Project Summary
The INTEREST Working group is led by Dr Louise Hopper (Dublin City University), consisting of international experts with interdisciplinary backgrounds. The primary research question is:
“How can we collaboratively influence the research agenda in Europe so that it prioritizes the investigation of multifaceted inequities leading to unmet needs among diverse populations living with dementia and their carers?”
The goal of INTEREST is to systematically examine these issues through the lens of social health and intersectionality, with an emphasis on the specific mechanisms of policy and tailored interventions including technology.
INTEREST is structured in several sub-groups working on:
- Reviewing unmet needs (Dr Wei Qi Koh, University of Queensland)
- Gaining understanding into effective interventions (Dr David Neal, Amsterdam University Medical Center)
- Exploring how technologies are tailored to needs (Prof Rose-Marie Droes, Amsterdam University Medical Center)
- Public involvement activities (Dr Ana Diaz, Alzheimer Europe, Luxembourg)
- Policy implications (Adelina Comas-Herrera, London School of Economics and Political Science)
- Communicating to/with various audiences (Dr Sara Laureen Bartels, Maastricht University).
These groups will collaborate with the framework sub-groups:
- Social Health and Intersectionality (Prof. Marjolein de Vugt, Maastricht University; Prof. Martina Roes, DZNE, Germany), and
- Inequality (Dr Clarissa Giebel, University of Liverpool)
Project Aims
The primary research question is:
“How can we collaboratively influence the research agenda in Europe so that it prioritizes the investigation of multifaceted inequities leading to unmet needs among diverse populations living with dementia and their carers?”
The goal of INTEREST is to systematically examine these issues through the lens of social health and intersectionality, with an emphasis on the specific mechanisms of policy and tailored interventions including technology.
Project Methods
- Review of reviews (unmet needs)
- Review of European guideline for practice (psychological and social interventions)
- Review of outputs and recommendations from previous networks focused on technology and dementia (INDUCT, DISTINCT)
- Public involvement (meetings with the European Working Group of People with Dementia and European Dementia Carers Working Group)
Utilizing the frameworks and concepts of social health, intersectionality, and inequity to extract and synthesize findings.
Project Findings / expected Findings
To be updated in 2025.
Outputs
Manuscripts are in preparations.
Kick-off of the project: