Supporting Older People’s Moves Between Different Care Settings: A Scoping Review

Zhang, W., Greig, J., Darton, R., Saloniki, E.-C. and Towers, A.-M. (2024) ‘Supporting Older People’s Moves Between Different Care Settings: A Scoping Review’, Journal of Long Term Care, p. 476–488. Available at: https://doi.org/10.31389/jltc.338.

Financing and Provision of Long-Term Care in Europe: Reflections on Intergenerational Solidarity in Care for Older People

Simmons, C., Ilinca, S., Kadi, S. and Comas-Herrera, A. (2024), Financing and Provision of Long-Term Care in Europe: Reflections on Intergenerational Solidarity in Care for Older People. Soc Policy Adm. https://doi.org/10.1111/spol.13113

Determining the Cost-Effectiveness of Home Care: A Scoping Review

Gousia, K., Teo, H., Rand, S. and Vadean, F. (2024) ‘Determining the Cost-Effectiveness of Home Care: A Scoping Review’, Journal of Long Term Care, p. 446–463. Available at: https://doi.org/10.31389/jltc.314.

Comparing Different Implementation Strategies for Collaborative Dementia Care Management in Terms of Patients’ Characteristics, Unmet Needs, and the Impact on Quality of Life and Costs in Germany

Platen, M., Hoffmann, W. & Michalowsky, B. Comparing Different Implementation Strategies for Collaborative Dementia Care Management in Terms of Patients’ Characteristics, Unmet Needs, and the Impact on Quality of Life and Costs in Germany. PharmacoEconomics Open (2024). https://doi.org/10.1007/s41669-024-00548-w

Long-Term Care System Profile: Italy

Gubert E. and Perobelli E. (2024) Long-Term Care System Profile: Italy. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/italy/

Promoting quality management in long-term care: principles, key components and directions for policy action

Promoting quality management in long-term care: principles, key components and directions for policy action. Copenhagen: WHO Regional Office for Europe; 2024. Licence: CC BY-NC-SA 3.0 IGO

The Grant in Aid in South Africa: Support for Older Persons in Need of Care Report

Moore, Elena; Mbokazi, Nonzuzo; Megannon, Vayda; Samodien, Zeenat; Sass, Charis; Sidziya, Simamkele (2024). The Grant in Aid in South Africa: Support for Older Persons in Need of Care. University of Cape Town. Report. https://doi.org/10.25375/uct.27916545.v1

Addressing knowledge gaps in relation to the long-term care workforce

Pavolini, E. and Marlier, E. (2024). Addressing knowledge gaps in relation to the long-term care workforce. European Social Policy Analysis Network (ESPAN), Brussels: European Commission.

ECE Thematic Review 2022-2023: Application of EU labour law in the long-term care sector

European Centre of Expertise in the field of labour law, employment and labour market policies (ECE). (2024) ECE Thematic Review 2022-2023: Application of EU labour law in the long-term care sector. Directorate DG Employment, Social Affairs and Inclusion, European Commission, Brussels

Quality of life and associated characteristics in long-term care residents with advanced dementia in Macao: a cross-sectional study

Wu, J., Tam, K.I., Wang, H. et al. Quality of life and associated characteristics in long-term care residents with advanced dementia in Macao: a cross-sectional study. BMC Geriatr 24, 969 (2024). https://doi.org/10.1186/s12877-024-05466-4

Spousal Characteristics and Unmet Care Needs: A Longitudinal National Study of Adults Aged 50 and over in England

Zhang, J., Bennett, M., Zhang, Y. (2024) Spousal Characteristics and Unmet Care Needs: A Longitudinal National Study of Adults Aged 50 and over in England, Social Science & Medicine, 117530, ISSN 0277-9536, https://doi.org/10.1016/j.socscimed.2024.117530.

Long-term care system profile: Türkiye

Erdoğan C. and Akkan B. (2024) Long-Term Care System Profile: Türkiye. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/turkey/

State of long-term care in Ireland

World Health Organization. Regional Office for Europe. (‎2024)‎. State of long-term care in Ireland. World Health Organization. Regional Office for Europe. https://iris.who.int/handle/10665/378339. License: CC BY-NC-SA 3.0 IGO

State of long-term care in Greece

World Health Organization. Regional Office for Europe. (‎2024)‎. State of long-term care in Greece. World Health Organization. Regional Office for Europe. https://iris.who.int/handle/10665/378341. License: CC BY-NC-SA 3.0 IGO

State of long-term care: conceptual framework for assessment and continuous learning in long-term care systems

World Health Organization. Regional Office for Europe. (‎2024)‎. State of long-term care: conceptual framework for assessment and continuous learning in long-term care systems. World Health Organization. Regional Office for Europe. https://iris.who.int/handle/10665/378335.

State of long-term care in Lithuania

State of long-term care in Lithuania. Copenhagen: WHO Regional Office for Europe; 2024. Licence: CC BY-NC-SA 3.0 IGO.

What support do young carers find helpful?

Video: What support do young carers find helpful? Video summary of a research article, produced by the Care Policy and Evaluation Centre, London School of Economis and Political Science, with Sheffield Young Carers

A Qualitative Exploration of the Role of Culturally Relevant Social Prescribing in Supporting Pakistani Carers Living in the UK

McMullen, S., Poduval, S., Armstrong, M., Davies, N., Dayson, C., Kharicha, K., Nair, P., Mistry, M., Sajid, M., Walters, K. and Woodward, A. (2024), A Qualitative Exploration of the Role of Culturally Relevant Social Prescribing in Supporting Pakistani Carers Living in the UK. Health Expectations, 27: e70099. https://doi.org/10.1111/hex.70099

Developing the capability of the long-term workforce in aged care to implement best-practice in Australia

Age Care Research & Industry Innovation Australia (ARIIA), established in 2020, was founded in response to the Aged Care Workforce Strategy Taskforce report, A Matter of Care – Australia’s Aged Care Workforce Strategy in 2018. ARIIA’s mission is to unite researchers, end users, investors, and educators to translate research and technology into practical evidence-based solutions […]

Occupational Safety and Health in figures in the health and social sector

European Agency for Safety and Health at Work (2024) OSH in figures in the health and social care sector. Summary. EU-OSHA.

The Different Aspects of the Housing Quality of Older Adults: Which Criteria Should Be Prioritized?

Richard Sendi, Maša Filipovič Hrast, Ajda Šeme & Boštjan Kerbler (2024): The Different Aspects of the Housing Quality of Older Adults: Which Criteria Should Be Prioritized?, Journal of Aging & Social Policy, DOI: 10.1080/08959420.2024.2422668

Access for domestic workers to labour and social protection – Bosnia and Herzegovina

Obradović, N. (2024). Access for domestic workers to labour and social protection – Bosnia and Herzegovina. European Social Policy Analysis Network, Brussels: European Commission.

Defining Long-Term Care in European Union Countries: A Review of Policy Documents

Gonzalez-Aquines, A., Singh, S., Krol-Jankowska, A.G. and Koziel, A. (2024) ‘Defining Long-Term Care in European Union Countries: A Review of Policy Documents’, Journal of Long Term Care p. 414–423. Available at: https://doi.org/10.31389/jltc.333.

Implementing national care guidelines in Local Authorities in England and Wales: a Theory of Change

Bauer, A., Boaz, A., Breuer, E. et al. Implementing national care guidelines in local authorities in England and Wales: a theory-of-change. BMC Health Serv Res 24, 1224 (2024). https://doi.org/10.1186/s12913-024-11707-4

The roles of employment status and income in the mental health of informal caregivers in Germany

Scheuermann, JS., Pendergrass, A., Diehl, K. et al. The roles of employment status and income in the mental health of informal caregivers in Germany. BMC Public Health 24, 2802 (2024). https://doi.org/10.1186/s12889-024-20252-y

Understanding the unmet support needs of young and young adult carers and their families

Brimblecombe N, Stevens M, Gowen S, Skyer R, Moriarty J (2024) Understanding the unmet support needs of young and young adult carers and their families. PLoS ONE 19(9): e0310766. https://doi.org/10.1371/journal.pone.0310766

Unobtrusive Nighttime Movement Monitoring to Support Nursing Home Continence Care: Machine Learning Study

Strauven H, Wang C, Hallez H, Vanden Abeele V, Vanrumste B Unobtrusive Nighttime Movement Monitoring to Support Nursing Home Continence Care: Machine Learning Study JMIR Nursing. 23/09/2024:58094 (forthcoming/in press) DOI: 10.2196/58094 URL: https://preprints.jmir.org/preprint/58094

Watching care behind closed doors: upward and downward accountability mechanisms in nursing home services

Ixchel Pérez-Durán & Stephan Grimmelikhuijsen (16 Sep 2024): Watching care behind closed doors: upward and downward accountability mechanisms in nursing home services, Public Management Review,  https://doi.org/10.1080/14719037.2024.2402351

Performance Indicators for the Assessment of Aging-In-Place Reform Policies: A Scoping Review and Evidence Map

Wammes, J. D., Vullings, I., Kringos, D. S., Wouterse, B., Daams, J. G., Langendam, M., & MacNeil Vroomen, J. L. (2024). Performance Indicators for the Assessment of Aging-In-Place Reform Policies: A Scoping Review and Evidence Map. Journal of the American Medical Directors Association, 105249. Advance online publication. https://doi.org/10.1016/j.jamda.2024.105249

Long-Term Care Policy Update for Japan

By Ruru Ping and Nazak Salehi Japan’s Long-Term Care System: Innovations and Workforce Challenges In a Long-Term Care Policy Interest Group webinar, on the 26th February 2024, Ruru Ping from Hitotsubashi University shed light on the evolution and current state of Japan’s long-term care system. Established in 2000, this system aims to provide comprehensive support […]

Forecasting Informal care needs of the urban-rural older adults in China based on microsimulation model

Zhang, L., Shen, S., Zhang, W. et al. Forecasting Informal care needs of the urban-rural older adults in China based on microsimulation model. BMC Public Health 24, 2352 (2024). https://doi.org/10.1186/s12889-024-19747-5

Geographical location as a determinant of caregiver burden: a rural-urban analysis of the informal caregiving, health, and healthcare survey in Ghana

Agyemang-Duah, W., Rosenberg, M.W. Geographical location as a determinant of caregiver burden: a rural-urban analysis of the informal caregiving, health, and healthcare survey in Ghana. BMC Prim. Care 25, 317 (2024). https://doi.org/10.1186/s12875-024-02562-7

Time value of informal care of people with alzheimer’s disease in Spain: a population-based analysis

Vilaplana-Prieto. C., & Oliva-Moreno, J. (2024) Time value of informal care of people with alzheimer’s disease in Spain: a population-based analysis. https://doi.org/10.1007/s10198-024-01713-y

Unravelling hidden inequities in a universal public long-term care system

Vidiella-Martin, J., Hernández-Pizarro, H., García-Gómez, P., and López-Casasnovas, G. (2024) Unravelling hidden inequities in a universal public long-term care system, The Journal of the Economics of Ageing, Volume 29.https://doi.org/10.1016/j.jeoa.2024.100527.

Indoor Air Quality Assessments in 10 Long-Term Care Facilities During the COVID-19 Pandemic, California, 2021–2023

Kyle Peerless, Elon Ullman, Kristin J. Cummings, Juliet Stoltey, Erin Epson, Janice J. Kim, Jane D. Siegel, Indoor Air Quality Assessments in 10 Long-Term Care Facilities During the COVID-19 Pandemic, California, 2021–2023, Journal of the American Medical Directors Association, 2024, https://doi.org/10.1016/j.jamda.2024.105195.

Propensity Score Matching (PSM) methods

Mayorga, J. and Cartagena-Farias, J. (2024) Propensity Score Matching (PSM) methods. GOLTC Methods Guide series, 4. Global Observatory of Long-Term Care, Care Policy and Evaluation Centre, London School of Economics and Political Science. https://goltc.org/publications/propensity-score-matching-psm-methods/

Assessing social connection for long-term care home residents: Systematic review using COnsensus-based Standards for the selection of health Measurement INstruments guidelines

Dewan N, Sommerlad A, Chapman H, et al. Assessing social connection for long-term care home residents: Systematic review using COnsensus-based Standards for the selection of health Measurement INstruments guidelines. Alzheimer’s Dement. 2024; 10:e12492. https://doi.org/10.1002/trc2.12492

Assessing social connection for long-term care home residents: A scoping review of measure content

Liougas MP, Sommerlad A, O’Rourke HM, Chapman H, Dewan N, McGilton KS, Bethell J. Assessing social connection for long-term care home residents: A scoping review of measure content. Alzheimers Dement (N Y). 2024 Sep 23;10(3):e12488. doi: 10.1002/trc2.12488. PMID: 39315314; PMCID: PMC11418406.

Financial Health and Wellbeing of Unpaid Caregivers

Hayman, K., Kerse, N., Teh, R., Wiles, J., Hikaka, J., and Miskelly, P. (2024) Financial Health and Wellbeing of Unpaid Caregivers. Report prepared for the Ageing Well National Science Challenge. July.

Migrant Workers in the Care Sector

Reiko Ogawa, 2024, Migrant Workers in the Care Sector, Ed. Guglielmo Meardi, Research Handbook on Migration and Employment, Edward Elgar Publishing, pp168-181. https://doi.org/10.4337/9781839107245.00019    

Long-Term Care Policy Update for Sweden

By  Lennarth Johansson and Nazak Salehi Sweden’s Evolving Long-Term Care System: Governance, Challenges, and Innovations In a Long-Term Care Policy Interest Group webinar, on the 26th February 2024, Lennarth Johansson from Jönköping University discussed the current state and recent developments in Sweden’s long-term care (LTC) policy. This post provides a summary of the key points […]

Evaluating the association between receipt of a winter fuel cash transfer and older people’s care needs, quality of life, and housing quality: Evidence from England

Cartagena-Farias, J., Brimblecombe, N., and Knapp, M. (2024) Evaluating the association between receipt of a winter fuel cash transfer and older people’s care needs, quality of life, and housing quality: Evidence from England. Social Science & Medicine, Volume 355.

What determines informal care need among community-dwelling older adults in China? Results from a longitudinal study

Zhang, L., Shen, S., Zhang, W. et al. (2024) What determines informal care need among community-dwelling older adults in China? Results from a longitudinal study. BMC Geriatr 24, 597. https://doi.org/10.1186/s12877-024-04843-3

Motivators for family carers of persons with dementia in Kenya

Musyimi CW, Muyela LA, Ndetei DM, Thakya D, Mutiso VN, Mutunga E, Evans-Lacko S and Farina N. Motivators for family carers of persons with dementia in Kenya. Int J Geriatr Psychiatry. 2024;e6120. https://doi.org/10.1002/gps.6120

Longitudinal associations of loneliness and social isolation with care dependence among older adults in Latin America and China: A 10/66 dementia research group population-based cohort study

Gao, Q., Chua, K. C., Mayston, R., & Prina, M. (2024). Longitudinal associations of loneliness and social isolation with care dependence among older adults in Latin America and China: A 10/66 dementia research group population-based cohort study. International journal of geriatric psychiatry, 39(7), e6115. https://doi.org/10.1002/gps.6115

Did Avoiding Post-Acute Skilled Nursing Facility Care During the COVID-19 Pandemic Save Lives?

Norton, E.C., Raine, B.J. and Hassett, K.P. (2024) ‘Did Avoiding Post-Acute Skilled Nursing Facility Care During the COVID-19 Pandemic Save Lives?’, Journal of Long Term Care, p. 295–308. Available at: https://doi.org/10.31389/jltc.236.

Spain’s new National Strategy for a new model of care in the community: a de-institutionalization process

The Spanish congress approved a new National Strategy for a new model of care in the community 2024-2030 on the 18th June 2024. This post by Spain’s Ministry of Social Rights, Consumer Affairs and 2030 Agenda provides a brief overview of the Strategy’s objectives, the scope of the strategy, and the public participation process through which it […]

Long-term care system profile: Serbia

Todorović N. and Vračević M. (2024) Long-term care system profile: Serbia. Global Observatory of Long-Term Care, Care Policy and Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/serbia

Long-Term Care Financing lessons for Low- and Middle-Income Countries

By the World Health Organization’s Centre for Health Development Why Long-Term Care financing matters for Low- and Middle-Income Countries Long-term care (LTC) systems have received little to no attention in most low- and middle-income countries because population ageing is typically considered a challenge for high-income settings. But population ageing is also a pressing priority in Low- […]

Long-term care system profile: Ireland

Walsh B. and Connolly S. (2024) Long-term care system profile: Ireland. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/ireland

Predictors of the quality of the relationship between informal caregiver and care recipient in informal caregiving of older people: presentation and evaluation of a new item

Becker, L., Graessel, E. & Pendergrass, A. Predictors of the quality of the relationship between informal caregiver and care recipient in informal caregiving of older people: presentation and evaluation of a new item. BMC Psychol 12, 342 (2024). https://doi.org/10.1186/s40359-024-01840-4

Profil des Langzeitpflegesystems: Österreich

Famira-Mühlberger U. and Österle A. (2024) Profil des Langzeitpflegesystems: Österreich. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/osterreich/

Informal caregiving time and its monetary value in the context of older adults in Singapore

Nur Diyana Binte Azman, Abhijit Visaria, Veronica Shimin Goh, Truls Østbye, David Matchar, Rahul Malhotra (2004) Informal caregiving time and its monetary value in the context of older adults in Singapore. Aging and Health Research, 4 (2). https://doi.org/10.1016/j.ahr.2024.100193.

New agendas and old legacies? Comparing international organisations’ proposals on health and long-term care systems in Latin America

Sternkopf, M., de Carvalho, G., & Fischer, J. (2024). New agendas and old legacies? Comparing international organisations’ proposals on health and long-term care systems in Latin America. Global Social Policy, 0(0). https://doi.org/10.1177/14680181241254087

Theory of Change

Breuer, E. and Comas-Herrera, A.  (2024) Theory of Change. GOLTC Methods Guide series, 3. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/publications/theory-of-change

From Theory to Practice: Rethinking Health and Social Care Research Ethics in Action

By Chiara De Poli (Care Policy and Evaluation Centre, London School of Economics and Political Science) In this blog, Chiara De Poli, Research Officer at the Care Policy and Evaluation Centre based at the London School of Economics and Political Science (LSE), outlines key messages from a recent journal article in PLOS ONE on research […]

Supporting Meaningful Implementation and Evaluation of Strengths-Based Approaches in Adult Social Care: A Theory of Change for The Three Conversations

Madeleine Stevens, Michael Clark, Jessica Carlisle, Nicola Brimblecombe, Miranda MacGill, Supporting Meaningful Implementation and Evaluation of Strengths-Based Approaches in Adult Social Care: A Theory of Change for The Three Conversations, The British Journal of Social Work, 2024;, bcae055, https://doi.org/10.1093/bjsw/bcae055

Quality in care homes: How wearable devices and social network analysis might help

Thompson C, Gordon A, Khaliq K, Daffu-O’Reilly A, Willis T, et al. (2024) Quality in care homes: How wearable devices and social network analysis might help. PLOS ONE 19(5): e0302478. https://doi.org/10.1371/journal.pone.0302478

Rehabilitation Services for Young-Onset Dementia: Examples from High- and Low–Middle-Income Countries

Suárez-González A, Savage SA, Alladi S, Amaral-Carvalho V, Arshad F, Camino J, Caramelli P, Comas-Herrera A, Cook J, Cooper C, et al. Rehabilitation Services for Young-Onset Dementia: Examples from High- and Low–Middle-Income Countries. International Journal of Environmental Research and Public Health. 2024; 21(6):790. https://doi.org/10.3390/ijerph21060790

The Worldview-Open Society, the Worldview-Controlling State and Non-Profit Welfare Actors: Norway as a Case

Haugen, Hans Morten. “The Worldview-Open Society, the Worldview-Controlling State and Non-Profit Welfare Actors: Norway as a Case” Nonprofit Policy Forum, 2024. https://doi.org/10.1515/npf-2023-0076

Long-run consequences of informal elderly care and implications of public long-term care insurance

Thorben Korfhage, Björn Fischer-Weckemann, Long-run consequences of informal elderly care and implications of public long-term care insurance, Journal of Health Economics, Volume 96, 2024, https://doi.org/10.1016/j.jhealeco.2024.102884.

Informal and formal long-term care utilization and unmet needs in Europe: examining socioeconomic disparities and the role of social policies for older adults

Szenkurök, V., Weber, D. & Bilger, M. Informal and formal long-term care utilization and unmet needs in Europe: examining socioeconomic disparities and the role of social policies for older adults. Int J Health Econ Manag. (2024). https://doi.org/10.1007/s10754-024-09378-z

General and Substantive Accountability in Nursing Home Services: Assessing Messages from the Demand Side and the Supply Side

Pérez-Durán, I., & Hernández-Sánchez, A. (2024). General and Substantive Accountability in Nursing Home Services: Assessing Messages from the Demand Side and the Supply Side. Journal of Aging & Social Policy, 1–21. https://doi.org/10.1080/08959420.2024.2348964

Older Persons and Community Care in Namibia

Ananias, Janet; Moore, Elena (2024). Older Persons and Community Care in Namibia. University of Cape Town. Report. https://doi.org/10.25375/uct.25771332.v1

Relational solidarity and conflicting ethics in dementia care in urban India

Bianca Brijnath, Rachita Rao, Upasana Baruah, Josefine Antoniades, Santosh Loganathan, Mathew Varghese, Claudia Cooper, Mike Kent, Briony Dow, Relational solidarity and conflicting ethics in dementia care in urban India, The Journals of Gerontology: Series B, 2024;, gbae079, https://doi.org/10.1093/geronb/gbae079

Els drets de les persones en els entorns residencials de gent gran i de persones amb discapacitat: una reflexió a partir de la pandèmia de la COVID-19

Comitè de Bioètica de Catalunya i Comitè d’Ètica dels Serveis Socials de Catalunya (2024) Els drets de les persones en els entorns residencials de gent gran i de persones amb discapacitat: una reflexió a partir de la pandèmia de la COVID-19.

Nursing Home Characteristics and Resident Quality of Care Outcomes: A Scoping Review

Millar, R.J., Diehl, C., Blake, E., Fakeye, O. and Kusmaul, N. (2024) ‘Nursing Home Characteristics and Resident Quality of Care Outcomes: A Scoping Review’, Journal of Long Term Care, p. 171–186. Available at: https://doi.org/10.31389/jltc.235.

Wages and labour supply in the Adult Social Care sector

Vadean F., Allan S., Teo H. (2024) Wages and labour supply in the Adult Social Care sector. NIHR Policy Research Unit Adult Social Care (ASCRU). London School of Economics and Political Science and University of Kent.

Unpaid carers of people with dementia and information communication technology: Use, impact and ideas for the future

Damant J, Freddolino P, Dangoor M, Hu B, King D, Wittenberg R. Unpaid carers of people with dementia and information communication technology: Use, impact and ideas for the future. Dementia. 2024;23(5):779-799. doi:10.1177/14713012241249793

“I never planned for it”—Exploration of expectations about caring for older parents

De Poli, C., Wittenberg, R., Rehill, A., Stevens, M., & Brimblecombe, N. (2024). “I never planned for it”—Exploration of expectations about caring for older parents. Social Policy & Administration, 1–20. https://doi.org/10.1111/spol.13030

Unpaid caregiving and mental health during the COVID-19 pandemic—A systematic review of the quantitative literature

Ervin J, Fleitas Alfonzo L, Taouk Y, Maheen H, King T. Unpaid caregiving and mental health during the COVID-19 pandemic-A systematic review of the quantitative literature. PLoS One. 2024 Apr 18;19(4):e0297097. doi: 10.1371/journal.pone.0297097. PMID: 38635604; PMCID: PMC11025839.

Long-term care system profile: Finland

Forma L. and Leinonen E. (2024) Long-term care system profile: Finland. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/finland

‘Letting it be’: a grounded theory about dementia care in Fiji

Johnston, K., Qaloewai, S., Rasavuka, T., Preston, R., Strivens, E., & Larkins, S. (2024). ‘Letting it be’: a grounded theory about dementia care in Fiji. Aging & Mental Health, 1–11. https://doi.org/10.1080/13607863.2024.2340737

Costs of care trajectories of people with dementia compared with matched controls. Longitudinal analysis of linked health and administrative data

Bosmans JE, van der Heide I, van Hout HPJ, Joling KJ. Costs of care trajectories of people with dementia compared with matched controls. Longitudinal analysis of linked health and administrative data. Int J Geriatr Psychiatry. 2024 May;39(5):e6094. doi:

Critical Discourse Analysis (CDA)

Kendrick, H. and De-Poli, C. (2024) Critical Discourse Analysis (CDA). GOLTC Methods Guide series, 2. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/publications/critical-discourse-analysis-cda/

Long-Term Care System Profile: Austria

Famira-Mühlberger U. and Österle A. (2024) Long-Term Care System Profile: Austria. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/austria

Exploring a career pathway for home support workers in Ireland: a systematic scoping review of the international evidence

Morrow E, Kelly C, Killeen C, Naessens E and Lynch M (2024) Exploring a career pathway for home support workers in Ireland: a systematic scoping review of the international evidence. Front. Health Serv.4:1360920. doi: 10.3389/frhs.2024.1360920

Involuntary closures of for-profit care homes in England by the Care Quality Commission

Bach-Mortensen, A., Goodair, B., & Degli Esposti, M. (2024). Involuntary closures of for-profit care homes in England by the Care Quality Commission. The lancet. Healthy longevity, 5(4), e297–e302. https://doi.org/10.1016/S2666-7568(24)00008-4.

Long-Term Care System Profile: China (mainland)

Ping, R. and Hu, B. (2024) Long-term care system profile: mainland China. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/china-mainland/ 

Informal care and financial stress: Longitudinal evidence from Australia

Koomson, I., Lenzen, S., & Afoakwah, C. (2024). Informal care and financial stress: Longitudinal evidence from Australia. Stress and health : journal of the International Society for the Investigation of Stress, e3393. Advance online publication. https://doi.org/10.1002/smi.3393

Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing

Laurie E Davies, Gemma F Spiers, David R Sinclair, Andrew Kingston, Barbara Hanratty (2024) Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing, Age and Ageing, Volume 53, Issue 3, March, afae049, https://doi.org/10.1093/ageing/afae049

Il settore Long Term Care per anziani non autosufficienti in Italia: rete di welfare, «badantato», posizionamento strategico dei gestori

Notarnicola E. & Perobelli E. (2024), Il settore Long Term Care per anziani non autosufficienti in Italia: rete di welfare, «badantato», posizionamento strategico dei gestori, in: La sostenibilità del settore Long Term Care nel medio-lungo periodo: 6° Rapporto Osservatorio Long Term Care. Egea, 13-34.

The impact of reducing formal care benefits on caregivers’ well-being: evidence from Japan

Fu, R., Le, D.D. & Ibuka, Y. The impact of reducing formal care benefits on caregivers’ well-being: evidence from Japan. Rev Econ Household (2024). https://doi.org/10.1007/s11150-024-09699-5

Long-Term Care System Profile: Brazil

Wachholz P.A., Caldeira de Melo R., Fortes Villas Boas P.J., Accioly R.C. Domingues M., Giacomin K.C. (2024) Long-Term Care System Profile: Brazil. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/brazil

Examining the Impact of Long-Term Care Insurance on the Care Burden and Labor Market Participation of Informal Carers: A Quasi-Experimental Study in China

Xingtong Pei, Wei Yang, Mingming Xu, Examining the Impact of Long-Term Care Insurance on the Care Burden and Labor Market Participation of Informal Carers: A Quasi-Experimental Study in China, The Journals of Gerontology: Series B, Volume 79, Issue 5, May 2024, gbae023, https://doi.org/10.1093/geronb/gbae023

The impact of formal care provision on informal care receipt for people over 75 in England

Citation: Saloniki E-C, Nizalova O, Malisauskaite G, Forder J (2024) The impact of formal care provision on informal care receipt for people over 75 in England. PLoS ONE 19(2): e0297157. https://doi.org/10.1371/journal.pone.0297157

Prevalence of urinary incontinence and associated factors in nursing homes: a multicentre cross-sectional study

Prevalence of urinary incontinence and associated factors in nursing homes: a multicentre cross-sectional study. Javier Jerez-Roig; Meltem Yildirim; Anna Escribà-Salvans; Pau Moreno-Martin; Ester Goutan-Roura; Sandra Rierola-Fochs; Montse Romero-Mas; Joanne Booth; Dawn A Skelton; Maria Giné-Garriga; Eduard Minobes-Molina. BMC Geriatrics, 2024. https://bmcgeriatr.biomedcentral.com/articles/10.1186/s12877-024-04748-1

From Restricted Resources to Ethical Burden—Former Home Care Workers’ Reasons for Leaving Their Jobs

Ring, M., Ristolainen, H., & Tiilikainen, E. (2024). From Restricted Resources to Ethical Burden—Former Home Care Workers’ Reasons for Leaving Their Jobs. Journal of Applied Gerontology, 0(0). https://doi.org/10.1177/07334648241231404

Older Persons, Care Needs & Social Grants in South Africa Report

Moore, Elena (2024). Older Persons, Care Needs & Social Grants in South Africa Report. University of Cape Town. Report. https://doi.org/10.25375/uct.25195727.v1

Analysis of the impact of COVID-19 on Scotland’s care-homes from March 2020 to October 2021: national linked data cohort analysis

Jennifer Kirsty Burton, Megan McMinn, James E Vaughan, Glenna Nightingale, Jacques Fleuriot, Bruce Guthrie, Analysis of the impact of COVID-19 on Scotland’s care-homes from March 2020 to October 2021: national linked data cohort analysis, Age and Ageing, Volume 53, Issue 2, February 2024, afae015, https://doi.org/10.1093/ageing/afae015 Our member Jenni Burton, with colleagues from the University of Glasgow, Advanced […]

Programa Maior Cuidado: An Integrated Community-Based Intervention on Care for Older People

Lloyd-Sherlock P, Giacomin KC, Carvalho PF and Sempe L. (2024) Programa Maior Cuidado: An Integrated Community-Based Intervention on Care for Older People. Inter-American Development Bank, Social Protection and Health Division. VI Series.

Difference-in-Differences approach

Saluja, S. and Cartagena-Farias, J. (2024) Difference-in-Differences approach. GOLTC Methods Guide series, 1. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/publications/difference-in-differences-approach

The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands

Elayan, S., Angelini, V., Buskens, E. et al. The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands. Eur J Health Econ (2024). https://doi.org/10.1007/s10198-023-01666-8

Scaling-up an evidence-based intervention for family carers of people with dementia: Current and future costs and outcomes

Knapp M, Lorenz-Dant K, Walbaum M, Comas-Herrera A, Cyhlarova E, Livingston G and Wittenberg R. Scaling-up an evidence-based intervention for family carers of people with dementia: current and future costs and outcomes. Int J Geriatr Psychiatry. 2024;e6059. https://doi.org/10.1002/gps.6059

The impact of the implementation of a national policy on dementia on healthcare costs in older patients with dementia in Korea: a quasi-experimental difference-in-difference study

Choi, M., Kim, W., Moon, J.Y., Shin,J. (2024) The impact of the implementation of a national policy on dementia on healthcare costs in older patients with dementia in Korea: a quasi-experimental difference-in-difference study. The Lancet Regional Health – Western Pacific, Volume 44. https://doi.org/10.1016/j.lanwpc.2024.101010.

The association between loneliness, social isolation, and sleep disturbances in older adults: A follow-up study from the Swedish good aging in Skåne project

Ekström H, Svensson M, Elmståhl S, Wranker LS. The association between loneliness, social isolation, and sleep disturbances in older adults: A follow-up study from the Swedish good aging in Skåne project. SAGE Open Medicine. 2024;12. doi:10.1177/20503121231222823

Who cares about the carers? A call to action on behalf of mothers of disabled children

Pearson A (2024) Who cares about the carers? A call to action on behalf of mothers of disabled children. Front. Sociol. 8:1304676. doi: 10.3389/fsoc.2023.1304676

Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours

Elliott, J., Francetic, I., Meacock, R. et al. Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours. Appl Health Econ Health Policy (2024). https://doi.org/10.1007/s40258-023-00843-3

Environmental data monitoring and infection risks in UK care-homes in the context of COVID-19

Kishwer Abdul Khaliq, Sara Mohamad, Alexander J. Edwards, Catherine Noakes, Andrew H. Kemp, Carl Thompson, Grainne McGill, Tim Sharpe. Environmental data monitoring and infection risks in UK care-homes in the context of COVID-19, Building and Environment, 2024, 111174, ISSN 0360-1323, https://doi.org/10.1016/j.buildenv.2024.111174.

COVID-19 Mortality and the Structural Characteristics of Long-Term Care Facilities: Evidence from Sweden

Broms, R., Dahlström, C., Najar, J., & Nistotskaya, M. (2024). COVID-19 Mortality and the Structural Characteristics of Long-Term Care Facilities: Evidence from Sweden. Public Performance & Management Review, 47(2), 505–533. https://doi.org/10.1080/15309576.2023.2295282

Long-Term Care in Mexico: Identifying Challenges and Future Strategies

López-Ortega, M. Long-Term Care in Mexico: Identifying Challenges and Future Strategies, Public Policy & Aging Report, 2024;, prad037, https://doi.org/10.1093/ppar/prad037

Evaluation of the Impact of the Covid-19 Pandemic on People and Organisations in Long-Term Care Facilities of Catalonia and Proposals for Improving the Care Model: The Resicovid-19 Project

Amblàs-Novellas, J., Coll-Planas, L., Jerez-Roig, J., López, D., Martori, J.C., Ramon-Aribau, A., Comas-Herrera, A., Moreno-Martin, P., Solé-Casals, M., Máiz-Mazuela, C., Masó-Aguado, M. and Gómez-Batiste, X. (2024) ‘Evaluation of the Impact of the Covid-19 Pandemic on People and Organisations in Long-Term Care Facilities of Catalonia and Proposals for Improving the Care Model: The Resicovid-19 Project’, Journal […]

Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria

Juliet Chigozie Donatus Ezulike, Shiyu Lu, Marcus Yu Lung Chiu, Aging and Caring: Exploring Older Adults’ Motivation for Informal Caregiving to Other Aging Individuals in Nigeria, Innovation in Aging, Volume 8, Issue 4, 2024, igad140, https://doi.org/10.1093/geroni/igad140

COVID-19 and the Long-Term Care system in France

Oung, C., Sopadzhiyan, A. and Marczak, J. (2023) COVID-19 and the Long-Term Care system in France. In: Comas-Herrera A., Marczak J., Byrd W., Lorenz-Dant K., Pharoah D. (editors) LTCcovid International Living report on COVID-19 and Long-Term Care. LTCcovid, Care Policy and Evaluation Centre, London School of Economics and Political Science. https://doi.org/10.21953/lse.mlre15e0u6s6

COVID-19 and the Long-Term Care system in Japan

Estevez-Abe M., Ide H., Curry N., Hemmings N. and Comas-Herrera A. (2023) COVID-19 and the Long-Term Care system in Japan. In: Comas-Herrera A., Marczak J., Byrd W., Lorenz-Dant K., (editors) International living report on COVID-19 and Long-Term Care users and providers: context, impacts, measures and lessons learnt. LTCcovid, Care Policy and Evaluation Centre, London School of […]

Assessing the impact of caregiving for older parents on caregivers’ health: Initial health status and trajectories of physical and mental health among midlife caregivers for parents and parents-in-law in Britain

Zueras, P. & Grundy, E. (2023) Assessing the impact of caregiving for older parents on caregivers’ health: Initial health status and trajectories of physical and mental health among midlife caregivers for parents and parents-in-law in Britain, Social Science & Medicine. https://doi.org/10.1016/j.socscimed.2023.116537.

Research ethics and collaborative research in health and social care: Analysis of UK research ethics policies, scoping review of the literature, and focus group study

De Poli C, Oyebode J (2023) Research ethics and collaborative research in health and social care: Analysis of UK research ethics policies, scoping review of the literature, and focus group study. PLoS ONE 18(12): e0296223. https://doi.org/10.1371/journal.pone.0296223

The Economic Cost of Unpaid Care to the Public Finances: Inequalities in Welfare Benefits, Forgone Earnings-related Tax Revenue, and Health Service Utilisation.

Cartagena-Farias J, Brimblecombe N. The Economic Cost of Unpaid Care to the Public Finances: Inequalities in Welfare Benefits, Forgone Earnings-related Tax Revenue, and Health Service Utilisation. Social Policy and Society. 2023:1-15. doi:10.1017/S1474746423000477

Envejecimiento y bienestar: Una radiografía de las personas mayores

Oficina de Ciencia y Tecnología del Congreso de los Diputados (Oficina C). Informe C: Envejecimiento y bienestar. (2023) www.doi.org/10.57952/q3ze-2c39

Long-Term Care System Profile: Sweden

Johansson L. (2023) Long-Term Care System Profile: Sweden. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/sweden/

Projected costs of informal care for older people in England

Hu, B., Cartagena-Farias, J., Brimblecombe, N., Jadoolal S. and Wittenberg R. Projected costs of informal care for older people in England. European Journal of Health Economics (2023). https://doi.org/10.1007/s10198-023-01643-1

Effectiveness of an educational intervention to increase professional nurses’ person-centred care competence in long-term care of older people—Quasi-experimental study

Pakkonen, M., Stolt, M., Edvardsson, D., Charalambous, A., Pasanen, M., & Suhonen, R. (2023). Effectiveness of an educational intervention to increase professional nurses’ person-centred care competence in long-term care of older people-Quasi-experimental study. Scandinavian journal of caring sciences. https://doi.org/10.1111/scs.13230

Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment

Impacts of Home-Care Subsidies: Evidence from Quasi-Random Assignment. This study examines the effects of subsidising home-based long-term care on recipient health and their working-age children’s labor supply. It makes use of comprehensive administrative data from Israel’s Social Security Administration, encompassing welfare benefit applications from 2010 to 2015.   Ofek-Shanny, Yuval and Strulov-Shlain, Avner and Zeltzer, […]

Enabling health and maintaining independence for older people at home (HomeHealth trial): a multicentre randomised controlled trial

Enabling health and maintaining independence for older people at home (HomeHealth trial). HomeHealth is a new home-based, manualised voluntary sector service supporting older people with mild frailty to maintain their independence through behaviour change.   Frost, R., Avgerinou, C., Kalwarowsky, S., Mahmood, F., Goodman, C., Clegg, A., Hopkins, J., Gould, R., Gardner, B., Marston, L., […]

COVID-19 and the Long-Term Care system in Denmark

Rostgaard T., Marczak J. and Langins, M. (2023) COVID-19 and the Long-Term Care system in Denmark. In: Comas-Herrera A., Marczak J., Byrd W., Lorenz-Dant K., Pharoah D. (editors) LTCcovid International Living report on COVID-19 and Long-Term Care. LTCcovid, Care Policy and Evaluation Centre, London School of Economics and Political Science. https://doi.org/10.21953/lse.mlre15e0u6s6

COVID-19 and the Long-Term Care system in Poland

Marczak, J., Sowa-Kofta, A. (2023) COVID-19 and the Long-Term Care system in Poland. In: Comas-Herrera A., Marczak J., Byrd W., Lorenz-Dant K., Pharoah D. (editors) LTCcovid International Living report on COVID-19 and Long-Term Care. LTCcovid, Care Policy and Evaluation Centre, London School of Economics and Political Science. https://doi.org/10.21953/lse.mlre15e0u6s6

Canada’s Care Economy: A Conceptual Framework

Wray, D., Badets, J., Keating, N. and Fast, J. (2023) Canada’s Care Economy: a Conceptual Framework. Statistics Canada. https://www150.statcan.gc.ca/n1/pub/89-652-x/89-652-x2023002-eng.htm

Housing America’s Older Adults

Housing America’s Older Adults: Increased government support in the form of additional assistance for rent, accessibility modifications, and services and supports for older households with lower incomes could help alleviate the dual burden of housing and care costs. Better coordination of health and housing programs could help increase the efficiency of both.   Housing America’s […]

Country Differences in Long-Term Care Institutions: Towards a Care Regime Typology

Using Latent Profile Analyses to identify different typologies of care regimes. van Damme, Maike & Spijker, Jeroen, 2023. “Country Differences in Long-Term Care Institutions: Towards a Care Regime Typology,” OSF Preprints xcjaq, Center for Open Science. https://doi.org/10.31219/osf.io/xcjaq

Measuring social protection for Long-Term Care

Llena-Nozal A. and Killmeier K (2023) Measuring social protection for Long-Term Care. OEDCD Policy Brief. Mutual learning workshop on adequate social protection in long-term care. https://www.oecd.org/health/Measuring-social-protection-for-long-term-care-Brief.pdf

Caring For Carers?

Caring For Carers? The Effect of Public Subsidies on the Well-Being. Evaluating a Scottish reform using a differences-in-differences (DiD) approach. Joan Costa-Font, Francesco D’Amico and Cristina Vilaplana-Prieto, 2023. “Caring For Carers?,” American Journal of Health Economics, University of Chicago Press, vol. 9(4), pages 487-522. https://www.journals.uchicago.edu/doi/abs/10.1086/723539 

Mental and physical health changes around transitions into unpaid caregiving in the UK

Mental and physical health changes around transitions into unpaid caregiving in the UK: a longitudinal, propensity score analysis. Lacey, R., Xue, B., Di Gessa, G., Lu, W., McMunn, A. (2023) Mental and physical health changes around transitions into unpaid caregiving in the UK: a longitudinal, propensity score analysis. The Lancet Public Health. November https://www.thelancet.com/journals/lanpub/article/PIIS2468-2667(23)00206-2/fulltext

How can care home activities facilitate social connection in residents? A qualitative study

Misiak, M. M., Bethell, J., Chapman, H., & Sommerlad, A. (2024). How can care home activities facilitate social connection in residents? A qualitative study. Aging & Mental Health, 1–10. https://doi.org/10.1080/13607863.2024.2345130

Research in Dementia Map (RESIDE)

Research in dementia mapping (2023) RESIDE. Available at: https://dementiamap.uk/

Long-Term Care in Italy

Brugiavini A., Carrino L. and Pasini G. (2023) Long-Term Care in Italy. National Bureau of Economic Research Working paper 31861. DOI 10.3386/w31861

The Long-Term Impacts of an Integrated Care Programme on Hospital Utilisation among Older Adults in the South of England: A Synthetic Control Study

The Long-Term Impacts of an Integrated Care Programme on Hospital Utilisation among Older Adults in the South of England: A Synthetic Control Study. Seamer, P., Lloyd, T., Conti, S., & O’Neill, S. (2023). The Long-Term Impacts of an Integrated Care Programme on Hospital Utilisation among Older Adults in the South of England: A Synthetic Control […]

Long-Term Care of older persons and persons with disabilities in the Western Balkans

This report provides a comparative overview of the condition of long-term care systems in the Western Balkans and provides insights to develop recommendations to strengthen Long-Term Care in the Western Balkans. It was developed as part of a three-year programme in the Western Balkans region entitled “Strengthening the resilience of older people and people with […]

Investigating community-based care service factors delaying residential care home admission of community dwelling older adults and cost consequence

Jeon, Y. H., Simpson, J. M., Comans, T., Shin, M., Fethney, J., McKenzie, H., Crawford, T., Lang, C., & Inacio, M. (2023). Investigating community-based care service factors delaying residential care home admission of community dwelling older adults and cost consequence. Age and ageing, 52(10), afad195. https://doi.org/10.1093/ageing/afad195

The role of primary health care in long-term care facilities during the COVID-19 pandemic in 30 European countries: a retrospective descriptive study (Eurodata study)

Guisado-Clavero, M., Ares-Blanco, S., Serafini, A., Del Rio, L., Larrondo, I., Fitzgerald, L., . . . Gómez Bravo, R. (2023). The role of primary health care in long-term care facilities during the COVID-19 pandemic in 30 European countries: A retrospective descriptive study (Eurodata study). Primary Health Care Research & Development, 24, E60. doi:10.1017/S1463423623000312

Does informal care delay nursing home entry? Evidence from Dutch linked survey and administrative data

Does informal care delay nursing home entry? Evidence from the Netherlands using Propensity Score Matching.   Bergeot, J. & Tenand, M. (2023) Does informal care delay nursing home entry? Evidence from Dutch linked survey and administrative data, Journal of Health Economics, Volume 92, https://doi.org/10.1016/j.jhealeco.2023.102831.

Communicating the findings of long-term care research using interactive maps

Interactive maps can be a compelling and intuitive way to display geographic variation in your data. But presenting data visually means making choices. In long-term care, spending or demographic information is often reported at the administrative level. In this blog post Sam Rickman (Care Policy and Evaluation Centre, LSE) sets out practical ways to make […]

Potenzial für soziale Innovation in der Langzeitpflege

European Centre for Social Welfare Policy and Research (2023). Potenzial für soziale Innovation in der Langzeitpflege. InCARE Policy Brief No.8. Wien: European Centre. https://incare.euro.centre.org/wp-content/uploads/2024/01/InCARE-Policy-Brief-8_Potential-for-Social-Innovation-AT_final-_final-pdf.pdf

Perspectives on approaching pain management in patients with dementia

Attrill, L., & Schofield, P. (2024). Perspectives on approaching pain management in patients with dementia. Pain Management, 14(3), 153–161. https://doi.org/10.2217/pmt-2023-0095

Older Persons and Community Care in South Africa Report

This report provides evidence on how families interact with services, policies, and infrastructures of care at the community level. It presents four key areas of discussion which focussed on 1) experiences of family care, 2) challenges of family care, 3) support services available and 4)support services needed. The authors provide recommendations regarding adjustments to policies […]

Working future: The Australian Government’s White Paper on Jobs and Opportunities

Treasury (2023) Working future: The Australian Government’s White Paper on Jobs and Opportunities, final report. Australian Goverment

Funding Elder Care in South Africa Report

Report examining funding for care for older people in South Africa Moore, Elena; Kelly, Gabrielle (2023). Funding Elder Care in South Africa Report. University of Cape Town. Report. https://doi.org/10.25375/uct.24146772.v3  

Priorities for day centre support and research, and the importance of centralised supportive information for day centres and their stakeholders

Orellana, K., Samsi, K., Manthorpe, J., & Emmer De Albuquerque Green, C. (2023). Priorities for day centre support and research, and the importance of centralised supportive information for day centres and their stakeholders. International Journal of Care and Caring. https://doi.org/https://bristoluniversitypressdigital.com/view/journals/ijcc/aop/article-10.1332-239788221X16917415568825/article-10.1332-239788221X16917415568825.xml

Listening and learning: a qualitative study of Scottish care home staff experiences of managing COVID-19 between March 2020-August 2022

Burton, J.K., Drummond, M., Gallacher, K.I. et al. Listening and learning: a qualitative study of Scottish care home staff experiences of managing COVID-19 between March 2020-August 2022. BMC Geriatr 23, 544 (2023). https://doi.org/10.1186/s12877-023-04251-z 

Older People’s Health and Long-Term Care During COVID-19: Impacts and Policy Responses

Kim, H. (2023) Older People’s Health and Long-Term Care During COVID-19: Impacts and Policy Responses. Republic of Korea – World Bank Group Partnership On COVID-19 Preparedness and Response. https://openknowledge.worldbank.org/server/api/core/bitstreams/8e335a4e-df73-4f18-ae44-bbfef9e48a12/content 

The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia)

Bhatt, J., Brohan, E., Blasco, D., Oliveira, D., Bakolis, I., Comas-Herrera, A., D’Amico, F., Farina N., Knapp M., Stevens M., Thornicroft G., Wilson E., Salcher-Konrad M., Yang L.H and Evans-Lacko, S. (2023). The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia). BJPsych Open, 9(5), E164. doi:10.1192/bjo.2023.551

The Economics of Long-Term Care

Bell D.N.F. and Lemmon E. (2023) The Economics of Long-Term Care. Chapter in: Bloom, D.E., Sousa-Poza, A., & Sunde, U. (Eds.). (2023). The Routledge Handbook of the Economics of Ageing (1st ed.). Routledge. https://doi.org/10.4324/9781003150398

Medicaid Expansion and the Mental Health of Spousal Caregivers

Costa-Font, J., Raut, N. & Van Houtven, C.H. Medicaid Expansion and the Mental Health of Spousal Caregivers. Rev Econ Household (2023). https://doi.org/10.1007/s11150-023-09673-7

Emerging Health Technologies in Long-Term Care and Suppliers’ Views on Their Potential to Assist and Support the Workforce

Chapman SA, Miller JR, Spetz J. Emerging Health Technologies in Long-Term Care and Suppliers’ Views on Their Potential to Assist and Support the Workforce. Medical Care Research and Review. 2023;80(6):619-630. doi:10.1177/10775587231190127

Long-Term Care System Profile: Japan

Ping, R. and Oshio T. (2023) Long-Term Care System Profile: Japan. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/japan/

Unpaid Work In Nursing Homes: Flexible Boundaries (open access book)

Armstrong, P. (editor) (2023) Unpaid work in nursing homes: Flexible boundaries. S.l.: POLICY PRESS. https://policy.bristoluniversitypress.co.uk/unpaid-work-in-nursing-homes

Family spillovers and long-term care insurance

N.B. Coe, G. Goda, C.H. Van Houtven, Family spillovers and long-term care insurance, Journal of Health Economics, Volume 90, 2023, 102781, https://doi.org/10.1016/j.jhealeco.2023.102781.

How Stories Can Contribute Toward Quality Improvement in Long-Term Care

Katya Y J Sion, Marjolijn Heerings, Marije Blok, Aukelien Scheffelaar, Johanna M Huijg, Gerben Westerhof, Anne Margriet Pot, Katrien Luijkx, Jan P H Hamers, How Stories Can Contribute Toward Quality Improvement in Long-Term Care, The Gerontologist, Volume 64, Issue 4, April 2024, gnad084, https://doi.org/10.1093/geront/gnad084

Aromatherapy: Dementia care.

ARIIA Knowledge & Implementation Hub. Aromatherapy: Dementia care. Evidence Theme. Adelaide, SA: ARIIA; 2022 [updated 2023 Jul].- https://www.ariia.org.au/sites/default/files/2022-08/Dementia%20Care%20-%20Aromatherapy.pdf  

Dementia care: Rapid response teams

ARIIA Knowledge & Implementation Hub. Rapid response teams: Dementia care. Evidence Theme. Adelaide, SA: ARIIA; 2022 [updated 2023 Jul] https://www.ariia.org.au/sites/default/files/2022-08/Dementia%20Care%20-%20Rapid%20Response%20Teams.pdf

Incontinence 7th Edition

Cardozo, L, Rovner, E, Wagg, A, Wein, A, Abrams, P. (Eds) Incontinence 7th Edition (2023). ICI-ICS. International Continence Society, Bristol UK, ISBN: 978-0-9569607-4-0. https://www.ics.org/ici

“This Government is Failing Me Too” South Africa Compounds Legacy of Apartheid for Older People

Sleap, B. (2023, August 7). “This government is failing me too.” Human Rights Watch. https://www.hrw.org/report/2023/06/27/government-failing-me-too/south-africa-compounds-legacy-apartheid-older-people

Long-Term Care System Profile: Greece

Karagiannidou, M. (2023) Long-Term Care System Profile: Greece. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science. https://goltc.org/system-profile/greece/

Restrictions on Hospital Referrals from Long-Term Care Homes in Madrid and COVID-19 Mortality from March to June 2020: A Systematic Review of Studies Conducted in Spain

Zunzunegui MV, Béland F, García López FJ. Restrictions on Hospital Referrals from Long-Term Care Homes in Madrid and COVID-19 Mortality from March to June 2020: A Systematic Review of Studies Conducted in Spain. Epidemiologia. 2023; 4(2):176-187. https://doi.org/10.3390/epidemiologia4020019

Acute hospital use in older adults following the 2015 Dutch reform of long-term care: an interrupted time series analysis

Wammes, J., Bakx, P., Wouterse, B., Buurman, B., Murphy, T, & MacNeil Vroomen, J. (2023). Acute hospital use in older adults following the 2015 Dutch reform of long-term care: an interrupted time series analysis. The Lancet Health Longevity, 4(6), e257-e264.  

Hacia la personalización de los cuidados y los apoyos en el marco del sistema de atención a la dependencia

Comas, D, Sancho,M et al ( 2023). Hacia la personalización de los cuidados y los apoyos en el marco del sistema de atención a la dependencia. Zerbitzuan. nº 79.  https://www.zerbitzuan.net/documentos/zerbitzuan/Hacia_la_personalizacion_de_los_cuidados_apoyos_dependencia.pdf

Outcome measures from international older adult care home intervention research: a scoping review

Sarah Kelly, Andy Cowan, Gizdem Akdur, Lisa Irvine, Guy Peryer, Silje Welsh, Stacey Rand, Iain A Lang, Ann-Marie Towers, Karen Spilsbury, Anne Killett, Adam Lee Gordon, Barbara Hanratty, Liz Jones, Julienne Meyer, Claire Goodman, Jennifer Kirsty Burton, Outcome measures from international older adult care home intervention research: a scoping review, Age and Ageing, Volume 52, Issue […]

Long-Run Consequences of Informal Elderly Care and Implications of Public Long-Term Care Insurance

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Early onset of care needs in the older population: The protective role of housing conditions

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Family Caregivers in Israel: Analysis, Characterization, and Impact on the Labor Market

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COVID-19 and the Long-Term Care system in Germany

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Regional network-building for complexity: A region-oriented policy response to increasing and varied demands for older person care in the Netherlands

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Practical thematic analysis: a guide for multidisciplinary health services research teams engaging in qualitative analysis

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The DEEP-Ethics Gold Standards for Dementia Research

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Registered care home managers’ experiences of responding to the national care home visiting guidance in England during the Covid-19 pandemic; a multi-method qualitative study

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Technology and homecare in the UK: Policy, storylines and practice

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Covid-19 in the Community and Outbreaks in Long-Term Residential Care in Ireland

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Australian retirement village residents: wellbeing profiles and factors associated with low wellbeing

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Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen’s behavioural model of health services use: A qualitative study

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Social Inclusion of Older People in Türkiye

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The Impact of Wages on Care Home Quality in England

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Perceptions of community leaders about normative understandings of good family care of older people in rural and urban Zambia

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Family care of older people in Southern Africa. Special issue editorial

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Effects of a financial incentive scheme for dementia care on medical and long-term care expenditures: A propensity score–matched analysis using LIFE study data

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Situating masculinity, labour migration and care over the life course in Lesotho: foregrounding survivor bias in researching care

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Development of a long-term care economy in Gauteng, South Africa: towards decent work

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Equitable, sustainable and acceptable long-term care in Malawi? Unpacking the implied universalism of key terms in international ageing policy discourse

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Production of research in Southern Africa from a political ethics of care perspective: a scoping review and reflection

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Provider Ownership and Indicators of Service Quality: Evidence from Swedish Residential Care Homes

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Impacto económico de una implantación plena del Plan de Choque en Dependencia 2021-2023 en España

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Family care for older persons in South Africa: heterogeneity of the carer’s experience

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Evidence summary: Human factors associated with technology use in Aged Care

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Cohort Trajectories by Age and Gender for Informal Caregiving in Europe Adjusted for Sociodemographic Changes, 2004 and 2015

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COVID-19 and the Long-Term Care system in Italy

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The potential value of a geographic information system for public service planning for older people in the African region

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Don’t forget I’m human –reducing dementia stigma. The STRiDE Anti-Stigma Toolkit.

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Factors Affecting Long-Term Care Preferences in Turkey

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COVID-19 and the Long-Term Care system in Japan

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Factors associated with unmet need for support to maintain independence in later life: a systematic review of quantitative and qualitative evidence

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Effects of cost sharing on long-term care service utilization among home-dwelling older adults in Japan

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Global Report on Long-Term Care Financing

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The Course of Broken Dreams: The Expectations and Realities of the Life of Indonesian Nurses as Care Workers in Japan

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Providing long-term care: Options for a better workforce

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Do mobile hospital teams in residential aged care facilities increase health care efficiency: an evaluation of French residential care policy

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Long-term care social protection models in the EU

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Do Māori and Pacific Peoples Living with Dementia in New Zealand Receive Equitable Long-Term Care Compared with New Zealand Europeans?

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Dealing with drift: Comparing social care reform in the four nations of the UK

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The Global Demand for Migrant Care Workers: Drivers and Implications on Migrants’ Wellbeing

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The Economic Impact of Long-term Care Services

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Using Difference in Differences to evaluate vertical health and social care integration in Scotland

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Gender differences in access to community-based care: a longitudinal analysis of widowhood and living arrangements

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Making the Invisible Visible: The Pandemic and Migrant Care Work in Long-Term Care

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Reducing dementia-related stigma and discrimination among community health workers in Brazil: protocol for a randomised controlled feasibility trial

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Co-developing and contextualising long-term care innovations in Europe using Theory of Change: lessons from InCARE

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The Long-term Care System in Turkey

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Caregiving impacts on unpaid informal carers’ health and well-being – a gender perspective: factsheet by WHO Europe

Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study

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Factors associated with change over time in quality of life of people with dementia: longitudinal analyses from the MODEM cohort study

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Understanding health trajectories among unpaid carers in the United Kingdom

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Not Free at All: Home Care User Fees in a Nordic Care System

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Who Works Less when a Parent Needs Long-Term Care? Gender Disparities in Labor Market Effects in Mexico

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Rebuilding for sustainability and resilience: strengthening the integrated delivery of long-term care in the European Region

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The first cross-national study of adolescent young carers aged 15–17 in six European countries

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Long-Term Care in Turkey: Towards a Growing Crisis of Aged Care

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Institutional Business Power: The Case of Ireland’s Private Home Care Providers

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Austria’s Long-Term Care System: Challenges and Policy Responses

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Community-dwelling older adults and their informal carers call for more attention to psychosocial needs – Interview study on unmet care needs in three European countries

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Erfahrungen, Einstellungen und Erwartungen zur Langzeitpflege in Österreich

Social Long-Term Care Insurance: An Idea Travelling Between Countries?

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The effects of an innovative integrated care intervention in Brazil on local health service use by dependent older people

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A codesigned fit-for-purpose implementation framework for aged care

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Life Course Pathways Into Intergenerational Caregiving

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Risk Recognition Policies for the Long-Term Care Workforce during the First Year of the COVID-19 Pandemic: A Multi-Country Study

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Urinary incontinence and its association with physical and psycho-cognitive factors: a cross-sectional study in older people living in nursing homes

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The interface between primary care and care homes: General Practitioner experiences of working in care homes for older people

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Framework for countries to achieve an integrated continuum of long-term care

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Improving Long-Term Care Facilities’ Crisis Response: Lessons From the COVID-19 in Chile

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Extra Care Housing: The Current State of Research and Prospects for the Future

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What Long-Term Care Interventions and Policy Measures Have Been Studied During the Covid-19 Pandemic? Findings from a Rapid Mapping Review of the Scientific Evidence Published During 2020

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Methodological description of the mapping of Brazilian long-term care facilities for older adults

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Caring from a distance: What can we learn from carers’ experiences of using new and familiar ways to stay in touch with family and friends in care homes during Covid-19?

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From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis

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Unequal Conditions of Care and the Implications for Social Policies on Young Carers

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When Local Meets Global: The Changing Face of Old-Age Care in Japan

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Progress Toward Long-Term Care Protection in Latin America: A National Long-Term Care System in Costa Rica

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Building a strategic theory of change to address dementia care, treatment and support gaps

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Integrated Care in the Community: The Case of the Programa Maior Cuidado (Older Adult Care Programme) in Belo Horizonte-Minas Gerais, BRA

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Comparing long-term care systems: A multi-dimensional, actor-centred typology

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An Evidence Review of Ageing, Long-Term Care Provision and Funding Mechanisms in Turkey: Using Existing Evidence to Estimate Long-Term Care Cost

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Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: qualitative study

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Promoting Social Innovation in long-term care: A common narrative for change across Europe. InCARE Policy Brief no. 1

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Social Innovation in LTC in Europe: Towards a common narrative for change. InCARE Short Report No.1

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Perceptions and experiences of dementia and its care in rural Kenya

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Income-Related Inequalities in Informal Care: Evidence From the Longitudinal Healthy Longevity Survey in China

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Royal Commission into Aged Care Quality and Safety. Final report: Care, Dignity and Respect

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Affects of policy design: The case of young carers in the Care Act 2014 and the Children and Families Act 2014

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The risk protection and redistribution effects of long-term care co-payments

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Fractures in the Austrian Model of Long-Term Care: What are the Lessons from the First Wave of the COVID-19 Pandemic?

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Dem Schmerz auf der Spur

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Report describing experiences of high-income countries in financing long-term care, focusing on price setting and sharing experiences of how pricing is used to contribute to broader LTC policy objectives. Includes case studies on Australia, France, Germany, Japan, Republic of Korea, The Netherlands, Spain, Sweden and the United States of America. Barber SL, van Gool K, […]

Predictors of Aged Residential Care Placement in Patients Newly Diagnosed with Dementia at a New Zealand Memory Service

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The Long-Term Care System in Austria

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Unethical governance: capacity legislation and the exclusion of people diagnosed with dementias from research

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Quality of Life of Informal Caregivers behind the Scene of the COVID-19 Epidemic in Serbia

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Pain in Older Adults With Dementia: A Survey in Spain

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From Promoting Dignity to Installing Distrust: Understanding the Role of Continence Care Technology in Nursing Homes

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Long-term care system for older adults in China: policy landscape, challenges, and future prospects

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Pensions, consumption and health: evidence from rural South Africa

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Impact of COVID-19 Policy Responses on Live-In Care Workers in Austria, Germany, and Switzerland

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The role of formal care services in supporting young people who provide unpaid care in England

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Long-Term Care in Rural Alberta: Exploring Autonomy and Capacity for Action

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The high cost of unpaid care by young people: health and economic impacts of providing unpaid care

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COVID-19 and clients of long-term care in Finland – impact and measures to control the virus

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The COVID-19 Long-Term Care situation in Malta and Gozo

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Politiche di LTC e disuguaglianze nel caso italiano: evidenze empiriche e ipotesi di riforma

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Towards an Ambient Support System for Continence Management in Nursing Homes: An Exploratory Study

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An Initial Analysis of the Effects of a Long-Term Care Insurance on Equity and Efficiency: A Case Study of Qingdao City in China

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Caring in space: the boundaries between public and private spaces in Finnish adult foster care homes

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Care providers, access to care, and the Long-term Care Nursing Insurance in China: An agent-based simulation

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STRiDE Theory of Change Workshops: Guidance and Resources

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Meeting centres support programme highly appreciated by people with dementia and carers: a European cross-country evaluation

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Social Stratification of Migrant Care Workers in Japan

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The Living Lab In Ageing and Long-Term Care: A Sustainable Model for Translational Research Improving Quality of Life, Quality of Care and Quality of Work

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Care poverty: unmet care needs in a Nordic welfare state

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Toward a Fit-for-purpose Policy Architecture on Long-term Care in Sub-Saharan Africa: Impasse and a Research Agenda to Overcome it

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The Pain Assessment in Impaired Cognition scale (PAIC15): A multidisciplinary and international approach to develop and test a meta-tool for pain assessment in impaired cognition, especially dementia

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Pain Assessment in Impaired Cognition: Observer Agreement in a Long-Term Care Setting in Patients with Dementia

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“The Poor Carer”: Ambivalent Social Construction of the Home Care Worker in Elder Care Services

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Who to Talk to About my pain? A brief qualitative study on perception of pain and its management in swiss nursing home residents

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Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions

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Coverage Versus Generosity: Comparing Eligibility and Need Assessment in Six Cash‐for‐care Programmes

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Commodified care relations: Elderly people with disabilities and migrant care workers in Turkey

Akkan, B., & Serim, S. (2019). Commodified care relations: Elderly people with disabilities and migrant care workers in Turkey. Country report for the ETHOS Project. https://ethos-europe.eu/sites/default/files/5.3_turkey.pdf

Predicting continence decline in institutionalized older people: a longitudinal analysis

Jerez-Roig J, Moreira FSM, da Câmara SMA, Ferreira LMdBM, Lima KC. Predicting continence decline in institutionalized older people: A longitudinal analysis. Neurourology and Urodynamics. 2019; 38: 958–967. https://doi.org/10.1002/nau.23941

Current issues in long-term care policy and research: Toward the promotion of evidence-based policy (Japan)

Masui, H., Otaga, M., Moriyama, Y., & Matsushige, T. (2019). Current issues in long-term care policy and research: Toward the promotion of evidence-based policy. 保健医療科学,1: 34-44. https://www.niph.go.jp/journal/data/68-1/201968010006.pdf

Design and implementation of an unobtrusive sensor system to support incontinence care of elderly in nursing homes

T’Jonck, K., Strauven, H., Vankeirsbilck, J., Hallez, H., Boydens, J. (2019). Design and implementation of an unobtrusive sensor system to support incontinence care of elderly in nursing homes. In: XXVIII International Scientific Conference Electronics – ET2019, (Paper No. 1 – 4). Presented at the XXVIII International Scientific Conference Electronics – ET2019, Sozopol, Bulgaria, 12 Sep […]

Endogenous Living Arrangements and Health of Older Adults: Evidence from Instrumental Variable Estimation

This study aims to address the endogenous relationship between independent living arrangements (ILAs)  and health of older adults using an instrumental variable (IV) approach. Data were obtained from a cross-sectional survey of older adults in Xiamen, China. Weng, Chenziheng and Han, Yaofeng and Fang, Ya, Endogenous Living Arrangements and Health of Older Adults: Evidence from […]

Long-term care in Turkey: Challenges and opportunities

Oğlak, S. (2017). Long-term care in Turkey: Challenges and opportunities. In The Routledge Handbook of Social Care Work Around the World, pp.187-200. Routledge.

Economic evaluations in community aged care: a systematic review

Bulamu, N. B., Kaambwa, B., & Ratcliffe, J. (2018). Economic evaluations in community aged care: a systematic review. BMC health services research, 18(1), 967. https://doi.org/10.1186/s12913-018-3785-3

Options for aged care in China: Building an efficient and sustainable aged care system

Glinskaya E. Feng Z. Options for aged care in China: Building an efficient and sustainable aged care system. World Bank; 2018 . Available from: https://doi.org/10.1596/978-1-4648-1075-6

Review of the international evidence on support for unpaid carers

Brimblecombe, N., Fernandez, J.-L., Knapp, M., Rehill, A. and Wittenberg, R., 2018. Review of the international evidence on support for unpaid carers. Journal of Long Term Care, 0(0), p.25-40.DOI: https://doi.org/10.31389/jltc.3

Türkiye’de Yaşlılara Yönelik Hizmetler, Kurumsal Yaşlı Bakımı ve Kurumsal Yaşlı Bakımında İllerin Durumu.

Karakuş, B. (2018). Türkiye’de Yaşlılara Yönelik Hizmetler, Kurumsal Yaşlı Bakımı ve Kurumsal Yaşlı Bakımında İllerin Durumu. T.C. Aile ve Sosyal Politikalar Bakanlığı, Ankara.

Turkey’s social assistance regime in comparative perspective, history, administrative structure, programs and institutional characteristics

Öktem, K. G. (2018). Turkey’s social assistance regime in comparative perspective, history, administrative structure, programs and institutional characteristics. Working Paper, No.1, Blickwechsel: Contemporary Turkey Studies, Universitat Bielefeld.

Long-term care for older people in South Africa: the enduring legacies of apartheid and HIV/AIDS

P.Lloyd-Sherlock (2018) Long-term care for older people in South Africa: the enduring legacies of apartheid and HIV/AIDS. Journal of Social Policy 48, 1, 147–167 doi:10.1017/S0047279418000326

Pensions and low sodium salt: a qualitative evaluation of a new strategy for managing hypertension in rural South Africa

Lloyd-Sherlock P, Gomez-Olive F, Ngobeni S, Wagner R, Tollman S. (2018) Pensions and low sodium salt: a qualitative evaluation of a new strategy for managing hypertension in rural South Africa. Current Aging Science 11(2):140-146.doi: 10.2174/1874609811666180718114250

ESPN Thematic Report on Challenges in long-term care: Cyprus

Theodorou, M., Kantaris, M. and C. Koutsampelas (2018) ESPN Thematic Report on Challenges in long-term care – Cyprus. Directorate-General for Employment, Social Affairs and Inclusion, European Commission.

Gender, Care and Migration in East Asia

Eds. Reiko Ogawa, Chan, Raymond K. H., Oishi, Akiko S., Lih-Rong Wang, 2018, Gender, Care and Migration in East Asia, Palgrave Macmillan.

ESPN Thematic Report on Challenges in long-term care: Turkey

Adaman, F., Aslan, D., Erus, B., and Sayan, S. (2018). ESPN Thematic Report on Challenges in long-term care Turkey. Directorate-General for Employment, Social Affairs and Inclusion. Brussels: European Commission.

Pain Assessment in Impaired Cognition (PAIC): content validity of the Dutch version of a new and universal tool to measure pain in dementia

van Dalen-Kok, A. H., Achterberg, W. P., Rijkmans, W. E., Tukker-van Vuuren, S. A., Delwel, S., de Vet, H. C., Lobbezoo, F., de Waal, M. W. (2018). Pain Assessment in Impaired Cognition (PAIC): content validity of the Dutch version of a new and universal tool to measure pain in dementia. Clinical Interventions in Aging, 13, […]

Nordic eldercare – Weak universalism becoming weaker?

Szebehely, M., & Meagher, G. (2018). Nordic eldercare – Weak universalism becoming weaker? Journal of European Social Policy, 28(3), 294-308. https://doi.org/10.1177/0958928717735062

The politics of care in Turkey: Sacred familialism in a changing political context

Akkan, B. (2018). The politics of care in Turkey: Sacred familialism in a changing political context. Social Politics: International Studies in Gender, State & Society, 25(1), pp.72-91.

Türkiye’de Yaşlı Bakım Hizmetleri Raporu: Avrupa’dan En İyi Uygulama Örnekleri ve Türkiye İçin Bir Model Tasarımı.

Özmete, E. & Hussein, S. (2017). Türkiye’de Yaşlı Bakım Hizmetleri Raporu: Avrupa’dan En İyi Uygulama Örnekleri ve Türkiye İçin Bir Model Tasarımı. T.C. Aile ve Sosyal Politikalar Bakanlığı, T.C. Çalışma ve Sosyal Güvenlik Bakanlığı. Ankara.

‘Any one of us could be among that number’: Comparing the Policy Narratives for Individualized Disability Funding in Australia and England

Needham, C., and Dickinson, H. (2018) ‘Any one of us could be among that number’: Comparing the Policy Narratives for Individualized Disability Funding in Australia and England. Social Policy & Administration, 52: 731–749. doi: 10.1111/spol.12320.

Long-Term Care Organization and Financing

Freeman, Emily, Martin Knapp, and Ami Somani. 2017. “Long-Term Care Organization and Financing.” In International Encyclopedia of Public Health, edited by Stella R. Quah and William C. Cockerham. 2nd edition, 469–76. London: Academic Press

Long-Term Care Insurance System of Japan

Ministry of Health, Labour and Welfare, Japan. (2016). Long-term care insurance system of Japan. Available at: https://www.mhlw.go.jp/english/policy/care-welfare/care-welfare-elderly/dl/ltcisj_e.pdf (accessed 14 July 2023).

Varieties of familialism: Comparing four southern European and East Asian welfare regimes

Saraceno, C. (2016). Varieties of familialism: Comparing four southern European and East Asian welfare regimes. Journal of European Social Policy, 26(4), 314-326. https://doi.org/10.1177/0958928716657275

A cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’

Agnes Leu & Saul Becker (2017) A cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’, Journal of Youth Studies, 20:6, 750-762, DOI: 10.1080/13676261.2016.1260698

Long-Term Care Reforms in OECD Countries: Successes and Failure

Gori, Cristiano, José-Luis Fernández, and Raphael Wittenberg, eds. 2016. Long-Term Care Reforms in OECD Countries: Successes and Failures. Bristol: Policy Press.

Co-design and implementation research: challenges and solutions for ethics committees

Goodyear-Smith, F., Jackson, C., & Greenhalgh, T. (2015). Co-design and implementation research: challenges and solutions for ethics committees. In BMC Medical Ethics (Vol. 16, Issue 1, p. 78). BioMed Central. https://doi.org/10.1186/s12910-015-0072-2

Users of home-care services in a Nordic welfare state under marketisation: the rich, the poor and the sick

Mathew Puthenparambil, J., Kröger, T. and Van Aerschot, L. (2017), Users of home-care services in a Nordic welfare state under marketisation: the rich, the poor and the sick. Health Soc Care Community, 25: 54-64. https://doi.org/10.1111/hsc.12245

“There are no known benefits.”: Considering the risk/benefit ratio of qualitative research

Opsal, T., Wolgemuth, J., Cross, J., Kaanta, T., Dickmann, E., Colomer, S., & Erdil-Moody, Z. (2016). “There are no known benefits.”: Considering the risk/benefit ratio of qualitative research. Qualitative Health Research, 26(8), 1137–1150. https://doi.org/10.1177/1049732315580109

Long-Term Care Policies

Pavolini, Emmanuele, and Hildegard Theobald. 2015. “Long-Term Care Policies.” In The Palgrave International Handbook of Healthcare Policy and Governance, edited by Ellen Kuhlmann, Robert H. Blank, Ivy L. Bourgeault, and Claus Wendt, 462–78. London: Palgrave Macmillan.

An international road map to improve pain assessment in people with impaired cognition: the development of the Pain Assessment in Impaired Cognition (PAIC) meta-tool

Corbett, A., Achterberg, W., Husebo, B., Lobbezoo, F., de Vet, H., Kunz, M., Strand l, Constantinou M, Tudose C, Kappesser J, de Waal M & Lautenbacher S. (2014). An international road map to improve pain assessment in people with impaired cognition: the development of the Pain Assessment in Impaired Cognition (PAIC) meta-tool. BMC neurology, 14(1), […]

Prevalence of urinary incontinence and associated factors in nursing home residents

Jerez-Roig, J., Santos, M.M., Souza, D.L.B., Amaral, F.L.J.S. and Lima, K.C. (2016), Prevalence of urinary incontinence and associated factors in nursing home residents. Neurourol. Urodynam., 35: 102-107. https://doi.org/10.1002/nau.22675

Uzun Süreli Bakım Sistemleri ve Finansman Yöntemleri: Türkiye Açısından Değerlendirmeler.

Ayhan, B. (2014). Uzun Süreli Bakım Sistemleri ve Finansman Yöntemleri: Türkiye Açısından Değerlendirmeler. TC Aile ve Sosyal Politikalar Bakanlığı Engelli ve Yaşlı Hizmetleri Genel Müdürlüğü, Uzmanlık Tezi, Ankara. https://www.aile.gov.tr/media/2635/burcu_ayhan.pdf

When is a carer’s employment at risk? Longitudinal analysis of unpaid care and employment in midlife in England

King, D. and Pickard, L. (2013), When is a carer’s employment at risk? Longitudinal analysis of unpaid care and employment in midlife in England. Health & Social Care in the Community, 21: 303-314. https://doi.org/10.1111/hsc.12018

Making Sence of Differences – the Mixed Economy of Funding and Delivering Long-Term Care

Rodrigues, Ricardo, and Henk Nies. 2013. “Making Sence of Differences – the Mixed Economy of Funding and Delivering Long-Term Care.” In Long-Term Care in Europe: Improving Policy and Practice, edited by Kai Leichsenring, Jenny Billings, and Henk Nies, 191–212. Basingstoke: Palgrave Macmillan.

Outcomes of social care for adults: developing a preference weighted measure

Netten A, Burge P, Malley J, Potoglou D, Towers A. Outcomes of social care for adults: developing a preference weighted measure. Health Technol Assess 2012;16(16) https://doi.org/10.3310/hta16160

From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications

Purcal, C., Hamilton, M., Thomson, C. and Cass, B. (2012), From Assistance to Prevention: Categorizing Young Carer Support Services in Australia, and International Implications. Social Policy & Administration, 46: 788-806. https://doi.org/10.1111/j.1467-9515.2011.00816.x

Global perspectives on children’s unpaid caregiving in the family: Research and policy on ‘young carers’ in the UK, Australia, the USA and Sub-Saharan Africa

Becker, S. (2007). Global perspectives on children’s unpaid caregiving in the family: Research and policy on ‘young carers’ in the UK, Australia, the USA and Sub-Saharan Africa. Global social policy, 7(1), 23-50. https://journals.sagepub.com/doi/abs/10.1177/1468018107073892

Effect of the Meeting Centres Support Program on informal carers of people with dementia: Results from a multi-centre study

Dröes, R. M., Meiland, F. J. M., Schmitz, M. J., & van Tilburg, W. (2006). Effect of the Meeting Centres Support Program on informal carers of people with dementia: Results from a multi-centre study. Aging & Mental Health, 10(2), 112–124. https://doi.org/10.1080/13607860500310682

Making Migrant Care Workers in East Asia – Routledge Handbook of East Asian Gender Studies

Reiko Ogawa, 2020, Making Migrant Care Workers in East Asia, Eds. Jieyu Liu and Junko Yamashita, Routledge Handbook of East Asian Gender Studies, Routledge, pp123-143. https://www.routledge.com/Routledge-Handbook-of-East-Asian-Gender-Studies/Liu-Yamashita/p/book/9781032239354?srsltid=AfmBOoqi5_UJhfHEY4ql8c1KQaW5_pW5dEd6Tp-jcEo6tlL3-udkE807

Brazilian National Front for Strengthening Long-Term Care Facilities for Older People: history and activities

Horta NC, Boas PV, Carvalho AFS, Torres SVS, Campos GC, Angioletti AC, et al. Brazilian National Front for Strengthening Long-Term Care Facilities for Older People: history and activities. Geriatr Gerontol Aging. 2021;15:e0210064

COVID-19 and the Long-Term Care system in the Netherlands

Marczak J, Stekelenburg D, Nies H, Zonnenveld N, Kruse F and van Tol L. (2023) COVID-19 and the Long-Term Care system in the Netherlands In: Comas-Herrera A., Marczak J., Byrd W., Lorenz-Dant K., Pharoah D. (editors) LTCcovid International Living report on COVID-19 and Long-Term Care. LTCcovid, Care Policy and Evaluation Centre, London School of Economics and Political […]

Access for domestic workers to labour and social protection. An analysis of policies in 34 European countries

Ghailani, D., Marlier, E., Baptista, I., Deruelle, T., Duri, I., Guio, A.-C., Kominou, K., Perista, P. and Spasova, S. (2024). Access for domestic workers to labour and social protection: An analysis of policies in 34 European countries. European Social Policy Analysis Network (ESPAN), Luxembourg: Publications Office of the European Union.

Preferences of People 50 Years and Older when Thinking of their Future Care Needs

Walbaum, M., Knapp, M., Wittenberg, R. and Mcdermott, J. (2024) ‘Preferences of People 50 Years and Older when Thinking of their Future Care Needs’, Journal of Long Term Care, p. 42–53. Available at: https://doi.org/10.31389/jltc.200.

Technology in Aged Care resources

Resources on Technology in Aged care collated by the Aged Care Research & Industry Innovation Australia (ARIIA)’s Knowledge and Implementation Hub.

Shaping care home COVID-19 testing policy: a protocol for a pragmatic cluster randomised controlled trial of asymptomatic testing compared with standard care in care home staff (VIVALDI-CT)

Adams N, Stirrup O, Blackstone J, et al. Shaping care home COVID-19 testing policy: a protocol for a pragmatic cluster randomised controlled trial of asymptomatic testing compared with standard care in care home staff (VIVALDI-CT) BMJ Open 2023;13:e076210. doi: 10.1136/bmjopen-2023-076210

Long-Term Care System Profile: Costa Rica

Chaverri-Carvajal, A. and Obando Viquez, L. (2023) Long-Term Care System Profile: Costa Rica. Global Observatory of Long-Term Care, Care Policy & Evaluation Centre, London School of Economics and Political Science.https://goltc.org/system-profile/long-term-care-system-profile-costa-rica/ 

What are the factors associated with people with advanced dementia refusing assistance with personal care?

Backhouse T, Killett A, Mioshi E, Khondoker M. What are the factors associated with people with advanced dementia refusing assistance with personal care? Int J Geriatr Psychiatry. 2023;e5857. https://doi.org/10.1002/gps.5857

Inequalities in income security in later age in Latin America

Barrientos, A. (2021). Inequalities in income security in later age in Latin America. Pan American Journal of Public Health, 45. https://doi.org/10.26633/RPSP.2021.85

Poverty Transitions among Older Households in Brazil and South Africa

Barrientos, A., Mase, J. Poverty Transitions among Older Households in Brazil and South Africa. Eur J Dev Res 24, 570–588 (2012). https://doi.org/10.1057/ejdr.2012.13

Does formal home care reduce inpatient length of stay?

Walsh, B., Lyons, S., Smith, S., Wren, M.-A., Eighan, J. and Morgenroth, E. (2020), Does formal home care reduce inpatient length of stay?. Health Economics, 29: 1620-1636. https://doi.org/10.1002/hec.4158

Home care workers’ views of employment conditions: private for-profit vs public and non-profit providers in Ireland

O’Neill, N., Mercille, J. and Edwards, J. (2023), “Home care workers’ views of employment conditions: private for-profit vs public and non-profit providers in Ireland”, International Journal of Sociology and Social Policy, Vol. 43 No. 13/14, pp. 19-35. https://doi.org/10.1108/IJSSP-10-2022-0276

Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment

Teahan Á, Walsh S, Doherty E, O’Shea E 2021. Public preferences for services and supports aimed at Family Carers of People with Dementia: A Discrete Choice Experiment. Social Science and Medicine, DOI: 10.1016/j.socscimed.2021.114359 

Demand for the statutory home support scheme

Walsh B. and Lyons S. (2021) Demand for the Statutory Home Support Scheme. Dublin: Economic and Social Research Institute). Research series number 122.. Available online at: https://www.esri.ie/system/files/publications/RS122.pdf