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Strengthening Dementia Care and Support in England: individual experiences of national policies and local care ecosystems (STRiDE England)

Strengthening Dementia Care and Support in England: individual experiences of national policies and local care ecosystems (STRiDE England)

Project website
Project status
Adelina Comas-Herrera
PI Name
Adelina Comas-Herrera
Host institution
Care Policy and Evaluation Centre, London School of Economics and Political Science (LSE)
Team members
LSE: Adelina Comas-Herrera, Chiara De Poli, Eva Cyhlarova, Jayeeta Rajagopalan, Martin Knapp, Michael Clark, Louis Compton, Naz Salehi Abigail D'souza (Newcastle University), Alistair Burns (University of Manchester), Andrew Kingston (Newcastle University), Bronte Heath (Alzheimer's Society), Carol Brayne (University of Cambridge), Clarissa Giebel (University of Liverpool), Erica Breuer, Gill Livingston (University College London), Louise Robinson (Newcastle University), Marie Poole (Newcastle University), Nicola Aldridge (Newcastle University), Philly Hare (Innovations in Dementia), Rachael Litherland (Innovations in Dementia), Sube Banerjee (University of Plymouth), Thomas Shakespeare (LSHTM)
Funded by
The STRiDE England study is funded by the National Institute for Health and Social Care Research (NIHR) Three Schools’ Dementia Research Programme.
Award Number
Project Summary

Aims: First, we want to understand how the way that dementia care is organised in England today affects the experiences of people living with dementia and their families, and also how this affects their health and well being. We are particularly interested in the experiences of some people who may have more difficulties in accessing and using dementia care, perhaps because they live in rural areas with few services or because of their ethnicity or religion. Second, we want to explore how dementia policies can be made better to improve the lives of people with dementia, their families and carers.

Methods: We will analyse the documents that describe how dementia care is organised in England and how it is supposed to be provided across the country. Then we will speak to people with dementia and carers in different parts of the country to find out about their experiences of getting support, care and treatment. We will also speak to people who work in giving care or who organise care and support services. As well as finding out about current experiences, we will also ask people with dementia, carers and professionals about their views on how the local care systems can be improved in the future. We will then bring together the information we have gathered about policies, what we have learned about the experiences of individuals with dementia and carers, and also the views of professionals. We will work together to produce a plan (a kind of roadmap) on how to improve care and support for people with dementia and carers by making recommendations for change at both local and national levels. We will also identify the areas where we need more research to find ways to improve care.

People with dementia, carers and professionals will advise the project at every stage, and some will also carry out some of the research work.

[Expected] Outputs

We will write up our findings and make them available to everyone who is interested. Our reports will be freely available through university websites and other forums. We will organise open webinars every 6 months to share findings from the project. We will also listen to people with dementia and carers to hear their suggestions for how we can share and discuss our findings in other ways.


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