endogenous Living Arrangements and Health of Older Adults: Evidence from Instrumental Variable Estimation

This study aims to address the endogenous relationship between independent living arrangements (ILAs)  and health of older adults using an instrumental variable (IV) approach. Data were obtained from a cross-sectional survey of older adults in Xiamen, China. Weng, Chenziheng and Han, Yaofeng and Fang, Ya, Endogenous Living Arrangements and Health of Older Adults: Evidence from […]

Journal article

01 Sep 2018

Journal article

UK

English

Review of the international evidence on support for unpaid carers

Brimblecombe, N., Fernandez, J.-L., Knapp, M., Rehill, A. and Wittenberg, R., 2018. Review of the international evidence on support for unpaid carers. Journal of Long Term Care, 0(0), p.25-40.DOI: https://doi.org/10.31389/jltc.3

Journal article

26 May 2016

Journal article

International
UK

English

A cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’

Agnes Leu & Saul Becker (2017) A cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’, Journal of Youth Studies, 20:6, 750-762, DOI: 10.1080/13676261.2016.1260698

Journal article

20 Oct 2011

Journal article

Australia

English

From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications

Purcal, C., Hamilton, M., Thomson, C. and Cass, B. (2012), From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications. Social Policy & Administration, 46: 788-806. https://doi.org/10.1111/j.1467-9515.2011.00816.x

Journal article

No pub date set

Journal article

Ireland

English

Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment

Teahan Á, Walsh S, Doherty E, O’Shea E 2021. Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment. Social Science and Medicine, DOI: 10.1016/j.socscimed.2021.114359 

Journal article